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LisaA

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  1. Like
    LisaA reacted to Laurel in Newly diagnosed, awaiting PET scan   
    Do what you can to enjoy your birthday.  Take a walk, meditate....whatever to give your mind a rest. Waiting is so hard. Hugs.
  2. Like
    LisaA reacted to Roz in Newly diagnosed, awaiting PET scan   
    Lisa,
    Thinking of you as you wait for your results! 
    I agree with the Netflix recommendation-something to try to take your mind off of it!
     
    Ro
  3. Like
    LisaA reacted to Tom Galli in Newly diagnosed, awaiting PET scan   
    Lisa,
    I've never heard of "atypical cells" as a biopsy result. That could be most anything.  Waiting, as you are now well aware, is the worst part of this disease especially when in the diagnosis phase. I do hope you receive a more definitive result quickly. But, from my understanding of your situation, Lexie's characterization is correct. If the biopsy proves cancer, it is an early discovery and therefore there is a high probability that treatment will yield no evidence of disease (NED).
    Stay the course.
    Tom
  4. Like
    LisaA reacted to LexieCat in Newly diagnosed, awaiting PET scan   
    I'm sorry, Lisa.  And it sucks not to have something more definitive.
    Still, as I was saying, assuming that it's cancer, it looks to be a very early "catch" and there's a good chance that surgery will deal with it completely.  For most people, they don't have a clue they have cancer until it's so far advanced that the most that can be done is to try to stay ahead of it.  You've got a shot at knocking it out completely.  Try to focus on the "good news" aspect of this.  Right now, there's every reason to believe you will have a good outcome.
    Hang in there!
  5. Like
    LisaA reacted to Rower Michelle in Newly diagnosed, awaiting PET scan   
    Hold on tight Lisa. There’s still a lot to do before the final results come in.  Then the biomarker testing will be next if necessary We’ve all been through this-you can do it.  I treated myself to chocolate milkshakes during my “waiting days”.  Stay off the internet- it’s a scary place. Wait until you know more. Our prayers are with you.  
    Michelle
  6. Like
    LisaA got a reaction from Tom Galli in Newly diagnosed, awaiting PET scan   
    Love and thanks to everyone for the kind thoughts, prayers, messages. I really appreciate it.  This morning was the biopsy. I'm home now and feeling a little beat up, but overall as well as can be expected.  Now the waiting begins, at least 3 weekdays, up to 5 days for the results.  I don't know which is worse, knowing or not knowing.   My pet scan results also recommended an MRI due to sclerosis lesions of my iliacs, so that is scheduled for Thursday. I'm hoping that is likely due to a vitamin D deficiency that I had before.  
    So I'll be taking it easy the rest of the day and taking light walks through the house to keep things moving. Continued prayers and good thoughts are so appreciated. Thank you all for being here to talk to.
     
  7. Like
    LisaA reacted to Rower Michelle in Newly diagnosed, awaiting PET scan   
    Hi Lisa 
    Glad to hear the procedure went well. Try to kick back & relax.  This is what Netflix was invented for. 😊
    Michelle
  8. Like
    LisaA reacted to LexieCat in Newly diagnosed, awaiting PET scan   
    From what I understand, inflammation and other conditions can cause an elevated uptake.  Either way, it's good that it's not very high.  
    When can you have the biopsy done?
     
  9. Like
    LisaA reacted to Laurel in Newly diagnosed, awaiting PET scan   
    Waiting is so tough. Sending soft hugs and prayers.
  10. Like
    LisaA reacted to Steff in Newly diagnosed, awaiting PET scan   
    Lisa,
    Waiting is the worst. But in your case, a few more days and a few more tests may result in no cancer at all! The additional wait may well be worth it!  
  11. Like
    LisaA reacted to LexieCat in Newly diagnosed, awaiting PET scan   
    Sounds like good news, so far.  Yeah, under those circumstances a biopsy makes sense.  
    Agreed, the waiting for tests and to find out stuff is one of the most stressful aspects of this.  Hang in there.  Remember, even if the biopsy shows a malignancy, the surgery should be simple and it looks like there are no signs anything has spread.  All stuff to feel hopeful about.
    Oh, and I know what that traffic around Penn is like--it's one of the reasons I was happy to be on this side of the Delaware.  
  12. Like
    LisaA reacted to Clarrythand in Newly diagnosed, awaiting PET scan   
  13. Like
    LisaA reacted to Rower Michelle in Newly diagnosed, awaiting PET scan   
    Thinking about you & hope the appointment goes well tomorrow. 
    Michelle
  14. Like
    LisaA reacted to LaurenH in Newly diagnosed, awaiting PET scan   
    Hi, Lisa,
    We're thinking of you this week and hoping for good news! We're here for you.
    With gratitude,
    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation
  15. Like
    LisaA got a reaction from Tom Galli in Newly diagnosed, awaiting PET scan   
    What a stressful day yesterday was!  By the time I got home from a 2 hour drive from Philly in rush hour traffic I needed to eat and crawl into PJs.  The official reading of the PET/CT will be available today from the radiologist. A PA is supposed to call me with the those final results. However, the lung surgeon I saw yesterday did his own preliminary reading on the PET/CT though. He isn't convinced that it is actually malignant due to the borders of the 5cm mass (lobulated, not spiculated) and the way it "lit" up (weakly, not bright). He also sees a calcification within the mass. So instead of going right to surgery he now wants to have a biopsy done to see what we are dealing with and then make decisions.  The unknown is so unsettling! Especially during the holiday season when emotions are already riding high.   I must have cried a dozen times yesterday.  The good news is, there are no other lesions or affected lymph nodes no matter what the findings turn out to be. So I'm hanging onto that.
    Prayers and good thoughts this way please.
  16. Like
    LisaA reacted to Rower Michelle in Newly diagnosed, awaiting PET scan   
    We’re praying for you too!  
  17. Like
    LisaA reacted to LexieCat in Newly diagnosed, awaiting PET scan   
    Sending positive thoughts (or maybe that should be NEGATIVE thoughts in terms of biopsy results).  Just keep reminding yourself that whatever the result, you will be OK.  You caught it early, and that's more than half the battle.
  18. Like
    LisaA got a reaction from Tom Galli in Newly diagnosed, awaiting PET scan   
    I just got off the phone with UPenn. Biopsy next Friday 12/14 at 8am.   Prayers please!
  19. Like
    LisaA got a reaction from PaulaC in Newly diagnosed, awaiting PET scan   
    I just got off the phone with UPenn. Biopsy next Friday 12/14 at 8am.   Prayers please!
  20. Like
    LisaA reacted to Laurel in Newly diagnosed, awaiting PET scan   
    Continued prayers. Bless you.
  21. Like
    LisaA reacted to Roz in Newly diagnosed, awaiting PET scan   
    Lisa,
    Good luck on the 14th!!
    Will be thinking of you!!
     
    Ro
  22. Like
    LisaA got a reaction from Steff in Newly diagnosed, awaiting PET scan   
    I just got off the phone with UPenn. Biopsy next Friday 12/14 at 8am.   Prayers please!
  23. Like
    LisaA got a reaction from Susan Cornett in Newly diagnosed, awaiting PET scan   
    What a stressful day yesterday was!  By the time I got home from a 2 hour drive from Philly in rush hour traffic I needed to eat and crawl into PJs.  The official reading of the PET/CT will be available today from the radiologist. A PA is supposed to call me with the those final results. However, the lung surgeon I saw yesterday did his own preliminary reading on the PET/CT though. He isn't convinced that it is actually malignant due to the borders of the 5cm mass (lobulated, not spiculated) and the way it "lit" up (weakly, not bright). He also sees a calcification within the mass. So instead of going right to surgery he now wants to have a biopsy done to see what we are dealing with and then make decisions.  The unknown is so unsettling! Especially during the holiday season when emotions are already riding high.   I must have cried a dozen times yesterday.  The good news is, there are no other lesions or affected lymph nodes no matter what the findings turn out to be. So I'm hanging onto that.
    Prayers and good thoughts this way please.
  24. Like
    LisaA got a reaction from LexieCat in Lobectomy tomorrow -11/29/18   
    Prayers for you for fast healing. Stay strong and positive.
  25. Like
    LisaA reacted to LexieCat in Newly diagnosed, awaiting PET scan   
    Well, a biopsy probably isn't critical--with a mass that size, I imagine that makes it suspicious enough they would remove it regardless of what a biopsy might show.  My own nodule was quite small, but because it was "spiculated," it was considered suspicious enough to warrant surgical removal without further investigation.
    So I wouldn't worry if they don't do a biopsy first--I was just wondering if that was in the plan.
    Be sure to ask if you're a candidate for VATS (or the similar robotic) surgery--it is MUCH simpler, less painful, and results in a quicker recovery.  It can't always be done (depends on the size/location of the tumor), but if it can be, that's definitely what you want.
    Keep us posted!
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