Curt

@D iane here’s to a quick and successful two more cycles. Hang in there.

I’m hoping his cancer is gone too. 🙏.

I’m not sure I could even pronounce Thyroidectomy (Google auto corrected that). At least three pints. Anything less doesn’t seem appropriate. Good luck with your major “minor” surgery.

I created an ICID, in case I die, file for my wife in case I ever died unexpectedly. I updated it before I went in for my lobectomy surgery last year. It felt better knowing all of it was on paper and would make things easier if something ever happened to me. I have never been able to actually discuss it with her. That’s a whole other level I’ve not achieved. Hang in there Ken. Here’s to brighter days and another holiday.

I’m hoping for the best Ken. Hang in there!

I’m sorry to hear about the metastasis @D iane Having the disease in that many locations does complicate treatment. Have they done a biopsy yet? Finding out if he has any genetic markers can be a game changer with advanced lung cancer. There are some really encouraging treatments and results out there.

@D iane the journal is a great idea! Sounds like you are being a great support for your husband. Please be sure that you are also caring for yourself during this time. It’s very easy to forget that. Cancer treatment is a marathon and you’ll need to be healthy to be able to continue to be a support to him. It is very easy to get swept up in the patient/caregiver roles right now. Make some time to put that aside and be husband/wife. Both will be important to help you both through this. I hope he gets good PET scan results today.

Thank you for your service Tom.

I got the flu shot. I was warned I may feel some mild symptoms shortly after.

First I’d like to say that this topic and everyone on it is inspiring. 850+ posts and still going. You are all amazing! I read this article in the Times today. Seems relevant to @Rower Michelle post.https://www.nytimes.com/2019/10/24/well/eat/fiber-and-yogurt-tied-to-lower-lung-cancer-risk.html I dug a little deeper and found this article as well. https://www.medpagetoday.com/hematologyoncology/lungcancer/82933 I was briefly in to making my own Kefir. I may get back into it. It’s an amazing source of natural probiotics.

Katum I can’t offer any personal input on your questions. Others may be able to. I can tell you that cancer is an up and down battle. There will be times when things are going well and there will be others, like now, where it feels like everything is going wrong. That pendulum can swing very far in each direction pretty quickly. I don’t have any words of wisdom on how to manage that. Just know that we all go through it with this disease. I’m hoping things improve for your mom soon.

Hello. I am sorry to hear about your mom’s diagnosis. Lung cancer is a disease that grows quietly and is often discovered because of symptoms unrelated to the lungs. It is usually a huge shock. I am also a “mutant” with a Stage 1 NSCLC Adenocarcinoma with an EGFR Exon 19 deletion. Like Lexi mine was caught early enough and was able to be treated with surgery. I won’t have any follow up treatment. The EGFR exon 20 mutation is one of the rarer mutations. I do believe that the current TKI treatments, which Tagrisso is one, have been found to be ineffective with the exon 20 mutation. I do believe there is a new TKI drug being developed called TAS6417. This is all information you should consult with your doctor on. Like Michelle said, research and treatments are moving quickly. I found this link on TAS6417 https://www.biospace.com/article/releases/taiho-pharmaceutical-and-cullinan-oncology-establish-collaboration-to-develop-tas6417-novel-egfr-tyrosine-kinase-inhibitor/ I’m glad you found this site (but sorry you had to), check back with questions and updates when you need to.