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Curt

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  1. Like
    Curt reacted to Tom Galli in From Hope to Cure!   
    This is my first-string lung cancer team (on the left, Heather, RN, on the right Dr. H, MD, Hematologist and Oncologist). These two people have battled my lung cancer from diagnosis in February 2004 to today, more than seventeen years of intense engagement. Three things happened today: I was pronounced NED, Dr. H said CURE, and I was issued a new oncologist. My physician is retiring after 40 years of clinical practice.
    Of course I'm ecstatic! I'm over-the-moon. I'm eternally grateful for my team's skills, persistence, and tenaciousness. So this is it. I've gone from hope to CURE, and if I can do it, so can you!
    Stay the course.
    Tom
    PS--we all had two COVID vaccines and believed it worth unmasking to photograph this auspicious event.
     
     

  2. Like
    Curt reacted to Lisa Haines in Freshly diagnosed, not super excited about it   
    Dear Curry,
      My heart goes out to you and everyone who is diagnosed with Stage IV NSCLC (even hard to hear it in your case because you are so young).  Sadly, Lung Cancer can strike anyone at any age and more and more of the newly diagnosed patients are young and healthy with no know risk factors.   If you have lung you can get Lung Cancer.
      I can tell you that I am a Stage IV survivor and will be celebrating my 6th Cancerversary in March of 2021.  if you lock on my icon/name you can read my story.  I had a very grim outlook, but I'm doing well and as of my last scan I am now NED (No Evidence of Disease) which I something we ALL hope for.
      I wish you the very best as you move forward in your treatment plan.   I do know folks who go to Moffit and are very happy, but I know folks to love their local cancer centers too.  You have to find the right fit for you.
     I also agree that the most important thing will be to keep ANY health coverage and to avoid any gaps in coverage.  As already stated, IF you go apply for SSDI (Social Security Disability Insurance), it takes 2 full years before you become eligible for Medicare "A" and at that point, you'd still need to pick up Medicare "B" a MediGap plan and a Prescription Drug plan and IF you end up on 'targeted therapy" it can BE very expensive so a top plan is vital.  Also keep in mind that many of the drug manufacturers do offer discounts to cancer patients for their particular medication if you meet their guidelines.  You'll need to have more testing before you know if you might be a candidate for that type of treatment.
    I wish you the very best !   
        Lisa
  3. Like
    Curt reacted to Susan Cornett in Almost Two Year Check Up   
    Yay Curt!! Wonderful news!
  4. Like
    Curt reacted to Deb W in Almost Two Year Check Up   
    So very happy for you, Curt.
    Deb
  5. Like
    Curt reacted to LouT in Almost Two Year Check Up   
    Curt,
    I couldn't be happier for you.  You were one of the key people that managed to keep my feet on the ground and showed me how to get through the diagnosis, surgery and recovery.  Have a great holiday and keep the NED coming.
    Lou
  6. Like
    Curt got a reaction from catlady91 in Almost Two Year Check Up   
    Still NED! I am 22 months out from surgery. The doctor said the next scan will be a CT scan with contrast in six months. If all goes well with that one it will be 12 month follow ups going forward.  
     
    I get this weird spasm sometimes when I try to awkwardly reach for something or scratch a hard to reach past do my back.  The surgeon explained I have a hernia where the incision was made and sometimes the lung can get caught in there and it can feel like a spasm. His demonstrating how it happens with his hands just about made me puke. He said it can be fixed with a surgery but he doesn’t recommend it. All things considered I’ll figure out how to deal with such a small thing.  
  7. Like
    Curt got a reaction from LouT in Communicating with your healthcare team   
    Yea, I’d be looking for another pulmonologist.  
  8. Like
    Curt got a reaction from Claudia in New to the forum, nervous   
    Conor hearing you have a mass on your lung is very scary. Take it one step at a time.  Mass doesn’t  mean malignancy.  While doctors can make well educated guesses based on scans an actual diagnosis can’t be had until a biopsy is done. The advice that Gary and Michelle are giving is good. When they do the biopsy insist on their doing biomarker testing. If it is in fact cancer the results of the biomarker test will drive treatment options. Let’s hope the masses are benign, but know that if they are malignant there are ever improving treatments available.  Hang in there.  
  9. Like
    Curt got a reaction from Susan Cornett in Almost Two Year Check Up   
    Still NED! I am 22 months out from surgery. The doctor said the next scan will be a CT scan with contrast in six months. If all goes well with that one it will be 12 month follow ups going forward.  
     
    I get this weird spasm sometimes when I try to awkwardly reach for something or scratch a hard to reach past do my back.  The surgeon explained I have a hernia where the incision was made and sometimes the lung can get caught in there and it can feel like a spasm. His demonstrating how it happens with his hands just about made me puke. He said it can be fixed with a surgery but he doesn’t recommend it. All things considered I’ll figure out how to deal with such a small thing.  
  10. Like
    Curt got a reaction from ChiMama in Almost Two Year Check Up   
    Still NED! I am 22 months out from surgery. The doctor said the next scan will be a CT scan with contrast in six months. If all goes well with that one it will be 12 month follow ups going forward.  
     
    I get this weird spasm sometimes when I try to awkwardly reach for something or scratch a hard to reach past do my back.  The surgeon explained I have a hernia where the incision was made and sometimes the lung can get caught in there and it can feel like a spasm. His demonstrating how it happens with his hands just about made me puke. He said it can be fixed with a surgery but he doesn’t recommend it. All things considered I’ll figure out how to deal with such a small thing.  
  11. Like
    Curt got a reaction from Deb W in Almost Two Year Check Up   
    Still NED! I am 22 months out from surgery. The doctor said the next scan will be a CT scan with contrast in six months. If all goes well with that one it will be 12 month follow ups going forward.  
     
    I get this weird spasm sometimes when I try to awkwardly reach for something or scratch a hard to reach past do my back.  The surgeon explained I have a hernia where the incision was made and sometimes the lung can get caught in there and it can feel like a spasm. His demonstrating how it happens with his hands just about made me puke. He said it can be fixed with a surgery but he doesn’t recommend it. All things considered I’ll figure out how to deal with such a small thing.  
  12. Like
    Curt got a reaction from Jennedy in Almost Two Year Check Up   
    Still NED! I am 22 months out from surgery. The doctor said the next scan will be a CT scan with contrast in six months. If all goes well with that one it will be 12 month follow ups going forward.  
     
    I get this weird spasm sometimes when I try to awkwardly reach for something or scratch a hard to reach past do my back.  The surgeon explained I have a hernia where the incision was made and sometimes the lung can get caught in there and it can feel like a spasm. His demonstrating how it happens with his hands just about made me puke. He said it can be fixed with a surgery but he doesn’t recommend it. All things considered I’ll figure out how to deal with such a small thing.  
  13. Like
    Curt got a reaction from Lisa L in Almost Two Year Check Up   
    Still NED! I am 22 months out from surgery. The doctor said the next scan will be a CT scan with contrast in six months. If all goes well with that one it will be 12 month follow ups going forward.  
     
    I get this weird spasm sometimes when I try to awkwardly reach for something or scratch a hard to reach past do my back.  The surgeon explained I have a hernia where the incision was made and sometimes the lung can get caught in there and it can feel like a spasm. His demonstrating how it happens with his hands just about made me puke. He said it can be fixed with a surgery but he doesn’t recommend it. All things considered I’ll figure out how to deal with such a small thing.  
  14. Like
    Curt reacted to SamGirl50 in Almost Two Year Check Up   
    Congrats!
     
  15. Like
    Curt reacted to Tom Galli in Almost Two Year Check Up   
    Curt,
    NED is neat! So very happy to learn of your good news. Sorry for the hernia complication but in comparison to lung cancer, a hernia is small potatoes.
    Stay the course.
    Tom
  16. Like
    Curt reacted to GaryG in Almost Two Year Check Up   
    Great to know Curt. No better holiday present than N.E.D. Hopefully your spasm gets resolved soon. Enjoy your holidays!
  17. Like
    Curt reacted to TJM in Almost Two Year Check Up   
    Awesome early Christmas present! Congrats my freind.  Hope you have a Merry Christmas, I'm sure you will.
    Peace
    Tom
  18. Like
    Curt reacted to BridgetO in Almost Two Year Check Up   
    hi Curt, The only thing better than NED is still NED! Yay!
    Bridget O
     
  19. Like
    Curt reacted to Rower Michelle in Almost Two Year Check Up   
    That’s great news going into the holidays Curt!   So happy to hear your update!!!
  20. Like
    Curt got a reaction from GaryG in Almost Two Year Check Up   
    Still NED! I am 22 months out from surgery. The doctor said the next scan will be a CT scan with contrast in six months. If all goes well with that one it will be 12 month follow ups going forward.  
     
    I get this weird spasm sometimes when I try to awkwardly reach for something or scratch a hard to reach past do my back.  The surgeon explained I have a hernia where the incision was made and sometimes the lung can get caught in there and it can feel like a spasm. His demonstrating how it happens with his hands just about made me puke. He said it can be fixed with a surgery but he doesn’t recommend it. All things considered I’ll figure out how to deal with such a small thing.  
  21. Haha
    Curt got a reaction from TJM in Almost Two Year Check Up   
    Still NED! I am 22 months out from surgery. The doctor said the next scan will be a CT scan with contrast in six months. If all goes well with that one it will be 12 month follow ups going forward.  
     
    I get this weird spasm sometimes when I try to awkwardly reach for something or scratch a hard to reach past do my back.  The surgeon explained I have a hernia where the incision was made and sometimes the lung can get caught in there and it can feel like a spasm. His demonstrating how it happens with his hands just about made me puke. He said it can be fixed with a surgery but he doesn’t recommend it. All things considered I’ll figure out how to deal with such a small thing.  
  22. Like
    Curt got a reaction from Tom Galli in Almost Two Year Check Up   
    Still NED! I am 22 months out from surgery. The doctor said the next scan will be a CT scan with contrast in six months. If all goes well with that one it will be 12 month follow ups going forward.  
     
    I get this weird spasm sometimes when I try to awkwardly reach for something or scratch a hard to reach past do my back.  The surgeon explained I have a hernia where the incision was made and sometimes the lung can get caught in there and it can feel like a spasm. His demonstrating how it happens with his hands just about made me puke. He said it can be fixed with a surgery but he doesn’t recommend it. All things considered I’ll figure out how to deal with such a small thing.  
  23. Like
    Curt got a reaction from Susan Cornett in Amazon Smile 😃   
    I just revived an email that Lungevity received $801.89 from Amazon Smile.  To date Lungevity has received $8,906.55 from Amazon smile.  Amazon will donate .5% of all purchases to a charity of your choice.  You just visit http://smile.Amazon.com and setup which charities you want to receive the donation. It does not cost you anything.  I shared this with friends on social media and many have chosen Lungevity.   
  24. Like
    Curt reacted to hollylee34 in New here, not yet diagnosed but confused/ concerned   
    I’m in recovery and it’s mostly going smoothly. I’ll be wearing a mini chest pump for a few days but it’s fine. Pathology is back early as well and it was a strange but benign finding of “infarcted fat”. I want to thank everyone for all your great advice, including the surgical recovery tips, and wish each of you the best on your cancer survivor journeys. ❤️❤️❤️ 
  25. Like
    Curt got a reaction from LouT in Amazon Smile 😃   
    I just revived an email that Lungevity received $801.89 from Amazon Smile.  To date Lungevity has received $8,906.55 from Amazon smile.  Amazon will donate .5% of all purchases to a charity of your choice.  You just visit http://smile.Amazon.com and setup which charities you want to receive the donation. It does not cost you anything.  I shared this with friends on social media and many have chosen Lungevity.   
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