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Curt

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  1. Like
    Curt got a reaction from LexieCat in Not great news on PET CT   
    Hang in there Lexi.  You’ve done it before.  You can do it again.  
  2. Like
    Curt reacted to jack14 in CT scan results   
    Well, I saw my Onc today and got the results of yesterdays CT scan. She had told me last week that she was not very optimistic that the Keytruda was working for me. She based that on the one lymph node that she can palpate which didn't feel as though it had shrank any, but had maybe even grown some.
    She added that we would probably be switching to chemo therapy a day or so after the scan.
    I had my first taste of "scanziety" and I sure didn't like it.
    So, I get my blood drawn for my tri-weekly labs and vitals taken. And she walks in the room and, we are both wearing masks so I can't see her expression. Her eyes seemed to shine though and I was hopeful.
    She sits down in front of me and says, "I have some good news", and tells me that the scan showed moderate but definite tumor regression in the primary lung nodule and in the two lymph nodes. So, we will continue with the Keytruda regimen.
    whew.....thank you God. Please project this blesswing to my cancer brothers and sisters as well.
    amen
  3. Like
    Curt got a reaction from TJM in What was your very first symtom of lung cancer?   
    Coughing up blood is not usually a symptom of a lifting injury.  You could cough up blood if you had a more traumatic injury to your lungs like dropping a box on your chest.   It could also be a symptom of plenty of ailments, cancer being one of them.  It’s worth getting it checked out for sure.   
  4. Sad
    Curt got a reaction from ChiMama in LC Mistaken for COVID   
    I spoke to one of my long time clients a couple of months ago during the peak of the COVID pandemic in NY.  She was having an issue in her home that I helped her with it via Facetime.  At the time she said that she believed that both her and her husband had COVID.  They were both in their 70's and I was concerned for them.   She said they were not feeling well, had symptoms of COVID but hadn't been tested.  At the time in NY the common practice was if you exhibited symptoms you were assumed to be positive (testing was hard to come by) and asked to quarantine.  Her symptoms didn't improve for over a month.  She finally convinced her doctor to see her.  It turned out the symptoms were from very advanced lung cancer.  She passed this past Sunday. She was a really kind and generous person. I was not terribly close to her but her passing really hit me kind of hard.  I really hate this disease.  I also hate how difficult COVID is making getting treatment for it for some.   
  5. Like
    Curt got a reaction from Tom Galli in Back to the drawing board...   
    Sorry to hear this Lexi.  2020 does feel like it is piling on.  You were a terrific resource for me when I was approaching my lobectomy.  I can’t thank you enough for that.  You’ve got this.  
  6. Like
    Curt got a reaction from LexieCat in Back to the drawing board...   
    Sorry to hear this Lexi.  2020 does feel like it is piling on.  You were a terrific resource for me when I was approaching my lobectomy.  I can’t thank you enough for that.  You’ve got this.  
  7. Sad
    Curt got a reaction from TJM in LC Mistaken for COVID   
    I spoke to one of my long time clients a couple of months ago during the peak of the COVID pandemic in NY.  She was having an issue in her home that I helped her with it via Facetime.  At the time she said that she believed that both her and her husband had COVID.  They were both in their 70's and I was concerned for them.   She said they were not feeling well, had symptoms of COVID but hadn't been tested.  At the time in NY the common practice was if you exhibited symptoms you were assumed to be positive (testing was hard to come by) and asked to quarantine.  Her symptoms didn't improve for over a month.  She finally convinced her doctor to see her.  It turned out the symptoms were from very advanced lung cancer.  She passed this past Sunday. She was a really kind and generous person. I was not terribly close to her but her passing really hit me kind of hard.  I really hate this disease.  I also hate how difficult COVID is making getting treatment for it for some.   
  8. Like
    Curt got a reaction from LouT in Newly diagnosed - NSCLC - questions about surgical options   
    Hi @ChiMama.  I had none robotic VATs in February 2019.  The surgery was not as bad as I imagined it would be and I've made a full recovery with no follow up treatment.  My lung capacity returned to pre-surgery levels.  I have some residual discomfort, similar to what you describe from your biopsy, but it is manageable and still decreasing.  You've gotten great advice from Lou and some others.  You will do great.    
  9. Sad
    Curt got a reaction from Tom Galli in LC Mistaken for COVID   
    I spoke to one of my long time clients a couple of months ago during the peak of the COVID pandemic in NY.  She was having an issue in her home that I helped her with it via Facetime.  At the time she said that she believed that both her and her husband had COVID.  They were both in their 70's and I was concerned for them.   She said they were not feeling well, had symptoms of COVID but hadn't been tested.  At the time in NY the common practice was if you exhibited symptoms you were assumed to be positive (testing was hard to come by) and asked to quarantine.  Her symptoms didn't improve for over a month.  She finally convinced her doctor to see her.  It turned out the symptoms were from very advanced lung cancer.  She passed this past Sunday. She was a really kind and generous person. I was not terribly close to her but her passing really hit me kind of hard.  I really hate this disease.  I also hate how difficult COVID is making getting treatment for it for some.   
  10. Like
    Curt got a reaction from Lisa L in Nodule Update   
    That’s great news Lisa.  
  11. Like
    Curt reacted to Tbaker in Saw doctor Thursday   
    I saw my oncologist Thursday. I was told that within 2 weeks another scan and if everything looks good then one more chemo treatment and afterwards I'll be on immunotherapy (Keytruda ) he seems happy with how well I'm doing with my treatment. 
  12. Like
    Curt reacted to Lisa L in Nodule Update   
    Hey guys, had my 4th Ct scan a couple of days ago and had a video call with my pulmonologist this morning.  I have been dealing with this 9mm nodule for a year and a half and the good news is it has stayed the same, no growth.  My doc is leaning toward a scar but with my smoking history I will have another scan in 6 months and if that one is also good it’s really up to me what I do going forward.  I expressed that I would just prefer to get a scan once a year probably for the rest of my life just to be safe and he totally agreed.  With that said I always check in and see how all my friends are doing.  Big thank you to Michelle, Patty, Curt, and Tom for checking on me  and I will continue to post updates because I hope my story gives people hope just like all of your stories did for me, until next time!  Love and light ❤️
  13. Like
    Curt reacted to Claudia in My way to say thank you   
    Hi Everyone!
    It has been a few months since I have stopped in to see how y"all were doing in these crazy, scary times. I hope you are all staying safe and not taking any undue chances. I know I'm very nervous about going out anywhere. I haven't been out of the house other than going to the doctor's office for my Keytruda every 3 weeks for months.  I've been watching LOTS of TV and doing a lot of yoga as I am not only a yogi but I'm a yoga teacher and had been teaching for over 10 years when I got my diagnosis. 
    A quick story of my stage 4 lung cancer is it was caught in pre-ops for an upcoming shoulder replacement surgery in January 2019. I was in shock and petrified as most people are when first diagnosed. The universe sent me to this website where people like Tom, Rower Michele and so many others treated me with kindness but also with truth. Yes, I was scared but I was told not to freak out, try to think positive thoughts and as Tom signs off "stay the course" (maybe the best advice I ever got). Chemo was hard but it took 85% of my cancer away. That's about a year ago and I have been on only Keytruda ever since. I had a PET scan in January 2020 that showed the "nodule" that was left in my lung had grown slightly and the SUV went up a few ticks. My oncologist (the best EVER) sent me for SBRT radiation treatment in hopes of, in dr's words, "zapping it." I went for 5 treatments and it was easy peasy. My favorite of treatment of all  I have been put through.
    Now, the wait. I had to wait 3 months before I could have another scan which I had in the middle of the whole Covid thing. The results were great. My oncologist was thrilled. The nodule was zapped and although there is still something (like a smushed up thing) there my oncologist thinks that my next scan will be really really good. I'm not out of the woods yet. I guess I'll never be but my hopes are high. I hope not too high.
    As I said before I am a yoga teacher but I was down to teaching one class a week because of not knowing how I would feel from day to day,  the extreme fatigue from the Keytruda and of course my mind telling me I wasn't really a teacher I was really Cancer Girl. Once Covid hit I started taking online yoga classes and I realized that online classes could be something that I could do. I wouldn't have to leave my house and even if I was tired I could make it though teaching an hour and 15 minute class. It actually takes my mind off it. So  I decided to give it a try.
    I contacted some of my old students and I started teaching 3 Zoom classes a week. 2 gentle mat yoga classes and one chair yoga class. I started classes up at the beginning of June and have been shocked at the attendance by my old students. They were thrilled to have me back. So, here is the reason for this whole long story. I will be making a donation to LUNGevity monthly from my yoga classes. As of today this month's donation will be $50-$100 based on student attendance.I will make this donation after the 1st of every month. 
    You guys and gals have helped me so much I can't even tell you and I know I haven't contributed much to the website. Now I can pay you back for all you have done and continue to do for me. Thank you all for how much you have helped me along this journey. I love you all and my hopes for you are good scans, a long happy life and much peace and light in your lives. 
    Namaste, Claudia
  14. Like
    Curt reacted to BridgetO in One Year Lobectomy Follow Up   
    Wow, you're fortunate to have a pool!  I' expecting that the indoor one I go to will be closed for months yet.
  15. Like
    Curt got a reaction from TJM in One Year Lobectomy Follow Up   
    I had my one year (a few months added due to COVID closures in NY).  All clear!   Since this was almost a year and a half check up the doctor schedule a follow up in six months.  After that it is yearly.   The pains in my side are a lot less and a lot less frequent.  It is still numb to the touch but that is subsiding, or I am getting use to it.  Breathing is completely normal.  I did ten laps in the pool yesterday without any issue.   
    I’ve been completely consumed by work and trying to navigate my company through these last few months.  I’m working like I did when I first started the company 15 years ago.  I think of everyone here often And hope you are all doing well.  I’m hoping I can get back to being more active soon.  Until then...
  16. Like
    Curt reacted to Deb W in One Year Lobectomy Follow Up   
    Curt,
    I am so very  happy for you.  Keep up with fitness and your hard work ethic!
    Deb
  17. Like
    Curt got a reaction from Deb W in One Year Lobectomy Follow Up   
    I had my one year (a few months added due to COVID closures in NY).  All clear!   Since this was almost a year and a half check up the doctor schedule a follow up in six months.  After that it is yearly.   The pains in my side are a lot less and a lot less frequent.  It is still numb to the touch but that is subsiding, or I am getting use to it.  Breathing is completely normal.  I did ten laps in the pool yesterday without any issue.   
    I’ve been completely consumed by work and trying to navigate my company through these last few months.  I’m working like I did when I first started the company 15 years ago.  I think of everyone here often And hope you are all doing well.  I’m hoping I can get back to being more active soon.  Until then...
  18. Like
    Curt got a reaction from LouT in One Year Lobectomy Follow Up   
    @Rower Michelle start up mode is a good way of putting it.  I think I’ll share that with my employees.  Many of them were not around for that phase.     
     
    NY has been hit pretty hard.  My surgeon yesterday said he has postponed all but the most urgent surgeries.  Most appointments were cancelled over the last three months and he’s only been doing tele conferences.  They turned a wing of Sloan into a COVID wing, which is thankfully emptying.  There was a COVID drive through testing site in the parking lot, which was empty.  The waiting room, which is normally very full, was empty.  The surgeon said most people still aren’t comfortable going for their appointments.  The risks of COVID are high for those  battling cancer.  I hope the risks from delaying treatments doesn’t turn out to be worse.  
  19. Like
    Curt reacted to LouT in One Year Lobectomy Follow Up   
    Curt,
    TEN LAPS!!!  Now that's knocking it out of the park.  I'm glad to hear about how well you're doing and everything is clear.  Keep on the good track and continue to take care of yourself.  I know how stressful corporate life can be so don't let it consume you.  

    Lou
  20. Like
    Curt reacted to Tom Galli in One Year Lobectomy Follow Up   
    Curt,
    Wonderful news. Ten laps in the pool is indeed a mighty achievement for a lung cancer survivor. I encourage you to move on with your life but do abide by your scheduled checkups. Our disease is notorious for recurrences.
    Stay the course.
    Tom
  21. Like
    Curt got a reaction from ChiMama in One Year Lobectomy Follow Up   
    I had my one year (a few months added due to COVID closures in NY).  All clear!   Since this was almost a year and a half check up the doctor schedule a follow up in six months.  After that it is yearly.   The pains in my side are a lot less and a lot less frequent.  It is still numb to the touch but that is subsiding, or I am getting use to it.  Breathing is completely normal.  I did ten laps in the pool yesterday without any issue.   
    I’ve been completely consumed by work and trying to navigate my company through these last few months.  I’m working like I did when I first started the company 15 years ago.  I think of everyone here often And hope you are all doing well.  I’m hoping I can get back to being more active soon.  Until then...
  22. Like
    Curt got a reaction from Lin wilki in One Year Lobectomy Follow Up   
    I had my one year (a few months added due to COVID closures in NY).  All clear!   Since this was almost a year and a half check up the doctor schedule a follow up in six months.  After that it is yearly.   The pains in my side are a lot less and a lot less frequent.  It is still numb to the touch but that is subsiding, or I am getting use to it.  Breathing is completely normal.  I did ten laps in the pool yesterday without any issue.   
    I’ve been completely consumed by work and trying to navigate my company through these last few months.  I’m working like I did when I first started the company 15 years ago.  I think of everyone here often And hope you are all doing well.  I’m hoping I can get back to being more active soon.  Until then...
  23. Like
    Curt got a reaction from PaulaC in One Year Lobectomy Follow Up   
    I had my one year (a few months added due to COVID closures in NY).  All clear!   Since this was almost a year and a half check up the doctor schedule a follow up in six months.  After that it is yearly.   The pains in my side are a lot less and a lot less frequent.  It is still numb to the touch but that is subsiding, or I am getting use to it.  Breathing is completely normal.  I did ten laps in the pool yesterday without any issue.   
    I’ve been completely consumed by work and trying to navigate my company through these last few months.  I’m working like I did when I first started the company 15 years ago.  I think of everyone here often And hope you are all doing well.  I’m hoping I can get back to being more active soon.  Until then...
  24. Like
    Curt got a reaction from MarieE in One Year Lobectomy Follow Up   
    I had my one year (a few months added due to COVID closures in NY).  All clear!   Since this was almost a year and a half check up the doctor schedule a follow up in six months.  After that it is yearly.   The pains in my side are a lot less and a lot less frequent.  It is still numb to the touch but that is subsiding, or I am getting use to it.  Breathing is completely normal.  I did ten laps in the pool yesterday without any issue.   
    I’ve been completely consumed by work and trying to navigate my company through these last few months.  I’m working like I did when I first started the company 15 years ago.  I think of everyone here often And hope you are all doing well.  I’m hoping I can get back to being more active soon.  Until then...
  25. Like
    Curt got a reaction from MBinOregon in One Year Lobectomy Follow Up   
    I had my one year (a few months added due to COVID closures in NY).  All clear!   Since this was almost a year and a half check up the doctor schedule a follow up in six months.  After that it is yearly.   The pains in my side are a lot less and a lot less frequent.  It is still numb to the touch but that is subsiding, or I am getting use to it.  Breathing is completely normal.  I did ten laps in the pool yesterday without any issue.   
    I’ve been completely consumed by work and trying to navigate my company through these last few months.  I’m working like I did when I first started the company 15 years ago.  I think of everyone here often And hope you are all doing well.  I’m hoping I can get back to being more active soon.  Until then...
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