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Curt

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  1. Like
    Curt reacted to Barb1260 in Durvalumab   
    Merry Christmas and happy new year to my fellow Durvas. May 2020 bring us all to NED if not there already!!!  🎄
  2. Like
    Curt reacted to Roz in Happy Holidays   
    Wishing everyone a happy holiday season and a new year filled with good health!!
     
    Best, 
    Ro
  3. Like
    Curt got a reaction from Susanrae in Happy Holidays to all!   
    Holidays bring an equal amount of joy and sorrow.  For some more of one than the other.  It can be a tough time of year for some.  I hope yours is filled with mostly Joy.    
  4. Like
    Curt reacted to Rower Michelle in Happy Holidays to all!   
    Hi Barb-
    You’ve come to the right place for a boost!  I remember what you were going through last year and how you’re in a much better place today.   One of the things I really appreciate about our family here is the HOPE from the long term survivors.   The grit and grace in the face of adversity. Who knew getting out of bed could be so hard on some days?  Those are the days I think of @LouT out there power walking, @Curtgetting excited about power washing his deck or the other Jersey Girl @Opal trying time squeeze into her clothes post Durva....😀
    You’ve made a fabulous contribution to the Durva Club this year, just think how you’ve helped someone who might be starting out today.   This too shall pass and when it does, Carry On.  All the best to you in the New Year! 
     
    Michelle
  5. Like
    Curt reacted to Susan Cornett in I saw the news today, oh boy....   
    I replied to his tweet and directed him here. We all know what he's going through so hopefully he'll find the support he needs. Stupid cancer.
  6. Like
    Curt got a reaction from BridgetO in I have a brain and only a brain!!!!   
    “I shall ask for brains instead of a heart; for a fool would not know what to do with a heart if he had one.” - Scarecrow, Wizard of Oz.   
  7. Like
    Curt reacted to D iane in Small Cell Diagnosis   
    Hi.  Just dropping by to wish everyone a Happy Holiday!!!  Under a week away for the Big Man!  We aren't planning much.  
    I am happy to report that husband's 2nd cycle was uneventful.  Once again, though, the joint pain from the Neulasta shot knocks him down for a day at least.   I had a cold and was nervous he would get it but he did not.  So far so good.  He does have abdominal pain off an on which is a pain to figure out.  Is it cancer?  constipation?  something else?  At least today it is very mild and he is actually out working.
    Next up is the 26th going for labs and a check up.  If all is well 3rd cycle will start on the 30th.
     
  8. Like
    Curt reacted to Barb1260 in Durvalumab   
    CT results compared to a year ago-from 6.8x5.8 to 2.8x1.9cm. The 5mm found in Sept on left lung is now 2mm. Nothing new.  I guess this expensive stuff is working. Happy Holidays!!!!
  9. Like
    Curt got a reaction from Lisa66 in I have a brain and only a brain!!!!   
    “I shall ask for brains instead of a heart; for a fool would not know what to do with a heart if he had one.” - Scarecrow, Wizard of Oz.   
  10. Like
    Curt got a reaction from Rower Michelle in I have a brain and only a brain!!!!   
    “I shall ask for brains instead of a heart; for a fool would not know what to do with a heart if he had one.” - Scarecrow, Wizard of Oz.   
  11. Like
    Curt reacted to Barb1260 in Durvalumab   
    Hey!  Are all us Durvas feeling so good we’re running around doing holiday preps? No posts for a solid week. I’m going to take that as a good thing!!🥳
  12. Like
    Curt reacted to Robert A. in Hello, my name is Freddy   
    Hello Freddy, My wife had a needle biopsy in October, here is what she said took place. The Doctor and tech use a CT scan to guide the needle to the area where the biopsy is to be done, this is done under local anesthesia. You will be scanned the needle inserted part ways then scanned several times to make sure the needle is in the right area that they want a biopsy of. After the biopsy is taken you will be under observation because there are risks one of which is a collapsed lung. You will get further x rays in the recovery room ( that was our case) because the hospital had a portable x ray unit. Once you are stable you will be released. My wife's test took about 6 hours. I hope this helps and may not be the same way others have had theirs biopsies done.
  13. Like
    Curt reacted to Steff in Keytruda, 1 year later   
    December 2019 update:
    Hi friends, my mom had her CT scan last week and we received the results on December 12th.  The wait was very nerve wracking for me this time.  I think it was due to my uncle recently passing away from some kind of cancer - they didn't have the opportunity to find out because he was gone within 3 weeks of seeing that his liver was filled with lesions.  So that was weighing heavy on our hearts when we went in to see the doc.  But all went well, she continues to be NED.  What makes me the most happy is that my mom has decided to stop saying that she has lung cancer and now calls herself a lung cancer survivor!  When she told her sister this, I teared up, it is wonderful to hear her say this after her 2.5 year battle with this recurrence.  Her next scan will be in 6 months this time.
    My mom continues to LIVE.  Yes she has lasting side effects from treatment, yes she has had to slow down, but now more than ever she is LIVING her life to the fullest.  She gets to bring my dad home from the adult family home a few times a week so they can spend quality time together (and so he can eat decent food, he says).  During the days she is not with my dad, she has been spending time with wonderful ladies who are constantly on the go, attending hockey games and other social events.  She is also now urging my aunt to get out and have fun after my uncle's death.  And of course, she is crafting...doing all of the she loves.  She is looking forward to the future without trepidation and focuses on having FUN!  We attended a Kenny G concert in our home town, which was surprisingly phenomenal and I have bought tickets for her and I to go to the Margaritaville musical coming next month (shh, don't tell her it's her Christmas present!).  We are making lots of wonderful memories.
    Why do I share this with you? Because I want to show you that there is life after a lung cancer diagnosis, and even ongoing treatment.  Yes, my mom's life looks different now, lots has changed, not just with her health. But she continues to do the things she loves and has made new friends along the way.  For those who are feeling hopeless, I want to share that there is HOPE.  I felt hopeless too, but it all turned out okay.
    Take Care,
    Steff 
  14. Like
    Curt got a reaction from Lisa66 in Needle biopsy for more samples   
    Hang in there Lisa.  Knowing either way brings some relief.  This is the next step to getting there.  
  15. Sad
    Curt reacted to Blossomsmom in Update from what feels like the twilight zone   
    My Mom is still in the hospital. The Taxotere she had a week ago Friday started a firestorm in her body that they can’t seem to stop. Everyday since Wednesday something new has arisen from blood pressure and heart rate bouncing all over the map, to respiratory distress from what they think is aspiration pneumonia to a GI bleed to bloodwork that goes up and down like a yo-yo to heart failure thrown into the mix. What a nightmare. She has and continues to handle it all with such grace and strength. I on the other hand can’t sleep, can’t eat and go from being angry to scared to flat out heart broken.  At this point it looks like she’ll be in the hospital for at least two or three more days and during that time the doctors will determine what the next step is. I’m pretty certain the next step will be discharging her with a referral to hospice. Time will tell. 
  16. Like
    Curt reacted to Rower Michelle in Gone for a while, now I am back   
    Hi Lisa,
    It’s nice to meet you, I joined this Forum last year after my surprise diagnosis.  I’m very sorry you’re having to go through all of this.  I can relate to your story too.  Last week my Mother told me she has a PET scheduled to evaluate growing nodules in her lungs.  She had previously been treated for a gynecological cancer.  Now evaluation for lung cancer???  Crazy. I’m glad your Dad is fighting! My Mom sounds pretty prepared for whatever lies ahead.  

    I suppose the hardest transition will be from caregiver to patient, learning how to put yourself  first in order to hunker down as your treatment plan kicks into high gear.  You know there’s a giant prayer posse here @LouT is excellent at “pestering God”.  
    Let us know how the biopsy goes, big hugs.  
    Michelle

     
     
  17. Like
    Curt got a reaction from Rower Michelle in Gone for a while, now I am back   
    Hi @Lisa66   I’m sorry to hear about your mom and your recent diagnosis.  I’m glad dad’s still battling.  My father had lung cancer.  So did Three of his sisters.  I was diagnosed last year.  All with NSCLC Adenocarcinoma. The genetic testing I had did not indicate any familial genetic abnormalities, which shocked me.  I do have an EGFR exon 19 Del.  Mine was caught very early by accident, I had surgery and haven’t had any follow up treatment since.
    Welcome back...but sorry you are.  
  18. Like
    Curt got a reaction from Lisa66 in Gone for a while, now I am back   
    Hi @Lisa66   I’m sorry to hear about your mom and your recent diagnosis.  I’m glad dad’s still battling.  My father had lung cancer.  So did Three of his sisters.  I was diagnosed last year.  All with NSCLC Adenocarcinoma. The genetic testing I had did not indicate any familial genetic abnormalities, which shocked me.  I do have an EGFR exon 19 Del.  Mine was caught very early by accident, I had surgery and haven’t had any follow up treatment since.
    Welcome back...but sorry you are.  
  19. Like
    Curt reacted to DFK in Is NED possible?   
    Dx NSCLC August 2018 Stg 3b.
    RLL Tumor approx 7.5cm x 5.0cm with subcarinal lymph node involvement
    November to December 2018 Carboplatin/Pemetrexed x3 concurrent with 60Gy Radiation x30 
    Durvalumab in January 2019 Q2weeks initiated
    No biomarkers or mutations, 0% PDL
     CatScan of Chest and Abd completed January 2019 showed 35% shrinkage of tumor with no lymphadenopathy
    CatScan April 2019 with pneumonitis but with further shrinkage of original tumor
    CatScan May 2019 with original tumor barely perceptible
    CatScan of Neck and Chest December 2019: RLL Tumor completely gone, No lymphadenopathy = NED 
    Yes, it is possible and without any biomarkers/mutations while receiving Durvalumab.
    DFK
  20. Like
    Curt reacted to Roz in Bilobectomy   
    I would add Yoga as well!!
  21. Like
    Curt got a reaction from Rower Michelle in Advice needed - Chemo or Observation?   
    Hi Jay.  I had an upper right lobe lobectomy at the end of February.  I was Stage 1.  I didn’t have any prE or post treatments.  I asked about a round of chemo to clean up anything they couldn’t see but the doctors wouldn’t do it.  If they would have offered it I would have had it done.  
     
    I see that there was a mass on your lung from three years ago that was not identified.  The pneumonia thing sounds like a bit of an excuse. My father had a chest X-ray a little under a year before he was diagnosed.  He was diagnosed at Stage IV.  When his doctors went back to that XRay they pointed out the tumor that the previous doctors missed.  It was considerably smaller.  He unfortunately  passed away from his disease.  His widow won a pretty substantial lawsuit that he started when he was alive and was settled after he passed.  I am not a proponent of frivolous malpractice lawsuits but in my fathers case those months between the original XRay and his diagnosis could have been the difference for him.  You might at the very least want to let the doctors who read those original scans know what they missed.   This disease is often missed or assumed to be something else.  
  22. Like
    Curt got a reaction from Roz in Bilobectomy   
    I had an upper right lobe lobectomy at the end of February.  I find that if I try to exert myself too quickly I get short of breath and sometimes dizzy.  If I increase my heart rate slowly I don’t get either.  I am no doctor but I disagree on the aerobic exercise front.  It may not be the cure but it certainly can’t hurt.  Meditation may also help with your heart rate.  Both may do nothing or they may do something.  Either way it’s not a bad way to fill some time each day.  
    Hang in there.  I hope things improve soon.  
  23. Thanks
    Curt got a reaction from BridgetO in Scanziety   
    Wow that was kind of a long wait, but worth it.  Congratulations!
  24. Like
    Curt reacted to BridgetO in Scanziety   
    Finally got my scan results after 9 days. NED! Yay!  Thanks for all the support.
  25. Like
    Curt reacted to Roz in #WeekendWisdom: How do you manage the superficial side effects of treatment?   
    You just have to wear your scars proud!!
     
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