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Curt

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  1. Like
    Curt reacted to Irwin1 in Saw My Thoracic Surgeon Today   
    Thank you for the encouragement! I think I should appreciate that I can have some sort of treatment. But it is very kind that you took the time to reply to me. May God bless you for this!
  2. Thanks
    Curt got a reaction from Irwin1 in Saw My Thoracic Surgeon Today   
    Let’s hope it’s just pneumonia clearing.  
  3. Like
    Curt reacted to mehrensh in local contact(s)   
    I don't know if this the right place for this, but I would appreciate help/advice in finding a person or people in who live near me to talk over a cup of coffee (and maybe a muffin!).  I would prefer not to travel to far.  Any hints on how to go about this would be greatly appreciated.   Thanks
  4. Like
    Curt reacted to Steff in local contact(s)   
    I don't have an answer for you regarding an in person meeting, but LUNGevity offers a Lifeline Support program that can match you with a peer who may have a similar diagnosis and/or have gone through similar issues.  Most of the time, people speak over the phone or emails.  But they may have someone in your area that can get together for coffee.  Here is the website:
    https://lungevity.org/for-patients-caregivers/support-services/peer-to-peer-mentoring/lungevity-lifeline
    Take Care,
    Steff
  5. Like
    Curt reacted to Tom Galli in Gained 5 pounds in 5 days?   
    Blossomsmom,
    You are right about the weigh-in and report routine.  During my chemo, my weight varied a lot; mostly down but large upswings when my wife could stuff me with ice cream.  When variance was noted, I'd take a seat while the chemo nurse consulted with the on-call oncologist to determine suitability for treatment.
    It is hard not to overthink; this admission comes from the one who overthinks everything always.  And of course, my overthinking always leads to over reaction that leads to panic and et cetera.  So I'm guilty but must admit that my overthinking never led to thoughts that eliminated my weight variance.  Today, I overthink when planning vacations and this is a much better use of my time.
    Stay the course.
    Tom
  6. Like
    Curt reacted to Isabelle49 in Gained 5 pounds in 5 days?   
    Should weigh on same scale, same time of day, wearing same weight of clothing each day. Scale should be on a hard floor and patient bladder empty. With the weight gain, I would look for foot/ankle/lower leg swelling, abdominal swelling - these should be reported to the doc. One other thing, a scale is a machine and machines are not always right. Hoping all is well.
  7. Like
    Curt got a reaction from Susan Cornett in Introduction   
    Hi Martin.  Welcome to this forum.  I’m sorry to hear of your wife’s diagnosis.  Your post and faith come across strong and optimistic.  Two great weapons in this fight.  I don’t have any specific experience with your questions but I hope you find some answers here and you both continue the fight.  
  8. Like
    Curt got a reaction from ColleenRae in Mom Just Diagnosed   
    Hi Kiera.  Welcome.  I’m sorry to hear of your moms diagnosis.  Steff has provided some great advice and encouragement.  She’s right regarding current treatments and prognosis.  I can tell from your post you are ready to confront whatever is required for your mom.  Your mom is lucky to have support like that.  
    I can relate regarding differing opinions on treatments.   It can be confusing and upsetting for all involved.  The only advice I can give is to focus on what your mom wants.  Her feelings and wishes are the most important.  
    Hang in there.  The initial part after diagnosis, before a treatment plan is in place, holds a lot of uncertainty and stress.  That all consuming feeling will start to pass as a treatment plan is settled on.  I’m the meantime plan some things with your mom that don’t have anything to do with her diagnosis.  Don’t push life aside because of it.  Enjoy the moments in between doctor visits and treatments.  Whether your mom survives five years or fifty you won’t regret those times. 
  9. Like
    Curt got a reaction from ColleenRae in Introduction - Isabelle49   
    I can speak from both sides of the equation.  My father was diagnosed with a soft tissue sarcoma when I was around 12.  He didn’t tell me until after he had his leg amputated, he knew for about a year.  I was pretty upset he didn’t.  I told him never to do that again. Fast forward 30 years and he was diagnosed with a stage IV LC. He called me on the way home from the doctor to let me know.  He said he remembered how upset I was when he didn’t tell me when I was 12.  I was glad he did tell me.  It was important to me to be able to help him in any way I could.  
    Now I was just diagnosed with Stage 1 LC 8 weeks ago.  I have a 10, 8 and 6 year old.  We chose to tell them that I had something in my lung that needed to be removed but not use the word cancer.  They haven’t asked for specifics.   I struggled a lot with telling friends, extended family, employees, customers and people I interact with through work.  I’ve found that it does help to share what you are going through in the appropriate moment.  If you choose to share it I’d practice the first few times on close family or friends.  I had to get through a few before I was able to do it without getting upset.  There is definitely  something therapeutic with saying it out loud for me. 
  10. Like
    Curt got a reaction from LouT in Oops! Newbie here!!   
    Hi Diana.  Sorry to hear about your recurrence.  I don’t have any personal experiences but I have heard of NSCLC turning into SCLC.  I can imagine your frustration with discovering it so close to the five year milestone.  I’m sure it feels like the finish line was just moved on you.  Treatments have improved considerably in the past 4.5 years.  You’ve beat it once and you can do it again.  Hang in there.  
  11. Like
    Curt got a reaction from LouT in intro Loren   
    Hi Loren.  Welcome.  I’m sorry to hear about your diagnosis.  I can relate to the panic that sets in when you let your guard down.  I can also relate to the exhaustion keeping that guard up can bring.  Feeling better today than when you started is amazing.  You are definitely NOT alone in this.  You’ll find plenty of people here willing to answer your questions and support you. 
  12. Like
    Curt got a reaction from Deb W in I have to share this good news!   
    Hi Irwin.  I can relate to the smack in the face from the realization you have cancer.  I’m currently NED and my mind often drifts away from my having had cancer.  But sometimes I get a sense of dread when my mind suddenly remembers and panics.  It’s not often but when it happens it’s definitely like a smack in the face. 
  13. Like
    Curt reacted to rginsky1 in MO's Obituary   
    I'm not sure if you will see this, but i just stumbled across this message board. you all have such kind words to say about my mom. Here we are 15 years later and i love that i can still find stuff from time to time about her on the internet.  I remember her often talking about her message board friends and chat friends, how they helped her feel better when she was feeling sick and hopeless (which she hid very well). Thank you all for being so supportive to her and offering such kind words. 
    Randa Ginsky
  14. Like
    Curt reacted to Tom Galli in Surgery's over!   
    Irka,
    I’d want BOTH the surgeon and oncologist view on post surgical chemo. 
    Recurrence is high for our disease and I’d do everything I could to ensure one and done. 
    Stay the course. 
    Tom
  15. Like
    Curt got a reaction from Rower Michelle in Oops! Newbie here!!   
    Hi Diana.  Sorry to hear about your recurrence.  I don’t have any personal experiences but I have heard of NSCLC turning into SCLC.  I can imagine your frustration with discovering it so close to the five year milestone.  I’m sure it feels like the finish line was just moved on you.  Treatments have improved considerably in the past 4.5 years.  You’ve beat it once and you can do it again.  Hang in there.  
  16. Like
    Curt got a reaction from Diana in Oops! Newbie here!!   
    Hi Diana.  Sorry to hear about your recurrence.  I don’t have any personal experiences but I have heard of NSCLC turning into SCLC.  I can imagine your frustration with discovering it so close to the five year milestone.  I’m sure it feels like the finish line was just moved on you.  Treatments have improved considerably in the past 4.5 years.  You’ve beat it once and you can do it again.  Hang in there.  
  17. Thanks
    Curt reacted to Isabelle49 in Happy Father’s Day   
    To all the dads on the forums.
  18. Like
    Curt got a reaction from LadyLynda0712 in Paranoid   
    Yes it is possible to have a 4 cm mass with no other symptoms.  Lung cancer is elusive and often doesn’t show any symptoms until it is larger and has spread.  It is also possible to have missed it on an X-ray.  This photo was posted to a Facebook group I’m in.  I thought it showed what details the different scans could show pretty well.  

  19. Like
    Curt reacted to Blossomsmom in Update on Moms pet scan   
    Saw the Oncologist today for my moms bloodwork and results of yesterday’s  pet scan. Pet scan shows main lung tumor has shrunk from 3.7 cm x 3.0 cm to 2.9 cm x 1.8 cm, complete resolution of right hilar lymphadenopathy and satellite lesions in right lower lobe have resolved anatomically & metabolically. Treatment is working! This is such good news. She has a renewed sense of optimism that will get her through her treatment next week and the side effects that follow. After that she’ll be on a maintenance dose of Tecentriq. We know it’s not a cure but it buys her more time, time she so desperately wanted. I don’t know what the future will bring but for today I will savor this victory against the beast.
  20. Like
    Curt got a reaction from PaulaC in Paranoid   
    Yes it is possible to have a 4 cm mass with no other symptoms.  Lung cancer is elusive and often doesn’t show any symptoms until it is larger and has spread.  It is also possible to have missed it on an X-ray.  This photo was posted to a Facebook group I’m in.  I thought it showed what details the different scans could show pretty well.  

  21. Like
    Curt got a reaction from DanielleJW in Hi 👋 Dealing with Nodules?   
    Awesome news Danielle.  It’s great to hear from the majority of people who’s nodules are nothing.  Definitely encouraging.   
  22. Like
    Curt reacted to Susan Cornett in intro Loren   
    Hi Loren. I'm glad you found us. This site has been my saving grace since my diagnosis. I'm almost 3.5 years into this journey. I've had two recurrences and a second cancer diagnosis during all of this. During my first visit to my oncologist, he gave me the survival stats and I cried for days. I finally wadded up that paper, threw it out and never looked back. He and I have a deal - I think stats are crap so he doesn't give them to me. It's hard not to wonder what if, when, etc. I ended up taking anti-depressants and those have kept me from moving to that dark place. 
    Your attitude will be your biggest boost. Medicine can do so much, but your mindset matters more.
    We're here so let us know how we can help you.
  23. Like
    Curt got a reaction from BridgetO in Paranoid   
    Yes it is possible to have a 4 cm mass with no other symptoms.  Lung cancer is elusive and often doesn’t show any symptoms until it is larger and has spread.  It is also possible to have missed it on an X-ray.  This photo was posted to a Facebook group I’m in.  I thought it showed what details the different scans could show pretty well.  

  24. Like
    Curt got a reaction from BridgetO in Mom Just Diagnosed   
    Hi Kiera.  Welcome.  I’m sorry to hear of your moms diagnosis.  Steff has provided some great advice and encouragement.  She’s right regarding current treatments and prognosis.  I can tell from your post you are ready to confront whatever is required for your mom.  Your mom is lucky to have support like that.  
    I can relate regarding differing opinions on treatments.   It can be confusing and upsetting for all involved.  The only advice I can give is to focus on what your mom wants.  Her feelings and wishes are the most important.  
    Hang in there.  The initial part after diagnosis, before a treatment plan is in place, holds a lot of uncertainty and stress.  That all consuming feeling will start to pass as a treatment plan is settled on.  I’m the meantime plan some things with your mom that don’t have anything to do with her diagnosis.  Don’t push life aside because of it.  Enjoy the moments in between doctor visits and treatments.  Whether your mom survives five years or fifty you won’t regret those times. 
  25. Like
    Curt reacted to Susan Cornett in Just a quick hello   
    I wanted to drop by and say a quick hello to everyone. I haven't been on here much the last couple of months so I'm not as up-to-date on everyone as I would like to be. Work has kept me busier than I've been in years (no complaints) but it has cut into my time here. I try to read posts but don't always comment. Just know I'm thinking about all of you each day.
    I celebrated my 50th birthday last week - something that I wasn't sure would happen when I was first diagnosed. My friends and family came through on my Facebook fundraiser for Lungevity - over $600! 
    Hoping to catch up more with everyone soon!
     
     
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