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Curt

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  1. Like
    Curt reacted to Steff in Update from Suzanne   
    Suzanne, 
    Glad to hear you have a treatment plan in place and will be meeting your oncologist soon.  Once my mom's treatments were in place, stuff started to fall into place and she was able to get into a routine.  The routine made it a bit easier to deal with things and helped her to focus on her recovery.  I hope that you are able to find your routine quickly and it provides some relief for you from the craziness that a lung cancer diagnosis causes.  
    Ohh and the volunteer driver program sounds really cool - maybe you will be some great folks along the way! l
    Take Care,
    Steff
  2. Like
    Curt reacted to ColleenRae in Starting chemo on Tuesday   
    Hi Claudia,
    Just read your posts here and wanted to join in and wish you the best!  As of yet, I have no experience with chemo, but we're all in the same boat fighting cancer, so it was good to read how you and others approach this and handle it.
    Wanted to pipe in regarding losing your hair... I started going to a women's cancer support group that's been very helpful.  I'd say half of the women have lost their hair. Most wear little knit hats due to the cold weather right now and I think they look great... but they're even more beautiful when they pull their hats off and display their beautiful hair-less heads! Truly! Something just shines out of each of them (and not from a bald sheen).  One of the women stayed after the meeting to try on wigs the cancer center provides to women undergoing treatment.  She found one that suited her well - I couldn't even tell it was a wig - but I have to admit that I found her to be just as if not more beautiful without the wig.  I think I can understand how losing your hair will be upsetting, but if that is "the worst thing of all" as you've said, than that would be great and something you CAN manage. But it's like anything we lose in this battle... whether it be our hair, a breast, a lung, uterus, etc. - we feel like we've lost a part of our body. Something that belongs to us. We've lost it to an unseen enemy - cancer.  Some of these things we can't get back again. Your hair will return.  I've even heard some women say they liked the way their hair grew back in better than the way it was before treatment!
    Hoping you continue to feel pretty good.  Sending you positive thoughts and best wishes.
    Colleen
  3. Haha
    Curt reacted to ColleenRae in Medical Marijuana   
    My post won't be helpful, but like Lexie, my mom also had breast cancer (over 40 years ago!). I was away at college but remember her calling and telling me how nauseated she was from chemo.  She confided that a friend of hers (who owned a record store / a real rock 'n roller!) "brought me a bag of Columbian!" and left her some pre-rolled joints. I cannot tell you what an image this conjured in my mind and how funny it was at the time to hear my mother talk about the brand of pot she had... she always was one of those impressed by labels!) I was happy for her if she found it helpful.  My dad had already left for work and she had taken my siblings to school. She had her first experience with marijuana - she said she got "pretty loopy" (her words) but it really helped with her nausea.  She did not tell my Dad about the "gift of pot" and when he came home unexpectedly one day for lunch, she quickly dumped the bag into the toilet.  She was terrified over how he might react. That was her "confession" to me...!  I am glad that if this is a source of relief for individuals that it is legal in so many places and becoming more accepted. 
  4. Like
    Curt reacted to Rower Michelle in 1st Post-Op CT Scan Test Results... So Sad   
    Hi Colleen,
    There are some days when I wake up and still wonder what the heck happened.  So I can't say that I'm good at this dance either.  I did hear a Tom Petty song for the first time with new ears a few weeks ago- Learning to Fly but I ain't got wings, it's the hardest thing.  It's my new mantra,  I wake up each morning say today I'm going to fly. 
    In some respects the cancer was a gift, I was living a life where I chose not to slow down- it was go-go-go.   Much to my surprise I don't miss that life at all.  This morning I got my hair done and went to the gym.  I read these posts every day and find inspiration that keeps me going forward.   
    Prayers are with you doing this waiting time!
    Michelle 
  5. Like
    Curt reacted to ColleenRae in 1st Post-Op CT Scan Test Results... So Sad   
    Tom... As always, thank you for your sage advice and for sharing your own personal experience(s) and heartfelt opinions / suggestions.  I DO need to focus and work on my attitude. Trying to recapture / find my joie de vivre.  I actually perked up when I read what your plans are (packing/cruise) and could vicariously feel the anticipation you two must be feeling... Good for you and your wife! That gives me hope as well!
    Seeing the surgeon tomorrow.  I am feeling calmer or maybe just more accepting. If nothing else, a better place to be in when we have our discussion. 
    Thank you, again.  BTW... My son will be incredibly envious when he hears you've seen a Red-cockaded woodpecker... He's a huge woodpecker fan and has been able to photograph them (mostly pileated) in the woods where we walk daily.  He just changed his educational plan from computer science to biology with ultimate goal of ornithology  
     
    Thank you, too, Michelle... Yes, I've seen the "blessings" that are emerging out of this as well - especially the kindness and support of "strangers" such as all of you on this site...
    Now you know I'll never be able to hear this Tom Petty song again without thinking of you...! ☺️
  6. Like
    Curt reacted to Claudia in Medical Marijuana   
    Thank you all of your informed replys. We do have legal medical marijuana here in Fl and I have already checked it out with my Dr. He is just fine with it however I want to use it. I have terrible shoulder pain from the arthritis that brought me to my diagnosis of LC and I have been using it for pain. I make my own homemade brownies that I only eat before I go to sleep to help me with the shoulder pain at night and wow it really works. Helps me sleep too. Doc said I could double my dose if I want. LOL I appreciate all of your help. You guys are the best.
    Health and happiness,
    Claudia
  7. Like
    Curt got a reaction from Roz in Medical Marijuana   
    I believe that medical marijuana has a limited amount of THC (the part that gets you high) and more CBD “Cannabidiol”, the part that helps with pain.  I have friends who are successfully treating chronic pain with CBD oil. It is definelty important to consult with your doctors to make sure there are no potential negative interactions with your treatment and MM.   
  8. Like
    Curt got a reaction from ColleenRae in Hi   
    Hi Barbara.   Welcome.  I am also 2 weeks post op from an upper right lobectomy.  Tom and Lexi have provided some good information.   I was told immediately after surgery that I had Stage 1 Adenocarcinoma NSCLC.  They’ve sent the lung and lymph nodes for more extensive testing.  The first test results I am getting is whether or not the cancer spread to my lymph nodes and other parts of the lobe that was removed.  I am getting those at my first follow up with the surgeon next Monday.  They are doing additional biomarker testing on the cancer.  That will tell me whether or not my cancer has any genetic identifiers.  Those identifiers will help predict if I can expect recurrences and what the treatment would be if recurrence does happen.  I’m told those results take four weeks.  
     
    Im glad you’ve found this site.  It’s provided a ton of support for me during this.  Good luck with your appointment tomorrow
     
     
  9. Like
    Curt reacted to BridgetO in Medical Marijuana   
    I think "Medical Marijuana" is a term that means different things in different contexts  and to different people. In Oregon, where I live, marijuana was for many years legal only for those who had a Medical Marijuana Card, available to those who had certain conditions as certified by a physician Now  recreational marijuana is legal here , but those with the Medical Marijuana Card  can buy larger amounts and have sales tax advantages.  So there is/was a legal definition.
    For some people, "medical marijuana"  means that "I'm using it for some [allegedly] legit purpose and not to get high".  Curt is right that THC is the part that gets you high and  CBD doesn't, and may help with pain. But the term  "medical marijuana"  doesn't necessarily reflect the pecentages of the two substances. In Oregon, at least, all marijuana sold legally ("medical" or 'recreational" ) is laboratory tested by batch and labeled showing the percentages of THC and CBD.    Extracts that have CBD only and no THC are not considered "marijuana" (at least by some). These may be legal where "marijuana" is not. CAVEAT: don't take my word for it, check it out locally.  Some CBD products are made from industrial hemp (which is not marijuana) and I think some also comes from other plant sources.  In Oregon, products with no THC are sold in CBD shops, while anything with THC is legally sold only in licensed marijuans ahops.. Also CBD can be included in some drinks or food sold in other places. 
    If you're thinking of using marijuana (or CBD) medically, it's important to educate yourself, and to know what you're getting, as well as to check it out with your doctor.
  10. Like
    Curt got a reaction from Claudia in Medical Marijuana   
    I believe that medical marijuana has a limited amount of THC (the part that gets you high) and more CBD “Cannabidiol”, the part that helps with pain.  I have friends who are successfully treating chronic pain with CBD oil. It is definelty important to consult with your doctors to make sure there are no potential negative interactions with your treatment and MM.   
  11. Like
    Curt got a reaction from LexieCat in Looking for SCLC stage 4 brain mets survivors   
    There may not be anyone with that exact diagnosis on these boards but there are many people who have faced an equally as serious diagnosis and are able to continue treatment, hope and in some instances remission.  I’m sure others will be in touch to offer their specific story and successes in outlasting a very difficult prognosis.  
  12. Like
    Curt got a reaction from Tom Galli in Medical Marijuana   
    I believe that medical marijuana has a limited amount of THC (the part that gets you high) and more CBD “Cannabidiol”, the part that helps with pain.  I have friends who are successfully treating chronic pain with CBD oil. It is definelty important to consult with your doctors to make sure there are no potential negative interactions with your treatment and MM.   
  13. Like
    Curt got a reaction from ColleenRae in Hello   
    Ld,
    I’m sorry to hear about your dad’s diagnosis.  My father was diagnosed with lung cancer about seven years ago.  Unfortunately for him a lobectomy was not an option.  I am currently recovering from a full right upper lobe lobectomy I had done on Tuesday, from that surgery I was diagnosed with Stage 1 Adenocarcioma NSCLC.  I was able to come home last night.    The complications your dad is having are not uncommon and usually clear up in a few days.  I will tell you that I have found Tom’s recommmendation regarding the foam wedge pillow to be a good one.  I’ve been using it along with other pillows to keep me propped up at night.  It provides the necessary amount of stability so I don’t have to keep adjusting the pillows.  He will want to be propped up.  I would also try and get a comfortable arm chair for next to the bed so he can get up and out of bed each day.  I find getting out of bed to be difficult but once I’m up I feel a lot better.  The arm chair is a good first step.  Walking and doing the spirometer (breathing exercises) as much as possible also helps a lot.  I actually feel less pain when I walk.  There is a little with the spirometer but it goes away quickly.  I’ve noticed considerable improvement the more I’ve done both.
    I’ve been the caregiver and am now the patient.  In the beginning when I was the caregiver I funneled a lot of my energy into the physical things my dad needed.  As time went on I found he needed as much or more emotional support than physical.  Now as the patient I understand that even more.  He may feel really uncomfortable with this situation if the caregiver/care receiver roles have changed without much notice.  Let him know you love him, that this diagnosis hasn’t changed who he is and that things will get better.  If he was able to have a VATs lobectomy the prognosis is better than with other treatments.  
    You will find lots of support and answers to questions I’m sure you both will have on this forum   Keep coming back to ask them and give us updates   
    My thoughts are with you both.  
  14. Like
    Curt got a reaction from Ld1978 in Hello   
    That is all really good news.   There is a good chance this is all the treatment he will need.  Getting that tube out is a huge step towards being more comfortable and getting better.  It’s a slow process but it happens.  There will still be quite a bit of swelling under his arm if they removed lymph nodes.  I’ve been using a small pillow under that arm when I walk around or am sitting down.  It helps keep the weight of my arm off that area  The pillow also doubles as something to squeeze when I need to cough or sneeze.  Getting up and moving around helps a lot with the swelling. I know it’s not easy but it helps the body move the fluid out.  
    I’m doing good.  A bit of cabin fever but good.  
  15. Like
    Curt got a reaction from LexieCat in Hello   
    That is all really good news.   There is a good chance this is all the treatment he will need.  Getting that tube out is a huge step towards being more comfortable and getting better.  It’s a slow process but it happens.  There will still be quite a bit of swelling under his arm if they removed lymph nodes.  I’ve been using a small pillow under that arm when I walk around or am sitting down.  It helps keep the weight of my arm off that area  The pillow also doubles as something to squeeze when I need to cough or sneeze.  Getting up and moving around helps a lot with the swelling. I know it’s not easy but it helps the body move the fluid out.  
    I’m doing good.  A bit of cabin fever but good.  
  16. Thanks
    Curt got a reaction from Ld1978 in Hello   
    Hi LD.  Just checking in.  How is dad doing?   
  17. Like
    Curt reacted to Barb1260 in NOW my hair falls out?   
    There are a lot of pluses to this shaved look. Now I get why guys do it. 
  18. Like
    Curt got a reaction from PaulaC in Wedge Lobectomy Scheduled Feb 26   
    Thank you for checking in Lisa.  I’m doing good.  I ventured out for a haircut today so that’s progress.    I’m considering going in to work for a few hours next week.  I’m going a bit stir crazy.  There are only so many laps I can walk around my house.  I hope you have an amazing vacation.  Soak up the sun and enjoy it.  Leave this nonsense  behind for a bit.  
  19. Like
    Curt got a reaction from Lisa L in Wedge Lobectomy Scheduled Feb 26   
    Thank you for checking in Lisa.  I’m doing good.  I ventured out for a haircut today so that’s progress.    I’m considering going in to work for a few hours next week.  I’m going a bit stir crazy.  There are only so many laps I can walk around my house.  I hope you have an amazing vacation.  Soak up the sun and enjoy it.  Leave this nonsense  behind for a bit.  
  20. Like
    Curt reacted to SevenYearsToday in What is it like?   
    Thank you for these replies. I can't believe I never thought of reaching out to an online support forum like this before. It is very comforting. Sometimes you think you are all alone but with so many people on this earth you certainly share similar experiences.
    I wish we knew what happens after death. While I find myself knowing how I will die, I do not like knowing for certainty what will happen. I very much want to cling to the notion that something spiritual will happen. Wouldn't that be amazing knowing that when you die it's only death in the physical sense? That would be so comforting. I hate the opposite of this, the idea of dying and then nothing happening. It even sounds odd just saying that. I take comfort in the spiritual side. It gives me peace, but then again, if nothing happens, I would still find a peace in knowing that I lived a good life.
    I reread my initial post and sometimes feel like abandoning this question/thought/concern all together. Meaning, I put the question out there and then never reflect on it again. Sort of like when you feel wronged in the world so you write a strongly worded letter to that person or company but never actually send it because just writing it made you feel better...
  21. Thanks
    Curt got a reaction from ColleenRae in 1st Post-Op CT Scan Test Results... So Sad   
    I’m sorry to hear about the results Colleen.  Those aren’t the results any of us want to hear but there are options and next steps.  One foot in front of the next.  I hope you went for that walk with your son.  He sounds AMAZING!   
  22. Thanks
    Curt got a reaction from Ld1978 in Hello   
    Ld,
    I had a chest tube in until about an hour before they released me.  They pulled the tube, did an X-ray and sent me packing within an hour.  Keeping the tube in for as long as is needed is standard.  I was told I could be in the hosptital for as much as seven days depending on how well the fluid drained.  It’s differemt for everyone.  I’m only 42 so that may have had an impact on my getting out of the hospital when I did.  I also had an air pocket at the top of my chest cavity that they were watching.  It didn’t get any bigger or any smaller so they decided it wasn’t of concern.  I know all of this is scary, frustrating and sometimes overwhelming but what is happening are expected in some cases and correctable. Breathe deep and take some time for your self while dad is resting.  Your health is just as important, its easy to forget that right now.  You need to be healthy and strong if you want to be there for him.  
     
  23. Like
    Curt got a reaction from Lisa L in 1st Post-Op CT Scan Test Results... So Sad   
    I’m sorry to hear about the results Colleen.  Those aren’t the results any of us want to hear but there are options and next steps.  One foot in front of the next.  I hope you went for that walk with your son.  He sounds AMAZING!   
  24. Like
    Curt got a reaction from BridgetO in Mother dying from lung cancer/copd   
    Aileen I’m so sorry to hear about your mom.  I helped my father through an in home hospice and it was a difficult time indeed.  I also found the  hospice service frustrating at times.  I felt like they should have been able to better tell us what was happening, why, what would happen next and when that was going to happen.  The truth is it’s different for everyone.  The thing that is important to remember about late phase hospice is the body stops needing to do the things it did for life in order to prepare itself for what is next.  My father did a lot of the things you are describing.  He slept all day/night without waking up, stopped eating/drinking, was not conscious, his breathing became very shallow and light and his body temperature got cooler.  Giving your mom breathing treatments and making sure the proper amount of painmedication is being adminster so she is comfortable may be all she needs right now. 
     I’m so sorry for what you, your son and your mother are going through.  Making sure you and your son are taking care of yourselves is important.  Rest when you can.  My thoughts and prayers are with you.  We are here for you.  
  25. Like
    Curt reacted to KatieB in Obsessing Again ! slow grow Good News ?   
    HI SoScared,
    Welcome to LCSC.  I'm sorry you are experiencing such difficulties- not just with the possibility of LC and scheduling the scan, but your other life issues as well. 
    Having the CT and getting answers may alleviate some of your anxiety.  Not knowing and that uncertainty of whether or not you have LC definitely plays into fears.
    There are other anti anxiety medications that can work to help with coping skills.  Xanax works for some and sometimes it loses its effectiveness over time- it's worth having a conversation with your doctor about whether it's time to change or add a new stabilizing med.
    Also, did you read the reply from Lauren above? 
    There are some great resources that can help you during this time.  Give our helpline a call and they will be able to connect you with some professional help.  The helpline is free and worth the time to call.
    I hope you get some answers soon.
    Katie
     
     
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