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Curt

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  1. Like
    Curt reacted to BridgetO in Another newbie ... Still a bit in shock   
    I love good news!  I completely agrree with Lou's suggestion about a wedge pillow. It made my recovery at home much more comfortable. The chest tube is generally uncomfortable.  I was released the day after my VATS lobectomy with a chest tube in place (with an attached one way valve and a bag) because of an ongoing air leak. The tube was in for 10 days and I felt MUCH better once it came out. Best wishes to your husband for a speedy recovery.
  2. Like
    Curt reacted to LouT in Another newbie ... Still a bit in shock   
    Marie
    So glad to hear that the surgery went well. Yes that pesky chest tube is uncomfortable, but as your husband says, manageable.  Based on my experience he has a good chance of going home in a few days. Unless you have an adjustable bed i  recommend getting one of those wedge pillows. It makes resting much easier.  Also make sure your hubby takes pain meds as prescribed. I thought I could do with out them and learned a hard lesson.  He’ll also be given a spirometer to work out his lungs and keep them clear. Please make sure he uses it as instructed. It really helps with recovery. 
    Please update us and ask any questions you may have.
    Lou 
  3. Thanks
    Curt got a reaction from Michele in Loosing battle small cell   
    Hi @Michele.  I’m really sorry to hear your husband is struggling.  I’ve been on both sides of this disease, the caregiver and the patient.  Both are equally difficult in their own ways.  Caregiving is definitely not for sissies!   I hope that things improve for him.  Hang in there.  
  4. Like
    Curt got a reaction from BridgetO in New to group   
    Hi Cari and welcome.  The online statistics are really scary.  Keep in mind that a 5 year survival rate it based on people diagnosed five years ago.  The treatments for lung cancer have improved dramatically since then.  You dads age, overall health and the specific biomarker indicators of his cancer (if you don’t know them he should find out) all play a roll in survival.  Lung cancer is a tough disease but your dad’s was caught early and he was able to have surgery.  Two really good things when it comes to battling lung disease.  There is definitely   hope.  Hang in there.  
  5. Like
    Curt reacted to LUNGevityKristin in Another newbie ... Still a bit in shock   
    Thinking of you and your husband today, Marie!  Please keep us updated on his recovery.
  6. Like
    Curt reacted to LouT in Another newbie ... Still a bit in shock   
    My prayers and thoughts are with you and your husband today.
    Lou
  7. Like
    Curt reacted to MarieE in Another newbie ... Still a bit in shock   
    Just a quick update ... Just a couple of days away and my husband seems to be doing great. I'm the one who's having the nightmares and problems sleeping. I think he's better at denial than I am. 😉 Haven't had much time on the computer later but I'll definitely be looking for the caregivers' group. I don't expect this is going to get any easier for awhile. We're going out for a big brunch at one of our favorite places tomorrow and then just trying to get everything ready for early Tuesday morning. Hoping the surgeon is getting much better sleep than I am these days!
  8. Like
    Curt got a reaction from LouT in Another newbie ... Still a bit in shock   
    My thoughts and prayers will be with you both.  Any specific questions on the surgery and recovery just ask.   
  9. Like
    Curt got a reaction from LouT in Not Sleeping since DX   
    Hi @DarlaK  I had a similar path as you except no chemo after surgery.  The quiet times are often the hardest.  It’s perfectly normal to be worried.  You’ve been through a lot.  Don’t beat yourself up over it.  Hang in there.  
  10. Like
    Curt got a reaction from Roz in Scan Time Again   
    Don’t let it steal a minute of joy.  Enjoy Maine.  Positive thoughts.  
     
    Take the ferry to Cumberland Island if you have a chance while in Amelia Island.  Even stay there for a night if you can.  It’s a beautiful place.  My wife and I got engaged there.  
  11. Like
    Curt reacted to Rower Michelle in Scan Time Again   
    Thank you all for the continued support! Tom Petty had to right-  but I won’t back down, stand my ground. 
    MB we’ll be in this together on the 25th.  I think there’s something about these “anniversary” scans.  For me it’s one year on targeted therapy. 
    I’m moving through the packing list this week which helps the time go by.  Lobsters and lighthouses for me next week! We’re celebrating our 25th wedding anniversary where we honeymooned in Maine. It will be a great trip! 
    Today it’s the Living with Lung Cancer Support Group, we’ve got the FOX News 4 health and Wellness expert to come and talk with us.  Then I’m off to yoga  🧘‍♀️ 
    I’m so glad to have you guys! Happy weekend!
    Michelle
     
     
  12. Like
    Curt got a reaction from Rower Michelle in Scan Time Again   
    Don’t let it steal a minute of joy.  Enjoy Maine.  Positive thoughts.  
     
    Take the ferry to Cumberland Island if you have a chance while in Amelia Island.  Even stay there for a night if you can.  It’s a beautiful place.  My wife and I got engaged there.  
  13. Like
    Curt got a reaction from LouT in Not really sure if I should be here or not   
    Hello David.  I’m so sorry you’ve had to find this group.  The diagnosis phase of lung cancer is very scary and somewhat vague until a biopsy can be performed.  As you’ve identified they can assume a mass is something but often will wait for a biopsy to confirm it.  Lungevity has some terrific resources I encourage you to read.  Please know that much of the statistics you read online is dated information.  For example five year survival rate data is based on people diagnosed five years ago.  There have been a lot of advancements in lung cancer treatments over the last five years and those statistics are changing.   Google can be a scary place for info.  I encourage you to ask your questions here and use the Lungevity site for the resources you need.  If it is cancer there are treatments that can alleviate some do the symptoms you are experiencing.  
  14. Like
    Curt reacted to MarieE in Another newbie ... Still a bit in shock   
    Thanks, Tom. The surgeon did mention the possibility of post surgery chemo. He also said they will check the lymph nodes for cancer as well and also do biomarker testing. Hoping for the best and trying to stay calm ... The bone scan and brain MRI came back clean so that is definitely encouraging.
  15. Like
    Curt got a reaction from Roz in Another newbie ... Still a bit in shock   
    Hello’s @MarieE   I’m sorry to hear about your husbands diagnosis.  I know how he feels.  I was confronted with doing a wedge resection without actually knowing if the nodule I had was cancer.  During the resection they determined it was cancer and did a full upper right lobe lobectomy via VATS.  My lymph nodes were clear and it did not spread anywhere else.  I was terrified.  I had visions of significantly decreased quantify of life, walking around on oxygen and being generally debilitated from the surgery.  None of that was the case.  I am a little over seven months out and have recovered fully in terms of lung function.  I’d say I was fully recovered with lung function at around four months.  I was up and moving around normally after four weeks.  I do still have some numbness and tightness around the surgery site.  I am completely cancer free and have not required any follow up treatments.   If the tumor is close to the heart they may want to do an “open” surgery which requires a larger incision.  The recover time for that is a bit longer but the lung function part should be the same.  I know the word lucky and cancer don’t often get used together but if your husband has surgery as an option he is lucky.  It is one of the most affective forms of treatment for lung cancer.
  16. Like
    Curt reacted to Tom Galli in Information Needed   
    Dave,
    I am so very sorry to learn of Melissa's condition. The biopsy report and other diagnostic tests will give a good indication of next steps. My suggestion for you is to read into the disease so you can understand the medical vocabulary and help make important decisions.  Start here with information about diagnosis on our Lung Cancer 101 synopsis. Pay particular attention to imaging tests and biomarker testing.  
    A lung cancer diagnosis is made by a pathologist examining tissue under a microscope. The results of this visual process, called histology, yields the type and subtype of lung cancer.  There are two types: small cell and non small cell. But within the non small cell type are a number of subtypes: adenocarcinoma, squamous cell and large cell. The type identification is important because each has a different treatment approach.
    Most who have a biopsy have tissue sent to a lab for further biomarker testing.  This is extremely important and ensure your oncologist and or pathologist knows you want the biopsy tissue samples sent for further laboratory testing.  This testing is vital because new, very successful treatments are now available in the form of Targeted Therapy and Immunotherapy. While I've hyperlinked information explaining these new treatments, you shouldn't spend too much time at this juncture reading into them. Just know that they are available and the biomarker testing is the key to availability. So, point one when you get your oncologist on board is to ensure biomarker testing is performed on the biopsied tissue.
    Your wife likely had a CT scan that led to the need for a biopsy.  You didn't reveal how many suspected tumor sites were present on the scan but she will likely have more imaging scans to map the position of metastatic areas. Hopefully, you are dealing with only a single nodule or mass.  These further imaging tests may be a PET scan, a MRI of the brain and perhaps a bone scan.  The results of all the diagnostic imaging studies allow for a stage determination.  Here is information on non small cell lung cancer staging. Lung cancer staged at I through IIIA may allow for surgical resection of the single mass or tumor.  Stage IIIB may or may not be surgically treated.  Stage IV is normally not treated with surgery. Similarly, limited-stage small cell lung cancer may be treated with surgery while extensive-stage is not.
    So, the important information or the outcome of diagnostics is to yield a type and stage for Melissa's lung cancer.
    I've just given you a full plate to digest and so I'll stop the information disclosure now. But while you read in and discuss with Melissa what you've learned you should know that breakthrough treatments have been discovered within the last 3 years on Targeted Therapy and Immunotherapy that are moving the survival needle toward life.  Moreover, I was diagnosed Stage IIIB and then Stage IV with progression to my left lung after my right lung was removed almost 16 years ago. If I can live, so can Melissa.
    Stay the course.
    Tom
     
  17. Like
    Curt reacted to MarieE in Another newbie ... Still a bit in shock   
    Thank you. I'm sure we'll be back with some. Right now our biggest concern is that the surgery may not be able to be done robotically, but we will deal with whatever comes. And heck, if we can't dive together anymore, that will give us time and money to use elsewhere once he has recovered. 😉
  18. Like
    Curt got a reaction from MarieE in Another newbie ... Still a bit in shock   
    My thoughts and prayers will be with you both.  Any specific questions on the surgery and recovery just ask.   
  19. Like
    Curt got a reaction from LouT in Another newbie ... Still a bit in shock   
    He’ll still be able to be active after some rehabilitation.  My lung capacity is the same as it was pre surgery.  Scuba diving may be a longer term challenge, especially if you are going deep.  It would be an awesome goal to work towards though.  Definelty would inspire others.
  20. Like
    Curt got a reaction from MarieE in Another newbie ... Still a bit in shock   
    Hello’s @MarieE   I’m sorry to hear about your husbands diagnosis.  I know how he feels.  I was confronted with doing a wedge resection without actually knowing if the nodule I had was cancer.  During the resection they determined it was cancer and did a full upper right lobe lobectomy via VATS.  My lymph nodes were clear and it did not spread anywhere else.  I was terrified.  I had visions of significantly decreased quantify of life, walking around on oxygen and being generally debilitated from the surgery.  None of that was the case.  I am a little over seven months out and have recovered fully in terms of lung function.  I’d say I was fully recovered with lung function at around four months.  I was up and moving around normally after four weeks.  I do still have some numbness and tightness around the surgery site.  I am completely cancer free and have not required any follow up treatments.   If the tumor is close to the heart they may want to do an “open” surgery which requires a larger incision.  The recover time for that is a bit longer but the lung function part should be the same.  I know the word lucky and cancer don’t often get used together but if your husband has surgery as an option he is lucky.  It is one of the most affective forms of treatment for lung cancer.
  21. Like
    Curt got a reaction from BridgetO in Another newbie ... Still a bit in shock   
    Hello’s @MarieE   I’m sorry to hear about your husbands diagnosis.  I know how he feels.  I was confronted with doing a wedge resection without actually knowing if the nodule I had was cancer.  During the resection they determined it was cancer and did a full upper right lobe lobectomy via VATS.  My lymph nodes were clear and it did not spread anywhere else.  I was terrified.  I had visions of significantly decreased quantify of life, walking around on oxygen and being generally debilitated from the surgery.  None of that was the case.  I am a little over seven months out and have recovered fully in terms of lung function.  I’d say I was fully recovered with lung function at around four months.  I was up and moving around normally after four weeks.  I do still have some numbness and tightness around the surgery site.  I am completely cancer free and have not required any follow up treatments.   If the tumor is close to the heart they may want to do an “open” surgery which requires a larger incision.  The recover time for that is a bit longer but the lung function part should be the same.  I know the word lucky and cancer don’t often get used together but if your husband has surgery as an option he is lucky.  It is one of the most affective forms of treatment for lung cancer.
  22. Like
    Curt got a reaction from LouT in Hello   
    Hi @mark111111 unfortunately many of us can relate on some if not all of what you are going through.  Some ER Docs can definitely  use some bed side training.  I had an ER doc completely neglect to tell me about a nodule that was peripherally found on an abdominal scan.  Luckily my mother is a nurse, and nosy, and read the report and saw it written deep into page four.  I’ve now gotten into the habit of reading ALL of my medical reports and asking questions about whatever I don’t understand.  I hate that it was there but I’m so grateful she found it.  That was two years ago.  I had surgery seven months ago to remove the nodule, it was very small.   So far all is good.  Brain Mets are tougher but it can be done.  Advancements in the last three years and others happening every day are changing the statistics quickly.  You’ve got the right approach.  You are still here.  Live your life.  Keep your sense of humor and battle on.  You’ve found a group of people who get it and are rooting for you.  
  23. Like
    Curt got a reaction from LouT in Another newbie ... Still a bit in shock   
    Hello’s @MarieE   I’m sorry to hear about your husbands diagnosis.  I know how he feels.  I was confronted with doing a wedge resection without actually knowing if the nodule I had was cancer.  During the resection they determined it was cancer and did a full upper right lobe lobectomy via VATS.  My lymph nodes were clear and it did not spread anywhere else.  I was terrified.  I had visions of significantly decreased quantify of life, walking around on oxygen and being generally debilitated from the surgery.  None of that was the case.  I am a little over seven months out and have recovered fully in terms of lung function.  I’d say I was fully recovered with lung function at around four months.  I was up and moving around normally after four weeks.  I do still have some numbness and tightness around the surgery site.  I am completely cancer free and have not required any follow up treatments.   If the tumor is close to the heart they may want to do an “open” surgery which requires a larger incision.  The recover time for that is a bit longer but the lung function part should be the same.  I know the word lucky and cancer don’t often get used together but if your husband has surgery as an option he is lucky.  It is one of the most affective forms of treatment for lung cancer.
  24. Like
    Curt reacted to LUNGevityKristin in Meet Ina®, Your Personal Intelligent Nutrition Assistant   
    LUNGevity is excited to introduce you to Ina! You can communicate with Ina® 24/7 to receive personalized, clinically appropriate, and “on demand” nutrition support and guidance.  All you do is send a text, there are no appointments necessary or phone calls to make.  When you’re navigating a lung cancer diagnosis, eating a healthy diet can help you feel better, maintain your strength, and speed your recovery. 
    Learn more and get started here: https://lungevity.org/for-patients-caregivers/support-services/meet-ina®-your-personal-intelligent-nutrition-assistant
    Ina® is a knowledge-based personalized nutrition technology expert platform for people with cancer. Ina®’s knowledge and advice is based on scientific evidence and the training of oncology-credentialed registered dietitians, nurses, and doctors who are experts in the needs of cancer patients.

  25. Like
    Curt reacted to Tom Galli in Kate7617   
    Kate,
    I can't understate the importance of a lung cancer survivor receiving a flu shot. As a one lung survivor, any cold can and often does turn into a chest-congestion nightmare so I get my flu shot. I've also had both types of pneumonia vaccinations and am in fact current on all my vaccinations. So, I would definitely recommend you receive the shot.
    Stay the course.
    Tom 
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