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Curt

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  1. Thanks
    Curt got a reaction from Michele in Small cell   
    Great news Michele.  Thank you for light.  
  2. Haha
    Curt got a reaction from Rower Michelle in Power washing   
    25’ long and 11” wide?!  Now I get the not tipping over part.   You are definitely going to make it out of the cove.    
  3. Like
    Curt reacted to Rower Michelle in Power washing   
    A racing shell is what you see in the Olympics, my boat is 25ft long, 11 inches wide, painted the color of a Dodge Prowler- purple sparkles- oh and he name- TROUBLEMAKER. 🤪
    We have a double named Widowmaker- haha.   Beautiful morning watching the blue herons fly around. Next week I might make it out of the cove but I have to go to Iowa City to interview a new hippie doctor.  Ugh!  
    Onward! 
  4. Like
    Curt reacted to Isabelle49 in Power washing   
    Awesome to hear. So happy for you. Blessings.
  5. Like
    Curt reacted to Susanrae in Power washing   
    Very happy for you.  The honey-do list will commence!!  Susan Rae
  6. Like
    Curt reacted to Rower Michelle in Power washing   
    Congratulations!  Only your family here would really understand the magnitude of this milestone!  Getting back to “normal”’things.  You’ve probably never been happier to do chores on a holiday weekend!! 
    Under the never thought it would be possible, I got into my racing shell yesterday, had to stay in the 300 meter cove, but yowza, I didn’t flip!  Not pretty but still way better than a casual recreation rower!  
    Here’s to doing the never thought possible! Cheers!  
  7. Like
    Curt got a reaction from Nancy Ann in Power washing   
    Four months out from a right upper lobe lobectomy and I’m happy to report that power washing the patio in 80 degree weather is NO problem.  I would never have guessed that when I first learned I was going to have surgery. I was sure I’d be wheezing and short of breath the rest of my life.  I’m happy to report that life’s mundane chores are still possible...and less mundane now.  My wife’s even happier to report it.  I may need to learn to play this lobectomy thing up a bit more.  
     
     
     
  8. Like
    Curt got a reaction from Rower Michelle in Waiting to speack to Doctor   
    Hi Denise.  I’m 43, never smoker and was diagnosed with Stage 1 four months ago.  The nodule was found by accident on a scan for something else.  It is a shock and the waiting for an actual diagnosis is really stressful.   Having the medical reports to obsess over makes it even tougher.  I went through my initial screenings at a local cancer center.  Once it was clear I was going to need surgery I went and got a second opinion at a larger one.  I was told the same things at both places but decided to go ahead with the surgery at the larger center.  I felt more comfortable with the doctor there. 
    One bit of advice, don’t try interpreting the report via Dr. Google.  There is a ton of old information out there.  I made that mistake and it resulted in a lot of unnecessary stress and worry.  My treatment and prognosis were very different from what I found online. 
  9. Like
    Curt got a reaction from BridgetO in Waiting to speack to Doctor   
    Hi Denise.  I’m 43, never smoker and was diagnosed with Stage 1 four months ago.  The nodule was found by accident on a scan for something else.  It is a shock and the waiting for an actual diagnosis is really stressful.   Having the medical reports to obsess over makes it even tougher.  I went through my initial screenings at a local cancer center.  Once it was clear I was going to need surgery I went and got a second opinion at a larger one.  I was told the same things at both places but decided to go ahead with the surgery at the larger center.  I felt more comfortable with the doctor there. 
    One bit of advice, don’t try interpreting the report via Dr. Google.  There is a ton of old information out there.  I made that mistake and it resulted in a lot of unnecessary stress and worry.  My treatment and prognosis were very different from what I found online. 
  10. Like
    Curt got a reaction from Susan Cornett in Just a quick hello   
    Happy Birthday Susan!  I’m glad you are keeping busy.  
  11. Thanks
    Curt got a reaction from Michele in Question?   
    I’m Sorry to hear about the recurrence Michele.  I don’t have any info for you on the chemo pill but I’m hoping it works for him.  Hang in there.   
  12. Like
    Curt reacted to Robert Macaulay in Cancer-sniffing dogs 97% accurate in identifying lung cancer:   
    My dog was  sniffing at my mouth every time we went out in the car and when i think about it now was  about a year before my x-ray in ER, and i kept thinking i do not have bad breath and moved the dog away from my face.Still does it to this day.
     The goal is to develop an over-the-counter screening product, similar to a pregnancy test, in terms of cost, simplicity and availability. Dr. Quinn envisions a device that someone can breathe into and see a color change to indicate a positive or negative finding.
  13. Like
    Curt reacted to Blossomsmom in My how things have changed   
    I am so thankful to have found this site and so appreciate everyone on it. Here’s why. On 1/14/91, my 63 year old father was diagnosed with Small cell lung cancer with brain mets after being hospitalized with what they thought was a heart problem. I was devastated. He lived only 5 months. Heartbroken and shell shocked don’t even begin to describe how I felt. And at that time, there was no online support, there were barely any in person support groups for adult children dealing with the horrors of what I had experienced. I truly thought I was going to lose my mind. It took me years to work through my grief. 
    Fast forward to 11/4/18. I took my 89 year old Mom to the ER for what I thought was severe dehydration from “the flu”. Things began to happen very rapidly once we arrived. Within about 30 minutes the  ER doctor told me that my Mom was either having or had just had a heart attack and as an added complication, her kidneys were shutting down. Ok, that explains all the activity in & out of her room I thought. While I was trying to process that, they did a chest X-ray which I thought was odd and then took her for a chest CT which again I thought was odd but at that point didn’t question. Shortly after that, the ER doctor gave me the news. My mom had a mass in her right lung & enlarged lymph nodes all of which they thought meant lung cancer. Wait, what? I thought I was going to throw up or pass out or both. I was thrown immediately back to 1991 and thought this can’t be happening again! But no time to process that, immediate concern was back to her heart & kidneys. Over the next week in the hospital slowly she began to recover.  Oncologist came in the last day she was in the hospital & explained the CT scan results again and the tests that would follow. But none of the tests could be done until she was recovered from the heart attack. Finally in January they biopsied her lymph nodes, came back inconclusive. We then waited & waited for the lung biopsy to be scheduled. It wasn’t until I called the surgeons office and told them if they didn’t get it scheduled in the next week that my Mom had decided she wasn’t going to have the biopsy at all and just get on with her life. She had the biopsy the following week.  From November through mid March I couldn’t help going back to 1991 and feeling terrified for what I thought was the death sentence my Mom was about to get. And of course Dr. Google didn’t help my preconceived notion of what was going to happen. We finally received the biopsy results on 3/28 and stage 4 small cell/non small cell lung cancer combo was diagnosed. I went into panic mode and thought back to when my mom took care of my dad over his last 5 months. How will I do all that, can I do what it takes, am I strong enough to do it, what will she go through, what about her quality of life and on and on for weeks. Then I just happened across a website called Lungevity.org and began to read the forums. I couldn’t believe what I was reading, people posting that they are LIVING with lung cancer, people posting HOPE, people posting ENCOURAGEMENT! I felt like I’d hit the lottery! Having gone down this road once before with nothing available, I feel incredibly lucky to have a place where people are sharing their first hand, boots on the ground real life experiences with everything related to lung cancer.  This site is helping me dig my way out of the very deep black hole and is giving me the strength to get through whatever we face for which I will always be grateful for. 
  14. Like
    Curt reacted to Rower Michelle in Can't seem to shake anxiety   
    Hello Marianne,
    Nice to heat from you again. I’m glad that your physical recovery is going well.  Welcome to our club where it’s perfectly normal to feel like you are going crazy. 
    Your doctors may not have shared that there is no correlation between tumor size and stage.  Big tumors can stay put while little sneaky ones get away. One of my friends had advanced testicular cancer over 30 years ago, to this day the cancer recurrence hovers in the back of his mind. It isn’t a huge focus but more like having a  “roommate”   They learned over time to coexist  
    You might call the oncology social worker to ask for a referral to a support group as well. Living amongst other survivors can be very inspiring.  If you’re not sleeping or eating well, I wouldn’t hesitate to ask the doc for some meds.  It might take some time to get your “sea legs” as you settle into the new scan schedule. 
    This isn’t a walk in the park- until you head back to work you might want to calendar in some nice self care activities like yoga and  myofacial release Message, yoga or a weekend getaway.  All of these things have empirical evidence to effectively manage the anxiety. 
    Hugs to you! 
    Michelle
  15. Like
    Curt reacted to Deb W in Can't seem to shake anxiety   
    Hi Marianne,
    I understand.  I will be having my 1st post op scan in October.  I would say that the worry of recurrence is there, or at least in the back of my mind daily. 
    If you are able, exercise is helpful for low mood and anxiety.  Good nutrition is key as well.  However, If you are experiencing loss of sleep, poor appetite and low mood for more than a couple of weeks, it might be beneficial to have a medication evaluation.  Medication can be a wonderful support as you go through this process.   


  16. Like
    Curt reacted to Tom Galli in Can't seem to shake anxiety   
    Marianne,
    Welcome here. I understand your recurrence concern; I've had four!
    You also are consulting with a therapist and that is the right thing to do.  I didn't and ended up deeply depressed, and afraid, and in pain, and etcetera. 
    Maybe this prospective might help.  You've had a close encounter with a deadly disease and to defeat it, you chose treatment.  In choosing treatment one chooses life and doing so means a desire, perhaps a duty, to enjoy the life you have. This was so hard for me to realize because I was looking for "big picture joy". Big picture joy is a myth. Most of life is not joyful but there are moments. I was so confused I was missing the moments. Now I look for those small opportunities for joy everyday and when discovered, I revel in the moment. I search, discover and celebrate not everyday but most days.
    A very close friend, a fellow lung cancer survivor,  passed last August. I wrote this about her and her life attitude.
    Stay the course.
    Tom
  17. Like
    Curt got a reaction from Roz in Post Surgery and Updates   
    Hi Deb.  I had a RUL at the end of February.  The fatigue was surprising but it is passing slowly.  Your body needs a lot of energy to recover.  Even if you are outwardly recovered your body may still be working on some inward recovery.  Keeping up your activity level will help.  You’ve been through a traumatic physical and emotional event.  Both sides of that need to be nurtured for true recover.  Emotional stress and worry can cause fatigue.  We all worry about recurrence and progression.  Tomorrow isn’t guaranteed for anyone, even those without cancer.  Worry won’t change that, it will only get in the way of enjoying today.  I know, easier said then done.  I’m still working on practicing what I preach. I have found that as time is passing my physical stamina is recovering and my emotional worry is lessening.  I hope the same for you.  
  18. Like
    Curt reacted to Rower Michelle in Just diagnosed   
    Yes. I do. Given your wife’s presentation I was betting she had a mutation (like me).  I think the best shot mutants have is through targeted therapy.  Recent trials have resulted in excelerated FDA approval.  
    Going the chemoimmuno route could exclude your wife from participating in future clinical trials. Ask the doctor about that. 
    Targeted therapy is much better tolerated, works very quickly with a high quality of life. Chemo can always be a back up plan. 
    Ask about the potential side effects & to review the preliminary trial data before you make the final decision. 
    Michelle
  19. Like
    Curt got a reaction from Rower Michelle in Post Surgery and Updates   
    Hi Deb.  I had a RUL at the end of February.  The fatigue was surprising but it is passing slowly.  Your body needs a lot of energy to recover.  Even if you are outwardly recovered your body may still be working on some inward recovery.  Keeping up your activity level will help.  You’ve been through a traumatic physical and emotional event.  Both sides of that need to be nurtured for true recover.  Emotional stress and worry can cause fatigue.  We all worry about recurrence and progression.  Tomorrow isn’t guaranteed for anyone, even those without cancer.  Worry won’t change that, it will only get in the way of enjoying today.  I know, easier said then done.  I’m still working on practicing what I preach. I have found that as time is passing my physical stamina is recovering and my emotional worry is lessening.  I hope the same for you.  
  20. Like
    Curt got a reaction from LexieCat in AWOL, but back with good news   
    Congrats Lexi.  Great results!
  21. Like
    Curt reacted to LexieCat in AWOL, but back with good news   
    First things first--oncologist appt. after latest scan this morning.  All clear!  Originally the thought was that now, after two years post-surgery and cancer-free, the scans would drop back to yearly.  Onc tells me, though, that guidance has changed and now some recommend one more year of 6-month scans.  He prefers to take the conservative approach, so it will be six months for another year.  BUT he tells me this 2-year milestone is HUGE and he doesn't expect any further issues.  He also said there was a chance insurance would insist a 6-month scan not necessary at this point, and he wasn't particularly concerned about that--in that case, he said, a scan in a year seemed fine to him.
    Sorry I haven't been around for the past several weeks.  Very busy both with work and with my latest obsession with the political process (which I won't get into here, other than to say there's a certain young Mayor from South Bend who is AWESOME).  I'll try to stop by as I am able to, but overall I'm happy to develop some new interests.  I barely thought about cancer until this morning--again, my lovely doc told me "Everything looks GREAT" before the door closed behind him.   
    Hope folks here are doing well--I'll try to catch up on the latest.
  22. Like
    Curt reacted to Susan Cornett in CT results and exhale   
    Had a CT on Tuesday and I'm thrilled to say I'm still NED!  This is the longest stretch (8 months) that I've gone without a recurrence or treatment. Somebody pinch me! I'm also 3 years & 4 months from diagnosis as stage IV. So very much to celebrate!
    As I said in my FB post last night, it is not lost on me that I've been blessed with more time than others. I believe we all have a purpose in life and I believe I"m still here for a reason.  I try to use my time to share our stories, educate others and help the newly diagnosed deal with this crummy diagnosis.
    Tom says stay the course - he's absolutely right! 
  23. Like
    Curt reacted to Isabelle49 in Med port   
    Right. I will care and advocate for myself the same as I did for patients I cared for in my career as a nurse for 33 years.
  24. Like
    Curt reacted to Irwin1 in I have to share this good news!   
    I got some more hope today. Last Friday I took a fresh CT scan. I had my first CT scan in the ER on May 20 when they discovered the mass. Then I had my PET scan after I was discharged. Then this later the one on Friday. In the ER the mass was between 5-6 cm. I had a needle biopsy that said that the pathologist did not see any cancer. Just cells and dead tissue. Then in the PET scan my wife noticed that the mass shrank to 4 cm. She asked the oncologist about this but he said that the shrinking was because of the PET scan was not as accurate as the CT scan. 
    ...I was feeling very healthy today and I still did not have even one of the symptoms of LC even with the 5cm mass in my lung with a PET scan with positive lymphnodes.So I called into the thoracic surgeons office to see if they would read the results to me..The girl who answered the phone that she had to get someone in the technical department to read the results. So I have no idea what the qualifications of the girl that read the report to me. I don't remember what the report called the mass but the report said that there was shrinkage in this CT scan too. The girl told me that it was very rare that something cancerous to shrink by itself.. But I am sure that the girl had to know that she would get into a lot of trouble saying this. She told me that I would still recommend taking the bronchoscopy.
       So I am taking what she told me with cautious optimism. If I get over exited about this I could get emotionally body slam if I get a terrible report from the bronchoscopy.
         But I do have some real hope the way things are going. The positive PET scan lymphnodes could be reactive from infection along with the mass. For those who pray keep praying 🙏
  25. Like
    Curt got a reaction from Deb W in I have to share this good news!   
    Hi Irwin.  I can relate to the smack in the face from the realization you have cancer.  I’m currently NED and my mind often drifts away from my having had cancer.  But sometimes I get a sense of dread when my mind suddenly remembers and panics.  It’s not often but when it happens it’s definitely like a smack in the face. 
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