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Curt

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  1. Like
    Curt reacted to Deb W in Post op   
    Hi Kinsbourg,
    I had an upper left lobectomy March 22.  I had VATS robotic surgery.   I went for short walks the first week home and gradually increased them.  I started playing tennis again in June and play a couple of matches a week now combined with other exercise on alternate days.  After surgery, I never thought it would be possible to do all the things I did before.  The doctors told me I would, but I didn't really believe them!  Managing energy is still a challenge for me at times.  I can never seem to tell in the moment when I've overdone it and then I pay the consequences of feeling extremely fatigued later.  I am getting to know my limits a  little better as time goes by.  Wishing you all the best on your upcoming surgery.
  2. Like
    Curt reacted to Claudia in Diagnosis by surprise   
    That's exactly what I have heard. Long rehab but totally worth it. I can't wait. LOL
  3. Like
    Curt got a reaction from Claudia in Diagnosis by surprise   
    Joint replacement surgery isn’t easy  the results are amazing for anyone I know who’s had it.
  4. Like
    Curt got a reaction from Claudia in Diagnosis by surprise   
    That is amazing progress Claudia.  I was really afraid of going under anesthesia as well.  They know what they are doing and are hyper cautious about who they will put under and who they won’t.  You’ll do great.  Is the shoulder replacement related to the cancer?   
  5. Like
    Curt got a reaction from Claudia in Diagnosis by surprise   
    Hi Claudia.  The, “there is a spot on your lung” is scary and shocking.  Mine was found peripherally on an abdominal scan for something else.  We watched it for a year with no change.  I opted to have it removed just in case.  It turned out to be Stage 1A Adenocarcinoma NSCLC.  I had an upper right lobe lobectomy.  You mentioned finding the 3cm mass by accident.  Did you have any additional testing for a diagnosis?   
  6. Like
    Curt reacted to Terri L in Cancer trial   
    I am on Keytruda/Pemetrexed/carboplatin.  Only one treatment so far.  21 days between each for a total of 4.  I felt tremendous after the treatment and had zero side effects.  Without saying the words, he indicated it was a hail mary mixture, as I showed up for help in end stages.  Other than my cough(which has been cut in half)  and getting tired pretty easy, I'm doing fine.  As a matter of fact, he told me to walk daily now.  Before I needed help to get to the ladies room.  I won't be medically cured, but between prayer and attitude, I see life as worth pursuing again.  In my opinion, we just keep trying new things until they run out of new things.  My doctor said new trials are coming to market all the time, and each person is different.   
  7. Like
    Curt reacted to Claudia in How to starve cancer   
    Thank you for your response Tom. I, too, am skeptical of all "miracle cures". I just thought I would ask here to see if anyone had anything to say. I always appreciate your posts.
    Claudia
  8. Like
    Curt reacted to Tom Galli in How to starve cancer   
    Claudia, 
    I’ve not read the book you mention but many like it. I’m very pleased to learn you are consulting with your physician before you try any of the “curative” diet suggestions. 
    During treatment, my problem was consuming calories because chemo really affected my tastebuds. I also wonder at the top level how it is possible to starve cancer without starving the body. 
    I am unusually sensitive about people who publish the “I have a cure” book because a close friend believed, denied conventional treatment, and died well before his time.
    Stay the course.
    Tom 
  9. Like
    Curt got a reaction from Nancy Ann in Power washing   
    Four months out from a right upper lobe lobectomy and I’m happy to report that power washing the patio in 80 degree weather is NO problem.  I would never have guessed that when I first learned I was going to have surgery. I was sure I’d be wheezing and short of breath the rest of my life.  I’m happy to report that life’s mundane chores are still possible...and less mundane now.  My wife’s even happier to report it.  I may need to learn to play this lobectomy thing up a bit more.  
     
     
     
  10. Like
    Curt got a reaction from JillW in Power washing   
    Four months out from a right upper lobe lobectomy and I’m happy to report that power washing the patio in 80 degree weather is NO problem.  I would never have guessed that when I first learned I was going to have surgery. I was sure I’d be wheezing and short of breath the rest of my life.  I’m happy to report that life’s mundane chores are still possible...and less mundane now.  My wife’s even happier to report it.  I may need to learn to play this lobectomy thing up a bit more.  
     
     
     
  11. Like
    Curt got a reaction from Susan Cornett in Hoping for a false alarm....   
    Every ache and pain comes along with another level of concern now.  The up side is those little things in life that felt like big concerns no longer do.  Lots of perspective with this journey.  
    Good luck with the scans and enjoy that pedicure.  It sounds way more important than the rest.  
  12. Like
    Curt got a reaction from Claudia in Hoping for a false alarm....   
    Every ache and pain comes along with another level of concern now.  The up side is those little things in life that felt like big concerns no longer do.  Lots of perspective with this journey.  
    Good luck with the scans and enjoy that pedicure.  It sounds way more important than the rest.  
  13. Like
    Curt got a reaction from judyb75 in Hoping for a false alarm....   
    Every ache and pain comes along with another level of concern now.  The up side is those little things in life that felt like big concerns no longer do.  Lots of perspective with this journey.  
    Good luck with the scans and enjoy that pedicure.  It sounds way more important than the rest.  
  14. Like
    Curt reacted to Rower Michelle in Hoping for a false alarm....   
    Yeah that’s right!  My brother in law is visiting this week. He inspected my trike tires and said the tires are too low- duh. I just thought I was slow.  After that adjustment I’m pretty close to my pre cancer speed!  Row camp is next weekend, it’s going to be quality over quantity! 
  15. Like
    Curt got a reaction from Rower Michelle in Hoping for a false alarm....   
    Every ache and pain comes along with another level of concern now.  The up side is those little things in life that felt like big concerns no longer do.  Lots of perspective with this journey.  
    Good luck with the scans and enjoy that pedicure.  It sounds way more important than the rest.  
  16. Like
    Curt reacted to Terri L in Hurry up and wait   
    Welcome Kooper,
    I am a newbie and also had the bronchoscopy.  It was no big deal.  I didn't even get a sore throat.  It was day surgery and home that night. It was waiting on the pathology report and the referral to the first oncologist appointment that took 2 weeks that was nerve wracking for me.  Hang in there and keep us posted.
  17. Thanks
    Curt got a reaction from Mally in Mally   
    I’m sorry to hear that Mally.  Recurrence is a really tough part of this disease.  Your treatment plans sounds like a good one and it sounds like the recurrence was caught early.  Hang in there.  
  18. Like
    Curt got a reaction from PaulaC in Power washing   
    Four months out from a right upper lobe lobectomy and I’m happy to report that power washing the patio in 80 degree weather is NO problem.  I would never have guessed that when I first learned I was going to have surgery. I was sure I’d be wheezing and short of breath the rest of my life.  I’m happy to report that life’s mundane chores are still possible...and less mundane now.  My wife’s even happier to report it.  I may need to learn to play this lobectomy thing up a bit more.  
     
     
     
  19. Thanks
    Curt got a reaction from Michele in Small cell   
    Great news Michele.  Thank you for light.  
  20. Haha
    Curt got a reaction from Rower Michelle in Power washing   
    25’ long and 11” wide?!  Now I get the not tipping over part.   You are definitely going to make it out of the cove.    
  21. Like
    Curt reacted to Rower Michelle in Power washing   
    A racing shell is what you see in the Olympics, my boat is 25ft long, 11 inches wide, painted the color of a Dodge Prowler- purple sparkles- oh and he name- TROUBLEMAKER. 🤪
    We have a double named Widowmaker- haha.   Beautiful morning watching the blue herons fly around. Next week I might make it out of the cove but I have to go to Iowa City to interview a new hippie doctor.  Ugh!  
    Onward! 
  22. Like
    Curt reacted to Isabelle49 in Power washing   
    Awesome to hear. So happy for you. Blessings.
  23. Like
    Curt reacted to Susanrae in Power washing   
    Very happy for you.  The honey-do list will commence!!  Susan Rae
  24. Like
    Curt reacted to Rower Michelle in Power washing   
    Congratulations!  Only your family here would really understand the magnitude of this milestone!  Getting back to “normal”’things.  You’ve probably never been happier to do chores on a holiday weekend!! 
    Under the never thought it would be possible, I got into my racing shell yesterday, had to stay in the 300 meter cove, but yowza, I didn’t flip!  Not pretty but still way better than a casual recreation rower!  
    Here’s to doing the never thought possible! Cheers!  
  25. Like
    Curt got a reaction from Tom Galli in Power washing   
    Four months out from a right upper lobe lobectomy and I’m happy to report that power washing the patio in 80 degree weather is NO problem.  I would never have guessed that when I first learned I was going to have surgery. I was sure I’d be wheezing and short of breath the rest of my life.  I’m happy to report that life’s mundane chores are still possible...and less mundane now.  My wife’s even happier to report it.  I may need to learn to play this lobectomy thing up a bit more.  
     
     
     
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