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Curt

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  1. Like
    Curt reacted to Rower Michelle in This or That Tuesday: Favorite Fall Sport   
    Football all the way! Go Giants (Sorry Eli!!)
  2. Like
    Curt got a reaction from Tom Galli in How big for biopsy?   
    Hearing you have a lung nodule and need a biopsy is terrifying.  I’m sorry you are going through that.  Please remember that the majority of lung nodules are benign (not cancer).  Also know, in the unlikely event it is cancer, that a single malignant (cancerous) lung nodule of that size is curable, often times with just surgery.  Ignore all the scary stuff you read online.   Much of it is dated information based on cancer treatments of five + years ago.  
     
    Tom has provided some really good info for you to digest ahead of your appointment.   
     
    Hang in there and check in when you need some support. 
  3. Like
    Curt reacted to Tom Galli in How big for biopsy?   
    Ginger,
    Did the doctor say 1.3mm X 1.5mm or 1.3cm X 1.5cm? Either way you are dealing with a single small nodule.  Most nodules are not cancer.  Here is the Cleveland Clinic's discussion about pulmonary nodules and why they form.  Notice, most are not related to cancer. So do consult with the pulmonologist but don't push the terrified button. Let's wait till we know what we are dealing with. Here is some information on lung biopsies ahead of tomorrow's discussion.
    But, you've found the right place for questions about biopsies and nodules and treatments.  Try and relax and....
    Stay the course.
    Tom
  4. Like
    Curt got a reaction from LouT in Kate7617   
    Hi Kate.   Welcome. You’ve found a great place to do both give and record support.  
  5. Like
    Curt got a reaction from BridgetO in VATs update   
    Hi Steph. Monday is REALLY soon to be sweating the spirometer results.   It took me months to get back to where I was pre-surgery.  The important thing is I did.  Don’t rush it.  Give your body a chance to heal.  The pain does go away but it takes a while.  It took me about a month to really get back in the swing of things.  Walk as much as you can, use the spirometer as much as you can and SLEEP the rest of the time.  You’ll get back sooner than you think.  
  6. Like
    Curt got a reaction from Tom Galli in VATs update   
    Hi Steph. Monday is REALLY soon to be sweating the spirometer results.   It took me months to get back to where I was pre-surgery.  The important thing is I did.  Don’t rush it.  Give your body a chance to heal.  The pain does go away but it takes a while.  It took me about a month to really get back in the swing of things.  Walk as much as you can, use the spirometer as much as you can and SLEEP the rest of the time.  You’ll get back sooner than you think.  
  7. Like
    Curt reacted to RonH in Kate7617   
    Kate7617 - I believe most people are upset and worried, but are keeping it inside and not showing it to you because they don't want to cause you more stress. I know when my wife had uterine cancer 2-1/2 years ago and had to have emergency surgery followed by chemo and the radiation, I tried to show that I cared but didn't let on than I was worried sick as it would have just put more of a burden or stress on her. Now I am going through NSCLC and she is the same, appearing strong and saying everything will be all right, but I know she knows that the prognosis is not great and is worried. We're just being strong for each other and not having emotional breakdowns. I personally act like I am not overly concerned and it's just one of those things that so people go through. Congrats on Durvalumab #6, I made it to #18 and firmly believe that it did help delay progression or recurrence for me, but it appears that I will be changing "weapons" in a few weeks to try to fight it a different way.
  8. Like
    Curt got a reaction from Rower Michelle in Kate7617   
    About four months into my dad’s battle with lung cancer I got upset in front of him.  He said he didn’t realize it was upsetting me that much.  Our trying to be strong in front of him and not letting him see us upset left him feeling like we weren’t really that upset.  Your family probably doesn’t get all of the emotions you are going through, but I’m sure they are more upset and care more than they are showing.  I didn’t understand what my dad was going through until I was diagnosed.  I wish I could go back and do it differently for him.  
  9. Like
    Curt reacted to Isabelle49 in A sneak peek   
    As of today, 7 weeks and 1 day to the big day!!! So very excited!!! To be at that wedding will be a great blessing!!!
  10. Like
    Curt reacted to Nancy Ann in Surgery tomorrow   
    Surgery was 4 weeks ago, tomorrow.  All went very well.  The pathology on the 23 lymph nodes that were removed were all clear.  My recovery has been going well, I feel very good.  Thank God for the yearly chest scans I had, as they say, “early detection”.  
    Lungevity is a wonderful resource, I am so lucky to have found!  
     
  11. Like
    Curt reacted to LouT in Tick Tock - Scan Time   
    Curt,
    I'm thrilled to hear this super news.  You're doing great and since we were pretty close together in diagnosis and surgeries hearing your scan results boost my own mood.  I don't get my scan until February, so I'm going to really try and keep my head into LIFE until then, but (truth be told) sometimes later at night my mind begins to wander and that's when I look at results like yours and smile with the feeling that all will be well.
    Thanks for the great news and congratulations!!!
    Lou
  12. Like
    Curt reacted to Rower Michelle in Tick Tock - Scan Time   
    So happy for you! All the best!!! That’s super news!!!
  13. Thanks
    Curt got a reaction from Pattymac in VATS Surgery After non malignant biopsy   
    I had an 8mm nodule discovered by accident and watched it for a year with no change and no PET activity.  I have a family history of lung cancer and it was a spiculated nodule.  After a year of no changes the doctor recommended having a lobectomy.  I was floored.  I was feeling really good about the no changes.   When I received the first recommendation for surgery the doctor used the term lobectomy.  I couldn’t understand why they would recommend a full lobectomy without knowing it was cancer.  I went for a second opinion and the doctor said that he would do a wedge resection to see if it was cancerous, if it was he would continue with the full lobectomy at that time.  I followed up with the first doctor and was told that was what they were recommending, they just didn’t describe it well.  I decided to go with the second doctor. The nodule turned out to be cancerous and I had the full lobectomy about six months ago.
    Watching it for changes is a perfectly reasonable approach in my opinion.  I was a bit more aggressive because of a significant family history and the fact that I was told it would be a very minor or no quality of life difference for me to have surgery.    
    Most nodules are not cancerous but things like family history, spiculated, ground glass, female, former smoker and multiple nodules increases the concern.   
    Recovery from a lobectomy is different for everyone.  It is not fun but many are able to make full recoveries with little to no quality of life differences.  I have in six months.  How far you can recover depends on your age, physical health and pre/post surgery routines.  
    I hope you are one of the majority of people who have nodules on your lungs that are nothing.  Know that if you are of the unlucky minority of us that it is cancer that there are treatment options and this community is here to help get you through it. 
  14. Like
    Curt got a reaction from LUNGevityKristin in This or That Tuesday: Fall Drink Edition   
    Apple Cider
  15. Like
    Curt reacted to Deb W in Tick Tock - Scan Time   
    Fantastic news Curt!
  16. Like
    Curt reacted to PaulaC in Tick Tock - Scan Time   
    Awesome!!! Congrats
  17. Like
    Curt got a reaction from judyb75 in Tick Tock - Scan Time   
    My first six month CT scan post lobectomy.  Not a thought crossed my mind until I put the robe on and sat down in the CT waiting room.  Then the anxiety begins.  Getting the IV provided some distraction.  I don’t mind needles and the  nurse who put it in was nice.  Then laying there staring up at the CT Machine all the “what if’s” start in.  On to the doctors waiting room.  I’m lucky that I get a CT Scan then meet with the doctor right after.  The hour in between is enough worry for me.  Sitting in the waiting room.  Tick Tock it’s like time is frozen.  From the waiting room to the exam room.  More waiting.  More wondering and worrying.  Is it taking so long because there is something wrong?  Are they reading my CT and trying to figure out what something is on there is?  Is my headache from the CT Contrasts or the stress?  The Doctor comes in.  We talk for five minutes. All clear.  NED.  Got there at 1:50 and was gone by 3:20.  I am so thankful they do it that way.  The hour and a half of worry is more than enough for me.  I really wish it was the same for everyone.  Next CT is March 2020.  
  18. Like
    Curt got a reaction from Deb W in Tick Tock - Scan Time   
    My first six month CT scan post lobectomy.  Not a thought crossed my mind until I put the robe on and sat down in the CT waiting room.  Then the anxiety begins.  Getting the IV provided some distraction.  I don’t mind needles and the  nurse who put it in was nice.  Then laying there staring up at the CT Machine all the “what if’s” start in.  On to the doctors waiting room.  I’m lucky that I get a CT Scan then meet with the doctor right after.  The hour in between is enough worry for me.  Sitting in the waiting room.  Tick Tock it’s like time is frozen.  From the waiting room to the exam room.  More waiting.  More wondering and worrying.  Is it taking so long because there is something wrong?  Are they reading my CT and trying to figure out what something is on there is?  Is my headache from the CT Contrasts or the stress?  The Doctor comes in.  We talk for five minutes. All clear.  NED.  Got there at 1:50 and was gone by 3:20.  I am so thankful they do it that way.  The hour and a half of worry is more than enough for me.  I really wish it was the same for everyone.  Next CT is March 2020.  
  19. Like
    Curt got a reaction from PaulaC in Tick Tock - Scan Time   
    My first six month CT scan post lobectomy.  Not a thought crossed my mind until I put the robe on and sat down in the CT waiting room.  Then the anxiety begins.  Getting the IV provided some distraction.  I don’t mind needles and the  nurse who put it in was nice.  Then laying there staring up at the CT Machine all the “what if’s” start in.  On to the doctors waiting room.  I’m lucky that I get a CT Scan then meet with the doctor right after.  The hour in between is enough worry for me.  Sitting in the waiting room.  Tick Tock it’s like time is frozen.  From the waiting room to the exam room.  More waiting.  More wondering and worrying.  Is it taking so long because there is something wrong?  Are they reading my CT and trying to figure out what something is on there is?  Is my headache from the CT Contrasts or the stress?  The Doctor comes in.  We talk for five minutes. All clear.  NED.  Got there at 1:50 and was gone by 3:20.  I am so thankful they do it that way.  The hour and a half of worry is more than enough for me.  I really wish it was the same for everyone.  Next CT is March 2020.  
  20. Like
    Curt reacted to Moonbeam in Tick Tock - Scan Time   
    So thrilled for you Curt!!! Congratulations 
  21. Like
    Curt reacted to Lisa L in Tick Tock - Scan Time   
    Yay yay yay Curt....love hearing this!!!!
  22. Like
    Curt reacted to Tom Galli in Tick Tock - Scan Time   
    Curt,
    A NED scan 6-months post op! I'd say that calls for a CELEBRATION!
    Stay the course.
    Tom
  23. Like
    Curt got a reaction from Steff in Tick Tock - Scan Time   
    My first six month CT scan post lobectomy.  Not a thought crossed my mind until I put the robe on and sat down in the CT waiting room.  Then the anxiety begins.  Getting the IV provided some distraction.  I don’t mind needles and the  nurse who put it in was nice.  Then laying there staring up at the CT Machine all the “what if’s” start in.  On to the doctors waiting room.  I’m lucky that I get a CT Scan then meet with the doctor right after.  The hour in between is enough worry for me.  Sitting in the waiting room.  Tick Tock it’s like time is frozen.  From the waiting room to the exam room.  More waiting.  More wondering and worrying.  Is it taking so long because there is something wrong?  Are they reading my CT and trying to figure out what something is on there is?  Is my headache from the CT Contrasts or the stress?  The Doctor comes in.  We talk for five minutes. All clear.  NED.  Got there at 1:50 and was gone by 3:20.  I am so thankful they do it that way.  The hour and a half of worry is more than enough for me.  I really wish it was the same for everyone.  Next CT is March 2020.  
  24. Like
    Curt got a reaction from Moonbeam in Tick Tock - Scan Time   
    My first six month CT scan post lobectomy.  Not a thought crossed my mind until I put the robe on and sat down in the CT waiting room.  Then the anxiety begins.  Getting the IV provided some distraction.  I don’t mind needles and the  nurse who put it in was nice.  Then laying there staring up at the CT Machine all the “what if’s” start in.  On to the doctors waiting room.  I’m lucky that I get a CT Scan then meet with the doctor right after.  The hour in between is enough worry for me.  Sitting in the waiting room.  Tick Tock it’s like time is frozen.  From the waiting room to the exam room.  More waiting.  More wondering and worrying.  Is it taking so long because there is something wrong?  Are they reading my CT and trying to figure out what something is on there is?  Is my headache from the CT Contrasts or the stress?  The Doctor comes in.  We talk for five minutes. All clear.  NED.  Got there at 1:50 and was gone by 3:20.  I am so thankful they do it that way.  The hour and a half of worry is more than enough for me.  I really wish it was the same for everyone.  Next CT is March 2020.  
  25. Like
    Curt got a reaction from Lin wilki in Tick Tock - Scan Time   
    My first six month CT scan post lobectomy.  Not a thought crossed my mind until I put the robe on and sat down in the CT waiting room.  Then the anxiety begins.  Getting the IV provided some distraction.  I don’t mind needles and the  nurse who put it in was nice.  Then laying there staring up at the CT Machine all the “what if’s” start in.  On to the doctors waiting room.  I’m lucky that I get a CT Scan then meet with the doctor right after.  The hour in between is enough worry for me.  Sitting in the waiting room.  Tick Tock it’s like time is frozen.  From the waiting room to the exam room.  More waiting.  More wondering and worrying.  Is it taking so long because there is something wrong?  Are they reading my CT and trying to figure out what something is on there is?  Is my headache from the CT Contrasts or the stress?  The Doctor comes in.  We talk for five minutes. All clear.  NED.  Got there at 1:50 and was gone by 3:20.  I am so thankful they do it that way.  The hour and a half of worry is more than enough for me.  I really wish it was the same for everyone.  Next CT is March 2020.  
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