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Curt

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  1. Like
    Curt reacted to Tom Galli in Happy New Year   
    For survivors and caregivers: may this New Year bring all no evidence of disease! 
    Stay the course. 
    Tom
  2. Like
    Curt got a reaction from TJM in Am I doing a right thing? I am new this forum   
    @Ted I was in the exact situation last year.  I went into surgery not knowing and came out with Stage 1 Lung cancer.  If it wasn’t cancer they would only have taken a wedge with no change in lung capacity.  Since it was cancer they removed the entire lobe.  I have not required any follow up treatment.  My lung capacity is back to normal.  I have a little bit of numbness.  Surgery is the gold standard for treatment.  It does feel barbaric to do it without knowing for sure but I did and I’m glad I did.  
  3. Like
    Curt got a reaction from Deb W in Happy New Year - 308 Days Post Lobectomy   
    It’s been 308 days since I had an upper right lobe lobectomy.   I’m spending this New Years Eve with my wife and three sons (7, 9 and 11) at an indoor water park.  Walking the stairs probably isn’t like it would have been last year but I’m able to do it and here to enjoy it.   I’ll add making it easier to climb stairs to the list of resolutions (I’ve got a few).   Another year in the books.  I hope 2020 is a little healthier, a littler easier and a lot happier for everyone here.  ❤️🌟💫💪🏼🥊💥🥂
  4. Like
    Curt got a reaction from G.A.M. in Hermit   
    Welcome @G.A.M.   I’m sorry to hear about your diagnosis and your other difficulties.  You’ve come to the right place for support.  AlL of us are here for the same reason, to give and to get.
    Surgery is an affective treatment but it comes with its risks and recovery challenges.  That is why they are focused on the lung function tests.   The uncertainty during the diagnosis phase and treatment planning is stressful.  We are here to listen.  
     
    Hang in there.  
  5. Like
    Curt reacted to Lisa66 in New Member   
    Welcome Valerie. When you see hay y’all on my post you will know I am not from NJ Lol. I wish you all the luck on your treatment. You will find a lot of experienced, kind, and helpful people here.
    Prayers
    Lisa
  6. Like
    Curt got a reaction from Valerie Brown in CT scan results   
    Waiting for results is awful.  4mm is REALLY small though.  Is this the first nodule or have you had LC before?
  7. Like
    Curt reacted to Lisa L in New and concerned about PET suv   
    Hi Willa, I have a 9mm slightly spiculated nodule in left lung, caught by chance on ct last December.   I had a pet 3 weeks later with no Uptake.  I got a pulmonologist and did another ct in April and Aug. with no growth, so considered stable and next scan is end of feb.  now with that said how does this affect my mental state, at first I freaked out ever day and was a complete mess but after talking to my pulmonologist and the nodule staying stable I started just forgetting about it.  Fast forward today and last two weeks I have had pain in left chest like it’s sore so once again I’m completely freaked out yet I go back to what my pulmonologist said that I would never feel anything from a small nodule and I tried to calm down and think about what I’ve been doing differently and I realised I’ve increased my upper body workout and I’m just sore from that.  Our minds can play funny tricks on us.  I would see what next ct scan shows and if it has grown and since it did light up on the pet I would choose to have it removed, keep us updated and stay strong, the people on this forum are amazing.  Love and light ❤️
  8. Like
    Curt reacted to woco in Remaining positive and optimistic   
    I am now in my seventh month of treatments after diagnosis...just had my second CT Scan earlier this week.  Good news...no new growth or spreading and my tumor continues to shrink.  Sometimes I hope to hear the tumor is gone, but, for now, I remain optimistic and hopeful, realizing God is good, and prayers are powerful. 
  9. Like
    Curt got a reaction from Irka in New and concerned about PET suv   
    Hello @Willa   I’m sorry to hear about the nodule.  What you’ve mentioned is suspicious.  I watched one for a year with no growth and very low SUV.  It was too small for a biopsy.  In the end my doctor recommending a wedge resection to remove it.  It turned out to be cancer and they proceeded with a lobectomy.  I’ve made a full recovery and haven’t needed any follow up treatment.  Watching your nodule is a reasonable approach.  
  10. Like
    Curt got a reaction from Susanrae in Happy Holidays to all!   
    Holidays bring an equal amount of joy and sorrow.  For some more of one than the other.  It can be a tough time of year for some.  I hope yours is filled with mostly Joy.    
  11. Like
    Curt got a reaction from ColleenRae in Happy Holidays to all!   
    Holidays bring an equal amount of joy and sorrow.  For some more of one than the other.  It can be a tough time of year for some.  I hope yours is filled with mostly Joy.    
  12. Like
    Curt got a reaction from Roz in Happy Holidays   
    Happy Holidays Roz.   
  13. Like
    Curt reacted to Barb1260 in Durvalumab   
    Merry Christmas and happy new year to my fellow Durvas. May 2020 bring us all to NED if not there already!!!  🎄
  14. Like
    Curt reacted to Roz in Happy Holidays   
    Wishing everyone a happy holiday season and a new year filled with good health!!
     
    Best, 
    Ro
  15. Like
    Curt got a reaction from Barb1260 in Happy Holidays to all!   
    Holidays bring an equal amount of joy and sorrow.  For some more of one than the other.  It can be a tough time of year for some.  I hope yours is filled with mostly Joy.    
  16. Like
    Curt reacted to Rower Michelle in Happy Holidays to all!   
    Hi Barb-
    You’ve come to the right place for a boost!  I remember what you were going through last year and how you’re in a much better place today.   One of the things I really appreciate about our family here is the HOPE from the long term survivors.   The grit and grace in the face of adversity. Who knew getting out of bed could be so hard on some days?  Those are the days I think of @LouT out there power walking, @Curtgetting excited about power washing his deck or the other Jersey Girl @Opal trying time squeeze into her clothes post Durva....😀
    You’ve made a fabulous contribution to the Durva Club this year, just think how you’ve helped someone who might be starting out today.   This too shall pass and when it does, Carry On.  All the best to you in the New Year! 
     
    Michelle
  17. Like
    Curt reacted to Susan Cornett in I saw the news today, oh boy....   
    I replied to his tweet and directed him here. We all know what he's going through so hopefully he'll find the support he needs. Stupid cancer.
  18. Like
    Curt got a reaction from BridgetO in I have a brain and only a brain!!!!   
    “I shall ask for brains instead of a heart; for a fool would not know what to do with a heart if he had one.” - Scarecrow, Wizard of Oz.   
  19. Like
    Curt reacted to D iane in Small Cell Diagnosis   
    Hi.  Just dropping by to wish everyone a Happy Holiday!!!  Under a week away for the Big Man!  We aren't planning much.  
    I am happy to report that husband's 2nd cycle was uneventful.  Once again, though, the joint pain from the Neulasta shot knocks him down for a day at least.   I had a cold and was nervous he would get it but he did not.  So far so good.  He does have abdominal pain off an on which is a pain to figure out.  Is it cancer?  constipation?  something else?  At least today it is very mild and he is actually out working.
    Next up is the 26th going for labs and a check up.  If all is well 3rd cycle will start on the 30th.
     
  20. Like
    Curt reacted to Barb1260 in Durvalumab   
    CT results compared to a year ago-from 6.8x5.8 to 2.8x1.9cm. The 5mm found in Sept on left lung is now 2mm. Nothing new.  I guess this expensive stuff is working. Happy Holidays!!!!
  21. Like
    Curt got a reaction from Lisa66 in I have a brain and only a brain!!!!   
    “I shall ask for brains instead of a heart; for a fool would not know what to do with a heart if he had one.” - Scarecrow, Wizard of Oz.   
  22. Like
    Curt got a reaction from Rower Michelle in I have a brain and only a brain!!!!   
    “I shall ask for brains instead of a heart; for a fool would not know what to do with a heart if he had one.” - Scarecrow, Wizard of Oz.   
  23. Like
    Curt reacted to Barb1260 in Durvalumab   
    Hey!  Are all us Durvas feeling so good we’re running around doing holiday preps? No posts for a solid week. I’m going to take that as a good thing!!🥳
  24. Like
    Curt reacted to Robert A. in Hello, my name is Freddy   
    Hello Freddy, My wife had a needle biopsy in October, here is what she said took place. The Doctor and tech use a CT scan to guide the needle to the area where the biopsy is to be done, this is done under local anesthesia. You will be scanned the needle inserted part ways then scanned several times to make sure the needle is in the right area that they want a biopsy of. After the biopsy is taken you will be under observation because there are risks one of which is a collapsed lung. You will get further x rays in the recovery room ( that was our case) because the hospital had a portable x ray unit. Once you are stable you will be released. My wife's test took about 6 hours. I hope this helps and may not be the same way others have had theirs biopsies done.
  25. Like
    Curt reacted to Steff in Keytruda, 1 year later   
    December 2019 update:
    Hi friends, my mom had her CT scan last week and we received the results on December 12th.  The wait was very nerve wracking for me this time.  I think it was due to my uncle recently passing away from some kind of cancer - they didn't have the opportunity to find out because he was gone within 3 weeks of seeing that his liver was filled with lesions.  So that was weighing heavy on our hearts when we went in to see the doc.  But all went well, she continues to be NED.  What makes me the most happy is that my mom has decided to stop saying that she has lung cancer and now calls herself a lung cancer survivor!  When she told her sister this, I teared up, it is wonderful to hear her say this after her 2.5 year battle with this recurrence.  Her next scan will be in 6 months this time.
    My mom continues to LIVE.  Yes she has lasting side effects from treatment, yes she has had to slow down, but now more than ever she is LIVING her life to the fullest.  She gets to bring my dad home from the adult family home a few times a week so they can spend quality time together (and so he can eat decent food, he says).  During the days she is not with my dad, she has been spending time with wonderful ladies who are constantly on the go, attending hockey games and other social events.  She is also now urging my aunt to get out and have fun after my uncle's death.  And of course, she is crafting...doing all of the she loves.  She is looking forward to the future without trepidation and focuses on having FUN!  We attended a Kenny G concert in our home town, which was surprisingly phenomenal and I have bought tickets for her and I to go to the Margaritaville musical coming next month (shh, don't tell her it's her Christmas present!).  We are making lots of wonderful memories.
    Why do I share this with you? Because I want to show you that there is life after a lung cancer diagnosis, and even ongoing treatment.  Yes, my mom's life looks different now, lots has changed, not just with her health. But she continues to do the things she loves and has made new friends along the way.  For those who are feeling hopeless, I want to share that there is HOPE.  I felt hopeless too, but it all turned out okay.
    Take Care,
    Steff 
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