Jump to content

Donna G

Members
  • Content Count

    3,917
  • Joined

  • Last visited

  • Days Won

    26

Reputation Activity

  1. Like
    Donna G got a reaction from LaurenH in Looking for anyone who has had a Pancoast tumor removed?   
    Hello Kathryn.   As Bridget said above ,  I had a Pancoast tumor removed.  
    I had chemo and radiation before I had surgery.  The pain I had from the tumor pressing on those nerves and my chest wall was 
    reason that took me to the Doctor and got me diagnosed.  When I was able to have the old open chest surgery in the spring of 1998 it was 
    very painful I think because it is a difficult area to get to,  they really had to spread my ribs, and muscles to get there.  It took a while to get over !
    After I had to have more chemo as had been the original plan.  They never removed my ribs but they never healed ( they are still broken ) 
    It was worth it !  I am officially a 21 year survivor !
     
    Please keep us posted,   Donna G
     
  2. Like
    Donna G got a reaction from LisaA in All has happened so fast....   
    Hello Moonbeam.  I was diagnosed when I was 50 years old with Stage 3 B NSCLC.  I had chemo, radiation, surgery, more chemo.
    I am so glad his doctors jumped right in and started his  treatment .  The surgery takes a while to heal before he can have chemo.
    I hope he responds as well as I did.  I had my 71 st Birthday this year.  Please keep us posted.
    Donna G
  3. Like
    Donna G got a reaction from Moonbeam in All has happened so fast....   
    Hello Moonbeam.  I was diagnosed when I was 50 years old with Stage 3 B NSCLC.  I had chemo, radiation, surgery, more chemo.
    I am so glad his doctors jumped right in and started his  treatment .  The surgery takes a while to heal before he can have chemo.
    I hope he responds as well as I did.  I had my 71 st Birthday this year.  Please keep us posted.
    Donna G
  4. Like
    Donna G got a reaction from Tom Galli in All has happened so fast....   
    Hello Moonbeam.  I was diagnosed when I was 50 years old with Stage 3 B NSCLC.  I had chemo, radiation, surgery, more chemo.
    I am so glad his doctors jumped right in and started his  treatment .  The surgery takes a while to heal before he can have chemo.
    I hope he responds as well as I did.  I had my 71 st Birthday this year.  Please keep us posted.
    Donna G
  5. Like
    Donna G got a reaction from Tom Galli in Looking for anyone who has had a Pancoast tumor removed?   
    Hello Kathryn.   As Bridget said above ,  I had a Pancoast tumor removed.  
    I had chemo and radiation before I had surgery.  The pain I had from the tumor pressing on those nerves and my chest wall was 
    reason that took me to the Doctor and got me diagnosed.  When I was able to have the old open chest surgery in the spring of 1998 it was 
    very painful I think because it is a difficult area to get to,  they really had to spread my ribs, and muscles to get there.  It took a while to get over !
    After I had to have more chemo as had been the original plan.  They never removed my ribs but they never healed ( they are still broken ) 
    It was worth it !  I am officially a 21 year survivor !
     
    Please keep us posted,   Donna G
     
  6. Like
    Donna G got a reaction from BridgetO in PANCOAST TUMOR   
    Hi Lyn.
    If you read these posts  - you read my post above.  I had a Pancoast tumor in the apex on my R lung pressing on nerves going down my arm and on my chest wall. So I had pain in my chest and down my arm.  I thought it was an orthopedic problem but the doctor in the clinic after ruling out it was not from heart problems did a chest x ray and saw a tumor a little bigger than a golf ball on the x ray.  
    Are you saying that the doctors do not suspect cancer ? The doctor did not order an x ray ?  You can read more at the site I listed down below.  
    I am fortunate to be a survivor for 21 years !  I am so grateful that it was diagnosed and treatment started right away.  
    Keep us posted.  
    Donna  G
  7. Like
    Donna G got a reaction from LaurenH in Mom has cancer   
    Hi Sandy.  So sorry your Mom has had so many problems.  Tom has given you some very good advice.
    Do go to the appointments with your Mom.. Take notes and ask questions.  Getting copies of test results is good!
    Please keep us posted on how she is doing.  I pray that indwelling catheter gives the relief she needs.
    Donna G
  8. Like
    Donna G got a reaction from KatieB in Mom has cancer   
    Hi Sandy.  So sorry your Mom has had so many problems.  Tom has given you some very good advice.
    Do go to the appointments with your Mom.. Take notes and ask questions.  Getting copies of test results is good!
    Please keep us posted on how she is doing.  I pray that indwelling catheter gives the relief she needs.
    Donna G
  9. Like
    Donna G got a reaction from Tom Galli in Mom has cancer   
    Hi Sandy.  So sorry your Mom has had so many problems.  Tom has given you some very good advice.
    Do go to the appointments with your Mom.. Take notes and ask questions.  Getting copies of test results is good!
    Please keep us posted on how she is doing.  I pray that indwelling catheter gives the relief she needs.
    Donna G
  10. Like
    Donna G got a reaction from Christine79 in Young(ish) Mom Newly Diagnosed   
    Hi Brandi, glad you found us.  I was diagnosed with lung cancer Stage 3B  .   I remember how devastated I was. 
    I really thought I had gotten a fatal diagnosis.  I was 50 years old so not so young as you.  You can read my story in more detail
    if you want.  ( see below that it is posted in My Story )  I had quite a bit of treatment that lasted about 6 months, it was tough but    ----------------
    last summer I had my 70th Birthday .  I have survived over 20 years !  It is possible. 
    Please keep us posted and feel free to ask questions.  During treatment and Doctor visits it is really important to have a friend or family
    member with you and take notes !    Praying for you treatment to get started and that you also respond well to it.
    Donna G
     
     
  11. Like
    Donna G got a reaction from LaurenH in Surgery scheduled for October 5th 11:00 am   
    Great news Paula.  Thanks so much for sharing it with us. 
    Glad your sister came and is there to share it with you also.
    Hope your recovery goes smoothly.
    Donna G
     
  12. Like
    Donna G got a reaction from PaulaC in Surgery scheduled for October 5th 11:00 am   
    Great news Paula.  Thanks so much for sharing it with us. 
    Glad your sister came and is there to share it with you also.
    Hope your recovery goes smoothly.
    Donna G
     
  13. Like
    Donna G got a reaction from Tom Galli in Surgery scheduled for October 5th 11:00 am   
    Great news Paula.  Thanks so much for sharing it with us. 
    Glad your sister came and is there to share it with you also.
    Hope your recovery goes smoothly.
    Donna G
     
  14. Like
    Donna G got a reaction from LexieCat in Surgery scheduled for October 5th 11:00 am   
    Great news Paula.  Thanks so much for sharing it with us. 
    Glad your sister came and is there to share it with you also.
    Hope your recovery goes smoothly.
    Donna G
     
  15. Like
    Donna G got a reaction from Tom Galli in New member   
    Hello babybragg.  I want to welcome you also.  
    Like LexieCat I want to ask if a plan of care is has been made and is it started.  That is so important.  
    Was genetic testing done ?  Please keep us posted .   We have been through this too and know how difficult it is.
     
    Donna G
  16. Like
    Donna G got a reaction from PaulaC in Pancoast cancer   
    Hello Kenny.  Welcome to our support group.  I am a Pancoast Tumor survivor !   Dr. Pancoast who years ago set up the treatment for a tumor in the apex of the lung did a great job.
    ( The tumor was named after him because he set up the treatment for this lung cancer.)   I also had chemo and radiation before surgery and more chemo after surgery.
      I was diagnosed in December 1997 !   I'll be celebrating 21 years of survival in December.   
    I had pain down my arm  and my chest wall and found out at the doctors it was due to the tumor pressing on nerves and my chest wall.  After surgery the pain was different for it was due  ribs being broken and muscles stretched to get at the tumor..  It lasted for a while . 
    All of the treatment was really worth it for I am still alive !  Please keep us posted on how you are doing.  
    Donna G
  17. Like
    Donna G got a reaction from Tom Galli in Pancoast cancer   
    Hello Kenny.  Welcome to our support group.  I am a Pancoast Tumor survivor !   Dr. Pancoast who years ago set up the treatment for a tumor in the apex of the lung did a great job.
    ( The tumor was named after him because he set up the treatment for this lung cancer.)   I also had chemo and radiation before surgery and more chemo after surgery.
      I was diagnosed in December 1997 !   I'll be celebrating 21 years of survival in December.   
    I had pain down my arm  and my chest wall and found out at the doctors it was due to the tumor pressing on nerves and my chest wall.  After surgery the pain was different for it was due  ribs being broken and muscles stretched to get at the tumor..  It lasted for a while . 
    All of the treatment was really worth it for I am still alive !  Please keep us posted on how you are doing.  
    Donna G
  18. Like
    Donna G got a reaction from Judy M. in Pancoast cancer   
    Hello Kenny.  Welcome to our support group.  I am a Pancoast Tumor survivor !   Dr. Pancoast who years ago set up the treatment for a tumor in the apex of the lung did a great job.
    ( The tumor was named after him because he set up the treatment for this lung cancer.)   I also had chemo and radiation before surgery and more chemo after surgery.
      I was diagnosed in December 1997 !   I'll be celebrating 21 years of survival in December.   
    I had pain down my arm  and my chest wall and found out at the doctors it was due to the tumor pressing on nerves and my chest wall.  After surgery the pain was different for it was due  ribs being broken and muscles stretched to get at the tumor..  It lasted for a while . 
    All of the treatment was really worth it for I am still alive !  Please keep us posted on how you are doing.  
    Donna G
  19. Like
    Donna G got a reaction from Tom Galli in Greetings from a new guy   
    Welcome Jwags.   Sounds like you have a great care system, that they jumped right in to diagnose and begin treatment.   Hope they find good results with the CT tomorrow !
    Please update us as soon as you hear the results !  You have my prayers that they will be great.   
    Donna G
     
  20. Like
    Donna G got a reaction from BridgetO in Recently diagnosed stage 3A   
    Hi Robb,  Do you have a Pancoast Tumor ?    I am certainly familiar with that.  I was diagnosed Dec. 1997.  
    I started with chemo ( Cisplatin and Etopiside) and daily radiation.  It shrunk the tumor in the apex of my right upper lobe of lung.
    I had an open lobectomy followed by more chemo.  That was over 20 years ago.  
    My only family in MInnesota was my husband who was working and at times traveling on business.  I was very fortunate to have "church family"
    They helped me out a lot.  Because of some of he premeds they gave to prevent nausea etc I was not allowed to drive..  They were there for me..
    It was well worth it.  I am still here !
    Donna G
  21. Like
    Donna G got a reaction from Kleo in Recently diagnosed stage 3A   
    Hi Robb,  Do you have a Pancoast Tumor ?    I am certainly familiar with that.  I was diagnosed Dec. 1997.  
    I started with chemo ( Cisplatin and Etopiside) and daily radiation.  It shrunk the tumor in the apex of my right upper lobe of lung.
    I had an open lobectomy followed by more chemo.  That was over 20 years ago.  
    My only family in MInnesota was my husband who was working and at times traveling on business.  I was very fortunate to have "church family"
    They helped me out a lot.  Because of some of he premeds they gave to prevent nausea etc I was not allowed to drive..  They were there for me..
    It was well worth it.  I am still here !
    Donna G
  22. Like
    Donna G got a reaction from LexieCat in Recently diagnosed stage 3A   
    Hi Robb,  Do you have a Pancoast Tumor ?    I am certainly familiar with that.  I was diagnosed Dec. 1997.  
    I started with chemo ( Cisplatin and Etopiside) and daily radiation.  It shrunk the tumor in the apex of my right upper lobe of lung.
    I had an open lobectomy followed by more chemo.  That was over 20 years ago.  
    My only family in MInnesota was my husband who was working and at times traveling on business.  I was very fortunate to have "church family"
    They helped me out a lot.  Because of some of he premeds they gave to prevent nausea etc I was not allowed to drive..  They were there for me..
    It was well worth it.  I am still here !
    Donna G
  23. Like
    Donna G got a reaction from Tom Galli in Recently diagnosed stage 3A   
    Hi Robb,  Do you have a Pancoast Tumor ?    I am certainly familiar with that.  I was diagnosed Dec. 1997.  
    I started with chemo ( Cisplatin and Etopiside) and daily radiation.  It shrunk the tumor in the apex of my right upper lobe of lung.
    I had an open lobectomy followed by more chemo.  That was over 20 years ago.  
    My only family in MInnesota was my husband who was working and at times traveling on business.  I was very fortunate to have "church family"
    They helped me out a lot.  Because of some of he premeds they gave to prevent nausea etc I was not allowed to drive..  They were there for me..
    It was well worth it.  I am still here !
    Donna G
  24. Like
    Donna G got a reaction from PaulaC in Recently diagnosed stage 3A   
    Hi Robb,  Do you have a Pancoast Tumor ?    I am certainly familiar with that.  I was diagnosed Dec. 1997.  
    I started with chemo ( Cisplatin and Etopiside) and daily radiation.  It shrunk the tumor in the apex of my right upper lobe of lung.
    I had an open lobectomy followed by more chemo.  That was over 20 years ago.  
    My only family in MInnesota was my husband who was working and at times traveling on business.  I was very fortunate to have "church family"
    They helped me out a lot.  Because of some of he premeds they gave to prevent nausea etc I was not allowed to drive..  They were there for me..
    It was well worth it.  I am still here !
    Donna G
  25. Like
    Donna G got a reaction from Tom Galli in Hello   
    THi Bunch, welcome.   I was Stage 3B when I was diagnosed.  The plan was chemo and radiation, then check for results.  My tumor shrunk,  they did take 
    out my R upper lobe, then that was followed by more chemo.  For me the plan worked.  I have survived over 20 years now.  Please keep us posted.
    Donna G
×
×
  • Create New...