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Barb1260

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Everything posted by Barb1260

  1. Exactly one year ago I had my 26th and last Imfinzi infusion. So far so good!!
  2. I agree with LexieCat. I was told not to take anything except a multivitamin and if anything else to get oncologist approval first.
  3. Opal, I didn’t know the joint and muscle pain could come back so long after treatment. Now I’m wondering if the sudden muscle spasms in my thighs are related. I’m sorry you’re dealing with it. I’m probably going to wait a long time to get the vaccine, the side effects scare me.
  4. I still don’t know what to do about this. So many different opinions from my team.
  5. Opal. I will share what I find. I’m not in a rush to get a brand new vaccine
  6. Opal-I’ve been told to get it by my oncologist but my pulmonologist said he doesn’t know because I’ve had anaphylaxis and have developed new allergies. I spoke to an immunologist who said not to get phizer or moderna, wait for the J&J or AZ. I’m still investigating
  7. https://www.jto.org/article/S1556-0864(21)00022-8/fulltext?fbclid=IwAR2DlB6INSmAvksYzf94yS-txd8wGG_1jjI_fWZiWi9Tl3-Np1tcmEUUtKU Good news. Hope the link works!
  8. Hey all Jerseyans-my brother and brother in law in NJ were both complaining today about the vaccine issues. I have no idea what is going on here In GA as 2 docs already said they can’t say for sure if I should get it because of my 3 occasions of anaphylaxis. Seeing the oncologist Thursday so I will get her opinion. Never was in a rush to get it. To me it’s scary.
  9. Barb1260

    IMRT

    You are your own advocate. If something doesn’t feel right, you have every right to take charge. Not sure I would be putting up with that kind of attitude.
  10. Barb1260

    IMRT

    I started treatment a month after diagnosis. Tell your doc to get the CT moved up. Are you in the US?
  11. The fatigue was not every da. Maybe the day after and the following. My hair grew back while on Imfinzi. My PET results showed no cancer anywhere so I’m grateful I had the option. Happy thanksgiving
  12. Taking the family out to dinner to celebrate Tom.
  13. Michelle I’m doing the retail therapy happy dance today
  14. PET SCAN-impression - no hyper metabolic activity in neck , chest, abdomen or pelvis nor skeletal. What does this note mean-The region of pulmonary consolidation upper right lobe minimal SUV of 2.0. This is the location of the original tumor. So I guess it’s not dead? It’s confusing that it says both. It also doesn’t give a measurement
  15. Hey Roseann. I’ve had nodules mentioned on a scan, not on the next and back on the 3rd. Not sure how they pick and choose what’s mentioned. I think they should mention every little thing. Thanks for the vibes. Still waiting....
  16. No results yet. The waiting is the hardest part..
  17. Lisa-I had a bad reaction to the flu shot last year while on Imfinzi . The 4th day after the shot I felt like I was hit by a bus. I slept for 24 hours. The docs told me it was my immune system response to the vaccine because the Imfinzi puts it in overdrive. Whether that is just an educated guess, I’m not sure but it was worse than any vaccine reaction I ever had. Had no reaction this year but I’m off Imfinzi for 6 months. I’m wondering if the tiredness I have is from the shot but it was almost 2 weeks ago so I’m not sure if it’s related.
  18. Hi Steve. Imfinzi was a breeze for me. Only side effects were fatigue that would knock me down without warning. Only lasted for a few days at most. Just listen to what your body is saying and go with it. Minor side effects were a rash on my eyelid and weird skin sensations. Weight gain is a side effect-eat healthy. Going for a PET tomorrow which is 6 months after completion. Nervous but curious to see if still a dead bunch of scar tissue. best wishes to you. Ask any questions you need to.
  19. Ok so I’m freaking out. I fought for a PET scan and won, now it’s scanxiety for tomorrow and almost sorry for the win. This is 6 months after treatment was completed and I’m not ready for a bad result. The what if game is playing in my head.
  20. Roseann-I was told you stage the same or higher you can never go backwards but maybe all the docs do their own thing. Have a good night
  21. Silly cat-I had a bone scan last month which was 4 months after I finished the Durva. They saw nothing new or anything other than 2 prior rib fractures and 2 degenerative disks. I lied to get it because I never had one and with the old age aches and pains I wanted to be sure nothing was brewing. I’m going for a PET on the 4th. Have you had one since you finished?
  22. Silly at-I still have my port. I almost feel like if I take it out I’m tempting fate-as soon as it’s gone I will need it. I’m going to wait a while.
  23. Hey Roseann. Welcome to the finish line!!! I sometimes think my onc isn’t understanding what I’m saying either. I sometimes go home and call, leave a msg, the nurse calls me back and then she translates to the onc. Then she gets what I’m saying! I don’t know why that works. Let us know how those scans come out. Enjoy your medical freedom!
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