Barb1260

Happy Saturday. Does anyone know where I can find the list of what OTC meds are ok with Durvalumab?

DHey Charles. Thanks for all the knowledge and not insulted at all. Only thing the Onc’s office told me was watch for colitis symptoms, shortness of breath and coughing and anything new. So I’ll be vigilant. Planning on joining the lighthouse tonight and reading up on it all.

Lol. Did the happy dance on the way out. Now I’m on a Benadryl high and fighting to stay awake at my desk.

Hi Tom I plan to do just that. Getting it pumped in now and lo and behold no allergic reaction -yay!!!

Thanks Charles. I will read through all. Just nervous about what to worry about and when to worry about side effects. How do you know it’s minor inflammation?

Hi Tomm. Thanks for the good word on the hair regrowth. Didn’t know that about vitamin d. I shall keep an eye on it. Good luck tomorrow.

So the port check with the dye revealed no leaks, kinks or clots. Was advised by the doc doing the check that it most certainly can be soft tissue and nerve irritation from the port. Prednisone is done. Onto the Durvalumab tomorrow-finally. Can one of you tell me if your side effects start at a predictable time, do they go away after a few days and start again with the next infusion? Am I going to lose more hair? cause it hasn’t grown back all the way yet. Getting nervous about this

Thanks for the support. I honestly can’t complain. Others are far worse off than I am. My minor issues are temporary. I’m thankful I wake up, can breathe, have a job to go to because lord knows I gotta have a place to go every day to keep me sane. Now to figure out how to get a beach trip squeezed in somewhere. 🏖

The dose was 20mg 2x a day for 5 days then 1 a day for 5 days

Just as I thought, no Imfinzi today. Finishing 4 more days of prednisone. But I get to go to the hospital tomorrow to have my port checked with dye because of the shoulder and neck issue. If it’s the port will change it then. So no eating breakfast. Waiting, waiting, waiting.

Just as I thought, no Imfinzi today. Finishing 4 more days of prednisone. But I get to go to the hospital tomorrow to have my port checked with due because of the shoulder and neck issue. If it’s the port will change it then. So no eating breakfast. Waiting, waiting, waiting.

The oncologist and pulmonologist spoke on the phone while I was standing there. They decided together to knock it out before the Durvalumab because it can be a side effect of the Durvalumab and I guess they want to start with a clean slate. All the docs are in contact because of the newness of immunotherapy and basically are still learning themselves because there is not a lot of history. Guess we can call them trail blazer guides.

Lucky I am. Most of the time I can go with the flow, other times I just want to give up when I’m stuck in the same place and not moving forward. Nerve wracking to wonder what’s going on inside your body when there’s a setback. Guess I’ll find out at the Oncologist office Thursday. Enjoy the weekend 😎

Sucks cause I have no symptoms. Now another setback. Frustrating

Tomm-thanks for the link. I’ll read through it in the morning with my coffee. ☕

Thanks Charles. It’s very minor, asymptomatic. Doing the 2 steps forward one step back dance seems to be the norm with my treatment. Just want to get on with it.

With all the testing and scans I’m sure if it wasn’t ok you wouldn’t have gotten to #18. Keep blazing that trail!

Hi Robert. Thank you. I will discuss on Thursday. How are you doing? Still on it?

Just at the pulmonologist, putting me on prednisone for the inflammation which he is calling radiation pneumonitis. Can you be on prednisone and take the Durvalumab? Thanks to you knowledgeable gents.

I should be joining you Durva’s a week from today. I’m hoping for no side effects because I feel really good right now. But-just got to go with it.

Hopefully it’s unrelated. I don’t know about Florida but Georgia’s pollen counts have been off the charts for weeks. Allergies are a pain. Hope you get over it quickly. Stay strong

Hi Charles. Sorry about your eyes. Is this a side effect of the Durvalumab?

I’m having 2nd thoughts about getting Imfinzi because of all the unknowns. I’m feeling better than before dx and it seems this will make quality of life suffer.

Sorry to read this Opal. I’m nervous about starting this myself for the same reason without mutation tests. Seems it is somewhat standard for stage 3. My insurance won’t pay until stage 4 and I can’t afford to pay. Hopefully it was found quickly. Keep fighting. Thinking of you. Where are you in NJ? I left 3 years ago.

Glad you are doing well!