Jump to content

Barb1260

Members
 View Profile  See their activity

  • Posts

    521

  • Joined

  • Last visited

  • Days Won

    27

 Content Type 

Posts posted by Barb1260

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Silly cat-I had a bone scan last month which was 4 months after I finished the Durva. They saw nothing new or anything other than 2 prior rib fractures and 2 degenerative disks. I lied to get it because I never had one and with the old age aches and pains I wanted to be sure nothing was brewing. I’m going for a PET on the 4th. Have you had one since you finished?

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Hey Roseann. Welcome to the finish line!!!  I sometimes think my onc isn’t understanding what I’m saying either. I sometimes go home and call, leave a msg, the nurse calls me back and then she translates to the onc. Then she gets what I’m saying!  I don’t know why that works. Let us know how those scans come out. Enjoy your medical freedom! 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Thanks Michelle. You are a fountain of knowledge. I’ve been wrestling with this in my mind for 2 months and I’m pretty pissed. There’s also an approval company that works for the insurance company to get precertification. What a dang racket they have. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Hey Michelle. The PET scan of course. Said not medically necessary because I’m not in treatment but without it can’t tell if main tumor is dead. Docs office did a peer to peer and was still denied.  I guess they would rather wait until I get to stage 4 then pay hundreds of thousands for the next round of treatment. 
    How are you doing?  Still in the targeted therapy?  

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Hey guys. Took a break from all things cancer since my last CT in July. Between Covid, working at home the last 6 months and just cancer life it’s mentally exhausting. Anyway I hope all are doing well and LexieCat I’m sorry you’re back in treatment. Can someone tell me how you Appeal a test denial?  What is included and can the social worker/cancer liaison help with it?  The insurance company Approval place asked me if I had every written note and test result to send in with the appeal? Was this a scare tactic? Almost 2 years of medical records!  That seems ridiculous. 
     

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Roseann-Yay you’re almost there!!  I sort of have this problem of reading my scan reports. Usually I get them before I see the doc, not this time so I went in blind and uninformed and unprepared . I should stop reading them because More than once what I googled really wasn’t the complete picture. I’m sure everyone is just as tired as I dealing with this. I wish I could just turn off the lc thoughts for a year!!!   Hope all is well for everyone here. Have a good week!

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Michelle-sound like you are doing well. Paperwork stinks on every level and is ridiculous. Don’t even get me started about insurance. Speaking of trips, I was supposed to go to NJ next month for Music Fest in PA -of course that’s cancelled. Still might go somewhere within driving distance but gotta wait and see. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Hi Michelle!  Hope you’re doing well. I just got off the phone with the radiation oncologist. He said it could very well be radiation damage as that is the rib area it was aimed through. Says it reads like it’s old stuff and he looked at the pics and doesn’t see any concerns as far as tumor. I have a call into the onc just to clarify our conversation Thursday when I thought she was talking about the original broken rib. It didn’t ruin my weekend, it just upset me that I didn’t understand what the oncologist was referring to. Also that if the insurance would have approved a PET I probably would have had a more detailed report. Just waiting for the onc to call back. 
    how are you feeling? Doing? 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    My short lived victory-just received the printed report from the CT last week. Doc was asking me about my rib issue that showed healing on previous report and mentioned again on this one. Have come to the conclusion that I probably broke it coughing when I had pleurisy. That was the 2nd rib. Now it states I have developed sclerosis of the third rib and could represent sequela prior trauma and attention on follow up exam is recommended. So of course I look up all this and find it could be a metastasis?  I can’t wait until November and emailed the radiation oncologist to look at it. Of course I will call the oncologist tomorrow but she really wasn’t too concerned. anybody ever see this wording on a report?  

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Grahame-yay!  I’m sure you will be smiling from ear to ear for your daughter’s wedding!  Congratulations and keep fighting 

     

    Lindsay-good luck on the scan. Let us know!  

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Roseann-you are almost there. I’m still waiting for phone calls from the docs office-I blew up their phone before because they also dropped the ball on this one-didn’t communicate so the peer to peer didn’t really happen like I was told They cancelled my PET for tomorrow and changed to a CT next week. Hopefully whoever screwed up can fix it and get the PET rescheduled. I have spoken to the insurance company twice, the onc office 3 times, had a conference call with the insurance and the stupid company that precertifies for them, and my insurance company caseworker 4 times who is also leaving msgs to everyone. Hopefully this squeaky wheel will get some grease. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    To all who have completed Durva-did you have a PET scan after?  Supposed to get one tomorrow and of course the insurance company is denying it saying I was already diagnosed with LC.  I read them the riot act on the phone and now docs office is getting involved. Other than a PET, I don’t see how they can see if the treatment worked, if there is no metastasis since the last PET a year ago, if there is scar tissue and it is dead. I’m so sick of people who are not doctors telling me what I need or don’t need and I told them that. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Hello all. Been a busy bee since my last infusion on May 7th. 3 weeks after I felt like my old self and I feel better a little more every week. Funny thing is I would get sob doing too much and I just realised this too is getting better. Decided to tear down a wall which was a 4 day job. It’s been 3 weeks, it has grown into new floors, paint, doors-what has possessed me?  I’m glad you are doing well and I’m hoping we all keep getting good results. 
    barb

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept