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Barb1260

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Everything posted by Barb1260

  1. Silly-thanks. That’s exactly where all my pain is except my lung hurts when I breathe and when I sneeze it hurts like is going to explode. I said today it’s the same spot on my back where the radiation scar was. Haven’t had any since February so Cant say it’s related. I’m happy for the break and the doc isn’t too worried about any negative impact on the treatment. I just want a week without pain when I need to use my arm
  2. Well I got my break from Durvalumab. Have to see the pulmonologist Thursday to get his input on this pleuritis issue. A little prednisone then back to it on the 14th. The muscle relaxers are to stop the spasms that I’ve had with this. It’s all from the Durvalumab. I’m now getting a little joint pain too.
  3. Kleo and Ron-thanks. I don’t want it to spread but I’m not sure what to do. Ron, did you have any spread while you were off? I would hate to be kicking myself in the butt if that happens. I would like to rewind to last year before all this started to remember what normal feels like.
  4. I think I want a break from the Imfinzi. Has anyone taken a break to be on steroids and if so, how long? I’m thinking my onc doesn’t like the idea of a break but if I have to deal with this pain much longer I’ll start getting very depressed. I can deal with pain but it’s my right side and I’m a righty and it effects what I can do with my right arm.
  5. Hey Ron. Glad you’re doing well! I wasn’t aware CBD without THC could show up in a drug test-interesting as my job does surprise tests also.
  6. Hi Kate. Well after being off the prednisone and muscle relaxers for a couple of days and getting another infusion Thursday the pain is back. Called the doc yesterday. PA on call put me back on muscle relaxers. Not helping much yet but I’ll give it a couple of days. She said doc doesn’t want to put me on steroids at this time. The X-ray And CT 2 weeks ago at the ER showed absolutely nothing, not even anything that “might” be inflammation. So I wait. I did ask what exactly are the muscle relaxers supposed to do, said it will stop the spasms which is what I have had off and on. I hate this
  7. Kleo you are hysterical. I get the Benadryl because I scared them when I had anaphylactic shock from the Taxol and taxotere. Guess they got tired of jabbing me with an epi-pen.
  8. Glad your TSH is under control. I just switched from CBD caps to oil but I can’t remember to take it. Switching back to the caps. Have a good weekend. Your CT will be fine I’m sure.
  9. Well I am halfway through it. Had #13 today and feeling exhausted. Never sure if it’s the Durva or the Benadryl they shoot me up with beforehand but it seems every one makes me a little more tired. Hey Tomm, where are you?
  10. Hey Kleo. Thanks I remember you being in pain. I couldn’t hold my arm up for the CT. It was awful. How are you doing?
  11. I’m going to try those patches
  12. Not convinced what sent me to the ER last weekend was/is pleuritis. Saw the onc’s PA on Monday, put me on 10mg prednisone for 7 days and a muscle relaxer. Seemed to think the pain is muscle pain. Except for the pain being gone when I inhale and the muscle spasms gone, still hurts when I move upper right shoulder/arm and back. Heat helps temporarily. Anybody have muscle pain issues as a side effect? I almost want to take a vacation from Imfinzi to see if all this goes away. CT and X-ray were all negative at the ER 😶
  13. Hey I’m lucky I got through 12 infusions before any bad reactions. Just a bunch of pleuritis. No PE or blood clot. Nothing new on the CT. painkillers and anti inflammatory until the onc okays the prednisone tomorrow if she wants to. I told the ER doc it’s usually prednisone for this from the immunotherapy. Said he knows my onc and thinks she may not want me to be on it at this point. Which is fine with me. Not in too much pain. Holding off on the opioids-I’ve had crazy reactions to some and unless my pain is a 20 no way. I have a high pain tolerance and rate this as a 4 on a 1-10 scale. My frame of reference is 32 hours in labor-not even close🥴
  14. Hanging in the ER waiting for CT results to see if I have pleuritis. Unexpected scanziety. The breathing pain was awful.
  15. Michelle-sorry about the gray days but right now I’d pay someone to get rid of these 95 degree days. Even the born and bred Georgians are complaining about the never ending summer this year.
  16. Thanks Tom, I knew you would answer that. Told the onc about my feet cramping up for a full day after the last treatment, she said she hadn’t heard that one before. She confirmed what I had been saying all along-this stuff is still so new, they are still learning about it. So we are still blazing this trail fellow Durvas!😎
  17. 12th infusion in process. Saw the oncologist instead of the PA. she’s not worried about the 5mm nodule on the left. Said if it grows we’ll do a biopsy. Could be inflammation because it pops of everywhere with the Imfinzi. At this point it means nothing. If it’s cancer we will zap it with cyberknife. Can somebody tell me if that is SBRT? All these abbreviations play havoc with my chemo brain. Also putting me on Wellbutrin. Not only will it give me a little more pep but it will help with seasonal effective disorder because fall and winter are coming. It will also help with the weight gain and depression.
  18. Hi Kleo. Any updates on your treatment? Thank you. The article was definitely interesting.
  19. Sorry Ron. This cancer road sure is bumpy. Better to have tested than a surprise later. Hang in there.
  20. Good news Ron. Sounds like a great plan. I personally love radiation and tried to keep going but alas the radiation oncologist said it would kill more than the tumor. You got this!!
  21. #11 done. Bloodwork all in normal range. Doc not worried about the nodule in left lung. She thinks it may be inflammation from the imfinzi. Will scan end of November to check on it. can’t wait to hit the pillow tonight. IV Benedryl kicks my butt.
  22. Ron. Sorry about the results. One door closes and another opens. I’m sure your team will get it under control and you will get NED in the future. Fight on and keep us posted. Once a Durva always welcome!!
  23. DFK-When I spoke to the PA about the 5mm mystery nodule, she said we will watch it for now. Because I usually see the Oncologist to go over scans, I moved up that appointment to Thursday before the infusion. The scan was 2 weeks early so the follow up wasn’t until October 3rd. Not that I don’t trust the PA, but this is my life, I now have a few questions that I need her to answer.
  24. Hey Ron. Sorry you had a rough day. Fingers crossed till you share your results
  25. Hi Kate and welcome. I’m on the same treatment track as you it seems and will get # 11 on Thursday. The fatigue drives me nuts as it comes on suddenly and usually when I’m in the middle of doing something. Every one here is supportive. Heck, I could be a real whiner sometimes and someone will always respond with a positive thought. Give a shout whenever needed. We are all here for each other
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