Barb1260

Hi Roseann. Welcome. Sorry to hear about all your side effects so soon after you started. Keep us posted. I get weird little aches and pains but nobody can say for sure if related. We are all trail blazers on this stuff.

Hey Charles. I know it’s easy to fall down that black depression hole. I tend to dwell on the bad parts of the results and not the good. I should be happy the right side tumor is stable and not one lymph node was mentioned. I also don’t understand why they do CTs then PETS if they find something. Makes more sense to me to get all the information the first time. But I’m not a doc and I’m sure it’s insurance related because I had to fight for the last PET.

Thanks Charles. It’s scary that it wasn’t there July 2nd and is there now. Guess moving up the CT date because of chest pain was a good thing.

CT report says new 5mm non calcified nodule in upper left lung. Other original tumor in right lung stable and no significant change in size. Does this mean Imfinzi isn’t working?

Hey Tomm. I take CBD in capsules, liquid meds of any kind make me gag. They have helped my joint pain tremendously. Sleep and anxiety, not so much but I’ve always been a terrible sleeper. Charles-I would love a long neck or maybe 6 right now.

Thanks Charles. I’m rooting for you too. I sometimes feel like throwing in the towel, cash it all out, stop all the chemicals being put in me and just take to the road until I can go no more. But alas, I come back to reality, put the gloves back on and come out swinging once again. Somebody needs to do a better inventory of their Durva stock. That seems a little unprofessional. Have a good night!

And she is a funny gal too😘

Thanks DFK. I guess it was just shocking as I had the pain on the right which turned out to be nothing. I guess I should be greatful for the fact that the original tumor is smaller than July. You are such a positive person. I try to be, sometimes it’s difficult in this LC world. 🥳

No spa, just a day at the lake

For some reason I can’t react to anything.

Only thing on the CT results is a 5mm nodule in my left lung that wasn’t there before but PA said they will watch it. Waiting to hear from the doc if this means the Imfinzi isn’t working. I can’t take this stress

Thanks DFK. My voice is different also. Guess I’ll ask about that also. I’m going with the post radiation pain factor myself. Keep positive

Got my CT 2 1/2 weeks early today because of chest and back pain since Friday night. PA almost certain the chest pain is due to the hiatal hernia discovered on my post radiation PET CT in April. Back pain in same spot as the post radiation pain. They are not sure why it’s there again but maybe it’s from the radiation? Let the waiting begin. At least I don’t have to worry about going for the next 2 weeks, it’s already done. Now I get to add a gastroenterologist to my repertoire. Joy

Sorry to hear this Bob. After all that. I’m crossing my fingers that it’s not a recurrence.

Thanks Michelle. I’m in Whole Foods numerous times during the week. I’ll look for it there.

DFK-I used dry mouth mouthwash which seemed to work and it hasn’t returned. I can’t remember what the name of the port clearing stuff was but I do know it started with an A. I’m going to hunt for manuka honey, didn’t know it was good for all that. Thanks for the info. Stay well. Barb

Sorry Ron. Of course you can hang out with us here. You made it to 18, big accomplishment. I’m thinking you are going to be NED.

DKF-yay on #17. I had #10 today. No issues except blood work not done until after because my port wouldn’t give blood. They had to put something in it and let it sit for 45 minutes to unclog it. I’ll get the results next week. Nobody is concerned about the mouth issues I had. The PA said if it goes away in a couple days it’s probably not related. My thoughts are-who really knows? I asked how many patients got through the 26 infusions from her practice. Said 2 or 3 with very minor side effects so that’s a positive.

Tomm/glad you’re getting less fatigue and you are taking the thyroid med. after last week’s infusion I got really tired on Saturday and that lasted until yesterday. So I guess my side effects are starting. I’m also experiencing mouth sensitivity and a burning sensation. Just like my eyelids did and eventually went away. Another thing to discuss next Thursday. Still not complaining as it’s nothing debilitating and I can deal with it. I can’t wait until we do #13-we ca celebrate the halfway point. Have a good weekend.

Ron-congratulations on the brain being ok. Sorry about the tumor issue, I am keeping my fingers crossed that it’s an infection or some other benign issue. I don’t get cortisol testing but I’m going to discuss this next week. I don’t understand why I’m gaining so much weight when I’m counting every calorie and fat and carb and eating way less than the app I’m using says I should be eating. Keep us posted!

Tomm-I forget who posted it a while back, maybe a constant low dose of prednisone will help? Low enough to stay on the Durvalumab. I think it’s 5-10mgs. Worth asking about.

Tomm. All blood work good so far including TSH. How are you feeling?

DFK-yes ma’am. One day at a time and enjoy every minute. Sometimes it seems such a long wait but then again it goes pretty quick between scans. Enjoy your crafting.

#9 done. Only 17 to go. April seems a long way away.

Next is NED and a wonderful future life. 🥳