[Durvalumab]

Good news Ron. Sounds like a great plan. I personally love radiation and tried to keep going but alas the radiation oncologist said it would kill more than the tumor. 

You got this!!

[Durvalumab]

#11 done. Bloodwork all in normal range. Doc not worried about the nodule in left lung. She thinks it may be inflammation from the imfinzi. Will scan end of November to check on it. can’t wait to hit the pillow tonight. IV Benedryl kicks my butt. 

[Durvalumab]

Ron. Sorry about the results. One door closes and another opens. I’m sure your team will get it under control and you will get NED in the future. Fight on and keep us  posted. Once a Durva always welcome!!

[Durvalumab]

DFK-When I spoke to the PA about the 5mm mystery nodule, she said we will watch it for now. Because I usually see the Oncologist to go over scans, I moved up that appointment to Thursday before the infusion. The scan was 2 weeks early so the follow up wasn’t until October 3rd. Not that I don’t trust the PA, but this is my life, I now have a few questions that I need her to answer. 

[Durvalumab]

Hey Ron. Sorry you had a rough day. Fingers crossed till you share your results 

[Durvalumab]

Hi Kate and welcome. I’m on the same treatment track as you it seems and will get # 11 on Thursday. The fatigue drives me nuts as it comes on suddenly and usually when I’m in the middle of doing something. Every one here is supportive. Heck, I could be a real whiner sometimes and someone will always respond with a positive thought. Give a shout whenever needed.  We are all here for each other  

 

[Durvalumab]

Hi Roseann. Welcome. Sorry to hear about all your side effects so soon after you started. Keep us posted. I get weird little aches and pains but nobody can say for sure if related. We are all trail blazers on this stuff. 

[Durvalumab]

Hey Charles. I know it’s easy to fall down that black depression hole.  I tend to dwell on the bad parts of the results and not the good. I should be happy the right side tumor is stable and not one lymph node was mentioned. I also don’t understand why they do CTs then PETS if they find something. Makes more sense to me to get all the information the first time. But I’m not a doc and I’m sure it’s insurance related because I had to fight for the last PET. 

[Durvalumab]

Thanks Charles. It’s scary that it wasn’t there July 2nd and is there now. Guess moving up the CT date because of chest pain was a good thing. 

[Durvalumab]

CT report says new 5mm non calcified nodule in upper left lung. Other original tumor in right lung stable and no significant change in size. Does this mean Imfinzi isn’t working?  

[Durvalumab]

Hey Tomm. I take CBD in capsules, liquid meds of any kind make me gag. They have helped my joint pain tremendously. Sleep and anxiety, not so much but I’ve always been a terrible sleeper. 

Charles-I would love a long neck or maybe 6 right now. 

[Durvalumab]

Thanks Charles. I’m rooting for you too. I sometimes feel like throwing in the towel, cash it all out, stop all the chemicals being put in me and just take to the road until I can go no more. But alas, I come back to reality, put the gloves back on and come out swinging once again.  Somebody needs to do a better inventory of their Durva stock. That seems a little unprofessional. Have a good night!

[Durvalumab]

And she is a funny gal too😘

[Durvalumab]

Thanks DFK. I guess it was just shocking as I had the pain on the right which turned out to be nothing. I guess I should be greatful for the fact that the original tumor is smaller than July. You are such a positive person. I try to be, sometimes it’s difficult in this LC world. 🥳

[Durvalumab]

No spa, just a day at the lake 

[Durvalumab]

For some reason I can’t react to anything. 

 

[Durvalumab]

Only thing on the CT results is a 5mm nodule in my left lung that wasn’t there before but PA said they will watch it. Waiting to hear from the doc if this means the Imfinzi isn’t working. I can’t take this stress 

[Durvalumab]

Thanks DFK. My voice is different also. Guess I’ll ask about that also. I’m going with the post radiation pain factor myself. Keep positive 

[Durvalumab]

Got my CT 2 1/2 weeks early today because of chest and back pain since Friday night. PA almost certain the chest pain is due to the hiatal hernia discovered on my post radiation PET CT in April. Back pain in same spot as the post radiation pain. They are not sure why it’s there again but maybe it’s from the radiation?  Let the waiting begin. At least I don’t have to worry about going for the next 2 weeks, it’s already done. Now I get to add a gastroenterologist to my repertoire. Joy 

[Durvalumab]

Sorry to hear this Bob. After all that. I’m crossing my fingers that it’s not a recurrence. 

[Durvalumab]

Thanks Michelle. I’m in Whole Foods numerous times during the week. I’ll look for it there. 

[Durvalumab]

DFK-I used dry mouth mouthwash which seemed to work and it hasn’t returned. I can’t remember what the name of the port clearing stuff was but I do know it started with an A. I’m going to hunt for manuka honey, didn’t know it was good for all that. Thanks for the info. Stay well. Barb

[Durvalumab]

Sorry Ron. Of course you can hang out with us here. You made it to 18, big accomplishment. I’m thinking you are going to be NED. 

[Durvalumab]

DKF-yay on #17.  I had #10 today. No issues except blood work not done until after because my port wouldn’t give blood. They had to put something in it and let it sit for 45 minutes to unclog it. I’ll get the results next week. Nobody is concerned about the mouth issues I had. The PA said if it goes away in a couple days it’s probably not related. My thoughts are-who really knows?  I asked how many patients got through the 26 infusions from her practice. Said 2 or 3 with very minor side effects so that’s a positive. 

[Durvalumab]

Tomm/glad you’re getting less fatigue and you are taking the thyroid med. after last week’s infusion I got really tired on Saturday and that lasted until yesterday. So I guess my side effects are starting. I’m also experiencing mouth sensitivity and a burning sensation. Just like my eyelids did and eventually went away. Another thing to discuss next Thursday. Still not complaining as it’s nothing debilitating and I can deal with it. I can’t wait until we do #13-we ca celebrate the halfway point. Have a good weekend.