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Lisa L

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Lisa L last won the day on December 30 2019

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  1. This same thing happened to me 2 1/2 years ago. Random ct found 9mm nodule in lingula. I got a pulmonologist immediately and he ordered a pet, mine is a bit bigger than yours so he felt pretty good that it didn’t light up at all. I have had a 6 month scan ever since, my last one being Jan. with no growth. He said it’s probably benign or it’s growing so slow prob won’t even harm me the rest of my life, I’m 54. I will continue to get scanned yearly just as a precaution. The reason I’m responding to this is because when I found out about this I freaked so hard and thought I was dead in 6 months, so I want to give you some hope and peace that you will get through this and you will be fine. Love and Light
  2. I have a 9mm nodule in left middle lobe that was found by random ct 2 years ago. I was freaked out to say the least, 54 and former smoker. I got a pet scan 2 weeks later and no uptake so I got a pulmonologist and because of the good pet scan we decided to follow it. I have had 4 scans and they all have been good with no change so my pulmonologist is pretty confident it’s benign. To be on the safe side I will be getting a yearly scan. This forum Is amazing. Take care
  3. SherylE I feel you. I’m sitting here waiting on my 4th scan, original Dec 2018 found by accident. I have a 9mm nodule that has not grown or changed last scans but it’s been 10 months and I have to say I’m freaking out about this one. I see the pulm doc in a couple of days and will post results. This forum has some amazing people that have calmed my nerves and cheered me on from day one. Love and Light ❤️
  4. Thank you for the update. My story is the same and going for my 4th scan after 10 months at the end of June. This one is really starting to freak me out because all my other scans were every 4 months. Hang in there and hopefully no growth for either of us. ❤️
  5. I’m watching your story pretty close, I have 9mm nodule in left lung found a year ago, said spiculated. I freaked out to say the least thought I had 6 months to live, was a total mess. I found this group and immediately calmed down and felt so loved by a group of people I had never met. First thing I did was get a fab pulmonologist, he ordered a Pet and it came back no uptake at all, had a ct 4 months later and nodule was the same so had ct 4 months later and again the same so my pulm says it’s either benign or cancerous but indolent and might never even hurt me in my lifetime, I’m 53. I have another ct scheduled at end of month but guess what insurance denied it so got to go through the whole loop hole and prob will have it end of March, I’m fine with that and My pulm is fine with us continuing to scan probably forever even if I would have to pay out of pocket. I’m so glad you found this group, I’m glad you have a good team with a plan, just wanted to share my story. Love and Light ❤️
  6. Good job Curt...Happy New Year ❤️
  7. Hi Willa, I have a 9mm slightly spiculated nodule in left lung, caught by chance on ct last December. I had a pet 3 weeks later with no Uptake. I got a pulmonologist and did another ct in April and Aug. with no growth, so considered stable and next scan is end of feb. now with that said how does this affect my mental state, at first I freaked out ever day and was a complete mess but after talking to my pulmonologist and the nodule staying stable I started just forgetting about it. Fast forward today and last two weeks I have had pain in left chest like it’s sore so once again I’m completely freaked out yet I go back to what my pulmonologist said that I would never feel anything from a small nodule and I tried to calm down and think about what I’ve been doing differently and I realised I’ve increased my upper body workout and I’m just sore from that. Our minds can play funny tricks on us. I would see what next ct scan shows and if it has grown and since it did light up on the pet I would choose to have it removed, keep us updated and stay strong, the people on this forum are amazing. Love and light ❤️
  8. Janice I wanted to reach out because I was you in December 2018, 52 had ct and a 9mm nodule was found and I was terrified, my anxiety was so high my dr. Had to put me on meds. I literally thought my life was over and I found this forum and it changed everything. First thing I did was get a pulmonologist who set up a pet scan, the nodule did not light up so my pulm doc had me have another scan 4 months later and the nodule was the same, so just a couple weeks ago had another one and it was the same. My pulmonologist and radiologists says it’s stable and we will just keep scanning every 6 months for a couple of years. I like how Curt said it’s like a mole you have to keep an eye on. Breath it will get better I promise you. Love and light ❤️
  9. Lisa L

    Nodule & VATS

    I’m in the same boat, been dealing with this since Dec. 14, 9mm spiculated nodule. I had a pet scan 3 weeks later, no uptake at all, had another scan in April and it was the same and so today I’m going for 3rd Scan and praying it’s the same because I’m just so freaked out about having the Vats surgery. I’m hoping it’s just indolent and doesn’t do anything. This forum and the people are amazing.
  10. Hi I am going through the same thing as your mom. I’m 52 and had random ct in December and they found a 9mm spiculated nodule, 3 weeks later pet with no uptake not even a little on the nodule. I then got a pulmonologist who issued another scan in April which didn’t show any growth, first scan 9mm, pet scan 8mm, April scan 9.7, so all different machines and all could be off by a mil or so. At first I freaked out so bad and everyone on this forum is amazing so I calmed down quite a bit. I’m supposed to be having another Ct in a week or so and this one I believe will map it out to get a needle biopsy. So it’s a challenge as to what to do, my pulm dr. Says if it is LC it is very slow growing and sometimes are just indolent and never do anything and I would have never known it was there if not for the ct scan. When I start feeling anxious about it I get on this forum and it really seems to help, anyway keep us updated. Love and Light ❤️ Lisa
  11. Lisa L

    6mm Nodule

    Hi Angie, I am going through the same thing. Ct scan In dec. for something else found a 9mm spiculated nodule in lingual, scared me to death I’m former smoker dad passed away from Lung cancer and I’m 52. They scheduled me for a pet-ct Scan 3 weeks later and there was no uptake on the nodule or anywhere and said nodule was 8mm so that was good but with that said sometimes pet does not pick up on small nodules, have they told you more about your nodule like is it spiculated, non calcified? I got a great pulmonologist and he scheduled another ct scan 4 months later which was end of April, the ct said 9.7mm slightly spiculated nodule. 3 different machines had 3 different sizes and you will find they can be off 1mm give or take so because it did not look like any real growth and no uptake my pulm doc has another ct sched for july which at that time looks like he will do a biopsy. I understand your fear, I often wonder if I’m doing the right thing especially when I hear about your friend, did he get a pet? Or did he continue to follow the nodule after the 2 scans? I have tried to put it out of my mind until scans come up and it’s hard to do.
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