Jump to content

Vanitha

Members
  • Content Count

    6
  • Joined

  • Last visited


Reputation Activity

  1. Like
    Vanitha reacted to Moonbeam in Stage 2B Adenocarcinoma   
    Vanitha - your story sounds very similar as I said to my husbands. He’s T2aN1. His was small in the left main bronchus but found out much to everyone’s surprise (all doctors), node involvement. Hence, chemo. He had no other choice but to have his left lung removed. I think everyone hear can agree, hearing a lung cancer diagnosis rocks everyone’s world. Fears, anxiety, depression are all such common feelings from the very start of diagnosis. I have found, as has my husband (who btw didn’t like to talk about it at first bc he’d break down) therapy and for me, this forum, helps tremendously. I read to him everything that everyone writes - It gives him even greater strength knowing he’s not alone. Hoping he writes in one day  I’m so very sorry what you are going thru and I know you are scared. All feelings are completely normal.
    This morning is a new day. Step outside, breathe in the fresh air and find your strength because you will beat this. Let out all those feelings. You got this, Vanitha!  I make sure my husband does this  and I do also! sending lots of love to you today. XX 
  2. Like
    Vanitha reacted to Bruce u in Stage 2B Adenocarcinoma   
    Hi Vanitha
    I was fortunate that my lung cancer was found early by accident as well. I had an upper left lobectomy and was staged 1B. I followed that with 4 rounds of a Vinerolbine/Cisplatin combination. Be careful of the Cisplatin that has a side effect of ringing in the ears. No one told me about it and after 3 rounds I mentioned it to the Oncologist who told me of the side effect and they switched it to Carboplatin. By that time it was too late and the hearing damage is permanent. The good news is that was 11 1/2 years ago so hang in there even though and you can get through the chemo.
  3. Like
    Vanitha reacted to BridgetO in Stage 2B Adenocarcinoma   
    Two things about statistics:  First, they are based on large groups and they don't tell you what will happen with any individual. Here's a  link to a video of Steven Jay Gould on that issue. https://www.youtube.com/watch?v=cH6XuiOBbkc . Second, cancer stats are generally based on  5 year survival and recurrence rates. This means that relate to people who were diagnosed over 5 years ago, and maybe much longer ago, depending on when the study was done. And new treatments for lung cancer are being developed ,  new ones  have been approved  regularly and a lot more are in the pipeline. So besides the stats being inherently off (per Gould), they're out of date.  I'd like to mention my father-in-law. He was diagnosed 20 years ago with a form of non-Hodgkins lymphoma and "given" 6 months to live. He got into a clinical trial. It worked. He died last month at the age of 89-- of a heart attack. So my point is, don't get to hung up on or alarmed by statistics. You are a case of one! 
     
  4. Like
    Vanitha got a reaction from LaurenH in International Lung Cancer Survivorship Conference (ILCSC) April 26-28, 2019   
    Thanks for sharing this. This is in my neck of the woods, so I can easily attend. I'm not sure if I'm brave enough to attend this and face that i have lung cancer with a whole conference full of survivors. But I'm going to go ahead and register and see if I don't chicken out at the end   (i'm following the "plan and adjust as necessary" advice that tom gave in another forum) LOL
  5. Like
    Vanitha got a reaction from Rower Michelle in Stage 2B Adenocarcinoma   
    Dear moonbeam, donna, tom, steff, lexicat and bridgett, thanks much for your replies! You guys are an amazing group! Thank you for sharing the longterm survivor stories! I'm really encouraged by the stories. I feel like I will beat this for sure but the stats tell a different story, and I don't want to be out of touch with reality and then I get scared... but staying positive and planning is ok and good is what I'm hearing from you and that sounds good to me. I love the idea of getting trip insurance, that will keep my internal negative nelly (realist) notions satisfied. I really like the idea of planning for the life that I want to live and then changing plans as necessary. 
    I'm 45 and my son and daughter are 16 and 14. My cancer diagnosis came on Dec 3 after a needle biopsy. I had the lobectomy on Dec 11 as part of an exploratory surgery to see if a lymph node was cancerous. I got the staging information of Stage 2B T3N0M0 on Dec 19 and started chemo Jan 18. I'm feeling much more secure now than I have felt in weeks. Thank you for sharing your stories, I am in the same boat as your husband in terms of timing and staging, moonbeam! thank you for connecting, i feel so much better knowing others are going thru this too. My experience of chemo so far is that the fatigue kicked in right away, I couldn't keep my eyes open for longer than a few mins during the infusion. The nausea/fatigue got really bad on days 3-5 and it took almost 10 days to get to a point where I am out of bed for a normal amount of time. My doctor said that fatigue is from the meds for the side-effects and that she'll adjust the meds for the next cycle. 
    I'm really aching to go to a beach. Somehow thats what I've wanted to do since this whole thing began. I need to go to the oceanside to get internal peace and be ok with God/Universe for what I'm going thru. I'm going to go ahead and make plans to go see the ocean once I'm finished with chemo. I can go to FL where it will be warm in Apr. 
    I'm returning the love, support and wishes to each of you. I'll tell my husband and kids about all the great things you have shared. XXX
  6. Like
    Vanitha got a reaction from NikoleV in International Lung Cancer Survivorship Conference (ILCSC) April 26-28, 2019   
    Thanks for sharing this. This is in my neck of the woods, so I can easily attend. I'm not sure if I'm brave enough to attend this and face that i have lung cancer with a whole conference full of survivors. But I'm going to go ahead and register and see if I don't chicken out at the end   (i'm following the "plan and adjust as necessary" advice that tom gave in another forum) LOL
  7. Like
    Vanitha got a reaction from Steff in Stage 2B Adenocarcinoma   
    Dear moonbeam, donna, tom, steff, lexicat and bridgett, thanks much for your replies! You guys are an amazing group! Thank you for sharing the longterm survivor stories! I'm really encouraged by the stories. I feel like I will beat this for sure but the stats tell a different story, and I don't want to be out of touch with reality and then I get scared... but staying positive and planning is ok and good is what I'm hearing from you and that sounds good to me. I love the idea of getting trip insurance, that will keep my internal negative nelly (realist) notions satisfied. I really like the idea of planning for the life that I want to live and then changing plans as necessary. 
    I'm 45 and my son and daughter are 16 and 14. My cancer diagnosis came on Dec 3 after a needle biopsy. I had the lobectomy on Dec 11 as part of an exploratory surgery to see if a lymph node was cancerous. I got the staging information of Stage 2B T3N0M0 on Dec 19 and started chemo Jan 18. I'm feeling much more secure now than I have felt in weeks. Thank you for sharing your stories, I am in the same boat as your husband in terms of timing and staging, moonbeam! thank you for connecting, i feel so much better knowing others are going thru this too. My experience of chemo so far is that the fatigue kicked in right away, I couldn't keep my eyes open for longer than a few mins during the infusion. The nausea/fatigue got really bad on days 3-5 and it took almost 10 days to get to a point where I am out of bed for a normal amount of time. My doctor said that fatigue is from the meds for the side-effects and that she'll adjust the meds for the next cycle. 
    I'm really aching to go to a beach. Somehow thats what I've wanted to do since this whole thing began. I need to go to the oceanside to get internal peace and be ok with God/Universe for what I'm going thru. I'm going to go ahead and make plans to go see the ocean once I'm finished with chemo. I can go to FL where it will be warm in Apr. 
    I'm returning the love, support and wishes to each of you. I'll tell my husband and kids about all the great things you have shared. XXX
  8. Like
    Vanitha got a reaction from Tom Galli in Pet scan   
    The amount of testing necessary to get the right diagnosis is dizzying. I had a chest xray, chest CT scan, CT guided needle biopsy, whole body PET scan and a brain MRI within 4 wks. My oncologist said that lung cancer spreads to the liver and brain easily, so that's why they need the PET scan (to look at the rest of the body & liver) and the brain MRI. I had additional tests to be declared "fit for surgery" in addition to those mentioned above also in the 4 weeks. So like LexieCat said, it sounds like they are being thorough. 
  9. Like
    Vanitha got a reaction from LexieCat in Stage 2B Adenocarcinoma   
    Dear moonbeam, donna, tom, steff, lexicat and bridgett, thanks much for your replies! You guys are an amazing group! Thank you for sharing the longterm survivor stories! I'm really encouraged by the stories. I feel like I will beat this for sure but the stats tell a different story, and I don't want to be out of touch with reality and then I get scared... but staying positive and planning is ok and good is what I'm hearing from you and that sounds good to me. I love the idea of getting trip insurance, that will keep my internal negative nelly (realist) notions satisfied. I really like the idea of planning for the life that I want to live and then changing plans as necessary. 
    I'm 45 and my son and daughter are 16 and 14. My cancer diagnosis came on Dec 3 after a needle biopsy. I had the lobectomy on Dec 11 as part of an exploratory surgery to see if a lymph node was cancerous. I got the staging information of Stage 2B T3N0M0 on Dec 19 and started chemo Jan 18. I'm feeling much more secure now than I have felt in weeks. Thank you for sharing your stories, I am in the same boat as your husband in terms of timing and staging, moonbeam! thank you for connecting, i feel so much better knowing others are going thru this too. My experience of chemo so far is that the fatigue kicked in right away, I couldn't keep my eyes open for longer than a few mins during the infusion. The nausea/fatigue got really bad on days 3-5 and it took almost 10 days to get to a point where I am out of bed for a normal amount of time. My doctor said that fatigue is from the meds for the side-effects and that she'll adjust the meds for the next cycle. 
    I'm really aching to go to a beach. Somehow thats what I've wanted to do since this whole thing began. I need to go to the oceanside to get internal peace and be ok with God/Universe for what I'm going thru. I'm going to go ahead and make plans to go see the ocean once I'm finished with chemo. I can go to FL where it will be warm in Apr. 
    I'm returning the love, support and wishes to each of you. I'll tell my husband and kids about all the great things you have shared. XXX
  10. Like
    Vanitha got a reaction from Moonbeam in Stage 2B Adenocarcinoma   
    Dear moonbeam, donna, tom, steff, lexicat and bridgett, thanks much for your replies! You guys are an amazing group! Thank you for sharing the longterm survivor stories! I'm really encouraged by the stories. I feel like I will beat this for sure but the stats tell a different story, and I don't want to be out of touch with reality and then I get scared... but staying positive and planning is ok and good is what I'm hearing from you and that sounds good to me. I love the idea of getting trip insurance, that will keep my internal negative nelly (realist) notions satisfied. I really like the idea of planning for the life that I want to live and then changing plans as necessary. 
    I'm 45 and my son and daughter are 16 and 14. My cancer diagnosis came on Dec 3 after a needle biopsy. I had the lobectomy on Dec 11 as part of an exploratory surgery to see if a lymph node was cancerous. I got the staging information of Stage 2B T3N0M0 on Dec 19 and started chemo Jan 18. I'm feeling much more secure now than I have felt in weeks. Thank you for sharing your stories, I am in the same boat as your husband in terms of timing and staging, moonbeam! thank you for connecting, i feel so much better knowing others are going thru this too. My experience of chemo so far is that the fatigue kicked in right away, I couldn't keep my eyes open for longer than a few mins during the infusion. The nausea/fatigue got really bad on days 3-5 and it took almost 10 days to get to a point where I am out of bed for a normal amount of time. My doctor said that fatigue is from the meds for the side-effects and that she'll adjust the meds for the next cycle. 
    I'm really aching to go to a beach. Somehow thats what I've wanted to do since this whole thing began. I need to go to the oceanside to get internal peace and be ok with God/Universe for what I'm going thru. I'm going to go ahead and make plans to go see the ocean once I'm finished with chemo. I can go to FL where it will be warm in Apr. 
    I'm returning the love, support and wishes to each of you. I'll tell my husband and kids about all the great things you have shared. XXX
  11. Sad
    Vanitha reacted to Klaadc87 in My mom, a hero   
    Where to start, this is such a complicated and long story. My name is Ashley. My mother, my best friend, my absolute everything was given weeks to live with whole brain radiation. The last several years I've watched this women suffer and be put thru hell and she has fought and fought! My mom is 63 years old. In 1991 she has a total hysterectomy for cervical cancer. In 2015 she was diagnosed with anal cancer. She did several rounds of chemo and radiation and was cleared of tumors but the damage the radiation had caused her left her very very sick for about half a year, throwing up constantly and severe stomach pains. Finally in March of 2016 they figured out her intestines had been badly melted and she required surgery to have a temporary colostomy bag. During that operation she developed a blood clot in her leg from her legs being in stirrups for several hours. She laid in the hospital for five days screaming in pain, five days later she is sent to a larger hospital and they have to amputate it, several more complications occur during this time but not relevant to cancer. Finally Nov of 2016 she goes in for surgery to reverse the colostomy bag. After surgery for several days she was short of breath which wasn't normal. They find out she has a collapsed lung and tons of fluid in the other requirng at least three procedures. Thanksgiving we are told that she has stage 3 non small cell lung cancer. She does several rounds of chemo and radiation again. The most aggressive form of both. Aug 2017 we are told the tumors are gone. Thanksgiving of 2017 she falls (she's an amputee remember) so his has happened before. Well this time after she falls she is acting strange so she is taken to urgent care to make sure she didn't hit her head when she fell. The do the scan and tell us she has two brain tumors and would be transferring her to a larger hospital. She is put in icu immediately because of swelling on brain. This is Thursday. On Tuesday she undergoes brain surgery to remove small pieces from the largest tumor to reduce some swelling. We are told there are several tumors. Stage 4. A week after surgery she is sent to a rehabilitation hospital where she spends three weeks. Then to another rehab/nursing facility where she is currently. A month and one day after her brain surgery we are told she only has weeks to live possibly seven months but this is with radiation to the brain and it comes with devastating risks. Idk if I mentioned that this is lung cancer that spread to brain. She started WBR on Wednesday, last week. So it hasn't even been a week. She's had three treatments. She should of had five already but the side effects have became unbearable. After the second treatment she started having diarrhea, a sore throat, became confused, couldn't remember the last time she had ate or took meds, stared quietly off into space but was still able to play a few rounds of bingo😆 After third treatment she started shaking, her hands were cramping up pretty bad and she is now unable to move with out assistance. She still pretty confused. The nurses thought maybe she had flu or pneumonia and did some test that were negative so said it's gotta be the radiation. She is fatigued bad, sleeps constantly, this just started too. I'm so terrified that doing the WBR to give her seven months instead of the few weeks without treatment is destroying her quality of life. She wants to continue to fight. My brother is getting married and having a baby..something that she really doesn't want to miss. I'm so devastated. Idk what to do. Im so devastated. I'm not ready for her to go. I'm begging if anybody has any advice any hope anything. I'm begging from the bottom of my heart please help. Thank you for reading,it's long, I know.  This is someone so important to so many people. 
  12. Like
    Vanitha got a reaction from Tom Galli in Stage 2B Adenocarcinoma   
    Dear moonbeam, donna, tom, steff, lexicat and bridgett, thanks much for your replies! You guys are an amazing group! Thank you for sharing the longterm survivor stories! I'm really encouraged by the stories. I feel like I will beat this for sure but the stats tell a different story, and I don't want to be out of touch with reality and then I get scared... but staying positive and planning is ok and good is what I'm hearing from you and that sounds good to me. I love the idea of getting trip insurance, that will keep my internal negative nelly (realist) notions satisfied. I really like the idea of planning for the life that I want to live and then changing plans as necessary. 
    I'm 45 and my son and daughter are 16 and 14. My cancer diagnosis came on Dec 3 after a needle biopsy. I had the lobectomy on Dec 11 as part of an exploratory surgery to see if a lymph node was cancerous. I got the staging information of Stage 2B T3N0M0 on Dec 19 and started chemo Jan 18. I'm feeling much more secure now than I have felt in weeks. Thank you for sharing your stories, I am in the same boat as your husband in terms of timing and staging, moonbeam! thank you for connecting, i feel so much better knowing others are going thru this too. My experience of chemo so far is that the fatigue kicked in right away, I couldn't keep my eyes open for longer than a few mins during the infusion. The nausea/fatigue got really bad on days 3-5 and it took almost 10 days to get to a point where I am out of bed for a normal amount of time. My doctor said that fatigue is from the meds for the side-effects and that she'll adjust the meds for the next cycle. 
    I'm really aching to go to a beach. Somehow thats what I've wanted to do since this whole thing began. I need to go to the oceanside to get internal peace and be ok with God/Universe for what I'm going thru. I'm going to go ahead and make plans to go see the ocean once I'm finished with chemo. I can go to FL where it will be warm in Apr. 
    I'm returning the love, support and wishes to each of you. I'll tell my husband and kids about all the great things you have shared. XXX
  13. Like
    Vanitha reacted to Steff in Stage 2B Adenocarcinoma   
    Vanitha-
    I understand the trepidation about planning more than a few months in advance.  I'm a planner, my mom is a planner (she is the lung cancer patient).  We did put some stuff on hold while she was in active treatment of chemo + immunotherapy because she didn't feel well enough to do much.  But when that was done, the weight was kind of lifted and planning for stuff resumed.  I think what you are going through is completely normal, especially for someone who is surprised by a lung cancer diagnosis (my mom was not surprised by her diagnosis and had a feeling it was coming). I think most people have similar feelings as you about the future, at least for awhile.  But it usually subsides a bit.  The change we have made in response to an unknown future (which is really the case for everyone, lung cancer just puts it into perspective for us) is to make sure to get trip insurance and/or pay a bit extra for refundable tickets/reservations.  My mom and I attend a lot of concerts and I now just add "insurance" for piece of mind.  But I can say that we have probably gone to 7 concerts since her diagnosis and she hasn't missed one yet, even while on treatment. 
    You will get through this.  As LexieCat said, there are many long term survivors here to support you through all of this.  We are here for you.
    Take Care,
    Steff
  14. Like
    Vanitha reacted to Tom Galli in Stage 2B Adenocarcinoma   
    Vanitha,
    Welcome here!
    As Steff suggests, planning for stuff is vital.  I didn't and fumed and fretted away life during my nearly 4 years of treatment.  Now, I realize the purpose of seeking lung cancer treatment is to extend life and the extension should be enjoyed.  Extend your planning horizon. Plan years out instead of months out.
    Stay the course.
    Tom
  15. Like
    Vanitha reacted to Donna G in Stage 2B Adenocarcinoma   
    Hello Venitha and welcome.
    I was Stage 3B.  I started with chemo and radiation, got a good response so was able to have surgery and as planned more chemo after.
    As you see below I was diagnosed in December 1997.  As said above some of us are long term survivors.  For me it is over 21 years.  
    Keep us posted on how  you are doing, feel free to ask questions. So glad you have a sportive family.  Hope you always take someone to 
    your appointments as a second set of ears, and take notes of what the doctors and nurses tell you to review later.
    Praying for the best for you.
    Donna G
  16. Like
    Vanitha reacted to Moonbeam in Stage 2B Adenocarcinoma   
    Welcome Venitha. My husband was diagnosed Nov. 14th with lung cancer. Rocked our world and the ride continued to move so very fast...He had a pneumonectomy of his left lung Dec 10th and started chemo last Friday, Jan 25th. His was located in the main bronchus (hence total left lung removal) and every single time, we here “terrible location.” He is also stage 2B NSC poorly differentiated squamous cell carcinoma. Chemo was well tolerated (he’s set for 4 also) however, 5 days in- terrible nausea and fatigue. All of this being said, I always say to him “this is our new normal and it’s ok. We are just going to adjust our sails and keep moving”. Yes, some things on hold. Our kids are 21 and 23 and it’s hard to see their father like this. Many worries. We all do.  However, right now, while going thru chemo, things will be different and that’s ok. I’m a big believer of “one day at a time”. Tomorrow will be a new day however,  i will make plans for little outings here and there (while in treatment) and think about what we should all do as a family for a summer trip. Something to look forward to  Our lives may be different but I’m not going to let this stop us ... stay well. Ask questions. This group has been amazing in the short time I’ve been a member and sending lots of love and healing prayers! XX 
  17. Like
    Vanitha reacted to BridgetO in Stage 2B Adenocarcinoma   
    Hi Vanitha and welcome. As all of us on these forums have found out, anybody who has lungs (and maybe bad luck)  can get  lung cancer.  Lifestyle choices can reduce risk,, but never eliminate it. And we understand about being stunned by the diagnosis. I really understand being fearful of planning ahead. My lung cancer was Adenocarcinoma stage 1a. It was found in a CT scan that I had to watch for possible metastases from a priior non-lung cancer that was stage 3 and had a "dismal prognosis"--my doctor's words. With the earlier cancer, I really thought I wasn't going to live long, or else I was going to be sick from treatment forever. So I tried to live one day at a time and not think too far ahead. But, as my routine CT scans kept turning up negative, I began to believe in the possibility of long term survival. When my lung nodule turned out to be lung cancer and not a metastasis, I was actually relieved! Probably one of the few people you'll meet who was relieved by a lung cancer diagnosis. So today I'm NED (no evidence of disease) on 3 primary cancers: 2 years out on lung cancer, 8 years out on the stage 3 one, and 11 years on a stage 1 breast cancer.  My quality of life is good.  
    You're really fortunate to have a helpful and supportive family. Asking for and accepting support is an important part of this journey.
    Whatever you're going through medically or emotionally, probably somebody on here, if not a lot of somebodies, has gone through something similar. Let us know what questions you may have and how we can support you. That's what we're here for!
    Bridget O
×
×
  • Create New...