Jump to content

Road bum

Members
  • Content Count

    74
  • Joined

  • Last visited

  • Days Won

    6

Reputation Activity

  1. Like
    Road bum got a reaction from PaulaC in Upcoming CT scan & MRI Monday   
    Deb,
    I had one last Monday and got my results today.  I actually didn’t get to stressed out this time. Not sure exactly why but oh well I will take what I can get. Got my results today and they could have been better but, thank God, they weren’t any worse. I’m kind of where I was so no big change.
    If you can find another focal point or spend more time with your family it really helps. I have started researching everything under the sun that doesn’t have anything to do with “ my now “ and it’s been pretty interesting. Biggest deal is, it has helped to put “ now “ more behind me. It gives me a little breathing room and maybe it would work for you. Breathing room is a big deal with all of us. It is hard to find sometimes in our present situation
    So look for something that will take you “ outside “ of your own head for a while.
    It is a really nice feeling.
    Prayers for good news and relief from stress for you. We will all think good thoughts.
    Keep us posted.
    Ron
     
  2. Like
    Road bum got a reaction from Susan Cornett in Upcoming CT scan & MRI Monday   
    Deb,
    I had one last Monday and got my results today.  I actually didn’t get to stressed out this time. Not sure exactly why but oh well I will take what I can get. Got my results today and they could have been better but, thank God, they weren’t any worse. I’m kind of where I was so no big change.
    If you can find another focal point or spend more time with your family it really helps. I have started researching everything under the sun that doesn’t have anything to do with “ my now “ and it’s been pretty interesting. Biggest deal is, it has helped to put “ now “ more behind me. It gives me a little breathing room and maybe it would work for you. Breathing room is a big deal with all of us. It is hard to find sometimes in our present situation
    So look for something that will take you “ outside “ of your own head for a while.
    It is a really nice feeling.
    Prayers for good news and relief from stress for you. We will all think good thoughts.
    Keep us posted.
    Ron
     
  3. Like
    Road bum got a reaction from Susan Cornett in The results are in...   
    Susan that is big news. So happy for you.
    Keep it up, it gives the rest of us a great big smile everytime we see those three little letters.
    Ron
  4. Like
    Road bum got a reaction from Tom Galli in New update   
    Thank you so much guys. 
    I’m a long way from giving it up. I’m going to keep digging until I can’t anymore.
    Its just as Michelle says, it’s tough to live with uncertainty. I would rather know.
    Ron
  5. Like
    Road bum got a reaction from Tom Galli in Upcoming CT scan & MRI Monday   
    Thanks guys. 
    I will never stop digging until I can’t anymore.
    Uncertainty is always the enemy.
    Ron
  6. Like
    Road bum reacted to Rower Michelle in New update   
    Hi Ron-
    I’m hoping radiation with Gezmar knocks it out. Living with uncertainty is the worst part of this process.  
     
    I’ve read along the way radiologists have guidelines to measure tumor sizes, with your results it does seem to fall into the “mild” growth category. I think Lynn Eldridge  MD wrote a post about this last year.  I’m glad there’s more tricks of the docs sleeve.  
    We’re all pulling for you until that fighting spirit returns.  It’s exhausting to be on a 24/7 war footing- that’s where the family comes in with lots of prayers.  We are your warriors now.  A big hug to you.  
    Michelle
     
  7. Like
    Road bum got a reaction from Rower Michelle in Upcoming CT scan & MRI Monday   
    Deb,
    I had one last Monday and got my results today.  I actually didn’t get to stressed out this time. Not sure exactly why but oh well I will take what I can get. Got my results today and they could have been better but, thank God, they weren’t any worse. I’m kind of where I was so no big change.
    If you can find another focal point or spend more time with your family it really helps. I have started researching everything under the sun that doesn’t have anything to do with “ my now “ and it’s been pretty interesting. Biggest deal is, it has helped to put “ now “ more behind me. It gives me a little breathing room and maybe it would work for you. Breathing room is a big deal with all of us. It is hard to find sometimes in our present situation
    So look for something that will take you “ outside “ of your own head for a while.
    It is a really nice feeling.
    Prayers for good news and relief from stress for you. We will all think good thoughts.
    Keep us posted.
    Ron
     
  8. Like
    Road bum got a reaction from Tom Galli in Upcoming CT scan & MRI Monday   
    Deb,
    I had one last Monday and got my results today.  I actually didn’t get to stressed out this time. Not sure exactly why but oh well I will take what I can get. Got my results today and they could have been better but, thank God, they weren’t any worse. I’m kind of where I was so no big change.
    If you can find another focal point or spend more time with your family it really helps. I have started researching everything under the sun that doesn’t have anything to do with “ my now “ and it’s been pretty interesting. Biggest deal is, it has helped to put “ now “ more behind me. It gives me a little breathing room and maybe it would work for you. Breathing room is a big deal with all of us. It is hard to find sometimes in our present situation
    So look for something that will take you “ outside “ of your own head for a while.
    It is a really nice feeling.
    Prayers for good news and relief from stress for you. We will all think good thoughts.
    Keep us posted.
    Ron
     
  9. Like
    Road bum got a reaction from Tom Galli in The results are in...   
    Susan that is big news. So happy for you.
    Keep it up, it gives the rest of us a great big smile everytime we see those three little letters.
    Ron
  10. Like
    Road bum got a reaction from Curt in New update   
    This what I do when I don’t have the shakes. 
    This is a bone handled knife that I scrimshawed my feelings on when I was first diagnosed. 
    I am hoping to lose the shakes so I can do the fine work again.
    If this is inappropriate them moderators please delete. It won’t hurt my feelings.
    Ron


  11. Like
    Road bum got a reaction from Tom Galli in So scared & trying to be brave...   
    Linda, we all have been where you are right now. Some of us more than once. You can’t let it win without trying to beat it. 
    I have been diagnosed for three years now. Been through 3 different rounds of chemo and radiation and I’m still here.
    i will keep trying as long as I have breath. None of us know when they might find just the right combination of treatments that will get us a NED ( no evidence of disease).
    That is the goal around here. One day at a time and never give up. 
    We here are all behind you and will help in any way we can.
    Don't forget, you are never alone.
    Ron
  12. Like
    Road bum got a reaction from LouT in So scared & trying to be brave...   
    Linda, we all have been where you are right now. Some of us more than once. You can’t let it win without trying to beat it. 
    I have been diagnosed for three years now. Been through 3 different rounds of chemo and radiation and I’m still here.
    i will keep trying as long as I have breath. None of us know when they might find just the right combination of treatments that will get us a NED ( no evidence of disease).
    That is the goal around here. One day at a time and never give up. 
    We here are all behind you and will help in any way we can.
    Don't forget, you are never alone.
    Ron
  13. Like
    Road bum got a reaction from Rower Michelle in So scared & trying to be brave...   
    Linda, we all have been where you are right now. Some of us more than once. You can’t let it win without trying to beat it. 
    I have been diagnosed for three years now. Been through 3 different rounds of chemo and radiation and I’m still here.
    i will keep trying as long as I have breath. None of us know when they might find just the right combination of treatments that will get us a NED ( no evidence of disease).
    That is the goal around here. One day at a time and never give up. 
    We here are all behind you and will help in any way we can.
    Don't forget, you are never alone.
    Ron
  14. Like
    Road bum reacted to KatieB in How to get palliative care   
    How to Get Palliative Care?
    The first step is to talk to your own doctor. Most of the time, you have to ask your doctor for a palliative care referral to get palliative care services. Whether you are in the hospital or at home, a palliative care team can help you. Following are some tips to help you talk to your doctor:
    Tell your doctor you are thinking about palliative care, and ask where palliative care is available in your area.
    Ask your doctor to explain your illness and any past, current and future treatments and procedures.
    Explain to your doctor exactly what quality of life means to you. This list may include: being able to spend time with loved ones; relief from any pain and other symptoms; having the ability to make your own decisions for care and where you want to be treated (home vs. in the hospital).
    Be sure your doctor is aware of any personal, religious or cultural beliefs, values or practices that are important to consider in your care and treatment decisions.
    Tell your doctor which treatments you may or may not want.
    Mention that you would like time to discuss future planning for your care. You should do this even if you’re well or it’s early in your illness.
    If you have completed a living will or health care proxy, be sure to tell your doctor and provide him or her with a copy.
    Finally, at any point in your illness if you are experiencing symptoms and stress, ask your doctor for the palliative care referral!
     
    Find a provider: https://getpalliativecare.org/howtoget/find-a-palliative-care-team/
     
  15. Like
    Road bum reacted to KatieB in Meet the palliative care team!   
    Meet the Palliative Care Team
    The palliative care team will spend a lot of time with you and your family. They will assess your pain level and other symptoms. They will discuss and explain all of your treatment options. And above all, they will explore your goals so that they can help you match your treatment options to your goals.
    But what should you ask the team during your first meeting? Here are some suggestions:
    What can I expect from palliative care? Where will my care be provided (e.g., in the hospital, home, nursing home)? Who is on the palliative care team? What are your recommendations for my care? What decisions need to be made by either my family or me? Will you help explain my treatment choices and the issues involved in making these decisions? Will you communicate openly and candidly with my family and me about my illness? Will you continue to be involved in my care when I am in the hospital (if you are an outpatient). Will you be involved in my care when I am discharged from the hospital or living at home? How will you work with and communicate with all my other doctors? What will you do if I experience severe pain or other symptoms? What support will you provide to my family and/or caregivers? Will you still be available to me throughout my illness? How can I reach you? What resources do you recommend for me to learn more about palliative care
  16. Like
    Road bum got a reaction from Tom Galli in Direction needed   
    Kristen, to be honest I haven’t checked the link you gave me except for a cursory glance.
    I am due for a cat scan on the 14 th and then I will see the Doc the following Monday. 
    I haven’t been on any chemo since August so we will see where we are a week from Monday. My Doctor has assured me that their are still a few options for treatment.
    i suppose it all hinges on what the scan shows.
    Thank you for thinking of me. I kind of left you all hanging after I asked you for help and I’m sorry.
    i did check on the clinical trail register and went thru it twice but I didn’t find anything I fit in.
    So right now I’m placing my bets on my Doctor. After that we will see.
    Ron
     
  17. Like
    Road bum reacted to LouT in New update   
    I wish you all the best on your journey Road Bum. There is so much research going on now that anything is possible. You’ll also be in my prayers. 
    Lou
  18. Like
    Road bum reacted to Rower Michelle in New update   
    Well done! I admire your strength. 
  19. Like
    Road bum got a reaction from LouT in MRI of Spine Tomorrow   
    We will all hang our hat on some good results from the PET. Can’t ever let it get you down and sometimes that isn’t easy.
    Hope youhad a great day on the court.
    Ron
  20. Thanks
    Road bum got a reaction from Deb W in MRI of Spine Tomorrow   
    We will all hang our hat on some good results from the PET. Can’t ever let it get you down and sometimes that isn’t easy.
    Hope youhad a great day on the court.
    Ron
  21. Like
    Road bum got a reaction from Lisa L in SCAN   
    That’s the kind of news we all like to hear.
    Have a good theme at the lodge and get some stressless rest.
    Ron
  22. Like
    Road bum got a reaction from PaulaC in New update   
    This what I do when I don’t have the shakes. 
    This is a bone handled knife that I scrimshawed my feelings on when I was first diagnosed. 
    I am hoping to lose the shakes so I can do the fine work again.
    If this is inappropriate them moderators please delete. It won’t hurt my feelings.
    Ron


  23. Like
    Road bum got a reaction from BridgetO in New update   
    This what I do when I don’t have the shakes. 
    This is a bone handled knife that I scrimshawed my feelings on when I was first diagnosed. 
    I am hoping to lose the shakes so I can do the fine work again.
    If this is inappropriate them moderators please delete. It won’t hurt my feelings.
    Ron


  24. Like
    Road bum got a reaction from BridgetO in New update   
    This is my signature line on my emails. I do believe and I do have hope.
    As the last line says “  Anything can be. “
    Ron

     
    "Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be."
     
    —Shel Silverstein
  25. Thanks
    Road bum got a reaction from BridgetO in Change or Role   
    Glad to hear she is doing well. I will continue to send out my prayers.
    Ron
×
×
  • Create New...