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Suzanne Gibb

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  1. Like
    Suzanne Gibb got a reaction from Roz in 3 Week Lobectomy Follow Up Tomorrow   
    Curt.
    I am just beginning my journey with lung cancer so I feel kind of naïve commenting. I am so glad for you that your news is good. It is great to be inspired by someone else's strength and success. I wish you all the best of course. Suzanne
  2. Like
    Suzanne Gibb got a reaction from Roz in 3 Week Lobectomy Follow Up Tomorrow   
    Thanks Curt. I do agree with you about keeping the house in order especially with two dogs. It is also not too strenuous yet. Suzanne
  3. Like
    Suzanne Gibb got a reaction from Curt in 3 Week Lobectomy Follow Up Tomorrow   
    Thanks Curt. I do agree with you about keeping the house in order especially with two dogs. It is also not too strenuous yet. Suzanne
  4. Like
    Suzanne Gibb reacted to Curt in 3 Week Lobectomy Follow Up Tomorrow   
    Thank you @Suzanne Gibb.  Welcome here, but sorry you have to be.  I read your other post.   I don’t have any experience with radiation treatment but there are others that do that I’m sure will respond.  It was too cold to go outside after my surgery so I took to cleaning the house to be active.  Keeping the house in order felt good when the rest of my life was feeling quite a bit out of order.  Good luck with your treatments.    
  5. Like
    Suzanne Gibb got a reaction from LaurenH in Radiation   
    Thanks so much for your responses. I learned so much. I did not know that the about radiation and small cell so that makes me feel so much better. (Just to have the info) It is in my books but it doesn't really hit home until someone has gone through it. I am doing chemo at the same time for three of the days and am aware that chemo may make me nausea later on  but I am trying to take one day at a time and not go crazy worrying. I am sorry Tom that I do not come to Texas, I am in Ontario but I would just because I feel so much calmer after reading what you say. I have been on this website since February but I must have entered this topic with a new kind of letter. Thanks again both of you. Suzanne
     
  6. Like
    Suzanne Gibb got a reaction from Tom Galli in Radiation   
    Thanks so much for your responses. I learned so much. I did not know that the about radiation and small cell so that makes me feel so much better. (Just to have the info) It is in my books but it doesn't really hit home until someone has gone through it. I am doing chemo at the same time for three of the days and am aware that chemo may make me nausea later on  but I am trying to take one day at a time and not go crazy worrying. I am sorry Tom that I do not come to Texas, I am in Ontario but I would just because I feel so much calmer after reading what you say. I have been on this website since February but I must have entered this topic with a new kind of letter. Thanks again both of you. Suzanne
     
  7. Like
    Suzanne Gibb got a reaction from PaulaC in Radiation   
    Thanks so much for your responses. I learned so much. I did not know that the about radiation and small cell so that makes me feel so much better. (Just to have the info) It is in my books but it doesn't really hit home until someone has gone through it. I am doing chemo at the same time for three of the days and am aware that chemo may make me nausea later on  but I am trying to take one day at a time and not go crazy worrying. I am sorry Tom that I do not come to Texas, I am in Ontario but I would just because I feel so much calmer after reading what you say. I have been on this website since February but I must have entered this topic with a new kind of letter. Thanks again both of you. Suzanne
     
  8. Like
    Suzanne Gibb got a reaction from PaulaC in 3 Week Lobectomy Follow Up Tomorrow   
    Curt.
    I am just beginning my journey with lung cancer so I feel kind of naïve commenting. I am so glad for you that your news is good. It is great to be inspired by someone else's strength and success. I wish you all the best of course. Suzanne
  9. Like
    Suzanne Gibb reacted to Rower Michelle in 3 Week Lobectomy Follow Up Tomorrow   
    Curt thanks for sharing.  It’s great news!  I can understand the lingering feeling-this is such hard stuff to deal with.  
    There have been more advances with LC treatment in the last two years than in the last 30 years.  The EGFR driver mutation is one of the best studied with over 900 clinical trials underway.   Even with the remote odds- there are good treatment options with more coming.  
    Hopefully as time passes this experience will have less of an impact over time.  God is good every day!  
    Michelle
     
  10. Like
    Suzanne Gibb reacted to Curt in 3 Week Lobectomy Follow Up Tomorrow   
    Staged 1A NSCLC Adenocarcinoma with EGFR exon 19 mutation.   No lymph node involvement.  Surgeon felt all went well.  Did not recommend any  follow up treatment, just CT’s every six months.   Gave me a 10% chance of recurrence.  I still can’t get my head around this all.  I feel incredibly lucky to have found it as early as I did, but also can’t shake the feeling that this is something I will worry over forever.
     
     
     
  11. Like
    Suzanne Gibb reacted to Tom Galli in Trying immunotherapy now   
    Zaphobd,
    How about that!  Thanks for sharing good news about your immunotherapy treatment.  
    Most of us go down the path of conventional radiation and chemo but now targeted therapy and immunotherapy have become effective weapons to control and hopefully eliminate lung cancer.  I really appreciate you sharing your first hand experience with Opdivo.  There are many who look to this forum for hope and you've just shined a beacon.  
    Stay the course.
    Tom
  12. Like
    Suzanne Gibb reacted to Laurel in Update from Suzanne   
    I had so much help during 2018 going through surgery and treatments. I didn't have much choice....two days after I found out I had lung cancer, my husband had a massive heart attack. As we both struggled through 2018, we would try to do things for ourselves-  like taking out the garbage....such a small thing but we were both depleted.  People who offer to help....want to help.  Let them.  Hugs
  13. Like
    Suzanne Gibb reacted to LexieCat in Update from Suzanne   
    I'm pretty sure volunteers understand that the length of appointments are not always predictable.  IOW, they know that doctors sometimes run late, that some appointments may be fairly quick/routine, while others simply take longer.  They are volunteering to HELP you.  I'm sure most of them would be upset to feel that you rushed through an appointment just to make their wait shorter.  
    I get where you're coming from, though.  I'm single, too, with no family nearby and not a lot of close friends, either.  I wound up asking a former boss (with whom I didn't always get along when we worked together) to drive me for my surgery.  I wanted her not to stay, but she insisted on staying until I woke up.  I felt weird asking, but she had once told me to call her if I ever needed something like a ride for a medical procedure.  She's single, too, and I figure we single women gotta look out for each other!  My neighbors picked me up when I was discharged, and then drove me back to the hospital when I was readmitted and picked me up when I was discharged the second time.  They are lovely neighbors and we try to help each other out when needed.  
    It does feel weird when we're not used to asking for help, but seriously, wouldn't you be happy to help someone who needed a ride if you could?  It's always good, too, to express your gratitude.  If a friend drives you, you can give her/him a little gift or take them to lunch or dinner sometime, or give them movie tickets or some other small token of thanks.  With volunteers, you could always write a note to their company expressing your thanks for the wonderful service the volunteer provided.  I always find that doing something to show my thanks makes both of us feel warm and fuzzy.    
    It gets easier with practice.  And as my mom would say, "It builds character."  (She said that any time I complained about anything!)
     
  14. Like
    Suzanne Gibb reacted to Curt in Update from Suzanne   
    Suzanne it might help to remember that the anxiousness you feel during your visits is not the same anxiousness others are feeling.  For the doctor it’s their job.  They do it day in and day out.  If it’s a good doctor they want to make sure you are as comfortable as possible.  Making sure you have all the information you need will be important for a good doctor to feel like they are doing the best job they can for you. If you want the doctor to feel good about your visit give them the opportunity to do their job the best way they can.  Allow them to explain things to you and give them feedback.  For volunteers, what they are doing for you is a positive experience for them.  I know that sounds strange that your appointments, which are probably very stressful for you, make them feel good about themselves because they are doing something nice for you.  Allow them to feel that.  You are on a tough road.  There are good people out there who want to help.  The nicest thing you can do for them is allow them to help.  
  15. Like
    Suzanne Gibb reacted to Steff in Update from Suzanne   
    Suzanne, 
    Glad to hear you have a treatment plan in place and will be meeting your oncologist soon.  Once my mom's treatments were in place, stuff started to fall into place and she was able to get into a routine.  The routine made it a bit easier to deal with things and helped her to focus on her recovery.  I hope that you are able to find your routine quickly and it provides some relief for you from the craziness that a lung cancer diagnosis causes.  
    Ohh and the volunteer driver program sounds really cool - maybe you will be some great folks along the way! l
    Take Care,
    Steff
  16. Like
    Suzanne Gibb reacted to Tom Galli in Sandbox   
    Sandbox,
    Almost. What kind of chemo will you receive (names of drugs). This is important because we can help you identify side effects and suggest ways of reducing them. 
    Branch of service: USAF would be my guess. 
    Six weeks of radiation and weekly chemo is the standard of care for treatment of adenocarcoma.  But that could change depending on your biopsy report. Certain types of adenocarcoma can be treated effectively with new Targeted Therapy. So, it sounds like your docs are getting started on treatment while awaiting news of targeted therapy indicators from your biopsy. 
    Daily radiation should be a snap till about week three. Then you’ll start to feel your energy levels decrease. This is an expected condition. You also may get some skin reddening (like sunburn) and a sore throat from radiation. Doctors expect these symptoms. I used Solarcaine for my skin burn. Some folks get prescription lotion. For the sore throat, I used Halls Cough drops. 
    You chemo during this treatment will play a support role. It will be a weaker dose and you may not even loose hair. I didn’t during my first line standard of care treatment. 
    More questions?  Fire away. 
    Stay the course. 
    Tom 
     
  17. Like
    Suzanne Gibb got a reaction from Steff in Update from Suzanne   
    Hello,
    I have met my radiation oncologist and my nurse on my team in Oshawa. Both were wonderful. I mistakenly thought that I would have radiation treatment first but he told me that I would have chemo first. I meet my oncologist on Monday next and she will talk to me about chemo. I am registered with my region's Community Care and my access to volunteer drivers has been confirmed. Luckily my first driver was the husband of a friend and we had met before. Great conversations on the hour long drive there and the drive back and not about cancer. I am blessed. I am receiving calls right, left and center booking appointments. I need an MRI, a PET scan, a colonoscopy and a Pulmonary Test. Never been on the phone so much but very grateful that my doctors are working so quickly. I was given a bag of booklets to read but as I was reading them I realized that a lot of the information I had already learned from this website. Thank you everyone for sharing your experiences and expertise. More next Monday I think.
  18. Like
    Suzanne Gibb got a reaction from Tom Galli in Update from Suzanne   
    Hello,
    I have met my radiation oncologist and my nurse on my team in Oshawa. Both were wonderful. I mistakenly thought that I would have radiation treatment first but he told me that I would have chemo first. I meet my oncologist on Monday next and she will talk to me about chemo. I am registered with my region's Community Care and my access to volunteer drivers has been confirmed. Luckily my first driver was the husband of a friend and we had met before. Great conversations on the hour long drive there and the drive back and not about cancer. I am blessed. I am receiving calls right, left and center booking appointments. I need an MRI, a PET scan, a colonoscopy and a Pulmonary Test. Never been on the phone so much but very grateful that my doctors are working so quickly. I was given a bag of booklets to read but as I was reading them I realized that a lot of the information I had already learned from this website. Thank you everyone for sharing your experiences and expertise. More next Monday I think.
  19. Like
    Suzanne Gibb reacted to Judy M. in SBRT   
    Tom,
    Just had 2nd SBRT treatment. My physicist says he'll be present for all of my treatments, and he's very happy to answer questions so I ask away. As far as SBRT exciting the tumor he says no, it won't. The reason being because the fractionations are so high. Pretty much the little devils just don't stand a chance. But he said, on the other hand, if I was having standard radiation it would be bad if I missed a treatment because the tumor knows it's being threatened and will quickly develop radiation resistance. I also now know that Gy stands for a gray and is sort of like a degree on a thermometer except it's a particle of ionized radiation. And, like you, he calls that energy. I'm receiving 10 Gy from 5 separate angles on each tumor for each treatment for a total of 50 Gy to each tumor for each treatment. Being you, you probably already knew most of this. But you're so good to answer all our questions that I wanted to pass on what I could. Thomas, my physicist, is great to talk to if you have anything else you want me to run by him
    Judy M

    Sent from my SAMSUNG-SGH-I337 using Tapatalk


  20. Like
    Suzanne Gibb reacted to Tom Galli in seen radiation oncologist   
    Jeannie,
    Don't worry about posting on a correct place.  We'll find you.
    As I understand things, your doctors have confirmed you have Stage IV lung cancer, and in the United Stages, a Stage IV diagnosis normally rules out "curative" treatment (surgery and certain forms of focused radiation that work like surgery).  Our Stage IV standard of care is External Beam Radiation Therapy (SBRT) (I've linked it so your can read about it), and chemotherapy.  The type of chemotherapy depends on the type of lung cancer so the biopsy results will dictate the type of lung cancer.  But, no type identification is necessary to receive SBRT and it sounds like your doctor is starting radiation treatment right away.
    The objective of all Stage IV treatment is to extend life.  No one knows how long the extension might be and in fact many in the LUNGevity community have experienced very long life extensions, even with though the disease is still present.  So there is hope that your treatment yields significant life extension.  
    Unfortunately, there is no treatment for slow diagnostic and treatment progress and anxiety.  We all experience that and have a name for it: scanxiety.  It affected me so much, I wrote a book about it but I spelled it Scanziety.  Why the change in spelling?  Neither word was in the dictionary and as an engineer, I'm a horrible speller.  But regardless of spelling, the symptoms are the same and there is no treatment or cure.  Let us know how your radiation therapy progresses and tell us your biopsy results when known.
    Stay the course.
    Tom
  21. Like
    Suzanne Gibb reacted to Barb1260 in I love radiation!   
    I am totally amazed at what the radiologist showed me on the computer screen today.  Before-Tumor the size of a lemon, After 4 1/2 weeks, the size of a quarter and the swollen lymph node is almost gone.   If only our bodies could tolerate radiation until its completely gone, none of us would have to go through the stress!!!
  22. Like
    Suzanne Gibb got a reaction from Tom Galli in Introduction   
    Thank you for your warm welcome and your explanations. Information is always good.  First morning after my biopsy and I am feeling tired but basically fine. I need to call my doctor on Monday for a follow up appointment. He will know when he will get the results so it should be a week from now appointment. I am glad that the doctors are double checking but I guess my tumour was big enough  and in the right spot to biopsy. My family doctor has already talked to me about my oncologist team and where my treatments could take place so I think he is pretty sure of the outcome of the biopsy. He says that he wants to move fast. I have not told my large family yet and I have been feeling guilty but at the same time glad that I am taking a wait and see approach. We lost my second youngest sister to small bowel cancer just three years ago so I want to be sure of my condition before I share it. I am the second oldest of 10 children. We are all in our 50s and 60s and busy with grandchildren and some are still working and not retired like I am. I have never married, am on my own and am an aunt to 21 nieces and nephews and 6 great nieces and nephews-all wonderful of course. I have always had good health, been very active walking and playing sports and being outdoors. I journal every day and purposely looked for a site where I could read what others are going through on their cancer journey. I am inspired by others and am a pretty good listener. I am currently knitting a blanket, and like to listen to the games of my nephew who is a professional hockey coach. I have two very active beagles and take them to our local dog park every day. I do not drive so the walk there and back and around the park tires all of us. It is a beautiful park. I am so lucky to live so close to it. This site is wonderful. I was able to read so much before my biopsy. Thank you to the people who contribute. This site will make my experience so much more endurable. Suzanne
  23. Like
    Suzanne Gibb got a reaction from PaulaC in Introduction   
    Thank you for your warm welcome and your explanations. Information is always good.  First morning after my biopsy and I am feeling tired but basically fine. I need to call my doctor on Monday for a follow up appointment. He will know when he will get the results so it should be a week from now appointment. I am glad that the doctors are double checking but I guess my tumour was big enough  and in the right spot to biopsy. My family doctor has already talked to me about my oncologist team and where my treatments could take place so I think he is pretty sure of the outcome of the biopsy. He says that he wants to move fast. I have not told my large family yet and I have been feeling guilty but at the same time glad that I am taking a wait and see approach. We lost my second youngest sister to small bowel cancer just three years ago so I want to be sure of my condition before I share it. I am the second oldest of 10 children. We are all in our 50s and 60s and busy with grandchildren and some are still working and not retired like I am. I have never married, am on my own and am an aunt to 21 nieces and nephews and 6 great nieces and nephews-all wonderful of course. I have always had good health, been very active walking and playing sports and being outdoors. I journal every day and purposely looked for a site where I could read what others are going through on their cancer journey. I am inspired by others and am a pretty good listener. I am currently knitting a blanket, and like to listen to the games of my nephew who is a professional hockey coach. I have two very active beagles and take them to our local dog park every day. I do not drive so the walk there and back and around the park tires all of us. It is a beautiful park. I am so lucky to live so close to it. This site is wonderful. I was able to read so much before my biopsy. Thank you to the people who contribute. This site will make my experience so much more endurable. Suzanne
  24. Like
    Suzanne Gibb got a reaction from PaulaC in Introduction   
    My name is Suzanne and I have just had my lung biopsy this morning. My family doctor has already told me that I have cancer but the doctor today told me that the biopsy is to find out if I do have cancer. I have already accepted that I do have cancer but apparently I need to wait a week for confirmation. Does the biopsy tell you other things also? I was expecting a needle through the front of my chest but the doctor did it through the back with me lying on my stomach. It was painless except for one time where I thought the need went through to my breast. Weird feeling I must say. Everyone was very warm and caring at the hospital. They even serve a lunch once a patient wakes up. I will write more once I figure out that this is the right place to place my introduction.
  25. Like
    Suzanne Gibb got a reaction from Irka in Introduction   
    Thank you for your warm welcome and your explanations. Information is always good.  First morning after my biopsy and I am feeling tired but basically fine. I need to call my doctor on Monday for a follow up appointment. He will know when he will get the results so it should be a week from now appointment. I am glad that the doctors are double checking but I guess my tumour was big enough  and in the right spot to biopsy. My family doctor has already talked to me about my oncologist team and where my treatments could take place so I think he is pretty sure of the outcome of the biopsy. He says that he wants to move fast. I have not told my large family yet and I have been feeling guilty but at the same time glad that I am taking a wait and see approach. We lost my second youngest sister to small bowel cancer just three years ago so I want to be sure of my condition before I share it. I am the second oldest of 10 children. We are all in our 50s and 60s and busy with grandchildren and some are still working and not retired like I am. I have never married, am on my own and am an aunt to 21 nieces and nephews and 6 great nieces and nephews-all wonderful of course. I have always had good health, been very active walking and playing sports and being outdoors. I journal every day and purposely looked for a site where I could read what others are going through on their cancer journey. I am inspired by others and am a pretty good listener. I am currently knitting a blanket, and like to listen to the games of my nephew who is a professional hockey coach. I have two very active beagles and take them to our local dog park every day. I do not drive so the walk there and back and around the park tires all of us. It is a beautiful park. I am so lucky to live so close to it. This site is wonderful. I was able to read so much before my biopsy. Thank you to the people who contribute. This site will make my experience so much more endurable. Suzanne
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