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Suzanne Gibb

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    Suzanne Gibb reacted to Tom Galli in seen radiation oncologist   
    Jeannie,
    Don't worry about posting on a correct place.  We'll find you.
    As I understand things, your doctors have confirmed you have Stage IV lung cancer, and in the United Stages, a Stage IV diagnosis normally rules out "curative" treatment (surgery and certain forms of focused radiation that work like surgery).  Our Stage IV standard of care is External Beam Radiation Therapy (SBRT) (I've linked it so your can read about it), and chemotherapy.  The type of chemotherapy depends on the type of lung cancer so the biopsy results will dictate the type of lung cancer.  But, no type identification is necessary to receive SBRT and it sounds like your doctor is starting radiation treatment right away.
    The objective of all Stage IV treatment is to extend life.  No one knows how long the extension might be and in fact many in the LUNGevity community have experienced very long life extensions, even with though the disease is still present.  So there is hope that your treatment yields significant life extension.  
    Unfortunately, there is no treatment for slow diagnostic and treatment progress and anxiety.  We all experience that and have a name for it: scanxiety.  It affected me so much, I wrote a book about it but I spelled it Scanziety.  Why the change in spelling?  Neither word was in the dictionary and as an engineer, I'm a horrible speller.  But regardless of spelling, the symptoms are the same and there is no treatment or cure.  Let us know how your radiation therapy progresses and tell us your biopsy results when known.
    Stay the course.
    Tom
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