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Ld1978

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  1. Like
    Ld1978 got a reaction from PaulaC in Hello   
    Hi Lauren
    Thanks for asking. Recovery is going well apart from he didn’t do as he was told and caught a cold and cough off the kids. I guess mental health is as important and he didn’t want to stay home. It’s made him a little breathless but he has some antibiotics which are helping.
    he had his follow up and no more cancer and no further treatment needed so that’s really positive and great news for him.
    im hoping things will just get better and better but for 81 he is doing amazingly 
  2. Like
    Ld1978 got a reaction from LexieCat in Hello   
    Hi Lauren
    Thanks for asking. Recovery is going well apart from he didn’t do as he was told and caught a cold and cough off the kids. I guess mental health is as important and he didn’t want to stay home. It’s made him a little breathless but he has some antibiotics which are helping.
    he had his follow up and no more cancer and no further treatment needed so that’s really positive and great news for him.
    im hoping things will just get better and better but for 81 he is doing amazingly 
  3. Like
    Ld1978 got a reaction from Curt in Hello   
    Hi Lauren
    Thanks for asking. Recovery is going well apart from he didn’t do as he was told and caught a cold and cough off the kids. I guess mental health is as important and he didn’t want to stay home. It’s made him a little breathless but he has some antibiotics which are helping.
    he had his follow up and no more cancer and no further treatment needed so that’s really positive and great news for him.
    im hoping things will just get better and better but for 81 he is doing amazingly 
  4. Like
    Ld1978 got a reaction from Rower Michelle in Hello   
    Hi Lauren
    Thanks for asking. Recovery is going well apart from he didn’t do as he was told and caught a cold and cough off the kids. I guess mental health is as important and he didn’t want to stay home. It’s made him a little breathless but he has some antibiotics which are helping.
    he had his follow up and no more cancer and no further treatment needed so that’s really positive and great news for him.
    im hoping things will just get better and better but for 81 he is doing amazingly 
  5. Like
    Ld1978 reacted to LexieCat in Hello   
    He should be fine for walking.  I was taking walks as soon as I got home.  Nothing too strenuous, but plain walking is good.  
    They were probably able to make an educated guess as to staging, based on the appearance on the scans.  You do want to be sure he's followed with regular scans for the next few years, at least.  Mine have been every six months, but in July it will have been two years since my surgery and assuming this one is clear, they will drop back to once a year.  Lung cancer is a tricky thing, and it sometimes recurs even when it looks like they got everything.  I'm hoping and assuming mine won't come back, but if it should, I want to know ASAP so I can get on top of it.
  6. Like
    Ld1978 got a reaction from Tom Galli in Hello   
    Thanks everyone - what a lovely caring bunch you are ❤️ 
    The consultant has always said he would need no further treatment after his scans and biopsy (not sure how they knew that) so that’s amazing news. We just saw his registrar on a walk round the ward and she gave us the news but not a full report (his consultant is away the weekend) his original letter said adenocarcinmo.
    before we left they said another x Ray today and then if all is well the drain is out. They are nervous to make a decision on sending home and I think they want the consultant too (although Friday she said I won’t see you now until outpatient so she must of thought he would be home)
    i can imagine the cabin fever is hard. Can you get outside for a walk yet? They told my dad to so he can build lung capacity 
     
  7. Like
    Ld1978 reacted to LexieCat in Hello   
    All VERY encouraging news!  I was still a bit swollen when I went home the second time, but it continued to go down and was all gone in a matter of days.  Chances are good that this will be IT for treatment, though he will have scans every six months or so to make sure it stays that way.
    What type of cancer did the pathology report say?
  8. Like
    Ld1978 reacted to Curt in Hello   
    That is all really good news.   There is a good chance this is all the treatment he will need.  Getting that tube out is a huge step towards being more comfortable and getting better.  It’s a slow process but it happens.  There will still be quite a bit of swelling under his arm if they removed lymph nodes.  I’ve been using a small pillow under that arm when I walk around or am sitting down.  It helps keep the weight of my arm off that area  The pillow also doubles as something to squeeze when I need to cough or sneeze.  Getting up and moving around helps a lot with the swelling. I know it’s not easy but it helps the body move the fluid out.  
    I’m doing good.  A bit of cabin fever but good.  
  9. Like
    Ld1978 got a reaction from Steff in Hello   
    Ahh thanks Curt. I’m here now and he’s had the drain clamped today and his lung looks good on the X-ray. Drains out tomorrow and hopefully home following that. Also had pathology report and got all the tumour and none in his nodes. He does still seem a little swollen.
    how are you doing? 
  10. Like
    Ld1978 got a reaction from Tom Galli in Hello   
    Ahh thanks Curt. I’m here now and he’s had the drain clamped today and his lung looks good on the X-ray. Drains out tomorrow and hopefully home following that. Also had pathology report and got all the tumour and none in his nodes. He does still seem a little swollen.
    how are you doing? 
  11. Thanks
    Ld1978 reacted to Curt in Hello   
    Hi LD.  Just checking in.  How is dad doing?   
  12. Like
    Ld1978 got a reaction from Tom Galli in Seeing children after lobectomy   
    Thanks everyone and I completely agree. The surgeon did say 2 months which seems like quite a long time. Her registrar said a couple of weeks and to have some cleaner and sanitise well just like you mentioned. I am a bit ocd with that and have hospital grade cleaner for when the kids are ill. They live on their own but I was also wondering about my mum caring for the kids and being a carer in the community too. 
    Sorry to hear you were poorly Tom we defintely don’t want that happening to him. Hope your ok now.
    thanks for the advice - he can stay at home and just chat to the kids on the iPad and mum will have to be careful when she comes here to look after them. 
    Hopefully now we are going into spring there will be less going about.
    my Mum said the worse germs are in hospital ha ha 
  13. Like
    Ld1978 got a reaction from LexieCat in Hello   
    Thank you, it’s defintely going the right way for him  
  14. Thanks
    Ld1978 reacted to LexieCat in Hello   
    Yup, that's how it worked for me.  A few days to slowly "deflate."  As I recall, when I finally went home I still had a bit of the "crispies" right around the bottom of my neck but those, too, went away within a matter of days.  Apparently the body can normally reabsorb the small amounts of air that continue to leak out, but if the leak is too big the body can't keep up.  
  15. Sad
    Ld1978 got a reaction from Tom Galli in Surgical emphysema   
    Thanks for the reply. It got worse and his eye was swollen his chest and face. They have put another drain in and is slowly going (the consultant said it needs to be done slowly too)
    im hopefull in a few days he can come home
  16. Sad
    Ld1978 got a reaction from Tom Galli in Hello   
    Thank you everyone. He has had another drain put in which appears to be slowly working. He’s in pain from this second drain though. 
    The consultant said it has to be done slowly so am hopefully in a few days he can come home. 
    Thanks for your well wishes and support 
  17. Like
    Ld1978 got a reaction from LexieCat in Surgical emphysema   
    Thanks for the reply. It got worse and his eye was swollen his chest and face. They have put another drain in and is slowly going (the consultant said it needs to be done slowly too)
    im hopefull in a few days he can come home
  18. Thanks
    Ld1978 reacted to LexieCat in Hello   
    Hi, LD,
    I had "surgical emphysema" (aka subcutaneous emphysema, aka crepitus) after my VATS surgery.  I got sent home when it wasn't too bad, but had to return to the hospital the next day because it got progressively worse.  I was ALL swollen up, and it was pretty uncomfortable (though not especially dangerous).  I had to have another chest tube placed so I could be properly deflated.
    So all things considered, I think your dad is better off having it taken care of now--going BACK to the hospital was no fun at all.  It should resolve within a few days with no lingering effects.
  19. Thanks
    Ld1978 reacted to Curt in Hello   
    Ld,
    I had a chest tube in until about an hour before they released me.  They pulled the tube, did an X-ray and sent me packing within an hour.  Keeping the tube in for as long as is needed is standard.  I was told I could be in the hosptital for as much as seven days depending on how well the fluid drained.  It’s differemt for everyone.  I’m only 42 so that may have had an impact on my getting out of the hospital when I did.  I also had an air pocket at the top of my chest cavity that they were watching.  It didn’t get any bigger or any smaller so they decided it wasn’t of concern.  I know all of this is scary, frustrating and sometimes overwhelming but what is happening are expected in some cases and correctable. Breathe deep and take some time for your self while dad is resting.  Your health is just as important, its easy to forget that right now.  You need to be healthy and strong if you want to be there for him.  
     
  20. Thanks
    Ld1978 reacted to LexieCat in Surgical emphysema   
    Hi, LD, 
    I posted on your other thread.  I had the same thing--they called it crepitus but it's subcutaneous emphysema caused by an air leak.  I was told it's not dangerous, just uncomfortable.  I had to go back in for another chest tube.
    So I'm assuming the "additional surgery" is to try to get the trapped air released.  I'm told it generally resolves on its own but sometimes they need to do a bit extra to relieve the discomfort.  Chances are it's nothing to worry about.
  21. Thanks
    Ld1978 reacted to Curt in Hello   
    Ld,
    I’m sorry to hear about your dad’s diagnosis.  My father was diagnosed with lung cancer about seven years ago.  Unfortunately for him a lobectomy was not an option.  I am currently recovering from a full right upper lobe lobectomy I had done on Tuesday, from that surgery I was diagnosed with Stage 1 Adenocarcioma NSCLC.  I was able to come home last night.    The complications your dad is having are not uncommon and usually clear up in a few days.  I will tell you that I have found Tom’s recommmendation regarding the foam wedge pillow to be a good one.  I’ve been using it along with other pillows to keep me propped up at night.  It provides the necessary amount of stability so I don’t have to keep adjusting the pillows.  He will want to be propped up.  I would also try and get a comfortable arm chair for next to the bed so he can get up and out of bed each day.  I find getting out of bed to be difficult but once I’m up I feel a lot better.  The arm chair is a good first step.  Walking and doing the spirometer (breathing exercises) as much as possible also helps a lot.  I actually feel less pain when I walk.  There is a little with the spirometer but it goes away quickly.  I’ve noticed considerable improvement the more I’ve done both.
    I’ve been the caregiver and am now the patient.  In the beginning when I was the caregiver I funneled a lot of my energy into the physical things my dad needed.  As time went on I found he needed as much or more emotional support than physical.  Now as the patient I understand that even more.  He may feel really uncomfortable with this situation if the caregiver/care receiver roles have changed without much notice.  Let him know you love him, that this diagnosis hasn’t changed who he is and that things will get better.  If he was able to have a VATs lobectomy the prognosis is better than with other treatments.  
    You will find lots of support and answers to questions I’m sure you both will have on this forum   Keep coming back to ask them and give us updates   
    My thoughts are with you both.  
  22. Like
    Ld1978 reacted to BridgetO in Hello   
    Hi and welcome,
    I had a VATS lobectomy more than 2 years ago. An elevated sleeping position is my number 1 recommendation  and you're already on to that. Sitting up out of bed and  also walking around  is a help in recovery, too. I had an air leak. They sent me home the day after surgery with a drain tube and bag in place. This is an option for some people and also the practice varies from hospital. to hospital. From what I hear from others on this forum, keeping folks in the hospital until the drain is out is more common.
    I'm doing fine. My recovery was very fast. My cancer was adenocarcinoma stage 1a and I didn't need further treatment. I do get regular CT scans.
  23. Thanks
    Ld1978 reacted to Tom Galli in Hello   
    Ld,
    Welcome here.  
    VATs method is generally, usually, almost always an easier recovery than a large thoracotomy incision.  Assuming he'll be in the hospital for a couple of days yet, I'd go shopping for a wedge pillow to elevate his sleeping position.  The idea is to achieve enough angle to transfer some of the upper body weight from his back to his hips and elevating does that.  His hospital bed is perhaps already elevated and you may want to mirror that angle in his home bed if possible.
    Others on this site with VATs experience will provide additional information.
    Stay the course.
    Tom
  24. Thanks
    Ld1978 reacted to PaulaC in Hello   
    Hello, welcome I know you will get support you need. I hope all went well with your fathers surgery. 
  25. Like
    Ld1978 got a reaction from Rower Michelle in Hello   
    Thanks Tom. He is recovering so well at the moment apart from this air leak. He won’t be home until after the weekend due to this leak (which means at least a 7 day stay) 
    hes actually sat up out of bed most of the time but I’ve already ordered a medical frame that has different angles to sit against and he can use cushions for comfort  thanks for the tip.
    im praying this leak goes and then he can get well on the road to recovery
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