Jump to content

Claudia

Members
  • Posts

    112
  • Joined

  • Last visited

  • Days Won

    2

Claudia last won the day on November 16 2020

Claudia had the most liked content!

1 Follower

Profile Information

  • City
    Coral Springs
  • US State (if applicable)
    FLORIDA
  • Country
    Unite
  • Gender
    Female
  • Status
    Lung cancer patient/survivor
  • Interests
    Miami Heat basketball, The Beatles and Paul Mccartney, Yoga

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

Claudia's Achievements

  1. Hi Cricket. I’m sorry you are here but happy to meet you now that you are, You have already gotten a lot of good advice but I would like to share a tip that works for me. I record every meeting with my oncologist with my iPhone. That way I get to go back and listen to it again. I also can play for a loved one. I keep them foe 6 months or more. It has helped me through. I’d also like to share that I had a 2 cm in my left lung and was stage IV and now I’m NED. Don’t give up hope. Peace, light and. Great scans to all, Claudia
  2. Hi Kathy, I understand being scared. I was scared too. I had my lobectomy last November. My surgery was on a Wednesday and I was home on Friday. The first few days were uncomfortable but after that I was ok. I am still getting Keytruda infusions (I have one tomorrow) but the thrill of hearing that my cancer was gone made everything that I went through worth it. My friend @LouT has a blog post here about what to expect when you are having surgery. It helped me a lot. Good luck to you! Peace, light and great scans to all. Claudia
  3. Hi Ale, Wishing you all the luck in the world. I know it’s scary but with all the different treatments available I’m sure your doctors will nudge you in the right direction. Mine did. I started out with stage IV NSCLC and now I’m NED (no evidence of disease). There is hope. As @Tom Galli’s signature says Stay The Course. Please keep us in the loop. Peace, light and great scans to all. Claudia.
  4. Claudia

    NED is NED.

    I'm so happy for you and your friend TJM. NED is the best thing EVER!! Peace, light and great scans to all. Claudia
  5. Hi mc20. I am sorry that you needed to find us here. I was stage IV when I had my left upper lobectomy using the RATS method last November. I had a PET scan last Tuesday and got my first NED results. I have been on Keytruda for 2 years (along with chemo and alone)and so far so good. I’m not going to say it was easy but it sure beat the hell out of having lung cancer. It’s great that you caught it so early. Hopefully the surgery goes well and your wife goes on to live a long and uneventful life. Peace, light and great scans to all. Claudia
  6. Claudia

    Really quiet board

    Being from South Florida all I have is The Dolphins. Yea I know, It's sad. On a happier note I won my football pool!!!! I won $350. I won the third and fourth quarters seeing that both quarters had the same score. I didn't really care which team won but was happy about the pool. Now if you want to talk basketball you have a lifetime Miami Heat fan over here. I watch every game. I record them in case something happens and I get pulled away from the game. I LOVE basketball.. Just sayin"......
  7. Hi Curry, I just wanted to pop in to say welcome to our group. I'm sorry you had to find us. I was also diagnosed as stage IV NSCLC. Mine was Squamous Cell which is a little less common than Adenocarcinoma. I was very lucky in a couple of ways during my journey. First off I went to a local Oncologist?Hematologist that I was referred to by my PCP. He is brilliant and an out of the box thinking guy which I love. Finding my Dr was my first lucky break. I also had an 80% PDL-1 score so Keytruda was in the mix for me. A high PDL-1 score was my second lucky break. After 2 years of chemotherapy, immunotherapy and radiation and after the met to my hip lymph node was gone for over a year my out of the box Dr sent me to thoracic surgeon, which was my third lucky break, and I had a lobectomy. It has only been a few months but I had a CT scan last week that showed that I was "in complete remission" according to my Dr. I never thought I would ever hear those words. All I'm trying to say is you never know what is next with your treatment journey and maybe you will be lucky like me. I wish you all the luck in the world. Peace, light and great scans to all, Claudia
  8. Claudia

    A Day of Thanks

    Awesome post Tom. Thank you for sharing. Claudia
  9. Hi Everyone. I hope you all had a peaceful Thanksgiving. I realize that sometimes it's hard to find things to be thankful for. I am thankful for all of you, all your knowledge, your uplifting words and your speaking truth to power. I want to thank everyone who helped me through my journey. I am still recovering from surgery and last week my husband's gall bladder threw a fit and had to be taken out so we are recouping together. I hope you all can find something to be thankful for. Gratitude is a wonderful thing. Peace, light and great scans to all, Claudia
  10. Welcome to our group Jeffery. We all know the stresses of getting a diagnosis of Lung Cancer. I had no symptoms and my cancer was found on an pre-op chest x ray for shoulder surgery that I was planning on having. Once the biopsy was done and I had an oncologist on board with a treatment plan I felt much better. 2 years later I am now in remission. Don't lose hope. You never know what tomorrow might bring. Best of luck to you during this difficult time. Please keep us in the loop. Peace, Light and great scans to all, Claudia.
  11. Hi Lil, I know exactly how you feel. I had the "Happy Birthday. BTW you have lung cancer". It happened to me. I'm sure it sucked for you because it sucked for me too. I want to let you know that I'm doing very well so maybe we birthday peeps are blessed with strength and the "never give up" attitude. I know that's how I am and it has kept me in good stead. Good luck and keep us updated on how you are. We really do care here. Peace, light and great scans to all, Claudia
  12. Welcome to the forums. I hope they help you as much as they help me. Peace, light and great scans to all, Claudia
  13. Hi LINan, I am glad you are not a lurker anymore. I did the same thing for a while until I realized that these forums are a wealth of information and kind people who are going through the same thing as me. I am glad you finally jumped in and also sorry you had to. I also did not tell my daughter right away but I waited a month!! I just couldn't find the words to tell her and I wanted to wait until I had a treatment plan in place. Wow! She was so mad at me when she found out. She made me promise to tell her things right away and I have kept that promise. Don't lose hope. You never know what new treatment might be available to help you. Good luck and please keep us informed on how you are doing. Peace, light and great scans to all. Claudia
  14. Hi Katy, We have a lot in common. I am a yoga teacher too. I was extremely busy and then I got my diagnosis. I am stage IV but doing well on immunotherapy. I did chemo for 4 months and the pet scan after chemo showed 85% improvement but it was hard to go through. I am still waiting for my first NED pet scan which I hope will be my next one next month. I have gone back to teaching yoga classes online and that has really helped me to realize that even though I have NSCLC there is a lot more to life than that. I hope you get to get back to teaching yoga. I've done arial yoga. It was fun. Hang in there and know there is hope and help out there. Peace, light and great scans to everyone. Much love all. Claudia
  15. Hi Judi. I wanted to welcome you to the forums and I'm sorry you are here. Your story is similar to mine. I also have Squamous Cell and have been in treatment now for a year and a half so far.I also am an optimist and have found that it's a good thing to be. I try not to worry until there is something happening to worry about. I am mid-scan (2 months to go until my next one) and I am hoping for a clean scan for the first time. I mean, why not? Other people have clean scans so I can too. It's nice to meet a fellow optimist . Please feel free to ask any questions you may have. We have some of the smartest people in the world here. I am doing well and I hope you will too. Peace, Light and great scans to all, Claudia
×
×
  • Create New...