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Claudia

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Everything posted by Claudia

  1. Hi Cricket. I’m sorry you are here but happy to meet you now that you are, You have already gotten a lot of good advice but I would like to share a tip that works for me. I record every meeting with my oncologist with my iPhone. That way I get to go back and listen to it again. I also can play for a loved one. I keep them foe 6 months or more. It has helped me through. I’d also like to share that I had a 2 cm in my left lung and was stage IV and now I’m NED. Don’t give up hope. Peace, light and. Great scans to all, Claudia
  2. Hi Kathy, I understand being scared. I was scared too. I had my lobectomy last November. My surgery was on a Wednesday and I was home on Friday. The first few days were uncomfortable but after that I was ok. I am still getting Keytruda infusions (I have one tomorrow) but the thrill of hearing that my cancer was gone made everything that I went through worth it. My friend @LouT has a blog post here about what to expect when you are having surgery. It helped me a lot. Good luck to you! Peace, light and great scans to all. Claudia
  3. Hi Ale, Wishing you all the luck in the world. I know it’s scary but with all the different treatments available I’m sure your doctors will nudge you in the right direction. Mine did. I started out with stage IV NSCLC and now I’m NED (no evidence of disease). There is hope. As @Tom Galli’s signature says Stay The Course. Please keep us in the loop. Peace, light and great scans to all. Claudia.
  4. Claudia

    NED is NED.

    I'm so happy for you and your friend TJM. NED is the best thing EVER!! Peace, light and great scans to all. Claudia
  5. Hi mc20. I am sorry that you needed to find us here. I was stage IV when I had my left upper lobectomy using the RATS method last November. I had a PET scan last Tuesday and got my first NED results. I have been on Keytruda for 2 years (along with chemo and alone)and so far so good. I’m not going to say it was easy but it sure beat the hell out of having lung cancer. It’s great that you caught it so early. Hopefully the surgery goes well and your wife goes on to live a long and uneventful life. Peace, light and great scans to all. Claudia
  6. Claudia

    Really quiet board

    Being from South Florida all I have is The Dolphins. Yea I know, It's sad. On a happier note I won my football pool!!!! I won $350. I won the third and fourth quarters seeing that both quarters had the same score. I didn't really care which team won but was happy about the pool. Now if you want to talk basketball you have a lifetime Miami Heat fan over here. I watch every game. I record them in case something happens and I get pulled away from the game. I LOVE basketball.. Just sayin"......
  7. Hi Curry, I just wanted to pop in to say welcome to our group. I'm sorry you had to find us. I was also diagnosed as stage IV NSCLC. Mine was Squamous Cell which is a little less common than Adenocarcinoma. I was very lucky in a couple of ways during my journey. First off I went to a local Oncologist?Hematologist that I was referred to by my PCP. He is brilliant and an out of the box thinking guy which I love. Finding my Dr was my first lucky break. I also had an 80% PDL-1 score so Keytruda was in the mix for me. A high PDL-1 score was my second lucky break. After 2 years of chemotherapy, immunotherapy and radiation and after the met to my hip lymph node was gone for over a year my out of the box Dr sent me to thoracic surgeon, which was my third lucky break, and I had a lobectomy. It has only been a few months but I had a CT scan last week that showed that I was "in complete remission" according to my Dr. I never thought I would ever hear those words. All I'm trying to say is you never know what is next with your treatment journey and maybe you will be lucky like me. I wish you all the luck in the world. Peace, light and great scans to all, Claudia
  8. Claudia

    A Day of Thanks

    Awesome post Tom. Thank you for sharing. Claudia
  9. Hi Everyone. I hope you all had a peaceful Thanksgiving. I realize that sometimes it's hard to find things to be thankful for. I am thankful for all of you, all your knowledge, your uplifting words and your speaking truth to power. I want to thank everyone who helped me through my journey. I am still recovering from surgery and last week my husband's gall bladder threw a fit and had to be taken out so we are recouping together. I hope you all can find something to be thankful for. Gratitude is a wonderful thing. Peace, light and great scans to all, Claudia
  10. Welcome to our group Jeffery. We all know the stresses of getting a diagnosis of Lung Cancer. I had no symptoms and my cancer was found on an pre-op chest x ray for shoulder surgery that I was planning on having. Once the biopsy was done and I had an oncologist on board with a treatment plan I felt much better. 2 years later I am now in remission. Don't lose hope. You never know what tomorrow might bring. Best of luck to you during this difficult time. Please keep us in the loop. Peace, Light and great scans to all, Claudia.
  11. Hi Lil, I know exactly how you feel. I had the "Happy Birthday. BTW you have lung cancer". It happened to me. I'm sure it sucked for you because it sucked for me too. I want to let you know that I'm doing very well so maybe we birthday peeps are blessed with strength and the "never give up" attitude. I know that's how I am and it has kept me in good stead. Good luck and keep us updated on how you are. We really do care here. Peace, light and great scans to all, Claudia
  12. Welcome to the forums. I hope they help you as much as they help me. Peace, light and great scans to all, Claudia
  13. Hi LINan, I am glad you are not a lurker anymore. I did the same thing for a while until I realized that these forums are a wealth of information and kind people who are going through the same thing as me. I am glad you finally jumped in and also sorry you had to. I also did not tell my daughter right away but I waited a month!! I just couldn't find the words to tell her and I wanted to wait until I had a treatment plan in place. Wow! She was so mad at me when she found out. She made me promise to tell her things right away and I have kept that promise. Don't lose hope. You never know what new treatment might be available to help you. Good luck and please keep us informed on how you are doing. Peace, light and great scans to all. Claudia
  14. Hi Katy, We have a lot in common. I am a yoga teacher too. I was extremely busy and then I got my diagnosis. I am stage IV but doing well on immunotherapy. I did chemo for 4 months and the pet scan after chemo showed 85% improvement but it was hard to go through. I am still waiting for my first NED pet scan which I hope will be my next one next month. I have gone back to teaching yoga classes online and that has really helped me to realize that even though I have NSCLC there is a lot more to life than that. I hope you get to get back to teaching yoga. I've done arial yoga. It was fun. Hang in there and know there is hope and help out there. Peace, light and great scans to everyone. Much love all. Claudia
  15. Hi Judi. I wanted to welcome you to the forums and I'm sorry you are here. Your story is similar to mine. I also have Squamous Cell and have been in treatment now for a year and a half so far.I also am an optimist and have found that it's a good thing to be. I try not to worry until there is something happening to worry about. I am mid-scan (2 months to go until my next one) and I am hoping for a clean scan for the first time. I mean, why not? Other people have clean scans so I can too. It's nice to meet a fellow optimist . Please feel free to ask any questions you may have. We have some of the smartest people in the world here. I am doing well and I hope you will too. Peace, Light and great scans to all, Claudia
  16. Hi Molly, Welcome to the forum. Like you I was diagnosed with stage 4 NSCLC but mine is Squamous cell. The first few months were a blur of doctors, tests, biopsies and crying. Once I found my oncologist (who I am in love with, I mean I would marry him LOL) and started my treatment I felt better. Not that the treatment was fun but I felt like I was fighting back. That was about a year and a half ago. My cancer responded well to chemo (ugh) and Keytruda and I have been on just Keytruda for about a year. I finished SBRT in March and had a pet scan. My oncologist was very happy with the results and from what I understand I may have a really good scan in a couple of months. There is hope out there. There are many new treatments for lung cancer and the people on this forum are knowledgable and helpful as can be. Try to stop googling. Most of the info online is old and things have changed for the better. Hang in there and try to think positive thoughts. Yoga and meditation has helped me. Give it a try. Maybe it will help you too. Good luck and keep us in the loop. Peace, light and great scans to all, Claudia
  17. Welcome to the site Marcia. If you have any questions please ask and let us know how we can help you. Peace, light and great scans to all, Claudia
  18. NED is wonderful News. I'm so happy for you. Peace, light and great scans to everyone, Claudia
  19. Hi CLM, I just wanted to let you know that there is always hope. I was diagnosed a year and a half ago with stage 4 Squamous Cell NSCLC and I was petrified just like you. I know that I felt much better once I had a meeting with my oncologist and having a plan in place. It felt good to be fighting back. I now go for Keytruda every three weeks and did so yesterday. Try to calm down and remember there are new treatments being discovered every day. It's not like the old days. Keep off the internet. Most of the information is old and outdated. There is always hope and you found it right here. Have a beautiful weekend. Peace, light and great scans to all, Claudia
  20. Claudia

    Keytruda

    I started on chemo and Keytruda in February 2019. I was taken off chemo in May 2017 and only Keytruda ever since My amazing Oncologist told me that I would be on Keytruda for a year after my first clean scan (NED). I'm not there yet bur I'm working on it. Peace, light and great scans to all, Claudia
  21. Hi Jan J, Welcome to the forums. I was diagnosed about 18 months ago and I remember being terrified just like you. Finding this site with the most knowledgable people was a god send to me. I agree with Rower Michele to stay off the internet. I found many "support" groups online and I was crying all day every day. I didn't realize that most of the info is so old and so many new treatments have been discovered. Having lung cancer is not fun but it can be lived with. I found that out over the last year and a half. I also know I felt better once I found my amazing oncologist and I had a treatment plan in place. I hope you are able to calm down a little soon and know that tomorrow may be a better day. Peace, light and great scans to everyone, Claudia
  22. Hi Josh, Welcome to the forums. I was diagnosed about a year and a half ago with stage 4 Squamous cell lung cancer and man, was that a shock. I went through all the testing and scans and meetings and doctors and hospitals and all that stuff. I was lucky to find an amazing oncologist who has taken my hand through this journey. Together we have done a pretty good job of kicking the beast's *ss for the moment. I was on chemo and Keytruda for the first 6 months of my treatment and it's been just Keytruda every three weeks since then. I did have 5 treatments of super radiation which seems to have zapped it and my next scan will tell me if it's dead. Like Tom, I had a very active life before my diagnosis. I am a yoga teacher who had classes and privates every day. I taught in yoga studios and also out of my home studio. I was either teaching or taking classes. I also did a lot of traveling as my daughter lives in Salt Lake City and I'm in South Florida. I was constantly flying out to be with her. I was there when Covid really hit and had to come home early or not at all. Many things have changed for me now that Covid is here. I am teaching classes online and taking them online too. I am watching a lot of TV and surfing the internet. I don't go out much anymore other than to see my amazing doctor BUT I am alive. I do my best to stay busy and live the best life I can. I have come to realize that everyone is doing the same thing. If you are stuck in the house like me there are so many things to do online to help keep busy.. I read books, watch videos of The Beatles (I'm such a sick Paul McCartney fan) and other things like my Miami Heat Basketball team. I take yoga classes and other classes too. I was going to start a walking routine but it's so hot down here that it's hard to do so I workout in my home studio. I email friends and talk on the phone and before I know it it's bedtime. I realize that this is not the best life I ever lived but at least I'm living a life and I am basically a happy person thankful for my life and these forums. There is a life out there for you. It's just not the same old life. Sometimes change is good or so I have heard. Good luck with your treatment and let us know how you are doing. Peace, light and good scans to all, Claudia
  23. Hi Everyone! Just a quickie to let you know that now my students want to donate to LUNGevity too. I put a little mention on all my emails to them that I am donating monthly to LUNGevity to say thank you and now my students want to join in. Good Karma. Just sayin'.....Peace, light and good scans to everyone, Claudia
  24. Today was the last class that I am teaching in June. I just made my first $70.00 donation this afternoon and I feel very good about my donation. I just hope it helps someone. BTW it was very nice to meet some of you at the weekly afternoon Zoom meeting. I will try to make it every week. You guys rock!! Peace and light and good scans to all, Claudia
  25. Hi Grace Ann, I'm Claudia and was diagnosed with stage IV NSCLC January 2019. I had a lot of trouble sleeping and eating while I was on chemo (I am now on Keytruda only). I also had a lot of pain due to an arthritic shoulder which I was all set up to have a replacement surgery for. Well, my pre-ops showed a mass in my lung and the surgery had to be put off due to the LC. I stopped smoking the day I got my diagnosis and started baking brownies from a recipe that I picked up on youtube that uses the actual flower. OMG, that helped me so much. I was able to eat and it really helped my shoulder pain. I did end up having the shoulder replaced but I'm still eating brownies. It really helps me with nausea (side effect from Keytruda) and definitely helps me sleep. I only eat a small piece a few hours before bedtime and I sleep like a baby. BTW, as Lin wilki said above I use the Indica strain. Good luck and I hope your pain subsides. Peace and light, Claudia
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