hi Jen,
Coming from a family the suffers from Crohns Disease, I really think you should get a colonostomy. From what I am told, there are things that cannot be seen with a CT Scan etc.. only a colonostomy. You really are presenting with alot of the symptoms of something in the IBD family.
After everything you have been through, I am sure you are not looking forward to yet another test, but if you could get rid of your flank pain??? And a colonostomy would most likely be a walk in the park for you.
Please tell your sister that I miss hearing from her. How is she doing? I have been watching for your posts, please know you are in my thoughts and prayers. Lisa