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LouT last won the day on July 3

LouT had the most liked content!


About LouT

  • Birthday 09/17/1950

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    Lung cancer patient/survivor
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    Support, advice/counsel, fellowship

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  1. Pizza may not make your problems go away, but they won't hurt you either. Lou
  2. JDD, Welcome to our forum. Kristin is correct that adenocarcinoma can originate in many places and it is understandable that you are nervous about hearing this. Please try and take this one step at a time. Keep us updated and as you hear more from your medical team ask them any questions you have in your head. You can also come here and ask us about those items that we would have experience in. Good luck to you. Lou
  3. Good news! Like most nodules it is not of concern...So now you can turn your attention to those things that will help you breath better at night (perhaps a wedge pillow?), fully recover from that pneumonia and put LC out of your mind. Lou
  4. Hi Daria, This past April I was 2 years past my lobectomy after a Stage 1a diagnosis as well. My doctors tell me that my scans are unchanged with no signs of recurrence (in other words, NED). That doesn't mean that there aren't other nodules or other conditions they see (I was diagnosed with mild COPD as a result of years of smoking), but the other conditions have not changed. Were the opacities you describe there before the lobectomy? If so, you may be in the same boat as me; some other "stuff" in the lungs, but it is not cancer or an issue. It is likely those areas were there before the surgery. If so, and they are not changing, I would agree with the doctor to take a "wait and see" attitude. I realize that it is always concerning for them to see anything in our scans, but please confirm the origin of the anomalies with your doctor and he will likely make you feel more comfortable. Lou
  5. Ramona, I was a former smoker and had a CT Scan for kidney stones and it showed a small nodule in my lower right lung. Like you they tried a CT Guided Biopsy, but couldn't really get a handle on the nodule and didn't want to risk a collapsed lung situation with little chance of getting a good sample. Then they tried the PET Scan and it showed an SUV of about 2.5 which is considered inconclusive. My pulmonologist and a surgeon met and decided to do a wedge resection, test the nodule and close up if it was benign or remove the lobe if it proved to be malignant. In my case the nodule was NSCLC Squamous cancer so I had a lower-right lobectomy and since everything else was clear and the margins were so good surgery was the totality of my treatment for now. It's been two years since that surgery and so far I am NED (No Evidence of Disease). I share this with you because while I see some similarities in our cases, but one difference I noted was that my doctors worked together as partners and their ability to take in all the information and come to an agreement on "next steps" made me feel confident they were doing the best things for me. Perhaps I misunderstood your post, but when I hear that your Lung Specialist recommends one action and a Surgeon refuses to do it I don't feel like I'm seeing a strong partnership between your medical team. If that is the case I would look to make a change. BTW, my pulmonologist did wait a few months to see if the nodule would change and in my case it grew 2mm (from 6mm to 8mm) and that was the key reason that the surgeon supported the wedge resection. Most nodules (60%) are benign, but a non-malignant nodule rarely grows. When I asked my surgeon what he thought the odds were that a nodule that grew would be benign he responded, "about 10%". You need to make up your mind about treatment, but more importantly I would look for a medical team that isn't at odds over the best way to proceed. Lou
  6. You're correct that we can never be sure how someone will react to the same treatment with the same symptoms, but the fact that this marker may provide for an immunotherapy is good news as a first step. Please keep us updated. Lou
  7. Dona, Welcome to our forum and we're sorry you need to be here. Tom brings up some good points so let's help you out with a few facts: 1. Lung cancer is not a guaranteed death sentence. You'll find many people here, diagnosed at different stages, who are still going strong and living a full life. 2. You need to get through the diagnosis phase and (as Tom intimated) this is one of the toughest. It's full of uncertainties and at the same time you have a lot of scary information being sent your way that you don't know how to digest or process. This is normal so breathe and calm down. 3. Even ifs you have lung cancer it is not a guaranteed death sentence. More advances have been made in the last 5 years than in the previous 50. 4. You have a ready-made family here of people who have suffered from all types and stages of lung cancer and all that goes with it so you will have great support, based on the real-life experience of the many people here. So try and relax so you can get through this phase. 5. When the diagnostic process is over the medical team will determine the best treatment protocol for you and you will begin to feel empowered. You will be ready to fight this thing, you will know what it is and how you can survive it. All of us have experienced this and it is liberating after all the fear and anxiety of the diagnostic phase. So, stay focused and keep away from Dr. Google... In the meantime, please take a look at an article written by Tom Galli entitled "10 Steps to Surviving Lung Cancer; from a Survivor" you can find it here. Lou
  8. I was always a Robert Frost fan myself, but sometimes poetry can evoke feelings that even music doesn't. I think it has to do with the reading of the words and our minds forming the images, thoughts and feelings around what we are taking in. Thanks for sharing.
  9. Wow! Let's see how this works out, but it sure is sounding good. Lou
  10. Pam, Welcome and we look forward to supporting you and your brother. Tom was correct in asking the questions he did and Lexie is also correct that by posting to the proper forum you'll get better coverage and results. The "Introduce Yourself" forum is a good place to start. In the meantime we do have a Caregiver's Resource Forum and here is a link to one of it's entries on "Tips and Support for Family Caregivers" you can find it here. Lou
  11. Paul, Thank you for providing an update. The only thing I didn't see is if your doctors have done any scans or other tests to see how you responded to the treatments. Have you done any tests yet? I am glad to hear that your SE's are limited to fatigue, that seems better than some others have experienced. I look forward to hearing about any test results and how your next leg of the treatment goes. BTW, you do remember that most of us tell people to STAY AWAY FROM DR GOOGLE! No, I was not yelling at you, just trying to impress that so much of what is on the web isn't reliable and or accurate to what today's treatment options can produce as outcomes. So please do your best to stick with questions to your medical team and to us here. Lou
  12. Hi Brian, Welcome here. I'm glad that you found us. So, you are really still at the point of determining if your nodule is part of the 60% that are benign (usually caused by inflammation or pneumonia, etc.). At this point a CT Scan only show the nodule, as well as any growth if it was a nodule previously discovered. As Tom said, it will likely take a biopsy to determine if the nodule is a malignancy or not and we do hope that you'll post here once you get that result. But stay strong...you're still in a diagnostic stage and even if the nodule tuned out to be malignant it does not mean a death sentence. You'll find solid support here and plenty of firsthand experience from people who are survivors. Lou
  13. We're sorry that you need to be here, but glad that you found us. You're going through a lot and it is something that all of us have had to go through as well, so we do understand. As you get to a point where you have questions we'll do our best to answer based on our own experiences. Lou
  14. TJ, Tom is absolutely right. Your post reminds me of the person I used to be. One small symptom and I could build a whole disease and outcome that would haunt me until I learned differently. Okay, you have some symptom of "feeling something", it surely doesn't mean you have lung cancer. And, I personally love garlic so eating that is fine, but please don't believe what you read about diet reducing and/or eliminating lung cancer (or any cancer for that matter). You can eat healthy and take good care of yourself, and still get any host of diseases. On the other hand my father-in-law smoked Camels and then Pall Malls starting when he was ten, drank way too much, ate anything that didn't stand up and defend itself and he lived to 92. And he didn't die of cancer or heart disease, but of complications from a bowel obstruction surgery. So, all the reading and thinking in the world won't tell you the real outcome of any situation. Please take it easy. See your doctor, pulmonologist or whoever your PCP recommends, but please stop reading the internet. Even if you are ever found to have cancer (lung or other) the information on almost all the sites are out of date in that many of the predicted outcomes are on "5-year averages" rather than a year by year measurement based on the latest treatments and procedures available. So, please start at the beginning; go to the doctor, explain your symptoms, get tested and then learn from the results rather than your fear or the internet. You will be better served. And...if you are ever diagnosed with lung cancer then come back here and you'll get great support from a group of people who have all gone through this and are survivors. You are far from being dead or dying and you may only have muscle spasms or some other situation going on. But, get to the facts first and give yourself a break. Lou
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