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Isabelle49

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  1. Like
    Isabelle49 got a reaction from JamesB in My tongue is dead!!!   
    Taste still not working. Eating very small amounts a few times a day. I have a very strong gag reflex and that is a problem with certain textures and tastes. Difficult tasting food, kind of like having whole mouth dead from Novocain.
  2. Sad
    Isabelle49 got a reaction from Sheryl E in Communicating with your healthcare team   
    My first interaction with the pulmonologist did not go well at all. She was very aggressive, kept referring to “your cancer”. I have only had one CT and no biopsy yet. She was very annoyed that I wanted to put off the biopsy for a week or two for a trip to Europe, told me I would probably be dead by November (granddaughter’s wedding), if I don’t die on the trip from a blood clot. As an RN, I felt she was completely off the wall and disrespectful. I have asked to be assigned to another pulmonologist. I never have and would never address a patient as she has addressed me. Thanks.
  3. Like
    Isabelle49 got a reaction from ColleenRae in Negative changes.   
    I was admitted to the hospital this past Monday and diagnosed with pneumonia. I had developed severe SOB and fever. A CAT scan was done and it showed that  while chemo was on hold for the past 4 weeks (I had neutropenia  just before the last chemo 4 weeks ago) the enlarged lymph nodes and mass in my chest had bloomed ( became greatly enlarged) I have chosen to move to hospice, as I have been told that the chemo and radiation would only worsen my condition at this point). I wish you all the best and will keep in contact as long as Ican. Oh discharging to home Saturday 10/19. Blessings to all.
  4. Sad
    Isabelle49 got a reaction from Brenda F in Negative changes.   
    Much appreciated. I’m home Saturday. Night. Hemoglobin was low, so was transfused with one unit of blood.  Had to twist a resident’s finger to get him to put in an order for the blood. My daughter who is also an RN was on him like white on rice when he indicated he didn’t think it was a good idea, said something about blood leaking into my lungs (Whaaat???  - never heard of that unless it was a trauma. Got the blood feeling like ihave more endurance (Duh, of course). Resident really got on my last nerve,but that’s how they learn.   Blessings to all.
  5. Like
    Isabelle49 got a reaction from Roz in Negative changes.   
    I was admitted to the hospital this past Monday and diagnosed with pneumonia. I had developed severe SOB and fever. A CAT scan was done and it showed that  while chemo was on hold for the past 4 weeks (I had neutropenia  just before the last chemo 4 weeks ago) the enlarged lymph nodes and mass in my chest had bloomed ( became greatly enlarged) I have chosen to move to hospice, as I have been told that the chemo and radiation would only worsen my condition at this point). I wish you all the best and will keep in contact as long as Ican. Oh discharging to home Saturday 10/19. Blessings to all.
  6. Like
    Isabelle49 got a reaction from PaulaC in Negative changes.   
    Much appreciated. I’m home Saturday. Night. Hemoglobin was low, so was transfused with one unit of blood.  Had to twist a resident’s finger to get him to put in an order for the blood. My daughter who is also an RN was on him like white on rice when he indicated he didn’t think it was a good idea, said something about blood leaking into my lungs (Whaaat???  - never heard of that unless it was a trauma. Got the blood feeling like ihave more endurance (Duh, of course). Resident really got on my last nerve,but that’s how they learn.   Blessings to all.
  7. Sad
    Isabelle49 got a reaction from MBinOregon in Negative changes.   
    I was admitted to the hospital this past Monday and diagnosed with pneumonia. I had developed severe SOB and fever. A CAT scan was done and it showed that  while chemo was on hold for the past 4 weeks (I had neutropenia  just before the last chemo 4 weeks ago) the enlarged lymph nodes and mass in my chest had bloomed ( became greatly enlarged) I have chosen to move to hospice, as I have been told that the chemo and radiation would only worsen my condition at this point). I wish you all the best and will keep in contact as long as Ican. Oh discharging to home Saturday 10/19. Blessings to all.
  8. Sad
    Isabelle49 got a reaction from Tom Galli in Negative changes.   
    I was admitted to the hospital this past Monday and diagnosed with pneumonia. I had developed severe SOB and fever. A CAT scan was done and it showed that  while chemo was on hold for the past 4 weeks (I had neutropenia  just before the last chemo 4 weeks ago) the enlarged lymph nodes and mass in my chest had bloomed ( became greatly enlarged) I have chosen to move to hospice, as I have been told that the chemo and radiation would only worsen my condition at this point). I wish you all the best and will keep in contact as long as Ican. Oh discharging to home Saturday 10/19. Blessings to all.
  9. Like
    Isabelle49 got a reaction from RonH in Negative changes.   
    Much appreciated. I’m home Saturday. Night. Hemoglobin was low, so was transfused with one unit of blood.  Had to twist a resident’s finger to get him to put in an order for the blood. My daughter who is also an RN was on him like white on rice when he indicated he didn’t think it was a good idea, said something about blood leaking into my lungs (Whaaat???  - never heard of that unless it was a trauma. Got the blood feeling like ihave more endurance (Duh, of course). Resident really got on my last nerve,but that’s how they learn.   Blessings to all.
  10. Like
    Isabelle49 got a reaction from Curt in Negative changes.   
    Much appreciated. I’m home Saturday. Night. Hemoglobin was low, so was transfused with one unit of blood.  Had to twist a resident’s finger to get him to put in an order for the blood. My daughter who is also an RN was on him like white on rice when he indicated he didn’t think it was a good idea, said something about blood leaking into my lungs (Whaaat???  - never heard of that unless it was a trauma. Got the blood feeling like ihave more endurance (Duh, of course). Resident really got on my last nerve,but that’s how they learn.   Blessings to all.
  11. Like
    Isabelle49 got a reaction from Rower Michelle in Negative changes.   
    Much appreciated. I’m home Saturday. Night. Hemoglobin was low, so was transfused with one unit of blood.  Had to twist a resident’s finger to get him to put in an order for the blood. My daughter who is also an RN was on him like white on rice when he indicated he didn’t think it was a good idea, said something about blood leaking into my lungs (Whaaat???  - never heard of that unless it was a trauma. Got the blood feeling like ihave more endurance (Duh, of course). Resident really got on my last nerve,but that’s how they learn.   Blessings to all.
  12. Sad
    Isabelle49 got a reaction from Curt in Negative changes.   
    I was admitted to the hospital this past Monday and diagnosed with pneumonia. I had developed severe SOB and fever. A CAT scan was done and it showed that  while chemo was on hold for the past 4 weeks (I had neutropenia  just before the last chemo 4 weeks ago) the enlarged lymph nodes and mass in my chest had bloomed ( became greatly enlarged) I have chosen to move to hospice, as I have been told that the chemo and radiation would only worsen my condition at this point). I wish you all the best and will keep in contact as long as Ican. Oh discharging to home Saturday 10/19. Blessings to all.
  13. Like
    Isabelle49 got a reaction from Mally in Radiation plan to start 10/21   
    Plans are to start radiation on 10/21. I have one node under the right clavicle, a node near the tracheoesophageal area, a large one below the carina (where the right and left bronchus split off) and the mass located in the middle lobe. The Varian Trilogy will be used. Radiation onc. feels pneumonitis will almost certainly occur and may well have esophagitis. I have read that the side effects of radiation can be more extensive or have more effects when given concurrently with chemotherapy and that given together does not have much effect on outcome.  If this is the case I would rather complete chemo then go on too radiation therapy. Trivial as it sounds, my greatest worry is that I am in as good shape possible for my granddaughter’s wedding November 9, 2019. I told the radiation oncologist and he said I should have no problem if Radiation started 10/21. I have read that esophagitis often starts to be a problem about 3 weeks after radiation starts and this puts me a point very close to the wedding. If I were imminently dying from this condition I would agree to anything, but I am not. I’m dead set on this wedding as it will most likely be the only granddaughter whose wedding I will attend in my lifetime. Your thoughts? Blessings to all
  14. Like
    Isabelle49 got a reaction from Mally in Radiation plan to start 10/21   
    Thanks Tom, I’m sure Olive oil can’t hurt. I have read that there is a drug called Ethyol that is an injectable and can be given prior to each treatment to decrease the risk/severity of esophagitis.  I need to talk to Radiation/onc about it. Blessings.
  15. Like
    Isabelle49 got a reaction from Tom Galli in Radiation plan to start 10/21   
    Thanks Tom, I’m sure Olive oil can’t hurt. I have read that there is a drug called Ethyol that is an injectable and can be given prior to each treatment to decrease the risk/severity of esophagitis.  I need to talk to Radiation/onc about it. Blessings.
  16. Like
    Isabelle49 reacted to Tom Galli in Hello   
    Mark,
    Welcome here. 
    I had an ER diagnosis almost 16 years ago. I had 4 thoracic surgeries, 18 infusions of chemotherapy, 30 sessions of conventional radiation, 18 weeks of targeted therapy (pill form Tarceva) and 3 thirty-minute CyberKnife precision radiation sessions. The point of revealing all this treatment history is if I can live, so can you. 
    Stay the course. 
    Tom
  17. Like
    Isabelle49 reacted to Tom Galli in Radiation plan to start 10/21   
    Isabelle,
    My thoughts. Lung cancer is also a disease of life and your rationale is a prime example. Delay to experience life events would be my choice also. 
    Stay the course. 
    Tom
  18. Like
    Isabelle49 got a reaction from Curt in CT scan time again   
    Got the results of Fridays CT Scan. Mass is reduced in size to almost a quarter of it’s original size. Chemo was put on hold this week because of low ANC. I have appointment tomorrow with RadiationOnc. to see if mass now small enough for radiation. Radiation scares me more than chemo!!! Blessings.
  19. Like
    Isabelle49 got a reaction from Tom Galli in CT scan time again   
    Got the results of Fridays CT Scan. Mass is reduced in size to almost a quarter of it’s original size. Chemo was put on hold this week because of low ANC. I have appointment tomorrow with RadiationOnc. to see if mass now small enough for radiation. Radiation scares me more than chemo!!! Blessings.
  20. Like
    Isabelle49 got a reaction from judyb75 in CT scan time again   
    Tomorrow and they say I will have both oral and IV contrast. Sounds like overkill to me. Warned them that I will be able to drink only a limited amount of the contrast. Not about to get sick and ruin my day !!!!
  21. Like
    Isabelle49 got a reaction from Curt in A sneak peek   
    As of today, 7 weeks and 1 day to the big day!!! So very excited!!! To be at that wedding will be a great blessing!!!
  22. Like
    Isabelle49 got a reaction from Rower Michelle in A sneak peek   
    Thanks all. I am so looking forward to this wedding. The bride is my granddaughter. She is an ICU nurse. Her mother is a nurse and so am I. We re three generations of RN’s from the same nursing school.
  23. Like
    Isabelle49 got a reaction from Tom Galli in Tick Tock - Scan Time   
    Bless you for continued progress in the NED direction!!
  24. Like
    Isabelle49 got a reaction from Steff in A sneak peek   
    Today is her bridal shower! November 9 is wedding.

  25. Like
    Isabelle49 got a reaction from PaulaC in A sneak peek   
    Thanks all. I am so looking forward to this wedding. The bride is my granddaughter. She is an ICU nurse. Her mother is a nurse and so am I. We re three generations of RN’s from the same nursing school.
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