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Deb514

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  1. Like
    Deb514 got a reaction from Steff in Proper Introduction   
    I am so happy  NED. The wait was scary but so happy. 
     
  2. Like
    Deb514 got a reaction from PaulaC in Proper Introduction   
    I am so happy  NED. The wait was scary but so happy. 
     
  3. Like
    Deb514 got a reaction from Curt in Proper Introduction   
    I am so happy  NED. The wait was scary but so happy. 
     
  4. Like
    Deb514 got a reaction from LouT in Proper Introduction   
    I am so happy  NED. The wait was scary but so happy. 
     
  5. Like
    Deb514 got a reaction from Susan Cornett in Proper Introduction   
    I am so happy  NED. The wait was scary but so happy. 
     
  6. Like
    Deb514 got a reaction from Rower Michelle in Proper Introduction   
    I am so happy  NED. The wait was scary but so happy. 
     
  7. Like
    Deb514 got a reaction from LouT in Proper Introduction   
    Thank you so much! Waiting is scary but it's  all in God's hands and I know he isn't finished with me yet. I have started PCI and other than slight headache which my be sinus haven't had any problems. I am pleased to have each and every day. I so appreciate everyone here for their caring and kindness.  
  8. Like
    Deb514 got a reaction from Tom Galli in Proper Introduction   
    You are right we got this. My MRI head was clear so starting PCI next Tuesday. Doc says there is 40 to 50 percent chance small cell goes to the brain but with PCI it cuts that down  to 10 percent. I have had allergies and sinus headache so I was so scared. Having scope tomorrow to check for a stricture in my esophagus. Still having trouble swallowing. 
    Just so happy today. So thankful our treatments are working. 
  9. Like
    Deb514 got a reaction from Rower Michelle in Proper Introduction   
    You are right we got this. My MRI head was clear so starting PCI next Tuesday. Doc says there is 40 to 50 percent chance small cell goes to the brain but with PCI it cuts that down  to 10 percent. I have had allergies and sinus headache so I was so scared. Having scope tomorrow to check for a stricture in my esophagus. Still having trouble swallowing. 
    Just so happy today. So thankful our treatments are working. 
  10. Like
    Deb514 got a reaction from LouT in Introducing   
    Just wanted to say hello. I too was diagnosed with limited small cell on March 12. It has been a long journey. 35 radiation treatment's  and 4 rounds of chemo. MRI head last Monday and if no problems will start PCI radiation next week.  I had the same  chemo as you are and it made me so sick and unable to function for days later. My skin is burned to from the radiation and swallowing is still hard.  I too have lost over 30 pounds. It's been very hard but the fight is worth it. My Doc says 100 percent remission.  Having pet scan the 17th. I truly think it's gone. My tumor right lung was 7.5cm x 5cm and involved lymph nodes but only on the right side.  
    Stay positive, nice to hear your story. Sounds similar to mine.  
  11. Like
    Deb514 got a reaction from Steff in Proper Introduction   
    Hi guys, it has been a long journey. Finished 35 radiation treatments and 4 rounds of chemo.  Haven't had to use oxygen in 6 weeks or so. I know the tumor is shrinking.  Had MRI and will start PCI head if clean. Pet scan on 17th. So scary. 
  12. Thanks
    Deb514 got a reaction from We got this in Proper Introduction   
    You are right we got this. My MRI head was clear so starting PCI next Tuesday. Doc says there is 40 to 50 percent chance small cell goes to the brain but with PCI it cuts that down  to 10 percent. I have had allergies and sinus headache so I was so scared. Having scope tomorrow to check for a stricture in my esophagus. Still having trouble swallowing. 
    Just so happy today. So thankful our treatments are working. 
  13. Like
    Deb514 got a reaction from BridgetO in Proper Introduction   
    Hi guys, it has been a long journey. Finished 35 radiation treatments and 4 rounds of chemo.  Haven't had to use oxygen in 6 weeks or so. I know the tumor is shrinking.  Had MRI and will start PCI head if clean. Pet scan on 17th. So scary. 
  14. Like
    Deb514 got a reaction from We got this in Proper Introduction   
    Hi guys, it has been a long journey. Finished 35 radiation treatments and 4 rounds of chemo.  Haven't had to use oxygen in 6 weeks or so. I know the tumor is shrinking.  Had MRI and will start PCI head if clean. Pet scan on 17th. So scary. 
  15. Like
    Deb514 got a reaction from KatieB in Diagnosis Small Cell limited   
    Thank you I was hoping to hear from others with small cell.  Mine is limited to right lung and lymph nodes in that area. You have made me feel  better. Had a pet scan after the first round and it was significantly  improved. 
  16. Like
    Deb514 got a reaction from Curt in Proper Introduction   
    Absolutely  we all need to either have an advocate or try as I did to advocate for my self. I just kept trying till I finally got someone to listen. SCLC is so fast spreading that often isn't  found till it is extensive. 
    Kinda bummed  today no chemo this week. My counts were down. Hopefully  they will be up next week.  
  17. Like
    Deb514 got a reaction from Tom Galli in Proper Introduction   
    Absolutely  we all need to either have an advocate or try as I did to advocate for my self. I just kept trying till I finally got someone to listen. SCLC is so fast spreading that often isn't  found till it is extensive. 
    Kinda bummed  today no chemo this week. My counts were down. Hopefully  they will be up next week.  
  18. Like
    Deb514 got a reaction from Tom Galli in Proper Introduction   
    Want to say hello to everyone. I have read everyone's  posts. My name is Debbie and I was diagnosed with sclc mid March. My story starts in January when I was admitted to the hospital for a critical sodium level. I had labs in December and it  was normal. I then begged for a chest CT as well as a brain scan.  I am a ICU nurse at that same hospital.  I was in SIADH which causes you to deplete your sodium. My tumor was making ADH which caused me to urinate  more frequently and loose my sodium. I stayed in the hospital  3 days and was released on sodium pills and 1000 cc fluid restriction.  I made appointments  with  my PCP, my hematologist (was seeing for iron deficiency) and my Pulmonologist who I saw once a year for mild COPD. None of them  saw any need to do a Chest CT. In December  they found  a small nodule in my R lower lung thought  to be infection or inflammation. In December I had a stomach virus and they thought  I  aspirated  while vomiting.  I had to fire my PCP and found another one who did MRI of brain and CT chest.  My tumor  on CT March 7th was 7.5 x 5 cm.  I couldn't  see the Pulmonologist  until the 15. I was extremely  sick and O2 sats would fall to low 80s. On March 12 I went  to the emergency room and paged our hospital  Pulmonologist.  She immediately  came to me in the ER waiting  room. I had bronchscopy on March 13, saw oncology  plus had bone scan and abdominal  pelvic ultrasound and a port placed on 14th and chemo cisplatin and VP 16 on 15th to 17th. I certainly  had the right person  on my side and I so wish I had called her in January.  She took such good care of me. It is limited to right lung.  I am  having 3rd chemo today and have had 15 radiation treatments with  20 more to go. I am pleased to have found this site. 
     
     
  19. Like
    Deb514 got a reaction from pmcirish in Diagnosis Small Cell limited   
    Thank you I was hoping to hear from others with small cell.  Mine is limited to right lung and lymph nodes in that area. You have made me feel  better. Had a pet scan after the first round and it was significantly  improved. 
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