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Deb W

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  1. Like
    Deb W reacted to BridgetO in Scanziety - a little higher this time   
    Good vibes and calm thoughts coming your way!
  2. Like
    Deb W reacted to Tom Galli in Scanziety - a little higher this time   
    Stay the course Deb!
    Tom
  3. Like
    Deb W reacted to Babs in Scanziety - a little higher this time   
    Hi Deb,
    Ill be thinking of you on Tuesday!  Chin up and think good and positive thoughts.  There’s a lot of people sending prayers your way.  Keep us posted.
    Babs
  4. Like
    Deb W reacted to Rower Michelle in Scanziety - a little higher this time   
    Prayers for you Deb.... you've got a good scientist doctor on your team.... go with how you feel... and take the drugs.... no need to try and tough it out.   
  5. Like
    Deb W reacted to GaryG in Scanziety - a little higher this time   
    Hi Deb: This will be quite interesting and a first. I think your oncologist as well as everybody on Keytruda will learn a lot from your scans.   I have been on Keytruda for 10 months now but noticed more side effects like being tired and sleepy for weeks, not to mention swollen ankles, head aches  and loss of appetite, non of which is serious enough to make me stop treatment. Needless to say your scan is of great interest to me so I am anxiously waiting.
    Meanwhile, good vibes, happy thoughts and plenty of prayers are heading your way and I hope your scans are clean this time and forever.  Please make sure to post the results as well as  the oncologist  findings. All the best always.
  6. Like
    Deb W got a reaction from Scruboak in Scanziety - a little higher this time   
    Hi everyone,
    I mentioned before that I was taken off of Keytruda due to toxicity that caused colitis.  I realize I've been so fortunate to have  had clear scans August, October and December.  What's different about my upcoming scan on Tuesday is that I haven't had a Keytruda treatment since December.  I realize that Keytruda works long after the last treatment, but I've gotta say there's some extra scanziety since this is the first scan since I've been off Keytruda.  The original plan was to keep me on maintenance  for 2 years, but I was only able to tolerate it for  8 months.  I'm telling you that the colitis came out 7 1/2 months after I started treatment.  My oncologist told me that side effects can happen even after being off it for a year.  That's not to say that I won't be put back on it once the colitis goes away.  Anyway, any good vibes, thoughts or prayers sent my way would be greatly appreciated.  Thanks.
    Deb
  7. Like
    Deb W got a reaction from Saturn_Bound in Scanziety - a little higher this time   
    Thanks everyone.  So thankful for this group.  I'll keep you posted.
  8. Like
    Deb W got a reaction from Susan Cornett in Scanziety - a little higher this time   
    Hi everyone,
    I mentioned before that I was taken off of Keytruda due to toxicity that caused colitis.  I realize I've been so fortunate to have  had clear scans August, October and December.  What's different about my upcoming scan on Tuesday is that I haven't had a Keytruda treatment since December.  I realize that Keytruda works long after the last treatment, but I've gotta say there's some extra scanziety since this is the first scan since I've been off Keytruda.  The original plan was to keep me on maintenance  for 2 years, but I was only able to tolerate it for  8 months.  I'm telling you that the colitis came out 7 1/2 months after I started treatment.  My oncologist told me that side effects can happen even after being off it for a year.  That's not to say that I won't be put back on it once the colitis goes away.  Anyway, any good vibes, thoughts or prayers sent my way would be greatly appreciated.  Thanks.
    Deb
  9. Sad
    Deb W reacted to Rower Michelle in Moving my Mom to Hospice   
    Hello my family, 
    I've been a little MIA of late.  Almost two weeks ago my mother was hospitalized following complications from Keytruda.  She had severe diarrhea that wasn't controlled with steroids.   The Jersey hospitals are quite full (non covid) and she spent two days in the ED waiting for a CCU bed with acute renal failure.    While her renal function is improved, she has a full bowel obstruction that can not be treated at this point.  Her condition deteriorated rapidly from yesterday, so I fielded a few phone calls from the physicians and helped my Dad make the decision to end active treatment and transition to hospice today.   My mom put up a pretty good fight with the endometrial cancer and lived much longer than anticipated with lung mets.  So now we wait.
    I'm frustrated with my sister, in the midst of this family crisis, she decided to head into the office, leaving her husband and I to communicate with my father and the doctors.   I know she isn't close to my mother, but I just don't get it.   
    Please pray for a peaceful passing, we don't want Mom to suffer.  Love you guys,
    Michelle 
  10. Like
    Deb W got a reaction from TJM in Scanziety - a little higher this time   
    Hi everyone,
    I mentioned before that I was taken off of Keytruda due to toxicity that caused colitis.  I realize I've been so fortunate to have  had clear scans August, October and December.  What's different about my upcoming scan on Tuesday is that I haven't had a Keytruda treatment since December.  I realize that Keytruda works long after the last treatment, but I've gotta say there's some extra scanziety since this is the first scan since I've been off Keytruda.  The original plan was to keep me on maintenance  for 2 years, but I was only able to tolerate it for  8 months.  I'm telling you that the colitis came out 7 1/2 months after I started treatment.  My oncologist told me that side effects can happen even after being off it for a year.  That's not to say that I won't be put back on it once the colitis goes away.  Anyway, any good vibes, thoughts or prayers sent my way would be greatly appreciated.  Thanks.
    Deb
  11. Like
    Deb W got a reaction from Tom Galli in Scanziety - a little higher this time   
    Hi everyone,
    I mentioned before that I was taken off of Keytruda due to toxicity that caused colitis.  I realize I've been so fortunate to have  had clear scans August, October and December.  What's different about my upcoming scan on Tuesday is that I haven't had a Keytruda treatment since December.  I realize that Keytruda works long after the last treatment, but I've gotta say there's some extra scanziety since this is the first scan since I've been off Keytruda.  The original plan was to keep me on maintenance  for 2 years, but I was only able to tolerate it for  8 months.  I'm telling you that the colitis came out 7 1/2 months after I started treatment.  My oncologist told me that side effects can happen even after being off it for a year.  That's not to say that I won't be put back on it once the colitis goes away.  Anyway, any good vibes, thoughts or prayers sent my way would be greatly appreciated.  Thanks.
    Deb
  12. Like
    Deb W got a reaction from Judy M2 in Scanziety - a little higher this time   
    Hi everyone,
    I mentioned before that I was taken off of Keytruda due to toxicity that caused colitis.  I realize I've been so fortunate to have  had clear scans August, October and December.  What's different about my upcoming scan on Tuesday is that I haven't had a Keytruda treatment since December.  I realize that Keytruda works long after the last treatment, but I've gotta say there's some extra scanziety since this is the first scan since I've been off Keytruda.  The original plan was to keep me on maintenance  for 2 years, but I was only able to tolerate it for  8 months.  I'm telling you that the colitis came out 7 1/2 months after I started treatment.  My oncologist told me that side effects can happen even after being off it for a year.  That's not to say that I won't be put back on it once the colitis goes away.  Anyway, any good vibes, thoughts or prayers sent my way would be greatly appreciated.  Thanks.
    Deb
  13. Sad
    Deb W reacted to LexieCat in First cataract surgery done--medi-fest week continues   
    Appt. tonight with the eye surgeon. He, too, saw nothing apparently wrong with my eye, other than some possible swelling. He referred me to a retinal specialist and told me to keep using the prescription eye drops for two more weeks. He said best case, the eye improves over the next two weeks and I can cancel the additional appointment; worst case is he thinks I might need an injection (which my dad had to get for macular degeneration). Ugh--I know my dad found those injections very painful. Hopefully the surgeon's right and the swelling/vision problem will resolve with the continued use of the drops.
  14. Like
    Deb W reacted to Robert A. in TABRECTA   
    So glad you worked something out, I owe it all to my wife's team for doing all the work in getting this medicine. It really made me happy when I saw that you were able to get some too. Here is hoping for much success for both of our spouses. 
  15. Like
    Deb W reacted to MarieE in TABRECTA   
    Wonderful news, Robert! My husband got approved for the 2-week free trial yesterday so we're just waiting to get the drug into our hands. We've also been working with Novartis for the ongoing assistance program. Hoping that Trabecta works great and with minimal side effects for both of our spouses!
  16. Like
    Deb W reacted to Robert A. in TABRECTA   
    Thanks Michelle, my wife hasn't started on the new medication yet but the Dr. is looking into changing her over.
     
  17. Like
    Deb W reacted to jack14 in TABRECTA   
    Hi Robert:
    It is wise to use lines of therapies sparingly in order not to run out of treatments. Which is why I suspect, your wife's Oncoogist is waiting to see how her current treatment plays out. Please keep us informed as there are several of us in the same situation. I, for instance, am taking Keytruda and hoping that it helps me. I am a week and a half  into my second dose and not sure  if I will develop intolerable side effects, or find out that it isn't helping. But, thankfully, I also have the MET amplication and may be able to fall back on the Tabrectra if the Keytruda doesn't work out.
    Good luck and godspeed
    Jack
  18. Like
    Deb W reacted to Robert A. in TABRECTA   
    Hey Jack, my wife started her treatment for her LC in November of last year. It was Keytruda & Carboplatin, after 4 rounds she was scanned and showed the tumor shrinking. The same regimen was continued and she was scanned after another round and this time it showed the tumor growing . She was then started on Docetaxel 21 days ago, the 1st treatment was too strong and she had to be hospitalized for 5 days a few days after the treatment. Her last treatment was Monday but the strength of this dose was reduced. This past visit to get an infusion she saw the oncologist and that is when she said that Tabrecta might be a better option for her.
  19. Like
    Deb W reacted to MarieE in TABRECTA   
    We have a consult this afternoon to discuss Tabrecta. We had been waiting for the final genetic testing report to be completed, and it was confirmed this morning that my husband has a MET exon 14 skipping alteration. He had a very bad experience with an initial round of chemo after his lobectomy so we are hoping this is an option. Never thought I'd spend so much time praying for targetable mutations! 😉
  20. Like
    Deb W reacted to BridgetO in One shot down, one to go!   
    I got the shot a couple of hours ago. The mass vaccination site at the Oregon Convention Center was very efficiently run. A lot of people were there for shots,  there were no delays or bottlenecks and the staff, including the National Guard, were cheerful. My shot was given by a doctor, and when I showed surprise that a doctor would be giving shots, she said, " Oh, this is fun!"
    Bridget O
  21. Like
    Deb W got a reaction from Tom Galli in My Dad's stage 4 lung cancer.   
    Welcome.   I think it's worth it to be treated.  There will be side effects, but we're all different in what we experience and how we tolerate them.  I think your father will let you know how he wants to move forward. I am a stage IV lung cancer patient and survivor.  I was diagnosed in 4/2020.  My last 3 scans have been clear.  I'm not going to say it was a walk in the park with side effects, but it was so worth it!  
    All the best to you and your dad.
    Deb
  22. Like
    Deb W reacted to Rower Michelle in Family Response   
    My friend @Tom Galli says getting "the battle rattle" is key to survivorship.  Having a determined mindset sets the tone for starting treatment.  It sends a strong message to the nurses too, your boyfriend is ready to as we call it "get the show on the road".    Your boyfriend's daughter probably has a perception about the old days of chemo.  A lot has changed in the last three years.  There has been more treatment advances in the last three years than in the last thirty.   There is a mindset shift from "what if" to "what comes next".     There are treatment options today, people can live with this disease.   I'm two and a half years into this.   
    One of the best resources I found was a book written by 20 year Stage IV lung cancer survivor Greg Anderson:  "Cancer- The Fifty things to do".   It's a step by step process of how to develop the game plan.  I found it to be invaluable.   
    So here's to getting the show on the road, we're all family here. 
    Michelle 
  23. Like
    Deb W reacted to Rower Michelle in Family Response   
    Hello and welcome,
    You’ve already heard from the amazing people here in how they approached the first round of treatment.  I was diagnosed at the age of 51, the initial biomarker studies yielded nothing targetable.  I still remembered how my Grandmother suffered through chemo when I was a child and my initial reaction was to not go down the chemo path.  We had spoken to a few close friends who were devastated but no one pressured us into doing treatment because they held the same misconceptions about lung cancer treatment I had.  
     
    The next appointment with my oncologist I told him I didn’t want to do chemo. His response surprised me “I think it’s going to make you feel better”.  I couldn’t get my head wrapped around it but at the same time nothing was helping that cough and I didn’t want to break any more ribs.  
     
    After a B12 shot I started Folic acid and the following week I received the triplet combo. The team was very proactive in managing the potential side effects, with a little bit of constipation from the steroids.  
     
    There has been more progress in lung cancer treatment in the last three years than in the last thirty.  In 2020, there were 11 (possibly more) new therapies approved by the FDA.  The treatment pipeline is a big one.  While every treatment decision is personal, I’m glad my oncologist gave me a little push... 
     
    Michelle
     
  24. Like
    Deb W reacted to GaryG in Family Response   
    If my family is not there for me through bad times, then they are not my family.  Risking putting my family through suffering? Well sorry about the inconvenience but this is not about them.  It is not like I have decided to have cancer. As for the odds, as long as there is a glimmer of hope,  there is  a chance to beat the odds. That said, going through the cancer journey is a sure way of weeding out the caring from the uncaring, the true friend from the false one and a  close family member from a non family member.   
  25. Like
    Deb W got a reaction from Lovemydad in My Dad's stage 4 lung cancer.   
    Welcome.   I think it's worth it to be treated.  There will be side effects, but we're all different in what we experience and how we tolerate them.  I think your father will let you know how he wants to move forward. I am a stage IV lung cancer patient and survivor.  I was diagnosed in 4/2020.  My last 3 scans have been clear.  I'm not going to say it was a walk in the park with side effects, but it was so worth it!  
    All the best to you and your dad.
    Deb
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