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Susanrae

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  1. Like
    Susanrae reacted to Roz in Covid-19 times   
    I just wanted everyone to know that I'm wishing you well as we deal with the virus.
    I know many of us are waiting for treatment and staying in our homes.
    My best to all!!!
     
    Ro
  2. Like
    Susanrae got a reaction from Lin wilki in Nerves   
    Hi Lin,  I hope you start feeling better soon.  I had my 3rd maintenance treatment of Alimta last Friday and have been experiencing chest pain and fatigue, hope it passes soon.  Will keep my fingers crossed and say a few prayers for positive scans for you.  Mine are coming up in a few weeks too.  Take care now.  Susan
  3. Like
    Susanrae got a reaction from Lin wilki in fatigue with maintenance pemetrexed   
    Michelle, Thanks for your invaluable input; it is always nice to know one isn't alone.  I will definitely start thinking differently about energy use and what is really necessary and what is not.  Today was my last day to sign up for the trip to New Orleans and I took the plunge and am going!!  Really looking forward to it!  You take care now.  Thanks again for all of your tips and understanding, Susan Rae
  4. Thanks
    Susanrae got a reaction from PaulaC in Two year survivor!   
    Very happy for you Paula!😁
  5. Like
    Susanrae reacted to LUNGevityKristin in fatigue with maintenance pemetrexed   
    Yay!  Hope you have an amazing trip!
  6. Like
    Susanrae got a reaction from LUNGevityKristin in fatigue with maintenance pemetrexed   
    Michelle, Thanks for your invaluable input; it is always nice to know one isn't alone.  I will definitely start thinking differently about energy use and what is really necessary and what is not.  Today was my last day to sign up for the trip to New Orleans and I took the plunge and am going!!  Really looking forward to it!  You take care now.  Thanks again for all of your tips and understanding, Susan Rae
  7. Like
    Susanrae got a reaction from TJM in fatigue with maintenance pemetrexed   
    Michelle, Thanks for your invaluable input; it is always nice to know one isn't alone.  I will definitely start thinking differently about energy use and what is really necessary and what is not.  Today was my last day to sign up for the trip to New Orleans and I took the plunge and am going!!  Really looking forward to it!  You take care now.  Thanks again for all of your tips and understanding, Susan Rae
  8. Like
    Susanrae got a reaction from Rower Michelle in fatigue with maintenance pemetrexed   
    Michelle, Thanks for your invaluable input; it is always nice to know one isn't alone.  I will definitely start thinking differently about energy use and what is really necessary and what is not.  Today was my last day to sign up for the trip to New Orleans and I took the plunge and am going!!  Really looking forward to it!  You take care now.  Thanks again for all of your tips and understanding, Susan Rae
  9. Like
    Susanrae reacted to LUNGevityKristin in fatigue with maintenance pemetrexed   
    Feel free to whine about anything!  As far as travel, enjoy trips as much as you can and if you need to go rest in your room for a bit in the afternoon, that is perfectly reasonable.  A lot of people have to do that even if they aren't undergoing treatment!
  10. Like
    Susanrae reacted to Susan Cornett in CT results   
    Got my scan results today and I remain NED! I've been cancer free for 18 months. So, to those of you who are new or scared or both, know this: I was diagnosed as a stage IV patient 4 years ago. You can do this. 
  11. Like
    Susanrae got a reaction from Tom Galli in Lisa   
    Hey Lisa,  Actually it was gamma knife not cyber knife.  Sorry about the confusion.  Take care now.  Susan Rae
  12. Like
    Susanrae got a reaction from Tom Galli in Lisa   
    Yes I actually had surgery too to cut the tumor out.  I also had cyberknife to "zap" any remaining tumor with radiation in any of the margins.
  13. Like
    Susanrae got a reaction from Curt in Hi I’m Bev, recently diagnosed NSCLC   
    Hi Bev V,  I am from Minnesota also, close to Rochester.  You have found a good place to relay your concerns, thoughts, and anything else.  There are a lot of good people on this site to help you navigate the storm of lung cancer.  It is a hard pill to swallow, but this the people on this site are a God send and make it easier to handle.  Sending good vibes, positive thoughts and many prayers your way for your lobectomy.  Take care now.  Susan Rae
  14. Like
    Susanrae got a reaction from Tom Galli in Hi I’m Bev, recently diagnosed NSCLC   
    Hi Bev V,  I am from Minnesota also, close to Rochester.  You have found a good place to relay your concerns, thoughts, and anything else.  There are a lot of good people on this site to help you navigate the storm of lung cancer.  It is a hard pill to swallow, but this the people on this site are a God send and make it easier to handle.  Sending good vibes, positive thoughts and many prayers your way for your lobectomy.  Take care now.  Susan Rae
  15. Like
    Susanrae reacted to Rose Kaiser in New Member   
    Thanks to all who have replied to my post. I had my 3rd and final SBRT radiation treatment on January 23rd. My radiation oncologist told me not to expect how well (not if) the radiation treatments worked for at least 3 to 6 months. I have been having PET scans every three months while on  Keytruda and Atlimta and expect to have one the last week of February. I will post the findings at that time even though the radiation probably will not have done it's job by then.
    I wish I would have found this site when first diagnosed last year. It really helps to hear from those who are going through the same life changing situations. 
  16. Like
    Susanrae reacted to LouT in Question for my fellow survivors   
    Robb,
    You don't really "say it like it is", but rather you "say it like you see it".  Yes, none of us is immortal, but you are way offtrack in your pessimistic view of life.  Frankly, I wonder why you bother coming to a forum where people give each other hope and support.  It seems your time here is wasted and, frankly, for people that come here for support, understanding and hope you are anything but a positive contributor of anything they need.  My recommendation would be that you find a forum more to your philosophy and liking where your views would be both welcomed and appreciated.  I, personally, am finding your posts to be counter-productive to the mission of this forum.
    Let me repeat, I don't believe we are immortal, but many here are living good lives, filled with love, family and friends because of the treatments, support and hope brought to their lives.  If you don't believe you can be a contributor in that sense please find a place more to your liking.
    Lou
  17. Like
    Susanrae got a reaction from DFK in Scan Time (again)   
    Positive vibes going your way!!  You take care now.  Susan Rae
  18. Like
    Susanrae got a reaction from Tom Galli in Scan Time (again)   
    Positive vibes going your way!!  You take care now.  Susan Rae
  19. Like
    Susanrae got a reaction from G.A.M. in Tick-tock, tick-tock.   
    Dear G.A.M.   Sending positive thoughts and vibes your way for your appointment tomorrow.  Our thoughts and prayers are with you. Susan Rae
  20. Like
    Susanrae got a reaction from G.A.M. in Headaches   
    Hi Woco, I was treated with 3-week cycles of Keytruda for about 6 months; although I never had problems with headache.  Hopefully you can find some relief from those.  Take care now.  Susan Rae
  21. Like
    Susanrae got a reaction from Tom Galli in Headaches   
    Hi Woco, I was treated with 3-week cycles of Keytruda for about 6 months; although I never had problems with headache.  Hopefully you can find some relief from those.  Take care now.  Susan Rae
  22. Like
    Susanrae reacted to Roz in Happy New Year   
    Let's all strive for a new year with improved health and more cancer research that will benefit all of us!!
     
    Best,
    Ro
  23. Like
    Susanrae reacted to Rower Michelle in Happy New Year   
    Blessings to all in this New Year!  Together we can continue this fight, here’s to another year of living at 110%! 
  24. Like
    Susanrae reacted to Lin wilki in Happy New Year   
    Happy new year!  Another chance to look for peace, love and happiness!
  25. Like
    Susanrae reacted to Lisa66 in Happy New Year   
    Happy New Years to everyone. I pray for health for all in the new year.
    Lisa
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