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We got this

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  1. Like
    We got this got a reaction from Rower Michelle in Proper Introduction   
    Deb ......Excellent news.... my scans are Monday.... praising your results today 
  2. Thanks
    We got this reacted to Deb514 in Proper Introduction   
    You are right we got this. My MRI head was clear so starting PCI next Tuesday. Doc says there is 40 to 50 percent chance small cell goes to the brain but with PCI it cuts that down  to 10 percent. I have had allergies and sinus headache so I was so scared. Having scope tomorrow to check for a stricture in my esophagus. Still having trouble swallowing. 
    Just so happy today. So thankful our treatments are working. 
  3. Like
    We got this reacted to Deb514 in Proper Introduction   
    Hi guys, it has been a long journey. Finished 35 radiation treatments and 4 rounds of chemo.  Haven't had to use oxygen in 6 weeks or so. I know the tumor is shrinking.  Had MRI and will start PCI head if clean. Pet scan on 17th. So scary. 
  4. Like
    We got this reacted to Susan Cornett in Hydration   
    I had the same issue when I had chemo in 2017. Doc told me I was dehydrated and gave me 2 days to increase my intake or have IV fluids. I stocked up on Gatorade because I wanted nothing to with more IVs. Nurses also told me to avoid caffeine because it was dehydrating. Drink that water!
  5. Like
    We got this reacted to BridgetO in Hydration   
    Think of coffee not as fluid, but as anti-water. If you have to drink it (and I have to or think I do) try to drink 2 glasses of water for every cup of coffee. It's kind of like switching from smoking to vaping-- it's not ideal, but if you can't quit it might be a better option. Fortunately, or unfortunately depending on how you look at it, while I was having chemo, coffee nauseated me and so I couldn't drink it.
  6. Like
    We got this got a reaction from Tom Galli in Hydration   
    Happy Saturday .... certainly learned how much HYDRATION and drinking water helps in our quest.  Blood pressure has been running low and pulse has been so high.  You would think that after spending two weekends in the hospital getting fluids I would learn.  This past Thursday I had my week after chemo visit and again BP was way low and pulse was way high.  They asked how much was I drinking and what was I drinking -  ok - I have not been able to give up the morning coffee - I am down to about four cups in the morning - some days I can get away with one or two.  But Thursday I had four.  Right off to the infusion center and two bags of IV’s.  
    Since then I have filled up my one gallon thermos - while I have not gotten through one gallon in a day - I have made it pretty far and feel totally different.  
    They indicated plain water would be best but I have found that adding a few lemon slices enables me to drink more.
    Enjoy your holiday -  hopefully putting this out there will help others with the same neglect on the hydration issue.  Anyone add anything additional to the water to push yourself to drink more????
    Thanks
    Ken
  7. Like
    We got this got a reaction from KatieB in Introducing   
    Hello, diagnosed 3/1/19.  Small cell limited stage ... dr says early and curable.  Completed 30 radiation appointments 2 times per day over 3 weeks.  Chemo next week is the start of third cycle.... new to public boards ... looking forward to becoming active...
  8. Like
    We got this got a reaction from Rower Michelle in Bronchoscopy and EBUS today   
    Brian,
    waiting in anticipation with you for results... but remember “we got this”. 
    Hoping for good results... waiting is so stressful... relax and know that we are all thinking positive for you!
    In solidarity of the fight...
    Ken
  9. Like
    We got this reacted to LouT in 1/2 way CAT scan results   
    Ken,
    Love the great news!  Keep it coming.
    Lou
  10. Like
    We got this reacted to Steff in 1/2 way CAT scan results   
    You go Ken! Great work!
  11. Like
    We got this reacted to Susanrae in 1/2 way CAT scan results   
    very happy for you!
     
  12. Like
    We got this reacted to Laurel in 1/2 way CAT scan results   
    Yes! Wonderful news!
  13. Like
    We got this reacted to Rower Michelle in 1/2 way CAT scan results   
    Hey Ken-
    Will take all the good news we can get!  
     
  14. Like
    We got this reacted to BridgetO in 1/2 way CAT scan results   
    Yay for shrinkage!
  15. Like
    We got this got a reaction from hope16 in 1/2 way CAT scan results   
    Hello! (Excitement noted)
    30 radiation treatments completed over three weeks time and two rounds of chemo completed.
    CAT scan completed last Friday... results reviewed by oncologist this morning.  Tumor 1/2 the size seen on 3/1 .... lymph nodes also decreased in size.  
    Everyone was very positive with the results to date.  I certainly am.
    two more cycles of chemo (one going in as I write)
    made appointments for next cat scan end of next month and a new mri.
    thank God for the results “we got this”
     
    Ken
  16. Like
    We got this got a reaction from PaulaC in 1/2 way CAT scan results   
    Hello! (Excitement noted)
    30 radiation treatments completed over three weeks time and two rounds of chemo completed.
    CAT scan completed last Friday... results reviewed by oncologist this morning.  Tumor 1/2 the size seen on 3/1 .... lymph nodes also decreased in size.  
    Everyone was very positive with the results to date.  I certainly am.
    two more cycles of chemo (one going in as I write)
    made appointments for next cat scan end of next month and a new mri.
    thank God for the results “we got this”
     
    Ken
  17. Like
    We got this got a reaction from Curt in 1/2 way CAT scan results   
    Hello! (Excitement noted)
    30 radiation treatments completed over three weeks time and two rounds of chemo completed.
    CAT scan completed last Friday... results reviewed by oncologist this morning.  Tumor 1/2 the size seen on 3/1 .... lymph nodes also decreased in size.  
    Everyone was very positive with the results to date.  I certainly am.
    two more cycles of chemo (one going in as I write)
    made appointments for next cat scan end of next month and a new mri.
    thank God for the results “we got this”
     
    Ken
  18. Like
    We got this got a reaction from LouT in Introducing   
    Thanks for the responses.  Been a long journey over the past two months.  Two weekends in the hospital due to low  levels of blood counts and potential infection.  However not this weekend.  Tomorrow is more blood work in preparation for Tuesday which starts another chemo  round (Tuesday Wednesday and Thursday).  Had the 1/2 way CAT Scan on Friday and have an appointment with the oncologist on Tuesday before chemo to get the progresses report from the cat scan.  What I do know is small cell lower left lobe - involved two lymph noids in the same lung with no indication that it progressed beyond the lung.  Doctor indicated limited stage.   He said curable ....  Hope and pray he still has the same thoughts on Tuesday.  Had 30 rounds of radiation twice daily over three weeks.  Graduated from that.  Two more chemo rounds left.  
    Would love to discuss with others and support others in the same situation.  We can not win this alone - but WE GOT THIS together.
    Hope everyone had a great Mothers Day - I did get out to go to the movies with daughter, wife and future son in law.  Wedding is a little more than two months away.
    Anyone else experience loss of voice due to the tumor laying on the nerve that runs back up to the voice box?  How long did it take for your voice to come back?  Did they discuss the possibility of ENT (Ear Nose Throat) doctor having to inject the vocal flap?  
    Lost over 30 pounds due to the burning in the esophagus.  That appears to be getting better but not 100% yet.  Also noted today - two weeks after radiation was over that I started two feel burnt on the skin across the chest.  Used some cream on it today but not much better.
    Thanks for this group!
    God Bless...    Ken
     
     
  19. Like
    We got this got a reaction from Tom Galli in Introducing   
    Thanks for the responses.  Been a long journey over the past two months.  Two weekends in the hospital due to low  levels of blood counts and potential infection.  However not this weekend.  Tomorrow is more blood work in preparation for Tuesday which starts another chemo  round (Tuesday Wednesday and Thursday).  Had the 1/2 way CAT Scan on Friday and have an appointment with the oncologist on Tuesday before chemo to get the progresses report from the cat scan.  What I do know is small cell lower left lobe - involved two lymph noids in the same lung with no indication that it progressed beyond the lung.  Doctor indicated limited stage.   He said curable ....  Hope and pray he still has the same thoughts on Tuesday.  Had 30 rounds of radiation twice daily over three weeks.  Graduated from that.  Two more chemo rounds left.  
    Would love to discuss with others and support others in the same situation.  We can not win this alone - but WE GOT THIS together.
    Hope everyone had a great Mothers Day - I did get out to go to the movies with daughter, wife and future son in law.  Wedding is a little more than two months away.
    Anyone else experience loss of voice due to the tumor laying on the nerve that runs back up to the voice box?  How long did it take for your voice to come back?  Did they discuss the possibility of ENT (Ear Nose Throat) doctor having to inject the vocal flap?  
    Lost over 30 pounds due to the burning in the esophagus.  That appears to be getting better but not 100% yet.  Also noted today - two weeks after radiation was over that I started two feel burnt on the skin across the chest.  Used some cream on it today but not much better.
    Thanks for this group!
    God Bless...    Ken
     
     
  20. Like
    We got this got a reaction from Tom Galli in Introducing   
    Hello, diagnosed 3/1/19.  Small cell limited stage ... dr says early and curable.  Completed 30 radiation appointments 2 times per day over 3 weeks.  Chemo next week is the start of third cycle.... new to public boards ... looking forward to becoming active...
  21. Thanks
    We got this reacted to Steff in Introducing   
    Hi Ken,
    You are a trooper!  Twice daily radiation couldn't have been much fun, especially with the side effects.  But I am happy you made it through!  I look forward to hearing about your progress report from your doc, keeping my fingers crossed for positive news.
    Take Care,
    Steff
  22. Like
    We got this got a reaction from Rower Michelle in Introducing   
    Thank you Steff
    blood work was good today so I am sure we are starting round three tomorrow.  Only elephant in the room is the cat scan results.... will share tomorrow and then I guess I have to move off this topic and find a new topic that will be more appropriate.
    have a great day....
    Ken
     
    has anyone done any comparison on the costs of newlasta and it’s likes?
  23. Thanks
    We got this reacted to BridgetO in Introducing   
    Hi Ken and welcome. You've been through  a lot in a short time with your treatment. May I aske what  chemo you're on?  Hang in there!
    Bridget O
  24. Like
    We got this got a reaction from Curt in Introducing   
    Thanks for the responses.  Been a long journey over the past two months.  Two weekends in the hospital due to low  levels of blood counts and potential infection.  However not this weekend.  Tomorrow is more blood work in preparation for Tuesday which starts another chemo  round (Tuesday Wednesday and Thursday).  Had the 1/2 way CAT Scan on Friday and have an appointment with the oncologist on Tuesday before chemo to get the progresses report from the cat scan.  What I do know is small cell lower left lobe - involved two lymph noids in the same lung with no indication that it progressed beyond the lung.  Doctor indicated limited stage.   He said curable ....  Hope and pray he still has the same thoughts on Tuesday.  Had 30 rounds of radiation twice daily over three weeks.  Graduated from that.  Two more chemo rounds left.  
    Would love to discuss with others and support others in the same situation.  We can not win this alone - but WE GOT THIS together.
    Hope everyone had a great Mothers Day - I did get out to go to the movies with daughter, wife and future son in law.  Wedding is a little more than two months away.
    Anyone else experience loss of voice due to the tumor laying on the nerve that runs back up to the voice box?  How long did it take for your voice to come back?  Did they discuss the possibility of ENT (Ear Nose Throat) doctor having to inject the vocal flap?  
    Lost over 30 pounds due to the burning in the esophagus.  That appears to be getting better but not 100% yet.  Also noted today - two weeks after radiation was over that I started two feel burnt on the skin across the chest.  Used some cream on it today but not much better.
    Thanks for this group!
    God Bless...    Ken
     
     
  25. Thanks
    We got this reacted to Curt in Introducing   
    Hello, welcome.  Sorry to hear about your DX.  I was diagnosed a few days before that.  My treatment was surgery so far.  We do have this!   
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