Hi Dura recipients
Just thought I would give an update. I can hardly believe this. My lung specialist and the radiation specialist both consider that the tumour in the bottom lobe of the right lung has died from the radiation and chemo. But the radiation has caused that lobe to collapse so they can't actually see the tumour. I am assuming that because there is no sign that the tumour has spread or progressed that they think it is dead. Apparently. they do not do anything about the partially collapsed lung because it is too damaged from the radiation. Accordingly, the Dura kills any new tumours that might try to form because there is a very high likelihood of re-occurrence. At this stage, I refused to think about re-occurrence. What a shock, I read all these things on Dr Google about syringes and tubes to try to extrapolate the air or fluid in the lung to help it re-inflate and they don't do any of that in radiation cases - they just simply leave it alone. Wow, no oncologist for six weeks and the radiation specialist doesn't want to see me again. Only have to do the Dura once a fortnight and a blood test once every four weeks. It feels so surreal. I feel I am getting a second chance at life so I am staying on my current regime - no alcohol, no cigarettes, keeping processed foods to a minimum and as much walking as possible. They have even told me I can begin to lose weight (need it especially after putting on so much with the predisone). I actually wondering whether as a beginner to this lung cancer stuff that I am just being naive??????
Thank you all for your love, support and encouragement. It is so lovely to hear from people in the same predicament as yourself. I must have a look at all of the ASCO abstracts.
Kind regards
Jane Lee