Agreed. I get crap for saying this, but I think it speaks volumes that just about 85-90% of those that post on this site are NSCLC. It is the same on Team Inspire website. My husband is at 18 months with ES SCLC - with brain mets, developed MAC disease, and had a RUL wedge resection to try and remove some of that MAC infection. He is doing ok, but I am constantly waiting for the other shoe to drop. The cancer is NOT gone, just stable. He now has another cavitated tumor growing again per his last scan in July - just watching right now because he refused to do anything about right now, because he is asymptomatic. And he preferred to not have "maintenance " treatment. The immunotherapy (Tecentriq) he received actually caused the MAC disease, so he is not interested in that again. I am a realist, and I know at some point this will rear it's ugly head. Don't get me wrong I am grateful for every extra day - but that is what it is just "extra" time, which brings little comfort to me and his children.
I do wish and hope for the best for your wife and your father
I do wish and hope for the best for your wife and your father