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Irwin1

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  1. Thanks
    Irwin1 reacted to KatieB in Treatment plans and costs   
    Yes- almost everyone will be able to benefit from standard of care treatment.  A financial navigator will be able to help determine your benefits- insured/underinsured/uninsured and where you can go for that treatment.  Also, clinical trials are viable treatment options that are of no cost to the patient.
    I am on a clinical trial myself (for a different stage 4 disease) and it has saved my life. There are many later stage patients who are benefited as well as treatments- SOC and CT, extending their lives. 
    Don't give up- seek out your clinic nurse, patient coordinator, nurse navigator, oncology social worker and/or financial navigator for assistance.
     
     
  2. Like
    Irwin1 got a reaction from Curt in Good bye MacDonald's and Subway!   
    Well today is the first day I have been a vegetarian.  My main plate was black beans to get my protein. I had a side of broccoli that was awesome. I don't plan on going without any kind of meat every day. But I plan on having a bit of meat on the plate. My wife got me some frozen salmon steaks. I have also been living on white solid tuna. I don't know how much good the diet will do but at least I am doing something. 
        
  3. Thanks
    Irwin1 reacted to Rower Michelle in I did it to myself   
    Hi Irwin-
    Time to get out the shovel and start digging!  😉Unfortunately the worst part of this whole process is working through the diagnostic procedures.  It’s agony for everyone, takes longer than it should however at the end of the day we will have a battle plan.  
    I got some valuable advice here early on: try not to worry about something until you have something to worry about.  One of my recently diagnosed ALK peers had a physician provide a very stern warning about Dr Google.  It’s not our friend.... go out for a walk, make a smoothie, read a book or power up something on Netflix/streaming... do anything....   
    Hour by hour... 
    Michelle
  4. Like
    Irwin1 reacted to Barb1260 in Chest x-ray comment help!!!   
    Saw the pulmonologist yesterday and asked him to clarify the report. He showed me the pics. I asked what happened to my big blob because it’s not on the pics. Said it’s either gone or whatever is left is behind scar tissue. I have airspace disease probably from the radiation. It’s an actual thing-I Googled it. Just have to find an inhaler that’s not going to give me vertigo. Thank god he gave me samples, wasting money isn’t my thing. PET/CT scan will give a better picture but he said it’s a very good X-ray report. Glad that this seems to be worth the side effects. Staying positive. 
  5. Like
    Irwin1 got a reaction from Susan Cornett in CT results and exhale   
    Wow this is so awesome for you and if I can speak for us all extremely hopeful for everyone else 🙏
  6. Like
    Irwin1 got a reaction from LadyLynda0712 in Dr appt update, good news and bad...   
    Wow. Your story is so close to mine..I was sent to the ER and ended up with pneumonia and that's when they found the mass on my lung. A mass is oversized nodule.
       I feel for you with the extra illnesses that you have to deal with. I have some extra stuff besides the mass. I'm dealing with an anxiety disorder I had all my life. I am dealing with this threat of LC. If it helps I know that the treatment can be rough with side effects. So I try to celebrate each day that I'm not nausea and I am not feeling weak. 
       I do have terrible muscle pain in my calves and legs. Actually it's my whole body. But I know from my college days that when I had finals I got a lot of these muscle aches from the stress and adrenaline that was being released. I am not saying that you have this. But the anxiety and adrenaline can have a huge affect on the body.
          I am happy that the doctor didn't tell you anything that was totally terrible. That is always reason for celebrating.
       Hope you can keep getting that good news. Actually good news 👍 is really great news.!!!!
  7. Like
    Irwin1 reacted to Isabelle49 in Brain MRI   
    T minus 53 minutes to MRI. Praying it’s clean. Bless you all.
  8. Like
    Irwin1 got a reaction from Barb1260 in Good bye MacDonald's and Subway!   
    Thanks for the heads up. I am very over weight but I went to my psychiatrist yesterday who used to be a surgeon and I told him that I was trying to gain weight and he actually approved of it. I started my diet yesterday so I am going to have to figure out how to gain weight without sugar.
         Right now I am still in my first diagnostic process. I have give or take 5 or 6cm mass that was PET scan positive along with 1 positive lymph node. Tommorow I have an appointment with the thoracic surgeon to set up something to get bigger pieces of biopsy. I had a needle biopsy but with the positive PET scan they want a bigger biopsy. 
        But either way I am sure that chemo is on the way 😱
         I am learning how to live the LC life style so I am going with the flow.
        I thank my God so much for my wife who is very involved with my new life style. It looks like she really wants me around for a while!
  9. Like
    Irwin1 got a reaction from Roz in Saw My Thoracic Surgeon Today   
    Again my guardian angel is here to the rescue. Us both being in the medical field I came here because I was emotionally coding.. Before and while this happened we had out of town guests living with us all spring. So with them being present I wasn't allowed to cave emotionally. They left last week and my wife has gone to work leaving me alone for 8 hours a day to cope with my new reality. 
      Then I get your reply and it is just perfect. Sometimes I wonder if you are a professional psychologist who knows how to deal with cancer patients. But of course this is rediculous to.think because a trained professional psychologist would not be as good at giving advice like you 😇
  10. Thanks
    Irwin1 got a reaction from hope16 in Update ....   
    Oh yeah..I am afraid for my wife seeing me go through bad stuff. The road of being the loving care taker is incredibly heartbreaking.  But we are with you and yours. We are all in the same exact boat here. If you need a emotional booster if there's anywhere that you can find it you can find it here! Yesterday I was not good and I came here to get an emotional booster and today I am strong and back on the road again..I suppose that is the way this forum supposed to work.. 
       Big hugs for you from Central Florida,
               Irwin
  11. Thanks
    Irwin1 reacted to Rower Michelle in Saw My Thoracic Surgeon Today   
    Hi Irwin-
    Bridget is right on.  Unfortunately this whole process sends everyone down a dark path.  Until the surgery next week you’re only job is to take care of yourself.   Whatever it is you love to do, if you are able, get out and do it. You probably have a couple more weeks before you have the final diagnosis and treatment plan. Be kind to yourself, you’ve learned many great coping skills over the years so in that case you’re ahead of the game.  
    Michelle
  12. Like
    Irwin1 got a reaction from Curt in Saw My Thoracic Surgeon Today   
    Again my guardian angel is here to the rescue. Us both being in the medical field I came here because I was emotionally coding.. Before and while this happened we had out of town guests living with us all spring. So with them being present I wasn't allowed to cave emotionally. They left last week and my wife has gone to work leaving me alone for 8 hours a day to cope with my new reality. 
      Then I get your reply and it is just perfect. Sometimes I wonder if you are a professional psychologist who knows how to deal with cancer patients. But of course this is rediculous to.think because a trained professional psychologist would not be as good at giving advice like you 😇
  13. Like
    Irwin1 got a reaction from Brenda F in Good bye MacDonald's and Subway!   
    Thanks for the heads up. I am very over weight but I went to my psychiatrist yesterday who used to be a surgeon and I told him that I was trying to gain weight and he actually approved of it. I started my diet yesterday so I am going to have to figure out how to gain weight without sugar.
         Right now I am still in my first diagnostic process. I have give or take 5 or 6cm mass that was PET scan positive along with 1 positive lymph node. Tommorow I have an appointment with the thoracic surgeon to set up something to get bigger pieces of biopsy. I had a needle biopsy but with the positive PET scan they want a bigger biopsy. 
        But either way I am sure that chemo is on the way 😱
         I am learning how to live the LC life style so I am going with the flow.
        I thank my God so much for my wife who is very involved with my new life style. It looks like she really wants me around for a while!
  14. Sad
    Irwin1 got a reaction from Brenda F in Good bye MacDonald's and Subway!   
    Started my Anti Cancer diet yesterday. I had to say goodbye to most of the food and drinks that were in my former life. 
       No longer can I have sugar or any processed foods anymore. And that covers 99% of the foods I ate in my former life..My main food yesterday was fresh cooked pinto beans with a small.piece of salmon to go along with it. My snacks were Pinto beans with a tiny dash of sucrose and hot sauce. Mainly my eating was limited yesterday because my wife who is fantastic is going shopping to get I everything I need to have a variety of food to eat and stay on my diet. 
       Diet soda which was a great luxury of mine for years is gone. I pretty much will be drinking plain water and sparkling water with a touch of flavor. 
      You can also count as my diet all the suppliments I take most of which are in pill form. There actually are so many pills and powders that if gravy were allowed on my diet I could put them on a dish and have them with the gravy.
      But the diet is one of the few things I have that puts me in control of my disease. 
       So good bye former life. My new life is here
     
  15. Like
    Irwin1 got a reaction from Brenda F in Bronchoscopy Question   
    My oncologist suggested that I was going to have a bronchoscopy. I have terrible ADD and the only thing I can remember him saying is that they were going to to send a tube down my trachea with a camera which tells me almost for sure that I am going to get one. Now I have my 5 cm mass along with 1lymph nose that were lit up on the PET scan. My oncologist said that the lymphnode might be lit up because it was reacting to the infection brought on by the pneumonia I had.
       I know nothing about the anatomy of the lung but my question is this. How do they know for sure if they will have access to the lymphnode and or mass via the bronchoscopy?. I really would like to know what is going on with that 1lymphnod.
            Thanks,
                  Irwin
     
     
     
     
     
  16. Like
    Irwin1 got a reaction from LexieCat in Confused about everything almost.   
    Almost the same exact thing happened to men. Thoracic Surgeon very positive oncologist and pulmanary doctors not so good. I am going through the diagnostic screening process now and the roller coaster ride is a good analogy. Feeling like a yo-yo is good. 
       I found that waking up in the morning and seeing how I feel is much better than asking the doctors how I am. If I am feeling good today then the heck with what the doctor says. I will say that today I feel okay..I don't know how I will feel tommorow or the day after that. But if I am okay I am not going to let what a doctor says to take away how I feel on that day. Or at least that's how I feel about it
  17. Like
    Irwin1 got a reaction from 06211219 in Saw My Thoracic Surgeon Today   
    Starting from the beginning May 20 pulmonary Dr sent me stat to the ER because of severe lung pain when I coughed.He thought that it was heart attack or embolism. After CT scan in the ER I was told that I had a 5.5 mass on right lung. A needle biopsy came back negative but the oncologist sent me to a PET scan. PET scan turned up positive on the mass with what I thought was one positive lymphnode but ended up to be a whole group of lymphocytes. He mentioned that it may be stage 3 something. He sent me to a thoracic surgeon.
       The surgeon today was great. It was obvious that he really understood what goes on in the chest and instead of a doctor that could merely read a report,this surgeon was actually able to understand the CT and PET scan.
       The bad part is that I have now been emotionally bounced all over the place. The surgeon wanted a newer CT scan and he ruled nothing out. He said that when he sees the new CT scan that the results could mean that I don't even need a bronchoscopy because the pneumonia is resolving along with the mass. He also went to the other extreme and said that if it was cancer it was inoperatable. 
        The new CT scan is this Friday. So I have been emotionally been bounced all over the place. It was placed in my head that I probably had a cancer that may have been at a stage that was operable. Now I am going to go under general anesthesia for the bronchoscopy and when I wake up it will advanced local either small or nsclc. The surgery is a week from Friday. 
       I am an emotional mess and trying to adjust to my new circumstances.
      BTW,On the CT scan the surgeon said that my right diaphragm was pulled way up on my original CT scan. He said that it may have been caused by the mass pushing on a nerve.
     
  18. Like
    Irwin1 got a reaction from Curt in Saw My Thoracic Surgeon Today   
    Thank you for the encouragement! I think I should appreciate that I can have some sort of treatment. But it is very kind that you took the time to reply to me. May God bless you for this!
  19. Like
    Irwin1 got a reaction from LouT in Confused about everything almost.   
    Almost the same exact thing happened to men. Thoracic Surgeon very positive oncologist and pulmanary doctors not so good. I am going through the diagnostic screening process now and the roller coaster ride is a good analogy. Feeling like a yo-yo is good. 
       I found that waking up in the morning and seeing how I feel is much better than asking the doctors how I am. If I am feeling good today then the heck with what the doctor says. I will say that today I feel okay..I don't know how I will feel tommorow or the day after that. But if I am okay I am not going to let what a doctor says to take away how I feel on that day. Or at least that's how I feel about it
  20. Thanks
    Irwin1 reacted to Isabelle49 in Confused about everything almost.   
    Jimmy’s Lisa, I recently encountered the same type of doctors. Pulmonary was optimistic, but fairly neutral, oncologist was negative and radiology/oncologist was very positive. Just kind of strange really. So sorry that you and your husband are going through this. Bless you.
  21. Thanks
    Irwin1 reacted to BridgetO in Saw My Thoracic Surgeon Today   
    Hi irwin, "Inoperable" sounds scary, but it's not the same thing as "untreatable". If it turns out you have cancer and aren't a candidate for surgery, there are a LOT of other treatment our there, and new ones are being approved often. So, hang in there and don't get ahead of yourself. I know that's hard to do. I wish you all the best.
    Bridget 
  22. Thanks
    Irwin1 reacted to Curt in Saw My Thoracic Surgeon Today   
    Let’s hope it’s just pneumonia clearing.  
  23. Thanks
    Irwin1 reacted to Isabelle49 in Bronchoscopy Question   
    I had a bronchoscopy a little over 2 weeks ago. They biopsied 4 lymph nodes located outside the bronchus (an extension of the airway/trachea). They do this by passing a needle through the bronchus and into the lymph node. The procedure is ultrasound guided. You will be out like a light for this procedure. I was. Best wishes.
  24. Thanks
    Irwin1 reacted to Robert Macaulay in Bronchoscopy Question   
    Irwin1
    They do not know for sure but they will get sample one way or the other for testing.
  25. Thanks
    Irwin1 reacted to Robert Macaulay in Good bye MacDonald's and Subway!   
    Irwin1
    If Chemo is in your treatment plan you may want to put on some extra pounds prior, I put on twelve pounds prior and glad i did. I was told during treatment eat as much as you like and as much as you can. All depends on the chemo dosage how a individual reacts.
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