Jump to content

pamm

Members
  • Posts

    23
  • Joined

  • Last visited

Everything posted by pamm

  1. My very best prayers and wishes that the CT turns out great. You have been my inspiration since I came on here, and I feel close to you. Today I started Topotecan for a week, and I have been pretty down in the dumps. But seeing your post made me realize I need to get out of myself and see that there are other people in this world. Thank you, Cindy, for all you do! Pam
  2. pamm

    latest fight

    Thank you all for your prayers and good thoughts. I knew I could count on you. I'm thinking about trying work next week, as I am still just getting radiation and I think I can handle a few hours. I'm gonna call my boss later and see if this is okay, if not, oh well, I will find something else to do. The other day my higher up boss, Dr. Holtz (opthalmologist) called me to say hi and give his best. I think that was really neat of him, he is somewhat elusive with workers, but he has always been a true gentleman with me. Anyway, if anyone has more thoughts, pls bring them on. Also anymore ideas about a diet? Thanks again, guys, Pam
  3. pamm

    nutrition?

    Does anyone have any info or a source of info for nutrition during chemo therapy? Am looking for diets that tell you what to eat and how much in order to gain maximum nutrition. Thanks in advance, Pam
  4. pamm

    latest fight

    Went to the onc yesterday, for update and Zometa. He said we will keep fighting; when radiation is done in a week and a half, will begin Topotocan on July 25th, 5 days a wk for one wk, then 2 wks off. Said for 3 months to begin. Side effect--fatigue and diarrhea. Asked about work and he said if I want to, but he also said I am going to get tired and if and when I want to stop treatment just to tell him (I guess if I get too tired to continue?) That part was upsetting, but I'm trying not to read too much into it. My husband is very bummed out, I can tell. He doesn't say, but I know he is depressed. I also have pains in my stomach since I came back yesterday. I think it might be constipation, but it might be tumor growth, I don't know. Anyway, I didn't have rad yesterday as the machine broke down. I have to call now to see if it is fixed. So, what does everybody think of this latest? I intend to fight until I can't anymore. I know you will tell me to continue the fight; wondering if anybody else went this route? I guess I just need someone to tell me this is right route. Thank you all so very much for everytthing! Pam
  5. Congrats on latest news, I am very happy for you. I go tomorrow to see onc about newest treatment, but I'm scared that what he's going to tell me is going to be bad b/c he said to bring my husband, and he never said that before. It's been a nerve-wracking week, but can't do anything about it except keep praying. As for your port, I have a similar problem. When I go for treatments or blood work, I have to put my arm over my head, or even lay flat with the arm up in order for the blood to flow. Try that if you haven't. Pam
  6. pamm

    Picture

    What a great picture! Kids are wonderful, huh?
  7. pamm

    Leg Pain

    Praying for good report and end of pain. Pam
  8. pamm

    really sad now

    I feel fine, just a little tired. I love my job and was so happy to get it back 2 months ago. It really helped me emotionally. I was a little scared when he said that. I will wait until next Tues. to see him in person. My guess is that he has something bad to say and is trying to prepare me slowly. I don't know. But if he is too negative I will think about another opinion. Thanks.
  9. pamm

    really sad now

    I just got off the fone with onc. We were coordinating next Tues's visit with radiation. He said I will get Zometa but not the chemo yet. I asked him about my job and he said I need to go on disability again. That really upset me. I said that sounds really bad. He said it's always bad when the cancer moves to the brain. I mentioned whatthe rad onc said, and he said, oh yeah, that's true, but hestill says I can't work I guess cuz I've got the chemo again. I'm really depressed, I don't want to think bad things but I don't have a lot to hold on to now. I keep praying I'll get tough again. Any advice? Pam
  10. Thank you, Addie, for your wonderful words of wisdom. They brought tears to my eyes. My husband of almost 35 years has been wonderful, but I see what this has done to him since dx last Oct. He isnot the most patientof men (being Irish), but he has been my love and best friend since high schoo;. He doesn't do well with bad things and I know he is depressed with the new setback. We don't talk a lot out loud about this, but it's as tho we know what each of us is thinking, and we are both trying very hard to be strong for the other. He brings up Lance Armstrong alot. So we trudge along; if anyone talked to him like that medical person in front of me I would have said something -- no need to be polite to people like that!!! Pam
  11. At my rad session I had to see dr. guess it was time. He made me feel a little better. Said sclc responds well to treatment, and about 80% of the time it responds to radiation. That answered my question about doing it. He also said it is no cure, which I knew. Said can't drive during treatment. Also said I would probably have trouble going back to work, but he didn't say no definitively. He is very nice, as is everyone there, so I do feel a little better. Anyway, that's it for today. Thanks everybody. Pam
  12. Thank you all for responding, it helps a great deal. I will try real hard to go back to my fighting ways. Thanks to you. Pam
  13. Thank you all for responding, it helps a great deal. I will try real hard to go back to my fighting ways. Thanks to you. Pam
  14. Have a couple of questions dr won't anser yet. Was away on vacation and had a seizure. Had to go to hospital, where they said tumors in brain now. Came home in ambulance on Tuesday, began radiation on Wed. Am to have 15 rounds, see dr. next Tues but he won't say anything until then, and said to bring my husband, but won't say why. I'm very scared by that. I keep telling myself they wouldn't do rad if it wouldn't help, but am I fooling myself? I have read that it doesn't help in ext SCLC. Any info would be appreciated. Am taking anti seizure and anti inflammatory meds. Feel good except tired. Have had 4 rounds of rad. They won't let me drive, which is okay. I miss my job again, decided I shouldn't go. Oh, I should say I didn't come home until Fri. was in hospital for rad MRI and EEG. Anybody go thru something similar? I need help. I'm trying so hard to be positive, but it's really hard. Do they go back to chemo while on radiation or does that wait? I wish the doc would talk to me, he always has, so that's why I'm depressed. Thanks for any help. Pam
  15. pamm

    mom

    Hi, Troy, My name is Pam, and i have ext small cell cancer. I have been fighting since the end of Oct 04 I have abeen lucky, I got my job back, I also am done with chemo for now, until i have another CT scan in July. I am going on vacation to the Jersey shore in about 2 wks. Just wanted you know that some of us are feeling really good for now, and have much hope. I believe I can be one of the few who beat this, or at least have quality of life for a long time. I can't believe anything else. Of course, I have bad days emotionally, but since I feel well physically I have to believe that I am holding my own. I hope your mom gets plenty of support from family and friends, and a good doctor always helps. Best of everything, Pam
  16. Hello, just wanted to let you know, Brooklyn, that I'm from Jersey and I have extensive small cell lung cancer. It's not pretty, mostly because I feel that it's my fault cuz I smoked for 40 years. Who knew back then and at what cost?? I am doing well, I had 6 months of chemo, I tolerated that well for the most part, and surprise, surprise, I was asked back to work about a month ago. I am so happy with that and also singing with my church choir again yes, I can breathe well enough, and I am a first soprano!!! Anyway, I am doing well for now and will not accept anything different. I am going on vacation at the end of the month to the Jersey shore. I had to convince my husband that it would be good for us to go, my kids think it's great, so what more could I ask for? I will have aweek with my 3 kids, their dad, my brother in law and my mother in law, who is agreat friend, by the way. Oh, dear I am rambling I need to sleep, but I wanted you to know that you need to stay ontop of you diagnosis. Don't let it get you down, at least most of the time, I am not a Pollyanna. Best of everything to you and pls keep intouch. I don't hear from anyone, except Jean and that was just a welcome. I wish otshers would say hello. Pam
  17. It's nice to have you join the forum. I have ext SCLC since October 2004. I have finished chemo and am waiting for next CT scan in July. I feel fine and went back to work recently (which is great) I refuse to give in to negative thoughts. I am living my life pretty much as always. I am even going on vacation at the end of the month. Taking my family with me, even my brother-in-law is coming from Florida. I am not a pessimist and I won't listen to statistics. I figure I can be a survivor, too. I still have a 15-year-old at home to see through manhood. I try; I have a sense of humor (I am told) and you can make it, too. Keep the faith and try not to dwell on negatives. I find the worst time for me is in the a.m. when I wake up. I immediately start thinking; I put on the TV and watch the news and that helps take my mind off the bad thoughts. Pls keep in touch with us, the people here are inspirational! Pam
  18. Many prayers for David and all of you. Pam
  19. Hi, everyone, especially Doug, I thought your journal excerpt was beautiful and very true, except perhaps for one thing. You said you feel sorry for people at treatment who are alone. I go by myself, but pls don't feel sorry for me. As a matter of fact, I had a treatment w/Zometa just today. I am not getting chemo; had 6 months' worth, and will have another cat scan in July. My wonderful husband takes me and picks me up, but did not stay even when I was going for chemo. I did not ask him to. I really felt supported with just what we were doing. I have always wanted to feel very strong, like I had things under control. If he had stayed I would have felt as though I was asking extra of him that I didn't feel I needed. But that's just me. He worries so much about me. I told him I was going to work after today's treatment; he thought I was pushing it, but said it was my decision. That gives me the feeling that I have some control over what goes on with me. I have seen others by themselves, and have had conversations with some. Nobody seemed expecially sad; however, this is just my observation. I just thought I'd put my two cents in so that you didn't feel sorry for me and others because we come alone. I believe we all have someone, and maybe it is a choice we make. Thanks for listening. Pam
  20. pls forgive me, but I am not very good at posting,etc. Also some terms I am not familiar with. Can you tell me what WBR stands for? I was interested in your post -- I too have SCLC w/mets to liver and bone. My chemo is through for now, and that worries me. I am glad to see that your situation is similar to mine. No, I don't me I'm glad, oh good grief, I am definitely not good at this. I mean it helps me to know that you are getting through so much. Thank you. And again, I am sorry. Pam
  21. I am not good at replying, but I saw that you were looking for extensives to respong. I feel bad that you feel bad. I have been in treatment since Oct 2004. They put me in hospice in Nov 2004, thinking I was supposed to die. I didn't know why I was in hospice. I thought I needed to rest (what a dummy!) I got better practically overnight, and I had wonderful physical therapy and chemo, my dr. would not do any more than 6 months, my tumors are almost all gone, lungs and liver. I sstill get bone treatments. I don't know where I go from here; I just am glad I got to go back to work, an I feel great. I don't know what else to expect, but for now I am very heppy to be anywhere. If I can help anybody, pls let me know. I have great optimism, because the alternative is something I'm not interested in.
  22. Idon't know what qualifies for long term. Thought I would put in my 2 cents. I have had extensive SCLC sinc Oct 2004. I had 6 rounds of chemo. I have not had any med or treatment since April. I went back to work (yay!) my job opened up, perfect timing. I am so happy to be at work, doing something. I am also back singing in my church choir. Very special. I don't know if I qualify for long term. I don't think so, but I feel every day is long term. My family was told I had 6 months to a year. I have passed the 6 months. I feel wonderful; I was in hospice in Nov 2004, I was supposed to die. Me doctor calls my a miracle. However, I do know that my prognosis isnt great. I am not getting any treatment excet for bone treatment. I see the dr. this coming Tuesday; I wish there was something that could be done, but he says no for now. I will have another scan in Aug. Any help or info would be greatly appreciated. As for me, I am very happy to be around.
  23. I am wondering if anyone has an answer to this: I have completed 6 rounds of chemo for SCLC, extensive, and dr. says no more b/c it doesn't seem to help. The tumor is almost gone, he said, and I will have CT scan in 3 months. Now I feel as tho I'm not doing anything for the fight. Any suggestions? Tks
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.