Jump to content

Pattymac

Members
  • Content Count

    46
  • Joined

  • Last visited

  • Days Won

    1

Pattymac last won the day on August 20 2020

Pattymac had the most liked content!

About Pattymac

  • Rank
    Member

Profile Information

  • City
    Blue bell
  • US State (if applicable)
    PENNSYLVANIA
  • Country
    United states
  • Gender
    Female
  • Status
    Not a patient

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Yes, so sorry to hear this Rose, I had been told of radiation pneumonia is a side effect, and many others! My radiation oncologist informed me of the scar tissue also that may form and look like cancer and need a specialized radiologist to read the scans from now on. Mine is also a slow-growing cancer, who knows what slow really is, they couldn’t tell me, so I made the decision to get rid of it now at 63, instead of trying to do it at an older age....if that makes sense! I also have COPD and Emphysema and I’m hoping it doesn’t get worse due to treatment. I hope they can help you with your brea
  2. I had my 2nd SBRT treatment on Friday and I have noticed a few more side effects (a little nausea, and more fatigue), they tell me this is because it is a cumulative effect of radiation that also works after your treatment for awhile. I would recommend this to anyone, the side effects are basically nothing terrible to deal with and having only 3 treatments is amazing! I met with my oncologist on Friday after my treatment and he said while he can’t be sure it hasn’t spread anywhere else, he thinks my chances are good for a full recovery. He will scan me to check on this every 3 months for awhil
  3. Colleen, I’m doing baby steps compared to what Tom has been through, but SBRT seems like such an easier answer in getting rid of nodules that have turned into cancer! My father died at 46 years old from lung cancer 51 years ago, and I think of him during my treatment as he also had radiation back then. I thank god for the progress they have made in recent years to deal with all kinds of lung cancer! I feel blessed and will post after my next appt tomorrow! Take care
  4. I wanted to wait a day after doing SBRT for my nodule just in case I had a side effect that I wanted to tell you about!!! No side effects, other than being a bit tired!! My experience has been a good one, the actual treatment was a bit more scary than I anticipated, but truly it is a miracle if they can zap it away! They are very kind where I go, just lying there as machines go around you, no pain in anyway, it takes about 40 minutes total to get you positioned and then the actual radiation is about 15 minutes! No down time, your life goes on as usual!! I have 2 more treatments, one this Frida
  5. I am now re-reading the comments on my first post about radiation for lung nodules! I am so grateful to have and hear from so many people I don’t even know, but think I do, and we are friends in this sick world of cancer!! Tomorrow, I start my SBRT radiation, I’m a bit scared, yet I am so happy to get started with finally doing something about my nodule!! I have many more smaller ones so I think this is just the beginning for me!!! I will post tomorrow after I learn all about it!!
  6. Worried 18, I have COPD and emphysema, which can cause a pain the your chest that is difficult to explain, I have had it off and on for about a year now! I take a Pepcid and that sometimes seems to make it better! Have they told you that you have either COPD or emphysema?
  7. LexieCat , Happy for you that you were persistent and have a consult, sometimes I feel that if we don’t push for more information and ask, we will never find other options for so many cancers! I realize that I am a novice in all of this, but I have lost many family members to this horrid disease, and for that reason I want to get more info than I will ever need! Let us know how you make out!!
  8. Colleen Rae and LexieCat, I went for my CT Simulation today, getting ready for SBRT on Sept 8th. My appt took about and hour or so to complete, most of the time they are marking you up for where the radiation will “beam”? Not sure of the correct word, and the other half hour they are doing a CT scan to see if where the markers they placed are in the correct spot. The tattoo comes in at the end, a tiny dot in 3 places so that when you return for your radiation, they will match you up to the markings. Now they will make a plan for me and my situation, I will either have 3 -5 more appts f
  9. Thanks you so much ColleenRae, I forgot to mention this yesterday that I did ask my radiation oncologist yesterday why I was just hearing (Last week) about SBRT for some kinds of lung cancers And he said.....surgery has always been the gold standard for lung cancer and radiation has been in the background, he thinks for far too long! Radiation today is a far cry of what it was 30 years ago, very precise with very good outcomes, he says my nodule will be history when I’m done. Also he said they use radiation for many kinds of cancers, and many times for palliative care if their cancer is affect
  10. Good for you Lexiecat, Penn in Philly is one of the best, let me know how it goes!!! Truly this is a journey!!!
  11. Hi ColleenRae, I read your post and I am not getting another biopsy before SBRT! I already had a bronchoscopy with biopsy last year by an interventional pulmonologist that was very highly regarded, she was the best of the best, and after the procedure she told me that I was the only one of her patients that day that didn’t have cancer! I was elated and so thankful for this wonderful news......until my thoracic surgeon didn’t;t think she “hit the nodule” and the biopsy was other tissue in my lung, not the nodule! Most of the past year and 8 months for me has been waiting, testing, and watching.
  12. Yes, LexieCat, the doctors at Penn medicine are some of the best in Pa. and you being in New Jersey are close enough to be able to see them! My Thoracic surgeon was with Penn Medicine also and he was wonderful, even though I have decided not to have surgery! Good luck, you will be in good hands, always smart to get a second opinion!!!
  13. Went to a radiation oncologist this morning, liked him very much and I also am going ahead with SBRT for my nodule! Thank goodness to have an option other than surgery! He said it will be 3-5 sessions over a week and a half, luckily he said there is no hurry for me to do this, he said my cancer is very slow growing, but I want it over with asap!! Thanks for posting all the info about SBRT, I appreciated it greatly!!
  14. Tom, Thanks for all that information, this is quite a learning experience for me! good luck Colleen with your appt. today! Please let us know how it goes!!
×
×
  • Create New...