j ross
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Posts posted by j ross
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HELLO
I'm Jennie married 35 years to Barry.
Live in the UK a place called Harpenden 30 miles north of London.
3 daughters aged 33 30 and 18. 2 lovely grandchildren
Retired college teacher.
have been coming here since Barry was diagnosed with advanced adeno in April 04. Am so grateful for this site.
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Summer 04 we were told to enjoy that summer and little to be done. Well Barry is still here and we have done much and seen much during this time.
Jennie
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I an so sad to read this. Please accept my condolences. Rochelle and Johns postings have helped so much in the past and I simply believed he would continue.
Jennie
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Barry had six rounds beginning summer 06. The cancer shrunk significantly. Progression noted June this year. Back on Alimta (with avastin). Four rounds more fatique this time. Scan in next week or so.
Good luck
Jennie
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I was speaking to a lady today who had been on iressa for over four years. She told me that she also has injections of mistletoe twice a week. Has anyone had any experience of adding mistletoe to treatments (tarceva or any other).
Best wishes
Jennie
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Good luck with the treatment. Thinking of you both
Jennie
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My husband had significangt shrinkage on Alimta {together with Avastin) side effects were tolerable. Flue like symptons for a few days.
Jennie
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Barry had this procedure done in May 2004 and has had no problems since.
Jennie
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Pet results
in HOPE
WONDERFUL. WONDERFUL NEWS.
We need more news like this.
Jennie
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I used to be proud to be British but now I am ashamed of this country. I do not think the British really have any idea of what a situation like this is actually like. It is only when you suffer directly that you discover the horrors of this government. We are lucky so far we have the resources to have private treatment.Barry has been going for over three years now leading a normal existance. If we had stuck with the first nationalised health care oncologist I do not think this would be the case. Disgusting isn't it.
Jennie
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Hi Randy
It is good that some common sense has prevailed. Let us hope the same thing happens with Tarceva. The UK system of health is in a mess.
Jennie
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Hello
I have been missing your posts and was pleased to read that all is stable.
Very best wishes
Jennie
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We saw a sugeon before the oncologist.
Jennie
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Barry had this combo and there was significant shrinkage. Side effects for him were not too bad either.
Jennie
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Randy thanks again for thinking of us Brits. There is an appeal against the Tarceva decision the beginning of JUNE.
Barry is the patient representative. He is a three year survivor. We are lucky we have the resources to get tarceva and avastin and he is currently leading a normal life (apart from the worry). Will keep you posted.
Jennie
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Dear Don
I have been coming here for three years and always find your posts helpful and practical and supportive.
Will miss you. Very best wishes.
Jennie
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I still think of Leslie and miss her posts.
Jennie
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Yes Barry has experienced this. Not too badly anibiotics help.
Jennie
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Many thanks aagain for highlighting this. Barry is going as a representative patient to appeal against the NICE decision to without drugs. Hope he has some impact.
Jennie
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We had this choice and went for alimta. We were told there was no hair loss and the blood counts were less likely to be affected. Also that other side effects where less. This was given with avastin and there was significant shrinkage.
Jennie
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You are are inspiration to so many. Your help is always invaluable. To many more years.
Jennie
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Barry did well on alimta. Fluy side effects a few days after infusion which lasted a few days. Significant reduction.
Jennie
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Hi Aaron
Barry had six cycles of alimta with avastin. Kept his hair and did well. He had flu like symons about four days after treatment which lasted less than a week.
Jennie
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Hi
Barry is currently on this combo. Keeping him stable. No side effects apart from rash.
Best wishes
Jennie
Began Alimta Chemo Yesterday
in NSCLC GROUP
Posted
Just to say that Barry had really good results with alimta, it pushed the cancer back for quite a long time.
Jennie