Jump to content

j ross

Members
 View Profile  See their activity

  • Posts

    170

  • Joined

  • Last visited

 Content Type 

Posts posted by j ross

    gefitinib [Irressa]

    in GENERAL

    Posted

    Barry was on iressa for over a year and kept him completely stable. After small progression was noted he started Tarceva. He feel fine and we will have scans next month. Meanwhile he is feeling fit and welll.

    Jennie

    2nd opinion

    in GENERAL

    Posted

    Hello everyone

    On the recommendation of our onc with saw another oncologist. He went through various options but thought that we should give tarceva a try. (As suggested by Ric and Ry}. He said give it a little time. However we are seeing a surgeon to see if surgery may be an option (removal of lung and pluera) oncologist say too dangerous but we will see what the surgeon says.

    Best wishes to everyone.

    Jennie

    Gemzar

    in NSCLC GROUP

    Posted

    Barry had a very good response to gemzar. The side effects were fairly minimal. A little tiredness and on the fourth treatment some sickness but no too bad at all.

    Jennie

    PS Little hair loss.

    Worrying scan result

    in MEMBER UPDATES

    Posted

    I think we will try and see if we can have a shot at Tarceva as we can tell quite quickly if it is having a benefit. Also looking into avastin. This has been a terrible blow as Barry is feeling so ok. (But then it is to everyone in this position).

    I will keep you posted.

    Jennie

    Worrying scan result

    in MEMBER UPDATES

    Posted

    Hello

    We have just returned from a visit to our oncologist where we received the following report (I'll paraphrase}:

    Comparison is made with the scan October 05. Appearances of the small mediastinal nodes are unchanged from previously. In the left lower zone however within the lung parenchyma I am suspicious that there is slow progression. At the leval of the carina the lung parenchymal nodule has doubled in volume. In the adomen, liver and adrenals remain clear. Appearances are consistent with slow progresiom.

    The nodules are still very small (1mm).

    We are now going to the top lung cancer centre in London as they have access to more clinical trials etc.

    The onc. says we should discontinue iressa, he does not think that tarceva will be beneficial but we will check this out (I do not know whether anyone follows Tom Cross' website but tarcea after iressa seemed to help.}

    Any commments gratefully appreciated.

    Love

    Jennie

    Scan results!!!!

    in HOPE

    Posted

    Dear Sharon

    We were really pleased with the news. I am sceptical when it comes to medical opinions sometimes(due to past experiences). Maybe get another opinion?

    Jennie

    A very long overdue update...

    in MEMBER UPDATES

    Posted

    Dear Ry

    I only just found your post and we are very disappointed at the news. There are drugs in development for patients who have acquired resistance to egfr inhibitors and perhaps these might be useful. Sloan Kettering in NY seem to be at the forefront of this research.

    Very best wishes to you both.

    Jennie

    is chemo worth it?

    in NSCLC GROUP

    Posted

    As I have said before I know people are different but for Barry the chemo was not nearly as bad as was anticipated and the pain went very quickly. After each chemo session we actually had lunch in the local pub.

    Jennie

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept