j ross
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Posts posted by j ross
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We can relate to the waiting anxiety. In our situation you want instant results.
We are thinking of you and routing for you.
Jennie
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Jim
Excellent news. Zap the b.... thing.
Jennie
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Scan Results
in HOPE
We have just returned from seeing our oncologist. The scan results were good. Bottom line; "There is no evidence to suggest underlying metasatic disease." Nothing seems to have changed from last scan. I do not think they use the term NED here.
The oncologist says that what does show up is possibly the aftermath of the plueurodesis. He wants to stay with Iressa as he belives that Tarceva has stronger side effects and as Iressa seems to work there is little point is changing for now.
Next appointment February. (Unless Barry feels unwell).
Best wishes
Jennie
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Super news. It lifts the spirits.
Jennie
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Fantastic!
Jennie
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From my reading and research this vaccine looks really promising, I only wish they would accelerate its progress as they are entering stage 3 trials next year and it will be a while until it's available.
I know in the States there is a pressure group that tries to bring forward promising drugs. I really wish they would do something with this because it does look good.
Jennie
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Know exactly what you mean. The anxiety between scans is I suppose the new normal. I try to think of is as a chronic illness so whatever comes up we will deal with it. But is it always on my mind.
Jennie
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We have lived in California and have visited New York Florida Mitichigan . Barry has visited numerous states on business and has spent a lot of time in North Carolina. We have also lived in Frankfurt.
Have been back in UK for almost five years.
Jennie
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It seems so unfair, she never got a break. I will miss her posts, her humour in spite of everything, was uplifting.
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hello and welcome
Please please try and persuade your mum to seek another opinion. Our first oncologist wrote my husband off. There are new treatments out there and they may work for you.
Jennie
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Here in the uk we pay approximately $8 a gallon.
Jennie
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Great news. You are not the only 'scan basket case'
I can relate completly.
Once again congratulations
Jennie
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Wishing you a speedy recovery. Barry had this procedure May 04 and has been fine since with no problems.
Jennie
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When Barry was diagnosed last Summer we were told to enjoy that summer while we could. We went to all the summer things that we enjoy and I kept thinking each time is this the last. Well we have had this summer as well and did the usual things again. So here is to next spring and summer for all of us.
Jennie
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Can I please ask a question? Barry continues to do very well on iressa but of course there is always the worry of the drug failing. Several members have said that in these circumstances alimta is the next option. However, I can't seem to recall anyone having real benefit from this drug. The side effects also seem problematic. Our onc says second line chemotherapy with Texotere would,in his opinion, have a significant chance of helping or perhaps a switch to tarceva. Does anyone have any ideas?
Jennie
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Dear Don and Lucie
Just returned from a brief holiday. I am thinking of you both.. Lucie is an inspiration and my thoughts and best wishes go out to you/
Jennie
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Jim
I have been following your progress and was so so disappointed to hear the news. There is an arsenal of treatments and you must find the right ones.
Best wishes
Jennie
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hello
Barry, my hushand, has been on iressa since December last year. So far so good. Little side effects except for a rash which comes and goes. We live in the UK and tarceva is now available but his doctor sees no reason at the moment to change a treatment that has so far been successful. This was backed up by a second opinion. At one of the leading cancer centres here they have had modest success in switching patients to tarceva if iressa fails.
Best wishes
Jennie
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We are thinking of you. You have a good doctor there and he still has ammunition to fight with
Jennie
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Thanks for keeping those of us in the uk up to date/
Jennie
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Dear Leslie
Stable is excellent. Think of this a cronic disease that needs to be kept in check. So long as it sits there and does not move then that is fine.
So far so good. I think the main indicator is how you feel and if you feel ok then you should try and enjoy life. I know that is sometimes easier said than done. Also as I try and tell myself the longer you can keep stable the more time this allows for new treatments to become available/
Love
Jennie
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Dear Fay
Like everyone I was very unhappy to learn that you were having to confront this awful disease again.
There are possibilities now that did now exist even a few years ago. There are new generations of egfr drugs being developed, and some vaccines (one in particular) look promising.
You are in the States which seems to be more aggressive in fighting this than in Europe.
Thinking of you
Jennie
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Thinking of you and hoping for the word improvement.
Jennie
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Hello
We felt as you do when Barry was first diagnosed. However we are still here and enjoying life.
There is hope and things are improving re drugs, treatments etc.
Best wishe
Jennie
Shrunk again!
in HOPE
Posted
We were told after surgery and chemo that 90% of tumor had gone. Barry then started Iressa (similar to Tarceva) and scans are stable. Perhaps Tarceva is an option.
Best wishes
Jennie