LUNGevityKristin
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About LUNGevityKristin
- Birthday 09/30/1980
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BarbSB2021 reacted to a post in a topic:
NEW AND LOOKING FOR INFO
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The webinar can be viewed here: https://www.facebook.com/lungevity/videos/768066160870003/
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Hi everyone! Be sure to join Dr. Upal Basu Roy and Dr. Christine Lovly tomorrow, May 24th at 12pm ET for a special LIVE Q&A during the EGFR Resisters & Researchers webinar. You can watch more information here: https://www.facebook.com/lungevity/videos/354509453442296/ Be sure to head to the LUNGevity Facebook page at 12pm ET 5/24 to get your EGFR questions answered by the experts. Please let me know if you have any questions or need additional information.
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Susan Cornett reacted to a comment on a blog entry:
LexieCat, Esquire Rests Her Case
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LouT reacted to a comment on a blog entry:
LexieCat, Esquire Rests Her Case
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Tom Galli reacted to a comment on a blog entry:
LexieCat, Esquire Rests Her Case
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LexieCat, Esquire Rests Her Case
LUNGevityKristin commented on Tom Galli's blog entry in Stay The Course
A beautiful tribute to Teri. She will be so missed. -
Hello I’m new to this group. I’d like to know what people’s experiences have been with immunotherapy overtime to treat renal cell kidney cancer metastasized to the lungs. My condition is IMDC 2 points the mass I have is 1 cm current time. Cancerous kidney was removed in June and appears while it has not metastasized to the lymph nodes etc. and had all clean margins some cells probably escaped in blood stream and lodged in the lung.
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Hi Justin, I'm not sure why they wouldn't want to wait for biomarker testing results before starting treatment. If you have an actionable biomarker, that could mean a completely different treatment plan. Did they say when they expect the biomarker testing results to be back?
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Hello to everyone , my name is Irasema and I live in México. I have had this cancer for over 12 years now. It began as a breast cancer and after the years it became a lung cancer. I've been into many different kinds of treatments, but right now my biggest nightmare is I feel incredibly exhausted , and I mean physically. I can barely stand up to visit the bathroom. I won't even tell you about all I've been through but I would like to know if someone went through such an experience, and if there is something that helped regarding this terrible scenario. I just have no energy , I wonder if this is related to medication, to the illness itself or something else is going on. I will happily read your comments , thank you for your support.
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LUNGevityKristin reacted to a post in a topic:
My updates (22 Years old, NSCLC)
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LUNGevityKristin reacted to a post in a topic:
Durvalumab
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Hi Justin, I'm sorry to hear about your diagnosis but happy you found this wonderful community. Here is some information on navigating your diagnosis: https://www.lungevity.org/for-patients-caregivers/navigating-your-diagnosis Have you had biomarker testing?
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Great update!!!
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LUNGevityKristin reacted to a post in a topic:
NEW AND LOOKING FOR INFO
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Hi D iane, sending you a big hug. I agree with what LexiCat mentioned above. You are always welcome here. Your experience as a caregiver is so valuable to caregivers now. We do have a LUNGevity Legacy Facebook Group for those whose loved ones have passed away from lung cancer: https://www.facebook.com/groups/51580140634/permalink/10165124375825635/ And if you would like to advocate for lung cancer, there are many different ways you can get involved: https://lungevity.org/for-supporters-advocates Keeping you in my thoughts.
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Hi
Can "MET" be included in the "LUNG CANCER MUTATIONS" sub section? There are targetable treatments coming out for exxon14, amplification, skipping, etc. I have this mutation (i.e. MET amplification) and want to know if and when the FDA might approve one of the drugs that has been approved for the MET exxon or skipping mutation.
Here is a link that substantiates my assertion: https://www.nejm.org/doi/full/10.1056/NEJMoa2002787
thank you
Jack Washburn
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LUNGevity Action Network: A new way for lung cancer advocates to engage. https://lungevity.org/for-supporters-advocates/lungevity-action-network Our community needs to unite to bring about change for people affected by lung cancer. Now advocates can join the new LUNGevity Action Network to take action. Get involved and make a difference! Through the Action Network, you will be equipped with the training, tools, and resources you need to amplify your voice and your impact. Whether you are interested in policy, raising awareness, or both, everything you need to be a successful advocate will be accessible, easy-to-use, and delivered right to your inbox! There is so much you can accomplish by signing up for the LUNGevity Action Network. POLICY Make your voice heard on the issues that affect the lung cancer community. Learn about important issues Sign petitions Complete surveys Comment on regulations and write your legislators AWARENESS Help educate, engage, and empower your community. Create and share social media posts Share your story via blog, at local events, and/or with local media Distribute educational materials at your local hospital, clinical, or support group Exhibit at local events (i.e. health and resource fairs, expos, conferences) It's always your choice whether to take the action; but the more you do, the greater your impact and the more you'll see how powerful your voice can be when combined with others like you. Questions? Reach out to action@lungevity.org.
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I’m so sorry your Mum feels so sick. I’m not a medical professional but you could ask one about Metoclopromide. It’s just a suggestion as I know it’s what helped me with terrible nausea caused by a brain tumor. I don’t know whether it could help your mum but it did help me greatly. My prayers are with you
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Bumping this up! Any thoughts or insight would be appreciated!
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Biomarker testing results can take up to 4 weeks or longer for the provider and patient to receive. Ideally, treatment should not begin until you receive ALL biomarker testing results so that your doctor has a complete picture of your lung cancer, and can together develop the most appropriate care/treatment plan. However, for some people experiencing severe symptoms, starting treatment immediately may be necessary. LUNGevity would like to know about your experience waiting for your complete comprehensive biomarker testing results. What was that like? How long did you wait? What did your doctor tell you while you were waiting? Did you start on a treatment while you were waiting?
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6 Hacks to Get the MOST Money for Your Fundraiser!
LUNGevityKristin commented on Heather_LLwLC's blog entry in Heather Smith
That is amazing, Heather! LUNGevity has two big fundraisers coming up in October. One is the Breathe Deep Together 5K and the other is eRace Lung Cancer Endurance Challenge-this can even be done as a relay! If anyone would like to participate or encourage family and friends to join, all of the information can be found here:https://lungevity.org/for-supporters-advocates/support-our-work
