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LUNGevityKristin

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LUNGevityKristin last won the day on January 7

LUNGevityKristin had the most liked content!

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About LUNGevityKristin

  • Birthday 09/30/1980

Profile Information

  • City
    Chicago
  • US State (if applicable)
    ILLINOIS
  • Country
    United States
  • Gender
    Female
  • Status
    Not a patient

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LUNGevityKristin's Achievements

  1. Hi Ant, Lung cancer and diagnosing lung cancer can be very overwhelming. I just wanted to share Lung Cancer 101 with you. It is filled with information that might be helpful to you. https://lungevity.org/for-patients-caregivers/lung-cancer-101 Please keep us updated. Thinking of you and your dad!
  2. I'm so sorry for your loss, Judy. Big hugs.
  3. SURVEY FOR CAREGIVERS https://lungevity.az1.qualtrics.com/jfe/form/SV_3z2UhImGD3OFNNI Caregivers, we need to hear your opinions as we work to expand resources. Please take a few minutes to complete this survey. Thank you!
  4. I'm so sorry you are worried, Nanny. Hopefully there are other, non cancer related reasons for the pain and whoosing you are experiencing but it is a good thing they are being proactive and trying to rule everything out. Please keep us updated!
  5. Do you know if you had biomarker testing done? If there is a recurrence, that can determine what treatment options are available to you. If they still have the sample but didn't send it out for testing, they might still be able to do that now. Here is information about biomarker testing: https://lungevity.org/noonemissed Here are different treatment options: https://lungevity.org/for-patients-caregivers/lung-cancer-101/treatment-options-for-lung-cancer
  6. I'm so sorry to hear about your dad's diagnosis. First, I want to share Lung Cancer 101 with you so you can see the steps to a lung cancer diagnosis. It can take a little while from the time a mass is spotted until an actual confirmation diagnsosis: https://lungevity.org/for-patients-caregivers/lung-cancer-101 It is good to be proactive and an advocate, but sometimes it does take a little time for the lab results to come back. Do you have a nurse navigator or someone you can check in with and will keep you updated?
  7. LUNGevity has many resources for someone thinking about a clinical trial. You can speak with a Clinical Trial Navigator, get matched with a Clinical Trial Ambassador (someone who has been through the process themselves) and more. Here is where to get started: https://lungevity.org/for-patients-caregivers/lung-cancer-101/treatment-options/clinical-trials
  8. You don’t need to take on caregiving alone. Find guidance, hope, and community at COPE Summit. This virtual conference gathers caregivers from across the country to give them the tools to better manage and navigate their loved one’s care while learning about self-care and the caregiving community. Sessions will include panel discussions moderated by oncology navigators, peer-to-peer Q&As, and expert-led sessions on topics important to caregiving: Creating your caregiving plan Balancing caregiving and work Avoiding caregiver burnout And so much more! This event, geared toward both new and experienced caregivers, offers unique opportunities to: Connect with others who share common experiences through networking and meetups Share your caregiving story and hear from others Build your community of fellow caregivers The COPE Summit is free to attend, but advance registration is required. Caregivers are encouraged to attend some sessions alone, giving them the opportunity to be open without the burden of being “brave” for their loved ones. For more information or to register, visit https://lungevity.org/cope
  9. This virtual conference gathers caregivers from across the country to give them the tools to better manage and navigate their loved one’s care while learning about self-care and the caregiving community. Sessions will include panel discussions moderated by oncology navigators, peer-to-peer Q&As, and expert-led sessions on topics important to caregiving: Creating your caregiving plan Balancing caregiving and work Avoiding caregiver burnout And so much more! This event, geared toward both new and experienced caregivers, offers unique opportunities to: Connect with others who share common experiences through networking and meetups Share your caregiving story and hear from others Build your community of fellow caregivers The COPE Summit is free to attend, but advance registration is required. Caregivers are encouraged to attend some sessions alone, giving them the opportunity to be open without the burden of being “brave” for their loved ones. For more information or to register, visit https://lungevity.org/cope
  10. Hi Stephanie. I'm sorry to hear of your mother's diagnosis. We actually have a virtual conference coming up next month just for caregivers. Here is the link to get your complimentary tickets to the event. https://lungevity.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=971 If you have any questions, please let me know.
  11. Happy HOPE Summit Day!!! If you are taking any pictures or sharing any conference takeaways on social media, please use the hashtag #lungHOPE21 Let's flood the internet with HOPE! ❤️
  12. Hi D iane, sending you a big hug. I agree with what LexiCat mentioned above. You are always welcome here. Your experience as a caregiver is so valuable to caregivers now. We do have a LUNGevity Legacy Facebook Group for those whose loved ones have passed away from lung cancer: https://www.facebook.com/groups/51580140634/permalink/10165124375825635/ And if you would like to advocate for lung cancer, there are many different ways you can get involved: https://lungevity.org/for-supporters-advocates Keeping you in my thoughts.
  13. Hi Iris, I'm so sorry to hear this news. Can you tell us a little about your lung cancer? Have you had biomarker testing? What type of treatment did you have? Keeping you in my thoughts. We are here to support you.
  14. Welcome, Delia! I grew up playing the cello and recently got it back from my parents' basement. I am looking forward to getting it fixed up to start playing again. Playing an instrument is great therapy for sure! Thank you for joining us!
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