Jump to content

LUNGevityKristin

Administrators
  • Content Count

    366
  • Joined

  • Last visited

  • Days Won

    6

Reputation Activity

  1. Like
    LUNGevityKristin got a reaction from Tom Galli in First Time Out   
    Glad you were able to get some fresh air, Tom!  Being outside in the sunshine is an attitude changer for sure!
     
    Look forward to seeing you on Zoom tomorrow, Tom!
  2. Like
    LUNGevityKristin got a reaction from Scruboak in What is NEUROENDOCRINE?   
    Definitely!  It should be finished by the end of the day.
  3. Like
    LUNGevityKristin got a reaction from G.A.M. in What is NEUROENDOCRINE?   
    Definitely!  It should be finished by the end of the day.
  4. Thanks
    LUNGevityKristin got a reaction from G.A.M. in What is NEUROENDOCRINE?   
    We are working on getting the Large Cell forum up and running, I will send and update when it is ready to go!
  5. Thanks
    LUNGevityKristin got a reaction from TJM in What is NEUROENDOCRINE?   
    Definitely!  It should be finished by the end of the day.
  6. Thanks
    LUNGevityKristin got a reaction from BridgetO in What is NEUROENDOCRINE?   
    We are working on getting the Large Cell forum up and running, I will send and update when it is ready to go!
  7. Like
    LUNGevityKristin got a reaction from jack14 in Protective Masks   
    Thank you for all of this information!  How do they feel when you are wearing them?  Are they a good fit?  Okay to breathe in?
  8. Like
    LUNGevityKristin got a reaction from Scruboak in VATS Lobectomy today   
    I'm glad you are back home now, Suzan.  Did you have comprehensive biomarker testing?  Do you have any mutations?
  9. Like
    LUNGevityKristin got a reaction from jack14 in MET   
    Jack,
    Here is more information on clinical trials and a resource for a clinical trial navigator if you would like to talk with someone who has been through the process before. https://lungevity.org/for-patients-caregivers/lung-cancer-101/find-clinical-trial
  10. Like
    LUNGevityKristin got a reaction from Susan Cornett in Flower Delivery   
    This TMSG actually happened to me!  Our neighbors own a flower shop and all of their weddings and events have been cancelled.  Our neighbor packaged up all of her tulips and left a bouquet on each family's doorstep.  Over 50 houses received a flower delivery with a little note of hope attached.  


  11. Like
    LUNGevityKristin got a reaction from Tom Galli in Medal of Honor, Lung Cancer Patient Dies   
    Thank you for sharing this, Tom.  Such a sad story.
  12. Thanks
    LUNGevityKristin got a reaction from Deb W in Clinical Trial   
    Hi Deb,
    What phase is the trial in?  LUNGevity has a Clinical Trial peer mentoring program that might be helpful for you.  You can talk one on one with a person who has been through the steps of a clinical trial and get all of your questions answered.  https://lungevity.org/for-patients-caregivers/support-services/peer-to-peer-mentoring/clinical-trial-ambassadors
     
  13. Like
    LUNGevityKristin got a reaction from Rower Michelle in New FDA Approval for Met Exon skipping NSCLC   
    New Drug Approval Alert: FDA approves capmatinib (Tabrecta) for Met Exon 14 skipping NSCLC – a mutation seen in 3%-4% of #NSCLC. A companion diagnostic to identify these mutations has also been given the green light. The approval reinforces the need for more comprehensive biomarker testing to identify rare mutations and drive better outcomes.
    https://www.curetoday.com/articles/fda-approves-tabrecta-the-first-targeted-drug-for-patients-with-nonsmall-cell-lung-cancer-and-met-exon-14?fbclid=IwAR0p68saohJq8-94b4-4HXb4_DCbB-Yio8oRM8yxFX0HZ4BLzS2eSa_viYI
  14. Like
    LUNGevityKristin got a reaction from Blossomsmom in And then she was gone   
    I'm so sorry.  I'm glad you were able to be by her side.  Big hugs.
  15. Like
    LUNGevityKristin got a reaction from Mally in Mally   
    I'm so sorry, Mally.  Can you get a second opinion or talk to someone else about your concerns?
  16. Thanks
    LUNGevityKristin got a reaction from Rower Michelle in Stable!   
    Great news, Michelle!!!!
  17. Thanks
    LUNGevityKristin got a reaction from Deb W in Update - It's back   
    I'm so sorry to hear this, Deb.  Please let us know the biomarker results and what route you decide to go.  Thinking of you!
  18. Like
    LUNGevityKristin got a reaction from BridgetO in Waiting.....   
    Did you have biomarker testing done to see if you have any mutations?  Biomarker testing can drastically change your treatment plan.  NSCLC can be treated like a chronic condition.  Please don't give up hope, we are here to support you.
  19. Like
    LUNGevityKristin got a reaction from Susanrae in Stage IV NSCLC   
    I'm so glad you have a plan in place and a great team of doctors supporting you!  Please keep us updated on how you are feeling during treatment.  
  20. Like
    LUNGevityKristin reacted to Rower Michelle in Stable!   
    To all my Lungevity Family, 
    Thank you for the continued prayers and support!  We are very blessed with another round of stable scans.  The oncologist said he was very pleased with the results thus far after 18 months on targeted therapy.   We're going to start spacing out the scans to about every 4 months.   I've got labs again in two months to reassess.  I wish I could say I'm breathing a sigh of relief, but you guys know how it goes.  Takes a while to come back down from the scanziety.   It's going to be a glorious summer!  
    Michelle 
  21. Like
    LUNGevityKristin reacted to Tbaker in Waiting.....   
    Biomarkers are being done by the oncologist. I see him next week. 
  22. Like
    LUNGevityKristin got a reaction from G.A.M. in All ahead, full throttle.   
    Hi Glenn, glad things are starting to happen to get treatment going.  I'm sorry your wife can't come in with you.  Hopefully as curves start to flatten the hospital will be able to ease up on restrictions in the coming weeks.  Please keep us updated on your heart procedure.  Fingers crossed for just the stent!
  23. Like
    LUNGevityKristin got a reaction from Tom Galli in All ahead, full throttle.   
    Hi Glenn, glad things are starting to happen to get treatment going.  I'm sorry your wife can't come in with you.  Hopefully as curves start to flatten the hospital will be able to ease up on restrictions in the coming weeks.  Please keep us updated on your heart procedure.  Fingers crossed for just the stent!
  24. Like
    LUNGevityKristin got a reaction from Tom Galli in Surgery back on the table   
    That is fantastic news!!!  Please keep us update on what you find out!
  25. Like
    LUNGevityKristin got a reaction from Tom Galli in Story coming to an end   
    How wonderful that your mom got to witness all of those milestones and that you have the memories of sharing them with her.  No matter how long a person has lived, it's always hard to say goodbye.  Please lean on us as much as you need to in the coming days.  Thinking of your family.
×
×
  • Create New...