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Sillycat1957

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Posts posted by Sillycat1957

  1. Hi Bob,

    Glad to see your update on treatment plans. First off I am no Dr. I only share my experience with these drugs we get put on. My first line of treat was an aggressive mix of Cisplatin/Etoposide mix, the Cisplatin is also a cytoxix chemo drug, like Gemcitabine, it knocked the hell out of me as far as being fatigued and nauseous for the first week, I helped that by taking Zofran and eating my meals like 4 to 5 times a day, freakin pain in the butt yep, but at least it stopped the pukie feeling, and if I was tired oh well nite nite lol!  My daughter says Chemo gave me narcoplepsy 🤣 There was a point when my Onc was going to switch me to Carboplatin instead of Cisplatin since it's milder, my ears were starting to be affected but I wanted to stay with my original cocktail. That has since resolved on it's own Yay! Oh, and yeah, I have hand and feet tingling which I have an ongoing debate with my Oncologist is it from Chemotherpy or the Durvalumab, which BTW I have more side effects from than the concurrent chemo/radiation go figure! I wish you the best as you move forward in your new line of treatment, for me every time I sat in my chair getting an infusion of Cisplatin, knowing how powerful it was, I let my mind put it to work for my body "Saying now seek and destroy" I know I'm a  weirdo! but it got me thru, whatever gets us thru our dark places, and every radiation treatment "I sang I'm walking on Sunshine" even tho I was laying on a table lol! So as I said I wish you well, keep fighting the fight 😃

     

  2. Hi all! both those beers sound gross! Sorry, I haven't drank in over 21 years, I can't, 1 is too many and 1,000 is not enough! Lol! I have another disease 😫 oh well, but y'all go ahead and enjoy. Even if I was a drinker I'd have to say no to flavored beer ugh!

    I had infusion #6 this week, blood work ok, nothing new in the aches and pains department. So all's good here 👍. Oncologist fixin me up for a PET scan waiting for radiology to call with appointment. Also I have my appointment on Monday with my PCP he keeps a close eye on my overall health. Any concerns I have he gets them looked at. Neurologist end of month also.

    Enjoy the weekend, keep fighting the fight 

  3. Michelle,

    Thank you for attending  and being a "lurker" lol Bringing back that info to share with us Durva people is awesome news. I hope you had chance to let the Dr see your positive light 😃

    I can't wait to read the outcome of the study! I read an article that was sent to me back in August, before I started Durvalumab about immunotherapy and the gut microbiome and over the counter probiotics. Your right about the good being bad some things just don't make sense sometimes I reckon.

    Thanks again for the update, have a good night 😃

  4. 6 hours ago, RonH said:

    Just wanted to update everyone on my transition from "Immunotherapy" with Durvalumab to "Targeted Therapy" with Alectivnib. 

    Well welcome back "the itches". Just like after the first weeks on Durvalumab, after 9 days on Alectivnib, the itching has returned in earnest. However so far, no actual rash, and the itching is primarily on my legs and arms. One of the other mentioned possible side effects is "weight gain". I can see why, I now seem hungry all the time now. Luckily, in a perverse way, since my sense of taste went away during immunotherapy along with developing a dry mouth, nothing really seems to have any taste to it and forget eating anything dry or spicy, so that holds me back from eating ALL the time. Forget cake, cookies and potato chips, I can't even get them past my mouth (although Ice Crème still works😋).

    The above I can handle (I call it will power but others call it just being stubborn), but I am more concerned with the developing Bradycardia.  Having had a heart attack years ago, my Cardiologist has had me on a beta blocker (Metoprolol Tartrate), which slows down the heart rate, I am also in chronic A-Fib with an irregular heartbeat, I now have Hypothyroidism (curtesy of the Durvalumab) which can slow the heart rate, and now the Alectivnib, which also can also slow the heart rate down. For the past few days, seated at rest, my heart rate has slowed from my normal seated at rest of 75 to 85bpm down to 60 to 70bpm, sometimes dipping into the low 50's. Wednesday night while checking my pulse rate on both my O2 Pulse Oximeter as well as my BP Monitor and seeing it dropping into the low 50's the following quote kept coming to mind; "This is the big one! You hear that, Elizabeth? I'm coming to join ya, honey!" (If you know the show that this is from, you're showing your age! 😉 My BP was running just a little low as well, but my BP monitor only alarmed once so I just put on my CPAP and went to sleep. I was both somewhat surprised and pleased to find myself still here the next morning and was for once actually happy to have to get out of bed to go pee. 😂 Heart rate was mid to upper 60's in the morning.

    My Onc advised me to keep an eye on it and let them know if my pulse rate stays under 60. About that time I decided it was time to consult with my Cardiologist who immediately had me reduce my dose of Metoprolol by 50%. This has seemed to keep it above 60, but only slightly. 

    Don't know if I am looking forward to my bloodwork next Tuesday out of fear that my AST/ALT readings may have shot up just like they did initially on Durvalumab, and my treatments will be suspended. Elevated AST/ALT readings are also a potential side effect of Alectivinib as are muscle pains, tenderness, weakness, fatigue, constipation, nausea and shortness of breath. Boy these various treatments sure share some similar potential side effects!

    Have a great weekend all.

    Hi Ron. I remember Elizabeth well lol! I hope the side effects are just your body adjusting to the new medicine. But there are other drugs for ALK+ people too, that may be better for you right? Good luck and God Bless!

    Keep kickin' cancers *ss 😃 and have a nice weekend

     

  5. 9 hours ago, Charles said:

    Sillycat,

    I had the same pains around the same time you are and the pain did not go away until I was put on cortico's at 20 mg per day for several days, I believe 3 days and the pain was gone and I stopped taking the roids on my own before 4 days so I didn't have to taper down and still continued treatments. 5mg of cortico's wouldn't have been enough to stop the pain in my side (underarm) or 10 mg for that matter. Chest pains are potentially dangerous side effects to this drug and they should be taking you a little more seriously when you tell them these things other than saying "could be this" or "could be that" or "we don't know". It is THEIR job to find out if it is the Durva that is causing your pain by applying corticosteroids to see if the pain stops. Sounds like you are in a precarious situation with over the counter pain medications since Tylenol and Ibuprophen really helped a lot for me on pain and inflammation. I am surprised your onc didnt delay your treatments for at least a week until they knew more about your pains or at least prescribe a higher dosage of corticos. So sorry you are in pain, I have just recently jumped on the cbd oil wagon, I read it can help with pain too but it can be expensive....

    Good to hear from you Charles! and thank you ! I did have a 2 week break from treatment and pretty much all of my pain went away, so yes it is from the Durva 😃 however, a lot of my chest pain is stress related as I am dealing with a lot of personal and financial issues along with this nasty cancer beast =( but I have a pill for that too haha! I just have to pick my battles with care these days.  Actually, today I see my counselor and physically I really feel not bad 😃 so I'm hoping for a good day!

    I have heard some good things about the CBD oils, I'm a light weight, everything pretty much knocks me flat out hahaha! My Neurologist has told me NO! to both Medicinal Marijuana and CBD oil on my last visit in June. I have Petit Mal seizures sometimes lasting up to 5 minutes and he said he doesn't want me wandering around high as a kite in a fog looking for a cookie that isn't there lol!   So for now I think I will try more meditation to help with the stress, keep close to the members of my family that are positive and relax and breathe 😃

  6. Hi all!

    I had my 5th Durvalumab infusion yesterday. Straight up 😃 Blood work first, all ok. Seen APRN this visit, Oncololgist next visit. Still have Oxycodone 5g for pain if needed, I take one tablet before bedtime, I'm also still taking one 5mg prednisone daily for my muscle and joint pain. I still have the middle back pain along with the shoulder chest and underarm pain. I asked again why? APRN and Oncologist both do not know why, they feel it could still be from radiation Good grief man! Does it ever go away I asked, she said it takes a long time, last zapping was 7/1/19. I am allergic to Tylenol and dr doesn't want me taking NSAIDS, because of my epilepsy medicines that take a toll on my kidneys and liver, bleah! Funny thing is the steroid helps with the pain better than the pain med lol!  Otherwise I have no new side effects to report from my last infusion til now Yay! 

    Barb: I'm glad you are getting a break, hoping it will help resolve some of your issues, you are always in my thoughts and prayers 😃

    Take care all my Durva pals have a great evening 😃

     

  7. Hi RonH,

    Your like Kleo, you posts make me smile 🤣 You can be a Werewolf for Halloween haha! My Pulmonologist ordered my Biomarker Test when I had my Lung biopsy done after my PET/CT Before any of my treatment began and before I even seen my current Oncologists. So in a sense he directed my care to the surgeon who then did his thing, explained that if my Lymph node was involved I wouldn't be able to have surgery. Then I went on to the 2 Oncologists. My report says I am KRAS Positive an exclusive membership too! and my PDL1 is 90% High Expression so I really hope that the Durva works, I did ask my dr about me being Kras+ and the Durva working and she tells me not to worry, easy for her to say, she doesn't have a committee in her head that runs amok like I do! She will be doing a PET/CT scan in February. I want a regular scan done sooner but she feels it will only show inflammation, but will do one if I push for one, Bleep me I say! 

    I hope your new meds did not turn you into Wolfman Jack! (not sure if you are old enough too know who he is) God Bless and prayers for a good long run on Alectinib

    Take care, Roseann

  8. 1 hour ago, Kleo said:

    Hi Roseann….

    Yeah they've made durva an approved standard now for the lung cancer treatment. There are other immunos out there….the problem is, they aren't all approved for this treatment. I had to get my lung cancer in my brain to be allowed this immuno I'm on now. Who wants to do that!!? blehk. 😣 My onc thinks that my steroid dosage cancelled out the Durva. She still believes the durva worked up until I got the big doses of steroids at the ER. 

    Durva ups your immune system, steroids tamp it down. So...in her opinion anyway...it was a wash. Can't remember exactly how many Durva I had...I'd have to go back and look. It wasn't many …. off and on a lot though.  

    And...I have NO PDL1 at all. Doc says Durva still works regardless of PDL expression. I say it won't work on me without the PDL1.

    But my doc has banned me from practicing medicine now anyway...LOL

    Your too funny lol! Your posts always bring a smile to my face. I'm sorry you can no longer practice medicine, you were on to something there, didn't your doctor realize that lol! Have a peaceful evening 😃 Roseann

  9. Kleo,

    I read all your posts before starting Durva, I getting #5 on this coming Monday. I am on a low dose 5mg steroid because of the stupid muscle and joint stuff ugh! I have had the middle back pain before Durva, CT scan didn't show anything so that's a mystery pain. I do however, have the shoulder and arm pain not as severe as yours was, but my oncologist seems to think it is from the Durvalumab but because it is intermittent not to worry 😬 another ugh! I really am not comfortable with Durva, but like my onc said there is nothing else out there for stage llla people and this is my best shot at curing my cancer now. I just hope I don't have a case of "bursitis" like you did! 

    I hope you have a great run with the Tecentriq/Avastin combo! Take care of yourself

    Roseann

  10. Hi all,

    I had my 4th Durvalumab infusion on Monday 10/7. The 5mg steroid seems to have helped with my niggling side effects except for my foot pain. The fatigue is unbelievable, I hope this soon improves, as this, for me anyway, seems to be the top complaint right now. But hey, I'll take it, all my labs are good. I just have to increase my daily walking to at least 30 minutes a day my oncologist said that will help with the fatigue. Well, I can try LOL! I can barely move ova here, but I can do it 💤 

    Ron wishing you a long successful run with Alecensa! 

    Fighting the fight, One day at a time 😃

    Roseann

     

  11. Barb,

    Here's a little bouquet of flowers to help you feel a bit better💐.

    So sorry about your trip to the ER, hopefully the pleuritis will resolve on it's own quickly and you feel better soon, sending prayers your way!

    Keep fighting the fight

    Roseann

  12. On 10/2/2019 at 3:46 PM, RonH said:

    Just another quick update on life after Durvalumab:

    My Onc called today saying that he received my Biomarker test results (EGFR) and that I had tested positive for the EML4-ALK gene mutation. I guess I have officially joined the ranks of the "Mutants" out there. The Onc said that they have had good results on PFS (Progression Free Survival) with a TKI called "Alecensa" (Alectiinib). I still have my Bronchoscope/EBUS tomorrow morning to biopsy a small indication on a lymph node that didn't show up on the PET scan last year, but showed with a very slight uptake this year. If it comes back benign, then a decision has to be made, SBRT on the one tumor in my right upper lobe or to start the targeted therapy. I guess the SBRT has around a 80% success rate, however the Rad Onc's are concerned as that location was already treated with radiation last year during the initial CRT. From my readings it is rare for them to treat the same location twice and UCLA says that they only do it in very select cases. (???). Of course, even if the SBRT is completely successful, there is no guarantee that I don't have some cancer cells floating around looking for a home. The other option is the Targeted Therapy which the ONC says shows good PFS, but is not considered a cure, however it does seem to help prevent/reduce metastasis to the brain. He also says that it also has some pretty significant adverse effects on some people. (Nothing like reading that that 2.8% of the people in the trials had an AE of death - yes I would say that was pretty adverse).

    I guess after  tomorrow I may have several options to consider over the next week. Of course yesterday I spent several hours with the Radiation Techs being fitted for the body restraint and breathing control belt for the SBRT and having 4 CTs done with and without the belt. I didn't much care for that breathing control belt as it felt like someone sitting on your chest/stomach restricting your breathing. I do understand the reason for it to limit the movement of your lungs (and therefore the tumor) during treatment but it was rather unpleasant.  Tentatively I start the SBRT (subject to change) the week of the 14th, for 5 consecutive days. If the lymph node is malignant, the SBRT is out and I'll go straight to the Targeted Therapy (pills twice a day, with apparently extremely expensive pills) the week after.

    I hope be able to get my full biomarker test results from the Onc before too long, but he felt the news about the positive EML4-ALK results was important  enough to call me about and the only result that really mattered for me. Not to mention that when the call came in, I was standing in a middle of a cemetery having just attended a funeral and it was not the most conducive location to be able to question the Onc in detail. No, I do not know what my PDL1 Expression is yet, but as Michelle noted earlier, "“Mutants” don’t respond to Immunotherapy even if there is a high PDL-1 (no one knows why)." so that explains why I am no longer on Durvalumab after 10 months and 18 infusions. I sure wish that all the Oncs would do the biomarker testing UPFRONT).

    Thanks All - I guess I will go do some reading on the above.

    -Ron

    Hi Ron, being a mutant sucks! I was lucky my testing was done from my Lung biopsy tumor. Not sure if you visit this forum but I belong to this one as well, called Inspire.com there are a lot of communities on there that you can drill down to what you need. I read a lot of info from lung cancer patients like us with all these crazy different types of mutations. Sending prayers your way

    Keep fighting the fight, Roseann

  13. Hi fellow Durvals,

    Michelle, I have the same weight gain my onc says it's a combo of feeling better after chemo/rad and the Durva like Kleo said! I started 8/12/19 with a weight of 128 I'm 137 as of 9/23/19. I, too, am not a person who puts on weight easily.

    Barb, I took Wellbutrin for about a year takes a couple of weeks to feel a difference, about a good 4-6 weeks to reap the benefits good med. I had to stop it did aggravate my epilepsy. I have the same issue with my feet, although not now it's my toes and pain in the balls of my feet ugh! I take a 5mg steroid daily which helped with my other side effects so far. I see my oncologist tomorrow, and go for my 4th infusion on Monday if all my labs are good. I just have slight chest and stomach pain now? I had to skip one treatment because of nasty side effects

    I never got this Goody bag! I think Robert Macaulay got one because he was the first person in his area to get Durvalumab! All I got were side effects! LOL!!!

    Keep fighting the fight!

    Roseann

     

  14. 21 hours ago, DFK said:

    Roseann-Link did not work for me.

    Hope you took a break from Dr. Google and freed your mind for mindless trivialities like Saturday Night Live with Billie Eilish...LOL🤪

    Take Care, DFK

    Sorry the link didn't work, but Michelle pretty much explains it in an earlier post. I read it on Inspire.com It was posted in the immunotherapy community I think, went back to find it and I couldn't. However, I certainly shut my mind down, for quite some time, did some walking, a little gardening, listened to some much needed music to soothe my soul I'm okay for today. Hope you are as well 😊 I missed SNL, Roseann

  15. 53 minutes ago, Rower Michelle said:

    Hi Rosann & DFK

    I have the ALK driver mutation and maybe I can she some light from mutant land pertaining biomarkers, TKI & Immunotherapy

    The “standard biomarker panel” consists of EGFR, ALK, ROS1 & a PDL-1 percentage. There’s quite a controversy as to when the standard panel is done if the cancer is Stage III or above where the goal of treatment is with curative intent  

    Payment for biomarker testing is Sometimes driven by the health insurance medical necessity guidelines to only pay  at Stage IV.  In an ideal world everyone with adenocarcinoma should be tested for a driver mutation  but it’s expensive (close to $6k).  

    The “standard panel” is considered insufficient for treatment planning purposes since there are many other driver mutations. The gold standard is called (get ready) comprehensive biomarker, a full panel, molecular testing, next generation sequencing, or oncogene testing  (whew).  All means the same thing.   While there are a few companies in the US who perform this analysis, most physicians use Foundation One in Boston.

    Another reason for comprehensive testing is greater sensitivity, there are two ALK tests. The standard panel can turn up indeterminate.  It’s important to know which ALK test was completed. 

    TKI are inhibitors in pill form used to put the brakes on a mutation. Durva and Keytruda are classified as a immunotherapy which is a “targeted “therapy for those with a high PDL-1 percentage.  In other words there are two types of targeted therapies: TKIs and Immunotherapy. 

    TKIs and Immunotherapy in some cases do not mix (pneumonitis).  This is true for the ALK inhibitors.    “Mutants” don’t respond to Immunotherapy even if there is a high PDL-1 (no one knows why).  I don’t think this is anything you have to worry about now.

    All this stuff is very complicated, research is emerging so quickly anything more than six months old is already out of date.  Dr Google is not our friend.   

    A great resource is the Lung Cancer Living Room on YouTube by the GO2 Foundation. Last week the key presentation was on Immunotherapy.  Even though it’s two hours you might find it to be worth your time.

    Hope this helps to clarify some.

    Keep up the fight!

    Michelle

    Wowee! Thanks, for that it helps my feeble brain lol! my report does say it was sent for comprehensive testing, it is pages and pages long with an explanation of what type of test was performed. the % of mutation etc. I will have to check with my oncologist to be sure. I just get ahead of myself sometimes 🤔I will certainly watch the video on You Tube. I like to know how things work in my body, I feel that's a good thing.

    So, Michelle, again I thank you and I will keep fighting the fight one day at a time Roseann

     

     

     

     

     

  16. https://www.medscape.com/viewarticle

    Here is an interesting read on Tyrosine Kinase Inhibitor (TKI) I hope the link works. I was following a thread in another forum and someone had mentioned that if our Immunotherapy fails we should be careful when we start TKI therapy due to potential severe adverse yikes! Any thoughts on this? Ugh! I think I'll take my Xanax and try to go to sleep. I think I let Cancer win today 😱 Tomorrow will be better

    Goodnight all Roseann

  17. Hi DFK,

    Hope all is well, thanks for that info. My testing was done from a lung biopsy. I also had a lymph node light up on my PET/CT scan so maybe that prompts them to check for more mutations? Just a scratching my head and wondering kind of thought. Makes sense to me. But good grief I'm no doctor! Thank goodness I'm not driving that bus 🤣

    And yes DFK, my report says Keytruda for first or second line treatment. If Dr Google and I understand correctly, Keytruda is a TKI, which I haven't even had yet. That's something in my pocket in case the Durvalumab doesn't do what my Oncologist and myself and the help of my good Lord wants it to do for my nasty lil tumor who I call George, I will move on to Keytruda.

    My other markers are: BRAF Mutation=Neg,  ALK Gene=Neg,  ROS 1 Gene=Neg, EGFR =NEG, PDL1 90% High Expression

    KRAS extended snapshot results: Positive A KRAS mutation was detected in Exon 2, Codon 12

    So now, that I know, what I still am not sure, what I know 😜 I will continue to fight the fight! With my eyes as wide open has I can, and just keep praying for Gods will in my life. Because He can, I can't, and I'm gonna let Him!

    Sending Prayers and restful sleep to all my fellow Durva infusers!

    Take care Roseann

     

     

  18. Hello everyone,😩

    I have a question, I tested KRAS positive which according to my pathology report only 25% of people have this gene, so we must be special! Anyway I was curious if anyone here getting Durvalumab, with that particular mutation, has finished the 26 infusions progression free? Because from what I understand on my report there are not many treatment options, it lists Keytruda as my next option? Earlier Pre Durva I asked my Oncologist about Bio Markers and she told me not to worry ugh! My next appointment is 10/4 and I just want to know is this stuff gonna work? My PD-L-1 is 90% I don't want to risk scrambled eggs for inside, BTW the 5mg steroids seem to be helping a bit with my issues from last infusion Yay!

     Fighting the Fight 😸 Roseann

  19. Ron H

    So sorry, for the backward movements.... on the other hand, all of your results should come in together. Your Bio marker testing will have been have been completed. The lymph node/nodes will have been biopsied and hopefully a new treatment plan will be in place! We fight the fight! Thank you for your encouragement 😀

    Namaste Roseann

  20. Hello, I've been busy the last week! Thank goodness. My mind was really going dark. I think I have mentioned my Bipolar type l diagnosis along with my Epilepsy before? Well, I do take medication for both of these disabilities. However, since my Cancer diagnosis Stage lllA this past year my depression has kicked up a few notches! Ya think! And because of my stupid Epilepsy, which has been well controlled for 5 years now with medication, my selection of antidepressants are limited 😩 A little more history of myself to make this even more a kick in my patootie lol! I am also a recovering alcoholic sober since 01/06/1997 whoo hoo! I have lived a clean and sober life for over 22 years ate healthy did all the right and good things for my body. I managed all my disabilities on a daily basis with the help of my higher power whom I choose to call God, my kids, and some close friends and a few family members and a husband or 2 lol! And most importantly a positive attitude. Prayer and lots of Gratitude. You see the only thing that I could not do was stop smoking, well stay stopped I quit so many times but would always start up again. So I would pry "God please help me to stay stopped this time! I will do anything to not smoke anymore"

    BAM!!! Went for my annual physical, PCP sent me for a low dose CT Scan because of my smoking history, found a suspicious looking neoplasm thing, next Pulmonologist, PET/CTscan, MRI Brain, MRI clear, PET scan SUV 15.1 "WTF" 2.1cm and hilar node 1.2cm Metastatic right hilar lymph node. No other evidence of metastatic disease identified. Doc said Stage 1A at this point. Scheduled for VATS surgery RUL. Surgeon said if Lymph node is positive there will be no surgery. I woke up in recovery Lymph node was positive RATS Stage lllA on to line 1 of treatment:            34 zaps of daily radiation 2 rounds of chemotherapy Cisplatin/Etoposide was their drugs of choice I did fairly well, I never had any drugs in my system for years other than my seizure meds and low dose depression meds the occasional pain pill for whatever minor surgical procedure I had. I didn't lose my hair But shaved my head in anticipation I didn't want to be traumatized, what an a-hole move that was, my hair grows very slowly hehe!! The Cisplatin made me pretty danged nauseous but Zofran helped, I had no desire to eat either had to drink Ensure shakes so I could maintain weight, lost my taste buds. Mild espohogiitis, but got some magic mouthwash, I did have to start taking pain pills for that plus a stomach pill the radiation was messing with my inards ugh! I didn't like any of it, was in denial thru most of it, I was in close contact with my counselor, still am. I had a CT Scan almost 20 days after my last radiation tx and my tumor shrank to 1.2cm Yay! the node didn't show up on the scan? so now that brings me to where I am now.... 2nd line of treatment:

    Durvalumab I had my #3 infusion this past Monday 9/23 my onc is having me take a 5mg steroid daily to help with my side effects from my last 2 infusions so hopefully everything will just behave, Sorry for the long winded post, but I just wanted to let y'all know my history and I couldn't actually find a spot for it here, but hey I'm not shy. I did have my biomarker testing done when my biopsy was done, but that I will put in another post, because that in itself (the pathology report) is quite another animal, but one thing that did calm my nerves a bit is that my PD-L1  high expression is 90%

    Good nite all Roseann

     

     

     

  21. 3 hours ago, RonH said:

    Just a quick update. Had my most recent lung needle biopsy today, this time they went in through my back and into my right upper lobe, just to the left of my right shoulder blade. No real pain during or after except I did have a partial lung collapse. It however re-inflated by itself before the first x-ray an hour later, and then the second x-ray two hours after the first one confirmed and I was released. A long day, 7am check-in & 4:45pm check-out and I am beat. Results are due Wednesday afternoon. (They didn't bother to tell me not to drink liquids before the procedure so I had to wait for 4 hours in the morning)!

     

    Hey Ron H, I had my initial lung biopsy exactly like yours, but I had to have drugs, lots of them, I have Epilepsy and one of my triggers for seizures is high stressful situations and for me I had to be put in a very relaxed mode then out with that twilight stuff 😃 so I felt no pain once that hit. I was lucky no lung collapse. It was after when I went home that the pain hit! Dr called in a few pain meds, I was ok after a couple days. Sorry they didn't give you adequate pre-admission instructions sucks to have to just hang around and wait. I'll keep you in my prayers, so when you go for your results they are clean!

    Take care, Roseann

  22. Hi Tomm,

    Thanks for the welcome! I think I'm going to like it here 🥰 I have had no bio marker testing done at all, I don't think Medicare covers that? My Oncologist said that Durvalumab works no matter what type of mutations we have, and that the PDL-1 expression does not matter either. 

    Take care, Roseann

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