Sillycat1957

Hi Tomm, Thanks for the welcome! I think I'm going to like it here 🥰 I have had no bio marker testing done at all, I don't think Medicare covers that? My Oncologist said that Durvalumab works no matter what type of mutations we have, and that the PDL-1 expression does not matter either. Take care, Roseann

Hello all, I finally found this Forum, I too am a Durvalumab baby! I had my 1st infusion on 8/12/19, no problems other than a lot of fatigue, 2nd infusion 2 weeks later (on Mondays) by that Wednesday it seemed by body said no, nope, it started a whole slew of things nothing drastic but enough to halt my 3rd treatment by my oncologist here's a list of what my side effects were: Started out as pain in my left foot and right knee, slight cough with some blood in my phlegm, slight shortness of breath, muscle pain and pain in all my joints. Also chest pain at times a stabbing pain like someone was stabbing me with a knife! Well WTF! I never experienced any coughing with blood, or shortness breath no chest pain either, before my diagnosis. I have a history of arthritis, Epilepsy, migraines, and I have seen a chiropractor for the last 20 years monthly for my back issues and arthritis, because I didn't want to have surgery or take pain meds/drugs and it's always helped. So these new things are def. related to the durvalumab, most have subsided, my blood work is not bad, my oncologist says she will include a 5mg steroid with my infusion if I am cleared for treatment next week 9/28/19. Until then I will try my best to stay in the light and keep up the fight! Take care everyone! Roseann

Tom, I just read thru your entire blog (if that's what they are called) very interesting read. I found it interesting and moving, also there is some hope for me after all! Thank you for sharing your story 😀 Roseann