Sillycat1957
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Posts
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Sillycat1957 got a reaction from Opal in Durvalumab
Hello all!
Been awhile since I've posted here. Glad to hear all is well with you guys! Sheesh! I went straight to 6 month CT scans after I completed my durva ride. Now I'm waiting nervously for my yearly which isn't until December! My 3yr cancer ned was in May of this yr. My oncologist says I'm fine 🙃 righto! Lots of drama in my Life past 8 months started stupid smoking cigs again tried to stop with all the regular methods nothing is working for me. Oh well hells bells, I'll just keep trying! Congratulations to all and since summer is coming to an end I hope everyone had an enjoyable one!
Namaste Roseann
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Sillycat1957 got a reaction from Barb1260 in Durvalumab
Hello all!
Been awhile since I've posted here. Glad to hear all is well with you guys! Sheesh! I went straight to 6 month CT scans after I completed my durva ride. Now I'm waiting nervously for my yearly which isn't until December! My 3yr cancer ned was in May of this yr. My oncologist says I'm fine 🙃 righto! Lots of drama in my Life past 8 months started stupid smoking cigs again tried to stop with all the regular methods nothing is working for me. Oh well hells bells, I'll just keep trying! Congratulations to all and since summer is coming to an end I hope everyone had an enjoyable one!
Namaste Roseann
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Sillycat1957 got a reaction from Tom Galli in Durvalumab
Hello all!
Been awhile since I've posted here. Glad to hear all is well with you guys! Sheesh! I went straight to 6 month CT scans after I completed my durva ride. Now I'm waiting nervously for my yearly which isn't until December! My 3yr cancer ned was in May of this yr. My oncologist says I'm fine 🙃 righto! Lots of drama in my Life past 8 months started stupid smoking cigs again tried to stop with all the regular methods nothing is working for me. Oh well hells bells, I'll just keep trying! Congratulations to all and since summer is coming to an end I hope everyone had an enjoyable one!
Namaste Roseann
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Sillycat1957 got a reaction from RonH in Durvalumab
Hello all!
Been awhile since I've posted here. Glad to hear all is well with you guys! Sheesh! I went straight to 6 month CT scans after I completed my durva ride. Now I'm waiting nervously for my yearly which isn't until December! My 3yr cancer ned was in May of this yr. My oncologist says I'm fine 🙃 righto! Lots of drama in my Life past 8 months started stupid smoking cigs again tried to stop with all the regular methods nothing is working for me. Oh well hells bells, I'll just keep trying! Congratulations to all and since summer is coming to an end I hope everyone had an enjoyable one!
Namaste Roseann
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Sillycat1957 got a reaction from Tomm in Durvalumab
Happy New Year to all! Still kicking the rocks around, gratefully. Everything is stable, since last scan I had in December, except a small 7mm tumor (probably a cyst) the radiologist quoted, my oncologist said no worries, all's good 👍 hmmm. Sometimes I wonder. But hey, been ok so far. So I'll take it. Glad to see everyone is doing pretty ok too. We seem to all be staying ahead of the curves for now.
God Bless, stay safe,
Namaste 🙏 Roseann
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Sillycat1957 got a reaction from BridgetO in Durvalumab
Happy New Year to all! Still kicking the rocks around, gratefully. Everything is stable, since last scan I had in December, except a small 7mm tumor (probably a cyst) the radiologist quoted, my oncologist said no worries, all's good 👍 hmmm. Sometimes I wonder. But hey, been ok so far. So I'll take it. Glad to see everyone is doing pretty ok too. We seem to all be staying ahead of the curves for now.
God Bless, stay safe,
Namaste 🙏 Roseann
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Sillycat1957 got a reaction from Tom Galli in Durvalumab
Happy New Year to all! Still kicking the rocks around, gratefully. Everything is stable, since last scan I had in December, except a small 7mm tumor (probably a cyst) the radiologist quoted, my oncologist said no worries, all's good 👍 hmmm. Sometimes I wonder. But hey, been ok so far. So I'll take it. Glad to see everyone is doing pretty ok too. We seem to all be staying ahead of the curves for now.
God Bless, stay safe,
Namaste 🙏 Roseann
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Sillycat1957 got a reaction from Opal in Durvalumab
Happy New Year to all! Still kicking the rocks around, gratefully. Everything is stable, since last scan I had in December, except a small 7mm tumor (probably a cyst) the radiologist quoted, my oncologist said no worries, all's good 👍 hmmm. Sometimes I wonder. But hey, been ok so far. So I'll take it. Glad to see everyone is doing pretty ok too. We seem to all be staying ahead of the curves for now.
God Bless, stay safe,
Namaste 🙏 Roseann
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Sillycat1957 got a reaction from RonH in Durvalumab
Happy New Year to all! Still kicking the rocks around, gratefully. Everything is stable, since last scan I had in December, except a small 7mm tumor (probably a cyst) the radiologist quoted, my oncologist said no worries, all's good 👍 hmmm. Sometimes I wonder. But hey, been ok so far. So I'll take it. Glad to see everyone is doing pretty ok too. We seem to all be staying ahead of the curves for now.
God Bless, stay safe,
Namaste 🙏 Roseann
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Sillycat1957 reacted to Tomm in Durvalumab
Hello All...
I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions. How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L. Get your Pd-L1 checked too.
I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and lucky me after that I got to take Durva. I have been in remission for 3 years now.
I want people to know there is hope and Durva does work for many.
Stay safe.
old joke ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab
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Sillycat1957 got a reaction from Rower Michelle in Durvalumab
Hey Michelle, getting to be that time of year again 🍂 nice to be in your thoughts, I just got some emails from Land's End with the new Fall promos 😉
Hey Barb, hope all's well with you too 😁
Life goes on, for that I'm grateful 💜
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Sillycat1957 reacted to Rower Michelle in Durvalumab
Hey Roseann- was thinking about you when the Lands End Fall catalog arrived the other day. 40% off, time to start shopping!
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Sillycat1957 got a reaction from Tomm in Durvalumab
Congratulations Tomm! I'm still here and kicking life around! One year after Durva. Last scan was in May, tumor still at 8mm so, yay! I come on here once in awhile to see what's happening, usually not much. Fall is just around the corner. It's great to be alive!
Namaste 🙏
Roseann
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Sillycat1957 got a reaction from Tom Galli in Durvalumab
Congratulations Tomm! I'm still here and kicking life around! One year after Durva. Last scan was in May, tumor still at 8mm so, yay! I come on here once in awhile to see what's happening, usually not much. Fall is just around the corner. It's great to be alive!
Namaste 🙏
Roseann
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Sillycat1957 got a reaction from Rower Michelle in Durvalumab
Congratulations Tomm! I'm still here and kicking life around! One year after Durva. Last scan was in May, tumor still at 8mm so, yay! I come on here once in awhile to see what's happening, usually not much. Fall is just around the corner. It's great to be alive!
Namaste 🙏
Roseann
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Sillycat1957 reacted to VickiP in Durvalumab
Thanks for the responses. Different immuno therapies for different situations. I will ask about magnesium.
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Sillycat1957 reacted to Barb1260 in Durvalumab
Exactly one year ago I had my 26th and last Imfinzi infusion. So far so good!!
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Sillycat1957 got a reaction from TerryB in Durvalumab
Hi there Terry B,
So happy to hear your on the mend. Our bodies do strange things to us while on Durva. I completed al 26 infusions, with a mirad of side effects. I did, however, call my oncologist whenever something didn't just seem right. I was always screened by the nurse first, which in my opinion was best, because they deal directly with us and could tell me better if I should be concerned. My Dr would then call me. With that being said I wish you well and continued luck on your Durva journey 🙏
Namaste
Roseann
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Sillycat1957 got a reaction from Tom Galli in Durvalumab
Hi there Terry B,
So happy to hear your on the mend. Our bodies do strange things to us while on Durva. I completed al 26 infusions, with a mirad of side effects. I did, however, call my oncologist whenever something didn't just seem right. I was always screened by the nurse first, which in my opinion was best, because they deal directly with us and could tell me better if I should be concerned. My Dr would then call me. With that being said I wish you well and continued luck on your Durva journey 🙏
Namaste
Roseann
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Sillycat1957 got a reaction from LexieCat in Durvalumab
Hi there Terry B,
So happy to hear your on the mend. Our bodies do strange things to us while on Durva. I completed al 26 infusions, with a mirad of side effects. I did, however, call my oncologist whenever something didn't just seem right. I was always screened by the nurse first, which in my opinion was best, because they deal directly with us and could tell me better if I should be concerned. My Dr would then call me. With that being said I wish you well and continued luck on your Durva journey 🙏
Namaste
Roseann
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Sillycat1957 reacted to Tomm in Durvalumab
SteveD..
more on PDL-1
PDL1 (Immunotherapy) Tests
What is a PDL1 test?
This test measures the amount of PDL1 on cancer cells. PDL1 is a protein that helps keep immune cells from attacking nonharmful cells in the body. Normally, the immune system fights foreign substances like viruses and bacteria, and not your own healthy cells. Some cancer cells have high amounts of PDL1. This allows the cancer cells to "trick" the immune system, and avoid being attacked as foreign, harmful substances.
If your cancer cells have a high amount of PDL1, you may benefit from a treatment called immunotherapy. Immunotherapy is a therapy that boosts your immune system to help it recognize and fight cancer cells. Immunotherapy has been shown to be very effective in treating certain types of cancers. It also tends to have fewer side effects than other cancer therapies.
Other names: programmed death-ligand 1, PD-LI, PDL-1 by immunohistochemistry (IHC)
What is it used for?
PDL1 testing is used to find out if you have a cancer that may benefit from immunotherapy
here is the link https://medlineplus.gov/lab-tests/pdl1-immunotherapy-tests/
and a joke... Atheism is a non-prophet organization
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Sillycat1957 reacted to GaryG in Durvalumab
Barb: great news indeed but maddening at the same time. Now if we manage to figure out how to asses the whole lung cancer population, for ALL immunotherapy drugs, it might increase our knowledge and improve the survival rate. It looks like we are so close but we rely solely on individual Pharma and their drive for profits. Why does a specific drug work for one patient and not another patient? That shouldn't be hard to figure out. If we combine all pharma results we should be able to target patients with the correct treatment instead of applying drugs based on a single clinical trial.
Thanks again.
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Sillycat1957 got a reaction from LouT in Durvalumab
Sounds good to me! Thanks for the article Barb, 👌
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Sillycat1957 got a reaction from Barb1260 in Durvalumab
Sounds good to me! Thanks for the article Barb, 👌