Doughnut

Hi to you all. I haven't been here in the longest time (to post) but I have checked in on you all from time to time. I doubt many of you will remember me but I've never forgotten the wonderful support that this board gave me when I so badly needed it. It's good to see so many familiar names still active here - Kasey, ShineladySue, Connie, Randy and so many more. I don't really know why I'm posting today. It's not a special anniversary or anything but it's been over 3 years now since Claire left us and I still miss her, every single day. She's left a hole in our lives that new friends can't fill, her total uniqueness, the way she just got me even if I was talking total nonsense, her honesty (bluntness,?? ) her kindness. I've been thinking about her a lot lately. I was showing some photos to a couple of newish friends who've never met her and they were like "wow, who's she"? An hour or more later I stopped talking about her but I don't think they were bored - I have stories about Claire that could keep one entertained for days. The fact that she was a dead ringer for a young Sharon Stone always attracted male interest but it was her fantastic personality that ensured everyone ended up loving her long term. I miss my friend, so very much. I read this particular forum sporadically but sometimes it's too much to bear, so much loss, so much grief. At the time I couldn't face posting anything about Tracy D but Kasey, if you're reading, I'm so sorry. You and Fred have had too much to deal with already. Well I shall sign off now. Please know that whilst I'm not necessarily always present I think of you all often. My heartfelt admiration continues for Katie and Rick, ably supported by the moderators. I simply don't know how you all manage this - emotionally as well as everything else. I do know though that this board is an amazingly valuable resource and is much appreciated by us all. Love to you all, D x

Aceking, I haven't been here in a long time and have no idea whether you will see this after all this while. I just wanted to say how sorry I am. I remember you and I exchanging the odd pm in the early days of our friends' battles. I know how painful it is to lose a really close friend to this hideous disease and I wish you well. Dee

Hi - I rarely post here anymore but still check in from time to time. Just to say to you that there are many, many long term SCLC survivors on this board. Cindy RN's over 5 years out from extensive SCLC if I remember right and she only seems to post sporadically because she's so busy leading her life. I've also just seen a post from Joan who's been absent for the same reason. There is definitely a time when it becomes normal. At the time I was active on this board people with SCLC were leaving because their lives were getting back to normal and they wanted to get on with them - I remember a woman called Sandy, I think - very active on here then met a fella and off she went. I have seen the very occasional post from her.

I came here today just to check on my LCSC friends as I think of you all so often. I was so very shocked to see this. Ry, I am devastated for you, I cannot think of anything else to say. I am so desperately sorry and wish you and your children all the very best at this awful time. Dee

Hi Kasey! I'm sorry there's no news of Cindi. I'm sure a few of us could do with a few drinks in her pub. No, I'm not a student. Those days are long behind me My new job isn't so new anymore and I can't believe you remembered that! I'm really well thank you but life you know, it just isn't the same. Never will be. I don't come here posting because I don't need support and I feel I have nothing to offer but I am a guest quite frequently as I can't forget about you all. I'm so glad you and Fred are doing well but I was very sorry to see your niece join the club nobody wants to be in. hi Tracy - we've not met but you have more cyber support than you know. Well, I'll toddle off now but you all remain in my thoughts and prayers. Dee

Hi everyone. I still lurk here and am so happy to see so many of my old friends doing so well. But, speaking of old friends, I haven't seen Cindi in forever. The last sort of time period I remember her being on here was when she moved close to another board member (I can't remember which one, sorry) and I don't think I've seen her since. Does anyone have any news?

I lurk here as a guest quite a bit still but I haven't seen Cindi O'h for the longest time. Where is she?

Oh no. I am so, so sorry to read this. Frank was one of those massively special members whose loss touches everybody profoundly. To his family - he was truly awesome (as you know)and my thoughts are with you at this time. I am so sorry.

My grand-mother was diagnosed with stage ii - not sure but think must have been iia - NSCLC when she was 68. She was re-staged to stage iv at 70 and died a month before she was 78 of a viral heart infection. She was pretty old and yet a long term survivor so i don't know what she's going to do to your figures/theories!

In some ways it seems like yesterday that I last spoke to Claire and in others it's like a hundred years since I heard her voice. It's been almost 10 months now and yet it still comes and goes in waves. I don't know how to truly accept that this isn't just a crazy scheme of hers and she's not in a teepee somewhere just checking out life from a different angle or something. I really, really miss my friend and I can't bear that she's not coming back and she's not going to ring and she's not going to....the list is endless. I know I've been rubbish at posting and supporting you all. Although I have had regular computer access for some time and I check here often I can't find the heart to post. I came here once after a long time and found out about so many losses - Addie, Jen, Sue's Mike - it was too much and I disappeared again. Most days I try to concentrate on the positives but today I'm down and I'm thinking of all of you who have lost and am sending my hugs and my hope. Dee

Relieved to hear it's not the heart but still, put the chicken down! Hope you're feeling better soon - the bar's empty. Not saying it was Ry but.....

Carleen, I am so very sorry to read this. Dee.

Hi there. I too and from England and like Jennie will be happy to do what I can to help. My friend had SCLC which is very different from your Dad's so I don't expect he'll have the same treatments as she did. There is hope you know and this is a good place to find the real stories that show you that. the time difference is also something that you may find helpful. I've come on here in the wee small hours feeling frightened and lonely and our cousins across the pond have been up and only too willing to chat. Let us know how you get on. Dee

Welcome to you Siobhan. As you can see I'm English -there's all sorts here (literally ) because it's the best board of its kind. All of us will have done that late night trawling of sites and yet we're all here and it's for a very good reason. Best of luck to you and yours Dee Ps don't know if you're a football fan but I'm kind of hoping you beat Croatia today and it's not really like us to support you at sport!

but hello if you do. I haven't posted in the longest time after a change of employment last summer stopped my internet access. I have sporadic access now and have read here occasinally but I haven't had the heart to post. Just to let you know that my best friend Claire died on March 17th. She went from NED to very sick quickly. I don't think she ever did have lupus - I think it was an early warning that the beast was back. I came here a few weeks ago to post this but then found out about Jen, Addie and so many others that I couldn't face it. On the otherhand there are so many of you doing so well. I think of you all a lot and often envisage Cindi down that pub. Take care everyone. Dee.