Jump to content

Kate7617

Members
  • Posts

    66
  • Joined

  • Last visited

Profile Information

  • City
    Holbrook
  • US State (if applicable)
    NEW YORK
  • Country
    1
  • Gender
    Female
  • Status
    Lung cancer patient/survivor
  • Interests
    Living life to the fullest and sharing and caring about each other as we face challenges, crochet, grandchildren, reading. Now making Rosary beads and bracelets with a friend.

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Has anyone been diagnosed and being treated for femur bone mets/lungcancer? I did have 10 radiation treatments that was in July, please let me know how you are doing and if you have been given treatments, thank you. Kate7617
  2. As you probably know ( in another message, my PET CT scan was clear. Good news for that. Just wanted to thank you for reaching out to me, it is certainly nice to know we are all on the same team! I pray that all stay well during this pandemic and will pray that it will end quickly! Be well! Kate
  3. Thank you very much! No I wasn't able to do 26 treatments of Durva, I did 5, that was all my body was able to tolerate! The great news is NED after one year, only scar tissue there. So 6 months and then another test. meanwhile, at home day 7 Cov 19 has decided to dictate my life, hey I am all for self isolation when needed. I love my house, and can always find ways to keep me satisified. Hey, we pay so much for the roof over our heads, now it's time to enjoy it. Be well, my cancer buddies! Kate
  4. Great news! NED is on our side, keep on keeping on and enjoy your loved ones daily! Kate
  5. Please check your PDL1 and make sure no auto immune disease is in family history, being your own advocate is worth it's weight in gold! Good luck and hoping for a NED for you! Wash hands frequently and don't touch your face is my advise for all of us! Kate
  6. Hey and sounds like a plan! Being in the house most days with compromised lungs is not exactly what I hoped for, but it is what it is! I'm in!
  7. Well I do not know how much the Durva came into play for me, I only had 5 infusions of it, and that sent my health into a downward spiral, but happy day today clear scan and I am on cloud 9! Thank you for all the good vibes and words of encouragement, I am grateful, Kate
  8. No uptake= No cancer, as far as I was told. My PET on Wednesday, great results, clear, so I'm good for another 6 months check with PET. So I am going to live it up! At home, with my compromised lungs until the Corona virus is in the rear view mirror! So now is clear= NED? Thanks Kate
  9. Hmm, Barb well to see if Durva is actually killing cancer, I honestly believe that a PET wouldn't give that information. What it will show ( as you are aware of) is any uptake. In fact Durva has not gotten that far to tell on a PET. So the CT will show any new tumors ( God forbid) so that is where they leave it, unfortunately. And you are still tolerating the Durva walking 3 miles so I am saying Hip Hip Hooray, and lets start another day!!! The best always, Kate
  10. Hello to all my buddies out there! Certainly wish that some of you were in my neck of the woods, and if you may be certainly let me know! I had my PET yesterday, get results tomorrow, with this "virus" that is around I was sitting on the fence as whether or not to go, surely is scary while my immune system is not functioning properly and my lungs are compromised. Staying in the house most days, thank God that hubby goes to stores and whatever we need in the house. It certainly isn't the best case scenario having lung cancer and this virus around. The facility that I went for my PET assured me that they disinfected all the chairs and what not , how is everyone else holding up? Please let me know, and if you can share any tips to stay "healthy" until this virus passes, I am all ears! Kate
  11. Fight for your rights! And don't quit, you are entitled to a certain amount of PET scans while battling cancer. FIGHT FIGHT FIGHT!!!!
  12. Hi Polly, something that I learned along the way, check what your PDL1 is, mine was negative, also make sure that auto immune disease does not run in family history. I had a very bad experience with durva, and right from the start had very very bad side effects, also with breathing. I do pray that the Dr that is treating you is on top and has your complete recovery in mind, unfortunately I didn't have that experience and now suffer from the after effects, I am not trying to scare you, however you need to be your own advocate, I certainly wish you every success and hoping that you are breathing a little better now! You have had success with chemo radiation and that is TERRIFIC! All I know is that Durva is not suited for everyone. Also check to see if you have bio markers. You have to be aware of all that is available to you. Prayers are coming to you now from me! Kate
  13. Thank you so much to Eagle 13 and to DFK, inspiring and uplifting messages, needless to say! I believe I had a bio marker EFGR and it is no, if there be any others I am all ears! And thank you Eagle 13! Hey its hard enough to be diagnosed with stage 3b lung cancer, then to have Doctors that tell you....We aren't expecting a miracle, and looks like you have one or two years to live was really the worse thing a Dr could possibly say! Well I am a firey red head ( back in day) lol and now I got my Irish up again, and with God willing we will show those former Drs Just what I am made of! I'm not going to worry, worry is useless, and I continue to be grateful for each day! You are all in my prayers and with all the prayers coming around I can't lose! Thank you again, and I will let you all know what happens with PET SCAN when I know! Kate7617
  14. Kate7617

    Scared

    Hang in there and yes it is scary!! We all know that feeling. As much as it is said, I will say it again, One day at a time being hopeful that is all we can do. I wish I could hug you and tell you everything will be ok, but we don't know bottom line. Let's all pray for each other and Let God take the Wheel! He knows best!
  15. Hi everyone! Been a while wanted to let you know Monday I get a PET SCAN and follow up with Onco on March 11th, scary times for me, needless to say. The Durvalumab didn't work for me, as I said I got Hashimoto thyroditidis heart problems, skin basel cell cancer, my spine is degenerated, had pnemonuitis so basically my health is not all that. It truly sucks, because my former Doc wouldn't listen to me when I said what was happening. I wish I had happier news, but I am very happy that some of you guys it is working for! I could certainly use some encouragement now, I did sign up for respiratory therapy, so that is covered by insurance. I am going to wait and see how this test goes on Monday! Keep on keeping on, like I do against the odds, hey all things are possible with God!
×
×
  • Create New...