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JCM

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  1. Like
    JCM got a reaction from JamesB in Finished last round of chemo and rang the 🔔   
    Of course a patient with cancer is anxious but that has nothing to do with it! I have worried that my well documented history of anxiety would muddy the waters and it has. Stand your ground! This is physiological- and yes, there is an emotional component but why wouldn’t there be? This should not be used against a patient with cancer. It is hard enough to deal without the added pressure of having to suppress natural, situational feelings! I’m so sorry 😐 you have to go through this. 
  2. Thanks
    JCM reacted to LouT in Question for my fellow survivors   
    Robb,
    You don't really "say it like it is", but rather you "say it like you see it".  Yes, none of us is immortal, but you are way offtrack in your pessimistic view of life.  Frankly, I wonder why you bother coming to a forum where people give each other hope and support.  It seems your time here is wasted and, frankly, for people that come here for support, understanding and hope you are anything but a positive contributor of anything they need.  My recommendation would be that you find a forum more to your philosophy and liking where your views would be both welcomed and appreciated.  I, personally, am finding your posts to be counter-productive to the mission of this forum.
    Let me repeat, I don't believe we are immortal, but many here are living good lives, filled with love, family and friends because of the treatments, support and hope brought to their lives.  If you don't believe you can be a contributor in that sense please find a place more to your liking.
    Lou
  3. Like
    JCM reacted to Roz in Happy Holidays   
    Wishing everyone a happy holiday season and a new year filled with good health!!
     
    Best, 
    Ro
  4. Like
    JCM reacted to Roz in #WeekendWisdom: How do you manage the superficial side effects of treatment?   
    You just have to wear your scars proud!!
     
  5. Like
    JCM reacted to BridgetO in Happy Thanksgiving!   
    I'm thankful to be alive, to be NED on 3 primary cancers, and to have a good quality of life.
  6. Like
    JCM reacted to Niess in What date do people use   
    Congrats on the news Lisa A. I wish you many wonderful days ahead , that's such great news. To JCM, everyone here is supportive, PERIOD. If we were all happy and care free and nothing was screwing with our lives, then this forum probably wouldn't be here. LET IT FLY. I may be new but I've already learned so much from other LC stories, experiences (both good and bad) and the responses to the posts. 
     
  7. Like
    JCM got a reaction from Niess in What date do people use   
    I don’t feel I can call myself a survivor because I’m still being actively surveyed every 8 weeks for slightly enlarging nodules that can be the result of inflammation vs. recurrence at stage 3B following lobectomy and prior chemo/radiation. I think about the possibility of dying so much that I cannot think of myself as a survivor. If I’m fortunate enough to get an NED diagnosis I will feel like a survivor...even if it comes back. I wish I could get back my positive attitude but I’m feeling a bit weary at this point. I hope it’s okay to not express 100 percent positivity on this site.
    ❤️
    Jane CM
     
     
  8. Thanks
    JCM reacted to Rower Michelle in What date do people use   
    Perfectly normal Jane...  totally ok to say what you are thinking. It’s probably easier to say these things to us than friends or family. 
     
    For me the likelihood of NED is probably not realistic so I go with the date of my diagnosis too.  Somewhere in the archives of this forum there was a similar discussion that reflected a quote that stayed with me “you are a survivor the moment you’re told you have this disease and don’t drop dead from the news”.   (Or something along those lines).  
     
    Curt is right- it’s your choice. Whatever works. There’s really no rule book on this since we are the new face of lung cancer.  No one really ever talked about survivorship before.  
     
    Rock on Lisa!  
    Michelle
  9. Like
    JCM got a reaction from LisaA in What date do people use   
    I don’t feel I can call myself a survivor because I’m still being actively surveyed every 8 weeks for slightly enlarging nodules that can be the result of inflammation vs. recurrence at stage 3B following lobectomy and prior chemo/radiation. I think about the possibility of dying so much that I cannot think of myself as a survivor. If I’m fortunate enough to get an NED diagnosis I will feel like a survivor...even if it comes back. I wish I could get back my positive attitude but I’m feeling a bit weary at this point. I hope it’s okay to not express 100 percent positivity on this site.
    ❤️
    Jane CM
     
     
  10. Like
    JCM got a reaction from Tom Galli in Esophagus issues post radiation   
    Esophagitis update:
    Met with radonc today and he said it was very unusual for me to have this lingering 4 months post radiation. His reasoning is mine was a low dose radiation because it was presurgical in the plan. He was very surprised that I’m still having trouble swallowing and coughing when trying to eat solid food.
    What he suggested is an upper endoscopy to get a look at what is going on. I just have to figure out how to fit it in since next week is my PFT and follow up with pulmonologist and the following week a CT chest and abdominal/pelvic scan. I am on active surveillance for a possible recurrence because of new enlarging nodules that are small but growing - largest is 6mm. My pulmonologist thinks they might be inflammatory and if there’s an inflammatory response going on in my esophagus and I’m coughing my brains out, well maybe those nodules are not cancerous. If they are it represents metastasis -  cancer that has entered my bloodstream. Fingers crossed they’re due to inflammation!
    Trying to stay positive but also feel compelled to prepare for worst. Not easy to balance these opposing but authentic emotions.
    jane
  11. Like
    JCM got a reaction from Tom Galli in Esophagus issues post radiation   
    Thank you both for your replies. I am meeting with the radiation onc tomorrow to discuss and will  keep you posted. 
    Jane
  12. Like
    JCM got a reaction from Susan Cornett in The results are in...   
    So happy for you, Susan! A year of NED is something to celebrate!
  13. Like
    JCM got a reaction from Tom Galli in The results are in...   
    So happy for you, Susan! A year of NED is something to celebrate!
  14. Like
    JCM got a reaction from Tom Galli in Coughing/chest pain resolved once immunotherapy is started?   
    Katum,
    I am inspired by your words. Especially that “giving up isn’t an option.” I feel terrible for your mom and what she is going through. I also think of my own daughter who is having to go through  what you are experiencing by having a mom sick with lung cancer.
    I agree that symptomatic relief (palliative care) is most important. I take cough medicine with a codeine and that calms my coughing symptoms at night and allows me to rest. If I take it during the day it would make me sleepy but if I was suffering as much as your mom I would do it.
    I hope if I get to the point where I want to be out of pain and go peacefully that my family will support me and let me go. My worst fear about dying is leaving my daughter if I decide that enough is enough.
    Sending prayers to all of you,
    Jane (JCM)
  15. Like
    JCM got a reaction from Katum31 in Coughing/chest pain resolved once immunotherapy is started?   
    Katum,
    I am inspired by your words. Especially that “giving up isn’t an option.” I feel terrible for your mom and what she is going through. I also think of my own daughter who is having to go through  what you are experiencing by having a mom sick with lung cancer.
    I agree that symptomatic relief (palliative care) is most important. I take cough medicine with a codeine and that calms my coughing symptoms at night and allows me to rest. If I take it during the day it would make me sleepy but if I was suffering as much as your mom I would do it.
    I hope if I get to the point where I want to be out of pain and go peacefully that my family will support me and let me go. My worst fear about dying is leaving my daughter if I decide that enough is enough.
    Sending prayers to all of you,
    Jane (JCM)
  16. Thanks
    JCM reacted to Tom Galli in Small nodules (6mm or less) following surgery   
    JCM,
    My oncologist often switches up my CTs from chest to chest and abdomen. I believe he is just being cautious. So I wouldn’t know what he is scouting for. 
    I think a nap is a good idea. 
    Stay the course. 
    Tom
  17. Thanks
    JCM reacted to Donna G in Chemo before and after lobectomy   
    hi Jane.  I was Stage 3B when I was diagnosed in Dec. 1997.   My Doctor 's plan was chemo and radiation , If the tumor shrunk,
    which it did, I would have surgery followed by more chemo.   I have been cancer free since then , 21 years . 
    Best wishes to you.  I hope a new plan will work for you.
     
    Donna G
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