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DarlaK

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Everything posted by DarlaK

  1. Hello to all, There is a lot of information regarding high heart rate in cancer patients after chemo and radiation. I had mentioned this high heart rate concern in an earlier general post but not a lot of replies so I though I was the rare case but now after some research I know it is not true. This can happen with just chemo alone. http://www.cancer.ca/en/cancer-information/cancer-type/childhood-cancer-information/watching-for-late-effects/heart-problems/?region=ab I do not currently have blood pressure issues for now but after my 1st chemo I became dehydrated and all of the sudden my heart rate increased and anxiety really set in. I was very concerned and after discussing this issue with my ONC I had a heart Echo done A+ heart is healthy. Then after completing my 2nd infusion just two weeks ago Cisplatin/Paclitaxel now I have a higher heart rate at rest 80's - 90's and 120's after exertion. I feel that my ONC thinks this is all from anxiety but I now know after reading this may not be true... We all have different stories but its is great to know we are all not alone in this Darla
  2. Hi DFK, I thanks for all this info. The ENT Dr is not the most forcoming with info and there is no way to actually talk to him. It really does ease my mind and believe the reason they are waiting is to get me through the next 3 chemo infusions first. I have not been sleeping during all of this so any tips for sleep and staying so positive during this? Hi Sillycat, that IS great news! I am not taking Durvalumab - chemo for now but I read DFK on vocal cords so just looking for support in this whole treatment journey. I am trying to be positive but it is so hard. The anxiety of this cancer crap disease is overwhelming. So I say hooray to all of you! Darla
  3. Hi DFK, Yes please keep updating me on this part of your journey - I did get a CT of the throat and it had showed a slightly displaced arytenoid that my ENT surgically tried to put back into place two weeks prior to the start of my 1st chemo - not sure if that even helped but I do talk a bit better. I also have Minnie Mouse voice but when I talk low and quite it seems to help with the pain. I think my ENT DR and mostly the Oncologist are just trying to keep me focused on getting through the 3 more chemo infusions and don't really understand the whole aspiration of food/liquid to your lungs. I do experience daily aspirations with water and sometimes food and is quite painful and unnerving. I also during the day if I use my voice a lot that I get a swallowing a marble feeling. Please let me know what you can when you can. Thanks! Good luck to you with the Tuesday ENT pre-op appt. Darla
  4. Hello DFK, I was also been diagnosed with Left vocal cord paralysis/dysphonia after my left upper lobectomy back in Sept. I believe from the surgery report that it is from the thoracic surgeon removing a suspicious lymph node that was very close next to the left laryngeal nerve. I wanted to know what they are going to do in the surgery exactly that will fix it? Also do you have a night and day dry throat from the paralysis? I really have no one that i can discuss this issue with so please forgive me but my vocal cord paralysis/nerve is very painful and constant. I was prescribed gabapentin every night just so I can try to get some sleep. My ENT DR and Oncologist are just saying that after chemo they will try to fix this issue but i'm not sure how... Thanks Darla
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