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    family, friends and maintaining health
  1. amaazing and I have more orders coming )
  2. OMG, I'm so sad. Tears are flowing as I try to express myself. Franks family should be so proud of him as we are here, as well as anyone who's ever met him. He certainly won't be forgotten by me and the fight he fought and tonight I will raise a glass of beer with a choc donut in memory of Frank. I would love anyone who would like to join in,, let me know what time would be good!!!!! Joan
  3. My prayers to a wonderful, caring, and loving familly that doesnt deserve to be going through such heartache. Joan
  4. Hi loretta. I just finiished 10 rounds of WBR and have been on decadron for about 3 weeks. We just started to lowerr my decadron to wean me off. I know it is very important to go off gradually. The decadron is a mixed sword. You feel great at first, but there are unpleasant side effects that can develop and you need to get off as soon as possible. Don't know about the freezing, but it is awfully cold in New york lately. Best of luck with everything.
  5. Your post was great. I justhave to disagree with one aspect. I really don't think I deserve Lung Cancer because I did start to smoke as a child (17 or so). Off and on until I realized that if I didn't stop it would kill me. At that time they were still saying "doctors prefer camel". I never worked so hard at anytime. When I stopped smoking I was convinced that I had saved my life and sent another 20 years happily along my way, stopping whoever I could from smoking. Smoking is not the only cause of LC. Totally believe in second, third, and fifth opinions, but if you are addicted by BIG TOBACACCo, I think we should be going after them. What can we do on that front to save more lives. I say we wipe them out!!!! Joan
  6. Lots of prayers going out to you all. I can't eveen see my computer ...lots of tears. Joan
  7. Frank, I haven't been on for a while, fighting my own fight. When I saw your post this morning, I got sick. What you're doing is amazing and invauable. Thanks and i wish you all the luck in the world and NO pain. Joan
  8. joanie55


    Kasey, I'm truely sorry for Eddie's loss. My sincere consolences to his family and also to you and Fred. Joan
  9. joanie55

    Waiting to exhale

    Ooooo Kaseey, What can I say. I'm Thrilled at this news and so totally ditto Maryann, WOOOOOOOOOOOOOOOOOO Many more Neds to come. Joan
  10. joanie55


    Ernie, What wonderful news and what a generous and amazing gift you will be giving. You're a great guy. Good luck Joan
  11. Missy, SOOOOOOOOO happy for you. Joan
  12. Nick, Reading your post brought tears to my eyes. As a mom I totally relate to how you feel. My feeling is I will always be with my loved ones in one form or another. There is no other way. I love my future grandchildren now as well as the one I've been blessed to meet so far. Really wishing this amazing gift comes to you. You deserve it and your mom will certainly know and be smiling. Keep us posted!!
  13. EMEND worked wonders for me for chemo. The only problem is that it is quite expensive and I would see if it is covered by insurance. You only need 3 pills, one the day before chemo, the day of and the day after. After chemo I used compazine which was good, but not EMEND. But, I think everyone may react differently to different meds, but definitely worth looking into. Joan
  14. I was on Carbo/Taxol/Avastin from day one. I was the first one at Sloan to be put on Avastin for lung cancer, actually before it was approved for lung. After I finished my carbo/taxol, I stayed on Avastin until I had a slight progression that was taken care of with radiation. Wonderful drug. Absolutely no side effects. . Joan best to you.
  15. I know how hard it is to drink water. I became dehydrated twice. You can try ices, jello, ensure, carnation liquid breakfast drink, gateraid, etc. Also, as far as eating, my doctor says when you're going through chemo, all bets are off. Whatever you feel like eating , eat.
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