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joanie55

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Posts posted by joanie55

  1. I would find out how much Disability will pay if you couldn't work and see what your shortage would be. I'd sit down and go over all expenses to see where you could cut back to make it work. Any money you have could also be used (without risk to principal) to throw off income.

    Joan

  2. Hi Gin,

    I totally understand you're wanting to plan. I am also a planner, by profession, with stage IV lung cancer.

    Unortunately, I don't believe there is any set course of action that LC takes. It seems that everyone is very individual. What I did was, as soon as I could, after my dx, was to set up folders for each of my family members, husband, son and daughter that held all pertinent financial info for each of them. I then went through everything with them. I also taught my husband how to do the bills (he had never done them).

    As a planner, I definitely felt much better after doing this. I still find that there are little things that I am constantly telling my husband about.

    Also, you should understand exactly what your insurance covers and how it works.

    Have you applied to Government Disability?

    At the beginning, this was very uncomfortable for my family, to hear me talking about these things, as they felt I'd be here forever. I just told them, nobody is ever here forever and everyone should have a contingency plan.

    Hope you continue to feel as well as you do and I hope this helps a little.

    Joan

  3. My tumor was only 1.1 cm., but unfortunately had metastised. I was told size had nothing to do with whether or not it would or could spread.

    On my fist visit to the onc, I met a women, about my age, with a 10 cm. tumor that had not spread.

    ????

    If only we knew.

    Joan

  4. Hi Amanda,

    Welcome to the site. I too had 50% shrinkage after chemo and I'm still here fighting like mad after 15 months.

    This is a tough disease that can get you down if you let it. Try to stay positive. It's just wonderful that you can spend so much time with your dad. I just became a grandma and seeing my granddaughter is the best medicine I can think of.

    Best wishes to you all and we're all here to help.

    Joan

  5. I don't have one YET. Every time I go, I'm waiting for them to suggest it as my veins are shot.

    They do manage to all get my needle in on the first try, so I've been lucky, after the hot towels, etc.

    I wouldn't resist the port, as I've heard many very good things from members of the board, whom I totally trust. And, as Maryann says, how do you know this is your last chemo? good point.

  6. Can I have a tissue someone? I am just so touched by the love you all have for each other. I think a lot about the fact, that when you know what you're situation is that in a way its a good thing to be able to tell the ones you love how you feel.

    Some people never get that chance.

    Wishing you all the best.

    Joan

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